Thyroid Federation International

Thyroid Federation International THYROID FEDERATION INTERNATIONAL Thyroid Federation International (TFI) is an umbrella organization for thyroid patient organizations all over the world, promoting awareness and understanding of thyroid disorders, providing information and promoting education and research.

President : Ashok Bhaseen, Canada
Secretary : Beate Bartès, France
Treasurer : Marion Hamers - Van den Boer, Netherlands

President : Ashok Bhaseen, Canada
Secretary : Beate Bartès, France
Treasurer : Marion Hamers - Van den Boer, Netherlands

Operating as usual

Did you know that in pregnancy thyroid hormone production increases by around 50%?* While symptoms of thyroid disease of...
11/23/2021

Did you know that in pregnancy thyroid hormone production increases by around 50%?* While symptoms of thyroid disease often mimic common symptoms of pregnancy, you should consult with your doctor if you experience any of these:
Symptoms of hypothyroidism: fatigue, constipation, weight gain, cold intolerance, dry skin, puffy face, slower heart rate. Women with pre-existing hypothyroidism before pregnancy have an increased demand for thyroid hormones during pregnancy which increases with the progression of pregnancy.
Symptoms of hyperthyroidism: palpitations, excessive sweating, heat intolerance, anxiety, insomnia, weight loss, and tremors.*
Remember: It is essential to check thyroid function during pregnancy. Untreated hypothyroidism or hyperthyroidism may lead to serious implications for both the mother and the baby.

*Springer D, Jiskra J, Limanova Z, Zima T, Potlukova E. Thyroid in pregnancy: From physiology to screening. Crit Rev Clin Lab Sci. 2017;54(2):102-116.

#pregnancy #pregnant #thyroidhealth #hyperthyroid #hypothyroid #thyroid #thyroidproblems #hypothyroidism #hyperthyroidism #thyroidtreatment #thyroiddisease #endocrinology #bewell #livewell #behealthy #pregnantwomen

Did you know that in pregnancy thyroid hormone production increases by around 50%?* While symptoms of thyroid disease often mimic common symptoms of pregnancy, you should consult with your doctor if you experience any of these:
Symptoms of hypothyroidism: fatigue, constipation, weight gain, cold intolerance, dry skin, puffy face, slower heart rate. Women with pre-existing hypothyroidism before pregnancy have an increased demand for thyroid hormones during pregnancy which increases with the progression of pregnancy.
Symptoms of hyperthyroidism: palpitations, excessive sweating, heat intolerance, anxiety, insomnia, weight loss, and tremors.*
Remember: It is essential to check thyroid function during pregnancy. Untreated hypothyroidism or hyperthyroidism may lead to serious implications for both the mother and the baby.

*Springer D, Jiskra J, Limanova Z, Zima T, Potlukova E. Thyroid in pregnancy: From physiology to screening. Crit Rev Clin Lab Sci. 2017;54(2):102-116.

#pregnancy #pregnant #thyroidhealth #hyperthyroid #hypothyroid #thyroid #thyroidproblems #hypothyroidism #hyperthyroidism #thyroidtreatment #thyroiddisease #endocrinology #bewell #livewell #behealthy #pregnantwomen

The second annual Thyroid Eye Disease (TED) Awareness Week* aims to raise awareness of this vision-threatening rare auto...
11/16/2021

The second annual Thyroid Eye Disease (TED) Awareness Week* aims to raise awareness of this vision-threatening rare autoimmune disease. As this is a progressive disease, early diagnosis and treatment are essential.
Remember:
1. Up to 50% of people living with Graves’ disease may develop Thyroid Eye Disease, but it is a separate disease that can occur even without the presence of Graves’ disease and requires separate treatment.**
2. Patients with Graves’ disease or other thyroid conditions, it’s important to pay close attention to your eyes.
3. Symptoms:
- eye redness, grittiness, swelling, and pain,
- light sensitivity,
- eye-bulging,
- double vision.
4. At the first sign of any changes, consult with an oculoplastic surgeon or neuro-ophthalmologist.
5. If not treated early, TED can cause serious damage to the vision and the appearance of the eyes.

*Thyroid Eye Disease (TED) Awareness Week is established through a collaboration among Horizon Therapeutics and the American Autoimmune Related Diseases Association (AARDA), the Alliance for Eye and Vision Research (AEVR), the Graves’ Disease and Thyroid Foundation (GDATF), and Prevent Blindness.
** Smith TJ, Hegedüs L. Graves’ Disease. N Engl J Med. 2016.

#thyroideyedisease #TED #thyroidhealth #hyperthyroid #graves #gravesdisease #thyroid #thyroidproblems #hyperthyroidism

The second annual Thyroid Eye Disease (TED) Awareness Week* aims to raise awareness of this vision-threatening rare autoimmune disease. As this is a progressive disease, early diagnosis and treatment are essential.
Remember:
1. Up to 50% of people living with Graves’ disease may develop Thyroid Eye Disease, but it is a separate disease that can occur even without the presence of Graves’ disease and requires separate treatment.**
2. Patients with Graves’ disease or other thyroid conditions, it’s important to pay close attention to your eyes.
3. Symptoms:
- eye redness, grittiness, swelling, and pain,
- light sensitivity,
- eye-bulging,
- double vision.
4. At the first sign of any changes, consult with an oculoplastic surgeon or neuro-ophthalmologist.
5. If not treated early, TED can cause serious damage to the vision and the appearance of the eyes.

*Thyroid Eye Disease (TED) Awareness Week is established through a collaboration among Horizon Therapeutics and the American Autoimmune Related Diseases Association (AARDA), the Alliance for Eye and Vision Research (AEVR), the Graves’ Disease and Thyroid Foundation (GDATF), and Prevent Blindness.
** Smith TJ, Hegedüs L. Graves’ Disease. N Engl J Med. 2016.

#thyroideyedisease #TED #thyroidhealth #hyperthyroid #graves #gravesdisease #thyroid #thyroidproblems #hyperthyroidism

The Thyroid Cancer Alliance organizes an online workshop on personalized medicine for advanced/refractory thyroid cancer...
11/12/2021

The Thyroid Cancer Alliance organizes an online workshop on personalized medicine for advanced/refractory thyroid cancer with various international specialists on November 27.

Registration: https://bit.ly/3n3eO2J

The Thyroid Cancer Alliance organizes an online workshop on personalized medicine for advanced/refractory thyroid cancer with various international specialists on November 27.

Registration: https://bit.ly/3n3eO2J

Which thyroid nodules carry the highest risk of thyroid cancer? A recent study looked at over 3200 patients who underwen...
11/11/2021

Which thyroid nodules carry the highest risk of thyroid cancer? A recent study looked at over 3200 patients who underwent fine-needle aspiration (FNA) biopsies of thyroid nodules.* The majority of the examined patients were women (79,8%), and the mean age was 54.2 years. Of the total 3241 nodules, 335 (10.3%) were malignant. The study found that the location of thyroid nodules is an independent risk factor for thyroid cancer. The highest risk of thyroid cancer was in the isthmus, followed by upper thyroid nodules and then middle thyroid nodules. Isthmus nodules had a mean size of 15.5 mm. While the nodules found in the isthmus carry the highest risk of cancer diagnosis, the lower lobe nodules carry the lowest risk.

The Society of Radiologists in Ultrasound suggests that a biopsy should be considered for a nodule 1.0 cm or more at the largest diameter if microcalcifications are present and for a nodule 1.5 cm or larger if the nodule is solid or if there are coarse calcifications within the nodule.**

Remember: If you have thyroid nodules, regular consultation with your doctor and monitoring of nodules is important.
* Jasim S, Baranski TJ, Teefey SA, Middleton WD. Investigating the Effect of Thyroid Nodule Location on the Risk of Thyroid Cancer. Thyroid. 2020;30(3):401-407.
** SRU guidelines for the assessment of thyroid nodules: https://radiopaedia.org/articles/sru-guidelines-for-assessment-of-thyroid-nodules

#thyroid #thyroidhealth #thyroidproblems #thyroidcancer #hypothyroidism #hyperthyroidism #hashimotos #thyroidtreatment #thyroiddisease #thyroidnodules #overactivethyroid #Thyroidhealth #endocrinology #bewell #livewell #behealthy

Which thyroid nodules carry the highest risk of thyroid cancer? A recent study looked at over 3200 patients who underwent fine-needle aspiration (FNA) biopsies of thyroid nodules.* The majority of the examined patients were women (79,8%), and the mean age was 54.2 years. Of the total 3241 nodules, 335 (10.3%) were malignant. The study found that the location of thyroid nodules is an independent risk factor for thyroid cancer. The highest risk of thyroid cancer was in the isthmus, followed by upper thyroid nodules and then middle thyroid nodules. Isthmus nodules had a mean size of 15.5 mm. While the nodules found in the isthmus carry the highest risk of cancer diagnosis, the lower lobe nodules carry the lowest risk.

The Society of Radiologists in Ultrasound suggests that a biopsy should be considered for a nodule 1.0 cm or more at the largest diameter if microcalcifications are present and for a nodule 1.5 cm or larger if the nodule is solid or if there are coarse calcifications within the nodule.**

Remember: If you have thyroid nodules, regular consultation with your doctor and monitoring of nodules is important.
* Jasim S, Baranski TJ, Teefey SA, Middleton WD. Investigating the Effect of Thyroid Nodule Location on the Risk of Thyroid Cancer. Thyroid. 2020;30(3):401-407.
** SRU guidelines for the assessment of thyroid nodules: https://radiopaedia.org/articles/sru-guidelines-for-assessment-of-thyroid-nodules

#thyroid #thyroidhealth #thyroidproblems #thyroidcancer #hypothyroidism #hyperthyroidism #hashimotos #thyroidtreatment #thyroiddisease #thyroidnodules #overactivethyroid #Thyroidhealth #endocrinology #bewell #livewell #behealthy

Did you know that thermal ablation is a safe alternative to surgery for treating benign thyroid nodules? Most thyroid no...
11/06/2021

Did you know that thermal ablation is a safe alternative to surgery for treating benign thyroid nodules? Most thyroid nodules are benign and do not need to be treated, but some benign nodules may require treatment due to symptoms (neck pain, foreign body sensation, discomfort, and cough) or cosmetic concerns.* As a result of this procedure, the nodules shrink while normal thyroid function is maintained. A recent study examined 166 patients who received clinical, biological, and ultrasound evaluations for thyroid nodules over 4 years. They found that the nodule volume decreased significantly, nodule-related symptoms and the aesthetic appearance improved, and importantly, normal thyroid function was preserved.**
While mild neck discomfort, swelling, and swallowing difficulties shortly after the procedure may occur, these symptoms completely resolve within two to five days following the intervention. **
This minimally invasive technique is a safe and effective alternative to surgery in the case of treating benign thyroid nodules.* In case you have thyroid nodules, it is recommended to consult with your doctor and regularly monitor them.

*Kim HJ, Cho SJ, Baek JH, Suh CH. Efficacy and safety of thermal ablation for autonomously functioning thyroid nodules: a systematic review and meta-analysis. Eur Radiol. 2021;31(2):605-615.
**Ben Hamou A, Ghanassia E, Espiard S, et al. Safety and efficacy of thermal ablation (radiofrequency and laser): should we treat all types of thyroid nodules? Int J Hyperthermia. 2019;36(1):666-676.

#thyroid #thyroidhealth #hashimotosdisease #thyroidproblems #hashimotos #endocrinology #thyroidtreatment #thyroiddisease #thyroidnodules #bewell #livewell #behealthy

Did you know that thermal ablation is a safe alternative to surgery for treating benign thyroid nodules? Most thyroid nodules are benign and do not need to be treated, but some benign nodules may require treatment due to symptoms (neck pain, foreign body sensation, discomfort, and cough) or cosmetic concerns.* As a result of this procedure, the nodules shrink while normal thyroid function is maintained. A recent study examined 166 patients who received clinical, biological, and ultrasound evaluations for thyroid nodules over 4 years. They found that the nodule volume decreased significantly, nodule-related symptoms and the aesthetic appearance improved, and importantly, normal thyroid function was preserved.**
While mild neck discomfort, swelling, and swallowing difficulties shortly after the procedure may occur, these symptoms completely resolve within two to five days following the intervention. **
This minimally invasive technique is a safe and effective alternative to surgery in the case of treating benign thyroid nodules.* In case you have thyroid nodules, it is recommended to consult with your doctor and regularly monitor them.

*Kim HJ, Cho SJ, Baek JH, Suh CH. Efficacy and safety of thermal ablation for autonomously functioning thyroid nodules: a systematic review and meta-analysis. Eur Radiol. 2021;31(2):605-615.
**Ben Hamou A, Ghanassia E, Espiard S, et al. Safety and efficacy of thermal ablation (radiofrequency and laser): should we treat all types of thyroid nodules? Int J Hyperthermia. 2019;36(1):666-676.

#thyroid #thyroidhealth #hashimotosdisease #thyroidproblems #hashimotos #endocrinology #thyroidtreatment #thyroiddisease #thyroidnodules #bewell #livewell #behealthy

This patient forum hosted by the American Thyroid Association and the members of the ATA Alliance for Patient Education ...
09/21/2021

This patient forum hosted by the American Thyroid Association and the members of the ATA Alliance for Patient Education (including TFI) is a great annual tradition that lets patients and caregivers interact with doctors and advocates in an informal setting. Check out the post below for details!

Thyroid patients and their families are invited to join American Thyroid Association for the free: Virtual Thyroid Patient Education Health Forum on October 2, 2021 @ 4pm EDT.

http://ow.ly/WOYz50Gc27M

#hypothyroidism #hyperthyroidism #thyroidcancer #gravesdisease #hashimoto #FNA #Nodules

📰 The 2021 autumn edition of our #ThyroWorld newsletter is out! https://thyroid-fed.org/TW24.pdfThe previous editions ca...
09/21/2021

📰 The 2021 autumn edition of our #ThyroWorld newsletter is out!
https://thyroid-fed.org/TW24.pdf

The previous editions can be found at https://thyroid-fed.org/thyroworld-3/

TFI AGM2021: two intense days just ended! We had many great presentations, both from our member organizations and extern...
09/12/2021

TFI AGM2021: two intense days just ended! We had many great presentations, both from our member organizations and external speakers, on day 1. On day 2, the more official part of the AGM included the activity report, the financial report, the presentation of past and future projects… There was also some time for discussion between the attendants. The organization, by Porter Novelli, was perfect!

It was great to see everybody on video - but we very much hope to be able to have our next AGM “face to face” (or hybrid, with video connection for those who can’t be present).

We hope that it will be possible to meet at the next ETA meeting, in September 2022, planned in Brussels! http://www.eta2022.com

This weekend, on September 11 and 12, TFI will hold its second online AGM via a WebEx conference. We will spend these 2 ...
09/11/2021

This weekend, on September 11 and 12, TFI will hold its second online AGM via a WebEx conference. We will spend these 2 days together with excellent presentations, reports, and discussions.

Day 1: After the opening speech of Ashok Bhaseen, the President of TFI, we look forward to the member organizations presenting their activities and projects, and to presentations of Mr. Dirk de Rijdt (European Society of Endocrinologists), Mr. Rob Camp (Eurordis Eurocab), Dr. Helena Harnik (The Synergist), Dr. Erivelto Volpi, Dr. Duntas, Mrs. Linda Henderson (European Patients’Academy on Therapeutic Innovation (EUPATI), and Mrs. Helena Balestra (European Patient Forum). At the end of the day, there is a presentation of the E-MPATHY project (online survey on hypothyroidism), as presented at the ETA congress last week.

Day 2 will be the more official part of the AGM: activity report, financial report, minutes of 2020 AGM, statutes, projects…

There is still time to register for the AGM. This is how to do it:
1. Click the link below to visit the event registration page.
2. Check the boxes for TFI AGM 2021 Day 1 and TFI AGM 2021 Day 2
3. Select ‘register’.
4. Enter your first name, second name, email, and country.
5. Registration complete – you receive confirmation in your emails with a calendar invitation.

Thank you to Porter Novelli, UK, for organizing this for us!
#TFI #thyroidhealth #thyroid #thyroidproblems #thyroideyedisease #hyperthyroidism #hyperthyroid #hypothyroidism #hypothyroid

https://omnicomgroup.webex.com/omnicomgroup/onstage/g.php?PRID=9925e3a2ce919fd4c52de0b289cc2d9f

This weekend, on September 11 and 12, TFI will hold its second online AGM via a WebEx conference. We will spend these 2 days together with excellent presentations, reports, and discussions.

Day 1: After the opening speech of Ashok Bhaseen, the President of TFI, we look forward to the member organizations presenting their activities and projects, and to presentations of Mr. Dirk de Rijdt (European Society of Endocrinologists), Mr. Rob Camp (Eurordis Eurocab), Dr. Helena Harnik (The Synergist), Dr. Erivelto Volpi, Dr. Duntas, Mrs. Linda Henderson (European Patients’Academy on Therapeutic Innovation (EUPATI), and Mrs. Helena Balestra (European Patient Forum). At the end of the day, there is a presentation of the E-MPATHY project (online survey on hypothyroidism), as presented at the ETA congress last week.

Day 2 will be the more official part of the AGM: activity report, financial report, minutes of 2020 AGM, statutes, projects…

There is still time to register for the AGM. This is how to do it:
1. Click the link below to visit the event registration page.
2. Check the boxes for TFI AGM 2021 Day 1 and TFI AGM 2021 Day 2
3. Select ‘register’.
4. Enter your first name, second name, email, and country.
5. Registration complete – you receive confirmation in your emails with a calendar invitation.

Thank you to Porter Novelli, UK, for organizing this for us!
#TFI #thyroidhealth #thyroid #thyroidproblems #thyroideyedisease #hyperthyroidism #hyperthyroid #hypothyroidism #hypothyroid

https://omnicomgroup.webex.com/omnicomgroup/onstage/g.php?PRID=9925e3a2ce919fd4c52de0b289cc2d9f

Address

P.O. Box 471
Bath, ON
K0H 1G0

General information

History The Thyroid Federation International first convened in Toronto at the 11th International Thyroid Congress in September 1995. The vision of a world thyroid organization to deal with the problems of thyroid disease in a global perspective was first advocated by Diana Meltzer Abramsky, C.M., B.A. who in 1980 founded the Thyroid Foundation of Canada in Kingston, Ontario Canada - the first lay thyroid organization in the world. Since then, the idea has received enthusiastic support and leadership from Dr. Lawrence C. Wood of the Thyroid Foundation of America, the Federation's first president. Starting from a base of six member organizations, the Federation has grown to include thyroid organizations in many parts of the world, including Europe, North America, Australia and Japan. Our main objective is to assist all those interested to start a thyroid patient organization in their country.

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TFI - Mission Statement

Thyroid Federation International aims to work for the benefit of those affected by thyroid disorders throughout the world. OBJECTIVES - To encourage and assist the formation of patient oriented thyroid organizations. - To work closely with the medical professions to promote awareness and understanding of thyroid disorders and their complications. - To provide, through member organizations, information and moral support to those affected by thyroid disorders. - To promote education and research related to thyroid disorders.

www.thyroid-fed.org

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Today we said goodbye (for the time being) to our guests from Thyroid Federation International - we are extremely grateful for the wholehearted help and development of the cooperation of Croatian Thyroid Association within the umbrella organization. Thank also to all of you for helping us to get bigger, better and more efficient ❤🦋💪🇭🇷 https://www.facebook.com/610681152466732/posts/1270464246488416/?sfnsn=mo
Today, our Association, in cooperation with the Thyroid Federation International, attended the 6th Scientific Symposium of the Croatian Thyroid Society with the theme: "Iodine and Iodine Prophylaxis" 🦋💪🤗❤ https://www.facebook.com/610681152466732/posts/1267494956785345/?sfnsn=mo
A workshop entitled "How to establish a patient association and / or its affiliate" was held this morning at our Association, led by lecturers: Peter Lakwijk (Secretary, Thyroid Federation International) Yvonne Anderson Lakwijk (Former TFI President) Marko Kobeščak (Member of the Executive Board of HUBS) Ivana Vuger (HUBS Secretary) The aim of this project is to encourage physicians primarily to understand the importance of the Patients Association and the possibility of organizing affiliates under the Croatian Thyroid Association. We are extremely pleased with the great interest of physicians in this kind of collaboration. Thank you all 💪🦋❤ https://www.facebook.com/610681152466732/posts/1268731023328405/?sfnsn=mo
Are you living in Europe? We ask 5 minutes of your time to answer a questionaire about patient care and information. The survey is available in English, Dutch, French, German and Spanish.
un espoir est né :
Hello, I’m a member of Improve Thyroid Treatment group. We are a people-power group formed by thyroid patients, who want to improve the standards of thyroid care in the UK (ideally: all over the world ;). Untreated hypothyroidism leads to death. Poorly treated hypothyroidism causes multiple secondary health problems including fatigue, obesity, cardiovascular issues, diabetes, infertility, depression, axiety and many others. NHS uses “one fize fits all” approach and treats hypothyroid patients with T4-only medication. T4 is a prohormone, an inactive form, which has to be converted into T3. T3 is a biologically active form, which is utilised by the body. T4-only therapy doesn’t work for many patients, who continue to experience multiple and debilitating symptoms, which affect their daily functioning. Some people cannot tolerate T4 medication at all and require treatment with T3-only hormone. For them T3 is a life-sustaining medication. For many others T3 significantly improves the quality of their lives. NHS England has recently proposed to withdraw lithyronine (T3 hormone) from the NHS prescriptions. This happened because the manufacturer of T3, Concordia Ltd., abused a legal loophole and hugely increased the price of T3. In France, for example, 100 tablets of T3 25mcg each cost £9.83 (11.60€), in Germany 100 tablets of T3 20mcg each cost £25.46 (30.15€). In the UK 100 tablets of T3 20mcg each cost £922.14!!! http://www.express.co.uk/life-style/health/852565/liothyronine-thyroid-hormone-drug-price-risk-health-patient Please SIGN and SHARE our petition to Improve Thyroid Treatment and stop the withdrawal of T3: https://www.change.org/p/itt-campaign-group-improve-thyroid-treatment-for-millions-of-people-stop-the-withdrawal-of-t3?source_location=minibar THANK YOU! Related links: https://www.facebook.com/groups/ITTCampaign/ http://suttonnick.tumblr.com/image/145323192206?soc_src=mail&soc_trk=ma http://www.dailymail.co.uk/health/article-4662842/Why-women-denied-25p-thyroid-pill.html http://www.pajiba.com/think_pieces/the-scandal-you-probably-havent-heard-about-its-time-to-improve-thyroid-treatment.php https://www.hsj.co.uk/policy-and-regulation/nhs-england-unethical-to-propose-withdrawing-life-changing-drug/7020423.article
merck prend les malades français pour des cobayes vous faites quoi ???
merck prend les malades français pour des cobayes vous faites quoi ???
Please join the worldwide thyroid cancer awareness month and let the world know that thyroid cancer has many faces.