ausEE Inc.

Call Website Contact the business

ausEE Inc. is Australia’s national support and patient advocacy organisation for people affected by eosinophilic diseases. We extend our support to New Zealand.

We also support people who tube feed, and their families and carers, regardless of diagnosis. Founded in 2009, ausEE Inc. is an Australia wide health promotion charity, registered with the Australian Charities and Not-for-profits Commission and endorsed by the Australian Taxation Office as a deductible gift recipient. ausEE’s mission is to improve the lives of those affected by eosinophilic diseases through providing support, evidence-based information, resources, advocacy and by campaigning to raise awareness and funds for further research in Australia. Our objectives are:

• To improve the quality of life for people with eosinophilic diseases and other associated conditions.
• To help and support anyone diagnosed with or caring for someone with an eosinophilic disease and other associated conditions.
• To be a reliable and trusted source of information on eosinophilic diseases and other associated conditions.
• To develop, distribute and promote education, information and resources on eosinophilic diseases and other associated conditions.
• To create greater public awareness and understanding of eosinophilic diseases and other associated conditions and their impact.
• To engage in advocacy on behalf of people living with eosinophilic diseases and other associated conditions.
• To encourage, initiate, assist and support research into eosinophilic diseases and other associated conditions.
• To collaborate, partner and otherwise join with other persons or organisations, including research institutions and commercial entities in order to advance the objectives.
• To raise funds to enable the furtherance of these objectives. The content on our social media is not influenced by our supporters or sponsors and a link to a website or external contact does not imply that it is endorsed by ausEE Inc. The information we provide and share, and any related links is for general information and support purposes only and is not intended as a substitute for professional medical advice from your doctor or other health professional.

30/10/2026

Meet Emma Osland, a member of the research team undertaking a study looking at oral health in long-term enteral feeding. In this video, Emma shares information about the study and invites eligible people to take part.

Researchers from the Royal Brisbane and Women’s Hospital and University of Queensland are undertaking a study seeking to better understand oral health for people who are tube fed and to identify ways healthcare services can provide better support in the future.

You may be eligible to take part if you or the person you care for are:
• 18 years or older,
• have been receiving tube feeding outside of hospital for at least three months, and
• live in Australia.

Taking part involves completing a one-off on-line or paper-based questionnaire that will take about 20-30mins to complete.

If you’re interested in taking part more information and the online survey can be found at https://redcap.link/tubefeedoralhealth. To receive a paper copy of the study materials or for any questions you have about the study, you are invited to contact [email protected]

29/10/2026

We’re hosting a Virtual Support Group Chat for parents and carers of children with an EGID, including eosinophilic oesophagitis (EoE).

🗓 Tuesday, 10 November, 7pm AEST / 8pm AEDT

Caring for a child with an eosinophilic gastrointestinal disease (EGID), including EoE, can bring challenges that others may not always understand. Our group chats offer a casual, welcoming space to connect with others who may understand similar experiences, share stories, ask questions and support one another.

Whether your child has been recently diagnosed or has been living with an EGID for years, you’re welcome to join us.

Please register your email address to receive the Zoom meeting details: https://ausee.org/support/virtualsupportgroupform/

28/10/2026

Halloween is this Saturday! 🎃

For families managing eosinophilic diseases, food allergies or dietary restrictions, Halloween can come with some extra considerations.

If you're planning to take part in trick-or-treating, there are ways to help make the experience more inclusive for children who can't eat all the treats on offer.

Our website has some handy tips to help families navigate Halloween and make the experience more enjoyable for everyone.

Read our Tips for Halloween: https://www.ausee.org/information/tipsforhalloween/

26/10/2026

Professor Sharon Carey’s research team at the University of Sydney is conducting a study to better understand nutrition needs and preferred treatment options for people who experience gastrointestinal symptoms affecting oral nutrition intake alongside a diagnosis of:

• Ehlers-Danlos Syndrome (EDS)
• Postural Orthostatic Tachycardia Syndrome (POTS)
• Mast Cell Activation Syndrome (MCAS)

We are also seeking input from health professionals who provide care to people with these conditions.

Who can take part?

People with lived experience: Adults (18+) diagnosed with EDS, POTS and/or MCAS who experience gastrointestinal symptoms that impact their nutrition intake.

Health professionals: Clinicians with experience supporting people with the above conditions and symptoms.

What’s involved?

• A brief 5-minute survey about your background and experience
• A follow-up conversation with a research team member to answer any questions
• If you choose to participate, a 60-minute online interview (via Microsoft Teams) discussing your experiences, knowledge, and perspectives on nutrition care
• Interviews are audio-recorded with your consent
• No financial reimbursement is offered

Interested in participating?
Head to https://redcap.sydney.edu.au/surveys/?s=JAYE4EXXY3RLY97L or scan the QR code

For questions, please contact: Professor Sharon Carey Discipline of Nutrition and Dietetics, School of Nursing Faculty of Medicine and Health, University of Sydney Email: [email protected] Phone: +61 2 9515 7863

Ethics approval: University of Sydney Human Research Ethics Committee (HREC) 2026/HE001102

22/10/2026

Helping children understand what to expect in hospital or learn about tube feeding can make it easier for families to start conversations in an age-appropriate way.

Townsville mum, author and disability advocate Casey Vinen has created five children’s books to help. Her latest book, The Hospital That Helps, uses warm, reassuring language to help young children understand hospital visits and procedures, and feel more comfortable about what to expect.

Casey has also written four books about PEG feeding, helping children, siblings and classroom communities better understand tube feeding and encouraging awareness and inclusion.

All five books are available as free read-aloud videos on YouTube, providing an accessible way for families, schools, childcare centres and healthcare professionals to share these stories with children.

📚 Explore Casey’s books on Amazon: https://www.amazon.com.au/stores/Casey-Vinen/author/B0GNMSD16F

▶️ Watch the free read-aloud videos on YouTube: https://www.youtube.com/-s9h

21/10/2026

The latest Play For Purpose raffle offers the chance to win a $300,000 first prize pack!

The first prize pack features a Toyota LandCruiser Sahara valued at $150,000, plus $150,000 in gold bullion.

There’s also a bonus draw! Every ticket purchased by 11.59pm AEST on Thursday 22 October will automatically enter you into the draw to win a $2,500 Flight Centre voucher, as well as the Early Bird and Major Prize Draws.

Tickets are just $10, and every ticket purchased helps raise funds for ausEE.

Thank you to everyone who supported us in the last raffle, which raised $574.💜

Get your tickets here: https://www.playforpurpose.com.au/ausee

20/10/2026

Today is International Mastocytosis and Mast Cell Diseases Day.

This year's theme, Unnoticed. Unmistakable., shines a light on the realities of living with a mast cell activation disorder (MCAD), often invisible to others but unmistakable to those living with it.

Throughout today, TAMS has been sharing the faces and words of people from the TAMS community who have generously opened up about their experiences. Behind every face is a person, a family, a story and a life that deserves to be seen, heard and understood.

We’re pleased to support TAMS in raising awareness and recognising the people and families in our communities affected by these conditions.

We encourage you to visit the TAMS. The Australasian MCAD Society. page to read the stories being shared today.

🌐 Learn more: https://mastocytosis.org.au/

18/10/2026

We are pleased to share that ausEE Inc. has awarded grant funding of $10,000 to Associate Professor Usha Krishnan, Dr Steven Leach and Dr Michael Coffey from UNSW Sydney and Sydney Children’s Hospital, as a contribution to their research project titled ‘Identifying the oesophageal microbiome associated with Eosinophilic Oesophagitis in children with Oesophageal Atresia’.

The aim of this study is to identify alterations in the oesophageal microbiome that may be associated with an increased risk for Eosinophilic Oesophagitis (EoE) in children and adolescents with Oesophageal Atresia (OA). Studying the microbiome in OA patients with EoE will also help us understand the pathophysiology of EoE in all patients and, in turn, could lead to optimised individualised treatment and improved outcomes.

The support of our donors and participants in our annual Top 8 Challenge fundraising campaign helps make research projects like this possible.

If you’d like to help us support more research, please consider making a tax-deductible donation to the ausEE Medical Research Fund: https://www.givenow.com.au/auseemrf

16/10/2026

Getting ready for Halloween? 🎃 If you are participating this year, a little planning can help make it more enjoyable for families navigating dietary restrictions and food allergies.

Visit our Tips for Halloween for ideas to help you prepare: https://www.ausee.org/information/tipsforhalloween/

Looking for a fun Halloween activity? 👻 Why not decorate a spooky gingerbread house? Gingerbread Folk offers vegan and nut-free kits, with a gluten-free option available for the same price. You’ll receive 5% off your order, and 20% of your purchase will go towards supporting ausEE.

Order your kit here: https://www.gingerbreadfolk.com.au/discount/AUSEE

16/10/2026

A cough lasting more than 8 weeks in adults or 4 weeks in children is considered a chronic cough.

Chronic cough can have different causes and may be associated with conditions such as asthma, sinusitis, gastro-oesophageal reflux and eosinophilic bronchitis. For some people, it persists even after underlying conditions have been investigated and treated.

Recognising chronic cough and its impact can help improve understanding, diagnosis and care.

As a member of the Global Allergy & Airways Patient Platform (GAAPP), ausEE supports this year's World Chronic Cough Day campaign.

Find out more: www.chroniccough.gaapp.org

For Australian information about chronic cough, including when to speak with your GP, visit Lung Foundation Australia: https://lungfoundation.com.au/protect-your-lungs/signs-symptoms/chronic-cough/

Address

PO Box 9923, Frenchville
Rockhampton, QLD
4701

Telephone

+611300923043

Website

https://www.ausee.org/

Alerts

Be the first to know and let us send you an email when ausEE Inc. posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.