CPFF is a registered charity (850554858 RR0001) that offers hope and support to those affected by PF.
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La Fondation canadienne de la fibrose pulmonaire vous invite à participer à notre groupe de soutien en français à 19h00 HE, aujourd'hui. Réunir virtuellement avec d’autres personnes affectées par la FP à travers le pays afin de partager des idées, des expériences et de vous soutenir les uns les autres.
Ce groupe de soutien se réunit virtuellement une fois par mois. https://cpff.ca/event/groupe-de-soutien-en-francais-20-novembre/
Caregiver support group is tonight!💙
Gather virtually with other PF caregivers from across the country to share ideas, experiences, support one another.
These caregiver support group meetings will happen bi-weekly on Mondays at 7:00PM ET. You need to register in advance for this meeting in order to attend. https://ow.ly/Muqg50Q9zgJ
This year, three-year-old Arjan Sekhon has chosen a unique way to celebrate his birthday on November 27. He’s encouraging donations to CPFF in memory of his grandfather (Nanaji), who passed away from pulmonary fibrosis.
His family has set up a DIY fundraising page to make donating easy for his friends and family. https://p2p.onecause.com/cpffdiy/day/in-the-loving-memory-of-my-nanaji
Connective tissue diseases like lupus, myositis, rheumatoid arthritis, and scleroderma can all have lung scarring.
Tune in to this on-demand video as Dr. Janet Pope shares what you need to know about interstitial lung disease (ILD) in connective tissue diseases. In this webinar you'll learn more about connective tissue diseases and what might happen with ILD an get insights on some of the investigations and treatments for interstitial lung disease in rheumatology patients.
https://ow.ly/y6TJ50Q8wJ5
Get gift cards at face value and support people living with PF. Pay for your day-to-day purchases and holiday shopping with gift cards instead of cash, credit or debit at over 230 retailers across Canada.
Here's how: https://ow.ly/ySm650Q7H2T
We honour the women and men who served and continue to serve our country in times of war, conflict, and peace. We pause to remember their brave sacrifices and acknowledge a debt we can never repay. But one we will never forget.
The season of giving is fast approaching! This year, consider a generous gift of supporting people living with PF by hosting a DIY fundraiser. We have all the resources you need to make it happen and make a difference. Check out our DIY fundraising kit here:
https://ow.ly/xjZR50Q6BxL
Did you know that Palliative Care isn't only for end-of-stage life? Tune in to the on-demand video as Dr. Rebecca Colman explains palliative care and symptom management in ILD: https://ow.ly/Ip8Z50Q645Y
La Fondation canadienne de la fibrose pulmonaire vous invite à participer à notre groupe de soutien en français à 19h00 HE, le 20 novembre. Réunir virtuellement avec d’autres personnes affectées par la FP à travers le pays afin de partager des idées, des expériences et de vous soutenir les uns les autres.
Ce groupe de soutien se réunit virtuellement une fois par mois. https://ow.ly/nmQg50Q5b4A
These facilitator-led patient support group meetings will happen on the first Tuesday of every month at 2:00PM ET. Check it out here: https://ow.ly/2Btk50Q5aVu
The application period is now open for the 2024-2025 CPFF Robert Davidson Fellowships, which will support 1-year fellowships in PF in Canada with at least 75% of time protected for research-related activities.
All requests for funding and supporting documentation must be submitted by January 12, 2024.
For more information, click the link below.
https://cpff.ca/research-and-healthcare-providers/robert-davidson-fellowships/
While many pulmonary fibrosis patients choose to die through a MAiD procedure, it's still a difficult subject in the community. Watch here: https://ow.ly/etUL50Q4C7S
Thank you so much for helping us surpass our $100,000 fundraising goal for PF month! Collectively, we walked 6,360 km and raised $100,005. We truly have the most supportive and dedicated community.
Support PF by paying for your everyday expenses and gifts with gift cards bought from FundScrip. Each purchase automatically includes a donation to CPFF, supporting people living with pulmonary fibrosis at no cost to you!
Go here to get started: https://cpff.ca/cpff-gift-card-program/
***If you are logging in directly from the Funscrip page, please use invitation code RE3RNW
November newsletter has just dropped. See how gift cards can benefit people living with PF, get updates on government advocacy, find links to on-demand webinars, and hear what Hope and Ollie have to say. November 2023 Newsletter - https://mailchi.mp/cpff/newsletter-nov-2023
Dr. Shane Shapera has the gift of making complex topics like myositis associated lung disease treatment understandable for those without medical training. In this webinar, Dr. Shapera talks about myositis and the interstitial lung disease (ILD) that comes with this condition.
https://ow.ly/pRhc50Q0B5R
**REMINDER LIVE WEBINAR TODAY** Tune in today as Kelsey Goforth, from Dying with Dignity Canada, seeks to clarify the MAiD procedure, how to go about applying for it and any other important considerations.
https://cpff.ca/event/understanding-medical-assistance-in-dying/
CPFF fellow Dr. Leigh Minuk investigates unclassifiable ILD, which is how about 10 percent of ILD patients are categorized.
Read about what her research results mean for patients, physicians and researchers here: https://cpff.ca/articles/cpff-fellow-investigates-unclassifiable-ild/
At just 15 years old, Kultaj Kaur created a podcast covering various health-related topics aimed at young adults, including a recent episode on pulmonary fibrosis.
Have a listen and share: https://ow.ly/bXlP50PZ660
Pulmonary Fibrosis is often confused with COPD, but while they both affect the lungs, they are not the same. People living with pulmonary fibrosis may need more oxygen during exertion. Get the facts in our oxygen report here: https://ow.ly/qBm350PYFet
La Fondation canadienne de la fibrose pulmonaire vous invite à participer à notre groupe de soutien en français, lundi le 23 octobre à 19h HAE pour vous réunir virtuellement avec d'autres personnes affectées par la FP à travers le pays afin de partager des idées, des expériences et de vous soutenir les uns les autres.
Pour plus d'information et pour vous enregistrer, veuillez cliquer sur le lien ci-dessous.
While many pulmonary fibrosis patients choose to die through a MAiD procedure, it's still a taboo subject among the community.
During this webinar, Kelsey Goforth from Dying with Dignity Canada shares the procedure, how to apply for it, and other important considerations.
Please mark your calendars for October 24th. Watch here: https://ow.ly/wnkc50PYcJt
Paralympic Voices of Hope featuring Brianna Hennessy, Candice Combdon & Jessica Lewis is an inspiring and insightful watch. You can watch it now!
In this webinar, Paralympians Brianna Hennessy, Candice Combdon, and Jessica Lewis, each of whom overcame life-altering physical and emotional challenges, sh...
"It's devastating to watch a human being struggle to take a breath." Chris Sadler's Dad was diagnosed with PF in 2016. He is still here with us today after having a double lung transplant.
Please watch and share their beautiful and hopeful story: https://cpff.ca/on-demand-videos/patient-stories/a-conversation-about-pf-with-chris-sadleir/
Wildfire smoke provides a stark reminder of the challenges pulmonary fibrosis patients face. While the wildfires will eventually be extinguished, for the 30,000 Canadians suffering from PF, every day will continue to be like breathing in wildfire smoke.
Breathing with PF won't get any easier unless all Canadians can access home oxygen therapy equally. This is why CPFF is helping PF patients speak up for their own fundamental rights around breathing, advocating for provincial governments to provide patients with the oxygen they need when they need it.
Please read and share to spread awareness: https://ow.ly/nKRa50PVFZH
We want to share our gratitude for every single person in this community. During PF month, we raised nearly 90K and collectively walked over 5 thousand kilometres!
Your support with donations, raising awareness, showing up, and cheering each other on is something truly special. Thank you for making a difference in the lives of people living with PF and their families. 🧡
** NEW RELEASE** Tune in as Dr. Rebecca Colman explains palliative care and symptom management in interstitial lung disease (ILD) and discusses the role of cannabis to alleviate symptoms.
Tune in as Dr. Rebecca Colman explains palliative care and symptom management in interstitial lung disease (ILD) and discusses the role of cannabis to allevi...
Understanding oxygen therapy and equipment can be overwhelming. This webinar features two compassionate and knowledgeable respiratory therapists who explain the basics of oxygen.
Watch it here: https://ow.ly/ZVai50PTYw0
Our October newsletter has just dropped! Read CPFF's latest oxygen reports, get updates on advocacy, ILD research and PF Awareness Month and check out a PF-focused podcast episode. October 2023 Newsletter - https://mailchi.mp/cpff/newsletter-oct-2023
Okay, PF community! Together, we have raised $97,740 and walked 5,060 kms since September 1st. 🙌
This is such an incredible accomplishment -- and we want to finish strong! Please consider donating or logging your kms in the CPFF app until October 8th. We appreciate your support!🫶
Donate here: cpff.ca/donate
Join us today at 2:00PM EDT to gather virtually with other PF patients from across the country to share ideas, experiences, support one another during a facilitated session.
Register here for the meeting: https://cpff.ca/event/national-patient-support-group-october-3/
Wildfire smoke🔥 is a stark reminder of the challenges faced by Canadian pulmonary fibrosis patients. Many of the 30,000 PF patients across Canada who struggle to breathe can’t get the oxygen they need.
Please donate to help support people living with PF. https://ow.ly/IxLf50PRrqe
Join us on September 27th to hear from Dr. Shane Shapera on myositis-associated lung disease treatment advances.
Join: https://cpff.ca/event/advances-in-myositis-associated-lung-disease-treatment-dr-shane-shapera/?fbclid=IwAR3nmiYl5FVwgVvwZNXqGTGc0wx7hc8iJC6O6seoohWwoVxQhidjRy0ag7A
Breathing is a fundamental human right.
Share this video to build empathy and awareness for earlier PF diagnoses. https://ow.ly/utPa50PQhL2
Hope is here to educate people on the early signs of pulmonary fibrosis. Please help us by sharing with your friends and family: https://ow.ly/iTP450PPGKy
We're into the final week of PF month! Our ED, Sharon Lee shares what we have going on for you!
Find out what is happening during week 4, the final week of pulmonary fibrosis awareness month.
🫁 Stan was diagnosed with Pulmonary Fibrosis (PF) in 2016 during a month-long hospitalization for what was initially believed to be pneumonia. This was a massive shock to Stan, who had barely been sick a day in his life. At first, things seemed fine, but as time passed and his PF progressed, breathing became more difficult.
🏥 By January of 2021, Stan desperately needed a lung transplant. Against all odds, he received his life-saving transplant weeks after being placed on a transplant list and expresses deep gratitude for his donor, a 28-year-old woman whose life ended far too soon.
We celebrate and thank Stan Hendriksen for sharing his pulmonary fibrosis journey. Please share his story to raise awareness. You can read all our patient and caregiver stories here or consider sharing your own: https://cpff.ca/get-involved/stories/
COPD is not the same as pulmonary fibrosis (PF), yet medical criteria for qualifying for oxygen therapy are based on COPD data. Help us advocate for better access to oxygen for all Canadians. Breathing with PF won’t get any easier unless all Canadians can access home oxygen therapy equally.
Please help us support and advocate for people living with PF.
Read and share this oxygen access report: https://ow.ly/EwhU50POS3h
Oxygen therapy is critical for people living with PF, yet is challenging to access for many Canadians. PF patients have a right to relevant qualifying criteria, reimbursement, and easy access. Could you help us make this happen?
Read and share the latest Oxygen Access in Canada Report:https://cpff.ca/understanding-pf/treatment-and-care/cpff-oxygen-access-canada-reports/
Hey Montrealers we hope you get out and enjoy this beautiful evening. Send us your photos of the tower lit red and blue if you get out.
Ce soir, la Tour portera le rouge et le bleu, dans un mouvement de sensibilisation à la fibrose pulmonaire et pour souligner la marche au parc Angrignon.
Organisme demandeur (plateformes en anglais seulement) :
Fondation Canadienne de la Fibrose Pulmonaire (FCFP) / Canadian Pulmonary Fibrosis Foundation
https://cpff.ca/
47 Squires Bakers Lane
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Thank you to everyone who supported the Robert Davidson Walk! It was a beautiful and successful day! We raised over $10,000 for PF.
Thank you so much to everyone who came out to support the Clarke Family Walk. You made a difference. #hopebreathes
The Khan family walk for Pulmonary Fibrosis in Montreal Quebec is live. Join us throughout the morning live on Facebook.
We are live at the Robert Davidson, Walk, for Pulmonary, Fibrosis
The Clarke Walk, for pulmonary fibrosis, is underway! #hopebreatheshere
The Clarke family has such a beautiful story of love, determination, hope, community and driving change. Join here on Facebook tomorrow at 10:30am EDT to watch us LIVE from their fundraising walk at Edworthy park.
Pulmonary Fibrosis Month is in full swing. A welcome message from Sharon Lee, our Executive Director. 🫁💙❤️ #HopeBreathesHere
Avonmore Berry Farm Run the Farm for PF registration is underway. #hopebreatheshere
On September 30, join our webinar with Dr. Lee Fidler of Sunnybrook Health Sciences Centre, as he takes an in-depth look at the connection between sarcoidosis, a systemic inflammatory disease, and pulmonary fibrosis. Register today at: https://buff.ly/3zMumLp #HopeBreathesHere Le 30 septembre, rejoignez notre webinaire avec le Dr Lee Fidler du Sunnybrook Health Sciences Centre alors qu'il examine en profondeur le lien entre la sarcoïdose, une maladie inflammatoire systémique, et la fibrose pulmonaire. Inscrivez-vous aujourd'hui: https://buff.ly/3zMumLp (webinaire en anglais seulement) #RespironslEspoir
Next Tuesday, join our webinar with Mike Goldberg from Palliative Manitoba. Learn how to access palliative care in Manitoba and its benefits for pulmonary fibrosis patients. Sign up today at: https://buff.ly/3CFSjpq Mardi prochain, rejoignez notre webinaire avec Mike Goldberg du Palliative Manitoba. Apprenez comment accéder aux soins palliatifs au Manitoba et leurs avantages pour les patients atteints de fibrose pulmonaire. Inscrivez-vous aujourd'hui: https://buff.ly/3CFSjpq
Have you registered? Tomorrow is Elizabeth McLeod's webinar on nutrition and pulmonary fibrosis. Elizabeth is a Registered Dietician at the University Health Network in Toronto. Learn how nutrition can help maintain good mental and physical health. Sign up today at https://buff.ly/3hvL7nE #HopeBreathesHere Êtes-vous inscrit? Demain, c'est le webinaire d'Elizabeth McLeod sur la nutrition et la fibrose pulmonaire. Elizabeth est diététiste au University Health Network à Toronto. Inscrivez-vous aujourd'hui: https://buff.ly/3hvL7nE (Webinaire en anglais seulement) #RespironslEspoir
Back by popular demand. If you missed Dr. Charlene Fell's first session, this is a must-attend event. Bring your questions and join Dr. Fell as she unpacks pulmonary fibrosis. Learn what it is, what you can expect, and how to manage this disease. www.eventmobi.com/HopeBreathesHere #hopebreatheshere
Great session happening now. Join us at www.eventmobi.com/hopebreatheshere. #hopebreatheshere
Thank you snapd Newmarket for your support in helping us raise awareness and funds for pulmonary fibrosis. For the Canadians living with pulmonary fibrosis breathing is a challenge. Community partners and events like this make a huge difference. Check out our Executive Director Sharon Lee as she speaks to the crowd about pulmonary fibrosis and kicks off outdoor bubble blowing. #hopebreatheshere
**4:30pm EST** I’ve Been Diagnosed with Pulmonary Fibrosis - Now What? Login: eventmobi.com/HopeBreathesHere
Please like and follow us on Facebook and share with your network of family, friends and colleagues.
The caregiving journey usually starts out by helping someone with minimal tasks: taking them to a doctor’s appointment or helping them, make dinner. But, as our loved ones decline with the progression of PF or IPF, caregiving can become consuming.
The Canadian government in 2012, conducted a study on the caregivers. They found that 8 million Canadians, or 28% of the population aged 15 and over, provided care to family members or friends with a long-term health condition, a disability or problems associated with aging.
Among these family caregivers, 39% primarily cared for their father or mother, 8% for their spouse or partner, and 5% for their child. The remaining (48%) provided care to other family members or friends.
Among regular caregivers—those who spent at least 2 hours caregiving each week—38% of those who helped their child, 34% who helped their spouse and 21% who helped their parents reported feeling depressed. Those who cared for a spouse or child also reported more health and psychological problems, mainly because of the intensity of care provided.
Among regular caregivers, 28% who cared for a child and 20% who cared for a spouse experienced financial difficulties as a result of their caregiving responsibilities. This proportion was 7% among those who regularly helped their parents.
In 2012, 30% of caregivers of children received government financial assistance, compared with 14% of caregivers of spouses and 5% of caregivers of parents. However, 52% of caregivers of children, 42% of caregivers of spouses and 28% of caregivers of parents would have liked more help than they received.
Below are links to services all Canadians can access:
Canada’s Compassionate Care Benefit
Canada’s Caregiver tax credit - learn how to claim a caregiver tax credit on your return.
Canada Mortgage and Housing Corporation - provides financial assistance to low income earners who need to make their homes more accessible to accommodate a disabled person
Canada Revenue Agency – how to fill out a final tax return for someone who has died
Canadian Virtual Hospice – Financial Benefits - The Canadian Virtual Hospice provides information on benefits and allowances for caregivers
Caregiver-Connect (VON) – has a list of financial services by province and territory, including information about home renovation allowances and prescription drug coverage expenses across Canada
Prescription Drug Coverage - provides information about reimbursement of prescription drug
Wheelchair.ca provides a list of provincial and territorial funding sources
First Aid Cpr/aed Training in Markham
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