Genetic Aortic Disorders Association Canada

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Genetic Aortic Disorders Association Canada Embracing Marfan syndrome and all Genetic Aortic Disorders through Research, Education, & Support

Dr. Dianna M. Milewicz is an internationally recognized leader in research and a dedicated mentor to the next generation...
10/19/2026

Dr. Dianna M. Milewicz is an internationally recognized leader in research and a dedicated mentor to the next generation of physician-scientists. As Chair of the Montalcino Aortic Consortium (MAC), she leads collaborative efforts to advance research and precision medical care for individuals with heritable thoracic aortic disease.

We’re pleased to highlight Dr. Milewicz and her contributions to advancing our understanding and care of genetic aortic disorders.

10/09/2026

For more than 25 years, Dr. Dianna Milewicz has led groundbreaking research into the genetic causes of aortic disease, helping transform the diagnosis, management, and prevention of Heritable Thoracic Aortic Disease (HTAD).

In this featured perspective, Dr. Milewicz discusses how genetic discovery, collaborative research, and precision medicine are advancing patient care worldwide. She also shares the vision behind the MAC and its role in translating data into evidence-based care that helps prevent aortic dissections and save lives. Learn more by visiting the MAC website at https://montalcinoaorticconsortium.org/

GADA is pleased to introduce a refreshed look for the Montalcino Aortic Consortium. This month, we’re sharing more about...
10/08/2026

GADA is pleased to introduce a refreshed look for the Montalcino Aortic Consortium.

This month, we’re sharing more about MACs mission, history, members, and its importance contributions to the advancement of aortic care.

Visit the new MAC website to explore the Consortium and its work here: https://montalcinoaorticconsortium.org

This article on the Ross Procedure was featured in a recent Aortic Science: Research Highlights, part of GADA Canada’s e...
09/28/2026

This article on the Ross Procedure was featured in a recent Aortic Science: Research Highlights, part of GADA Canada’s e-newsletter.

In this edition, we explored the Ross Procedure, a complex surgical technique that uses a patient’s own pulmonary valve to replace a damaged aortic valve. We highlighted some of the potential benefits and challenges of the procedure, including long-term outcomes, the potential to avoid lifelong anticoagulation treatment, and the importance of ongoing monitoring.

Aortic Science: Research Highlights provide clear summaries of newly published research, along with direct links to the original articles for those who wish to explore the full studies in greater depth.

📖 Read the full article: https://pubmed.ncbi.nlm.nih.gov/41467400/

If you’d like to receive future research highlights—along with news, updates, and educational resources—you can subscribe to GADA Canada’s mailing list at the link in our bio.

If you were unable to attend our recent webinar—or would like to revisit key insights—you can now watch GADA Canada’s la...
09/24/2026

If you were unable to attend our recent webinar—or would like to revisit key insights—you can now watch GADA Canada’s latest session, 'The Journey from Emergency Diagnosis to Recovery' on our YouTube channel.

Watch here: https://youtu.be/4VHJHuy81sM?si=fWjsLsz7ORzcy-mx

Heritable aortic disease can affect more than one person in a family. For people living with genetic aortic disorders, u...
09/21/2026

Heritable aortic disease can affect more than one person in a family. For people living with genetic aortic disorders, understanding family history and sharing information with relatives and healthcare providers can be an important part of care.

If you or a family member has been diagnosed with an aortic condition or a genetic aortic disorder, talk with your healthcare team about genetic testing, family screening, and ongoing aortic monitoring.

And for patients and families affected by aortic disease, sharing your experiences can help build understanding, reduce isolation, and encourage others to learn about their own risk.

Together, we can build greater awareness and support earlier recognition of heritable aortic disease.

When aortic dissection is suspected, appropriate aortic imaging is an important part of reaching a timely diagnosis.Imag...
09/18/2026

When aortic dissection is suspected, appropriate aortic imaging is an important part of reaching a timely diagnosis.

Imaging, including CT and other forms of aortic imaging, can help healthcare professionals identify a dissection and determine the appropriate course of treatment.

Improving awareness of when imaging may be needed can help support earlier diagnosis and better outcomes.

Through continued research and education, we can keep improving how heritable aortic disease is recognized, diagnosed, and treated.

Stay tuned as we continue to explore what it means to Think STAT.

Aortic dissection is a life-threatening medical emergency where early recognition and timely treatment can make a critic...
09/18/2026

Aortic dissection is a life-threatening medical emergency where early recognition and timely treatment can make a critical difference.

Because the symptoms of aortic dissection can resemble other conditions, recognizing the possibility of an aortic emergency is an important first step.

For patients, families, and healthcare professionals, greater awareness can help support faster recognition, appropriate imaging, and timely care.

When it comes to aortic dissection, every minute matters.

Stay tuned as we continue to explore what it means to Think STAT.

Knowing the signs of aortic dissection can help people recognize a medical emergency and seek care sooner.Aortic dissect...
09/17/2026

Knowing the signs of aortic dissection can help people recognize a medical emergency and seek care sooner.

Aortic dissection can present in different ways, but possible signs include:
➡️ Sudden, severe pain in the chest, back, or abdomen
➡️ Pain that spreads to the neck, jaw, or arms
➡️ Difficulty breathing or speaking
➡️ Dizziness, weakness, or loss of consciousness
➡️ Weakness or numbness in the limbs
➡️ Sudden changes in vision or other neurological symptoms

If you or someone around you experiences sudden or severe symptoms, seek emergency medical care.

Increasing awareness among patients, families, and healthcare professionals is an important part of improving recognition of aortic dissection.

Stay tuned as we continue to explore what it means to Think STAT.

This year, from September 13–18, 2026, GADA Canada is honoured to join leading organizations for Aortic Dissection Awar...
09/15/2026

This year, from September 13–18, 2026, GADA Canada is honoured to join leading organizations for Aortic Dissection Awareness Week.

This collaboration brings together Aortic Hope, The John Ritter Foundation for Aortic Health, Loeys-Dietz Syndrome Foundation, The Marfan Foundation, Think Aorta US, and Rock from the Heart with a shared goal: to improve our understanding of aortic dissection, strengthen awareness, and help save lives. GADA is proud to be part of this important effort.

🫀 Aortic dissection is a life-threatening condition that is often misdiagnosed. Continued research is helping us better understand the causes, risk factors, diagnosis, and treatment of aortic disease. But translating that knowledge into awareness and action is equally important.

That’s why we are asking you to remember STAT:
S – Suspect. Know the signs.
T – Time is critical.
A – Aortic imaging saving lives.
T – Talk about it.

This week, we honour the lives lost, support those living with aortic disorders, and recognize the researchers and healthcare professionals working to advance knowledge and improve care.

Together, through research, education, and awareness, we can help make a difference.

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