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Spinal Cord Injury Canada

Spinal Cord Injury Canada Formerly the Canadian Paraplegic Association, Spinal Cord Injury Canada supports individuals with spinal cord injuries and other physical disabilities

Formerly the Canadian Paraplegic Association of Canada, Spinal Cord Injury Canada is a Not For Profit Organization that assists individuals and other physical disabilities. With over 40 offices accross the country and provincial divisions in British Columbia, Alberta, Saskatchewan, Manitoba, Nova Scotia, Prince Edward Island and Newfoundland and Labrador, we are the leading community based, Canadian service organization providing support directly to people living with spinal cord injuries.

SCI Canada offers six core services with peer support being the founding principal of the association. SCI Canada delivered peer support assistance to over 10,000 individuals and their families last year through 48 offices nationwide. SCI Canada was founded in 1945 by a group of paralyzed WWII veterans who were determined not to spend the remainder of their life in hospital. Their efforts resulted in improved medical and rehabilitation services, better pensions and, perhaps most importantly, increased awareness in the medical community and throughout society of their abilities and potential. By 1960, SCI Canada had a nation-wide presence. Today, with divisions in all ten provinces and 47 regional offices, SCI Canada provides a wide variety of services to a membership of more than 30,000 Canadians who have a spinal cord injury or other mobility impairment. In order to provide these services, SCI Canada operates with a total consolidated yearly budget of $13 million. Approximately 70% of the budget is generated through fundraising. The remaining 30% is provided through local, provincial and federal government grants. SCI Canada's scope has increased considerably since 1945, but it remains true to its founders' self-help philosophy. Of the Association's 200 plus employees (approximately 100 of whom are professional counsellors), many bring the personal experience of living with a disability, along with their formal training, to their positions.

Interested in participating in an online physical activity intervention study? Check out the photo below, the study is b...
05/27/2014

Interested in participating in an online physical activity intervention study? Check out the photo below, the study is being conducted by SCI Action Canada in collaboration with McMaster University and the Rick Hansen Institute

Chair-Leaders 2014
05/21/2014

Chair-Leaders 2014

Check out Part 1 of the Chair-Leader Event held on Parliament Hill May 7th! And remember there are still some awesome lo...
05/21/2014
8th Annual Chair-Leader Event - Part 1

Check out Part 1 of the Chair-Leader Event held on Parliament Hill May 7th! And remember there are still some awesome local Chair-Leader events being held in PEI, SK, NFLD and NS. https://www.youtube.com/watch?v=n34eFugMIAE

On May 7th, 2014 Members of Parliament representing all political parties cam together to participate in the 8th annual Chair-Leaders Campaign to raise aware...

05/16/2014

Wishing everyone a wonderful May long weekend! Don't forget to travel safe and keep the fireworks a safe distance from spectators!

05/08/2014

We would like to give a big thanks to all the 2014 Chair-Leader sponsors -Humanitarian Mobility International, Metro News and The Insurance Bureau of Canada! We couldn't have made this happen with out you and your wonderful support!

05/07/2014

The big day is here! Breakfast reception was a hit and now just preparing for the upcoming basketball game on Parliament Hill! If you are in Ottawa come out at 12pm EST to watch the events!

There's less than a week left until the event on Parliament Hill - where participants will be performing a basketball de...
05/01/2014
Chair-Leaders 2014 - Scott Simms

There's less than a week left until the event on Parliament Hill - where participants will be performing a basketball demonstration. Meet two more of our Chair-Leaders Scott Simms http://ow.ly/wn67Y and Sean Casey http://ow.ly/wn6rT

On Tuesday February 25th, 2014, Chair-Leader participant and Liner MP Scott Simms sat with Spinal Cord Injury Canada to talk about why he is a Chair-Leader a...

04/28/2014

It looks like spring has finally sprung! Check out our provincial events page for happenings in your local region and take advantage of the new warmer weather! http://sci-can.ca/events/provincial-events/

Meet another one of our Chair Leaders! MP Mike Sullivan and find out why all Canadians should care about accessibility i...
04/22/2014
Chair-Leaders 2014 - Mike Sullivan

Meet another one of our Chair Leaders! MP Mike Sullivan and find out why all Canadians should care about accessibility issues in their community http://ow.ly/w1LRr Don't forget to register today and show your support http://sci.akaraisin.com/PersonalPages/Event/Home.aspx?seid=8630&mid=8http://

On Wednesday March 5th, 2014, Chair-Leader participant and New Democrat Party MP Mike Sullivan sat with Spinal Cord Injury Canada to talk about why he is par...

Are you a healthy male with SCI? Are you concerned about reproduction and fertility? Did you know there are many options...
04/15/2014
Fertility and Sexual Dysfunction -- Electroejaculation Interview with Dr. Seager

Are you a healthy male with SCI? Are you concerned about reproduction and fertility? Did you know there are many options available including the EEJ model? check out this skype interview with Dr. Seager - founder of the EEJ model for more information regarding fertility and reproductive options. Warning: this video contains content that may not be suitable for children http://ow.ly/vP10A

On February 28, 2014 Dr. Seager sat with Spinal Cord Injury Canada to answer some general questions regarding his EEJ model and what it means for men living ...

Why are Canadians registering as a Chair-Leader? Check out this video of one of our Parliamentary Chair-Leaders Honourab...
04/11/2014
Chair-Leaders 2014 - Laurie Hawn

Why are Canadians registering as a Chair-Leader? Check out this video of one of our Parliamentary Chair-Leaders Honourable Senator Lauire Hawn and find out why he is joining the Chair Reaction! https://www.youtube.com/watch?v=vbhrWj_NXew

On Tuesday February 25th, 2014, Chair-Leader participant and Conservative MP Laurie Hawn sat with Spinal Cord Injury Canada to talk about the Chair-Leader Ca...

Nominations are being accepted for the Burlington Accessibility Awards; recognizing accessibility leaders in the communi...
03/27/2014
Burlington Accessibility Awards Nomination Form

Nominations are being accepted for the Burlington Accessibility Awards; recognizing accessibility leaders in the community! Do you know someone who is a resident or business owner in Burlington Ontario, and has made an impact on accessibility in Burlington? Then nominate them today http://cms.burlington.ca/Page8127.aspx

General Information: 905-335-7600, Toll Free: 1-877-213-3609, Mailing: 426 Brant Street, PO Box 5013, Burlington, Ontario L7R 3Z6, Hours of Operation: Monday to Friday, 8:45 a.m. to 4:30 p.m.

Check out this SCI forum "On the Road Again: Driving After Spinal Cord Injury" Thanks to the Northwest Regional Spinal C...
03/14/2014
Driving and Disability

Check out this SCI forum "On the Road Again: Driving After Spinal Cord Injury" Thanks to the Northwest Regional Spinal Cord Injury System for sharing http://sci.washington.edu/info/forums/reports/driving.asp

Driving can give someone tremendous independence after SCI. Being in control of your transportation may make life a little easier and help reconnect you with activities that make life fulfilling and enjoyable. More people with SCI can drive than you might think, but getting back behind the wheel can...

Don't miss the Canadian Paralympic Sledge Hockey team play Norway for the Bronze on Saturday! Great effort today against...
03/13/2014
Paralympics - CBC

Don't miss the Canadian Paralympic Sledge Hockey team play Norway for the Bronze on Saturday! Great effort today against the US! http://www.cbc.ca/sports/paralympics

The Canadian wheelchair curling team got off to a solid start at the 2014 Paralympics in Sochi, winning both of its round-robin games on Saturday. More Mar 08, 10:09 AM ET readcommentsvideo

The saying "if you fall, you get back up" has never had a better example than Brian McKeever who won GOLD after falling ...
03/12/2014
Brian McKeever falls, gets up, and wins Paralympic gold

The saying "if you fall, you get back up" has never had a better example than Brian McKeever who won GOLD after falling and getting back up! you go Brian!! http://www.cbc.ca/sports/paralympics/news/brian-mckeever-falls-gets-up-wins-paralympic-gold-1.2568515

Canadian Paralympic legend Brian McKeever skied one of the great races in Paralympic history on Wednesday, overcoming an early fall to win gold in the men’s visually impaired 1 km cross-country race in Sochi.

02/27/2014
Provincial Events | Spinal Cord Injury Canada

There are some amazing events happening throughout the provinces during the month of March. Check out our provincial events page for more information and for registration links. Don't let this extended winter get you down! http://sci-can.ca/events/provincial-events/

SCI-Canada has been the lead community-based service provider to persons living with spinal cord injury (SCI) in Canada since 1945. Learn more.

Happy Valentine's Day!
02/14/2014

Happy Valentine's Day!

There are only 22 days until the Paralympic Games being in Sochi! Check out all of our amazing paralympic athletes, who ...
02/12/2014
Sochi 2014 Athletes | Canadian Paralympic Committee

There are only 22 days until the Paralympic Games being in Sochi! Check out all of our amazing paralympic athletes, who are you looking forward to watching? http://www.paralympic.ca/sochi-2014-athletes

At the 2011 IPC World Cup, Canadian Chris Williamson claimed his 100th IPC podium performance! Chris has always been an avid athlete, having grown up in a family whose lives focused on sport. His father, Peter, competed in cycling at the 1967 Pan American Games and in speed skating at the 1968 Olymp...

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Lift. Ambulate. Transfer.

The Rifton TRAM is a transfer and mobility device designed to deliver three powerful functions in one compact unit: gait training, sit-to-stand transfers and seated transfers.

To learn more visit: https://permobil.ca/rifton/



MEMO-Qc - Moelle épinière et motricité Québec Spinal Cord Injury Alberta Spinal Cord Injury BC Spinal Cord Injury Canada Spinal Cord Injury Canada Spinal Cord Injury Manitoba Spinal Cord Injury Newfoundland and Labrador Spinal Cord Injury Ontario Spinal Cord Injury - Prince Edward Island Inc. Canadian Paraplegic Association - Nova Scotia
Hi Everyone,

My name is Claire and I am the research assistant for an international spinal cord injury study based in Canada. If you are a woman with SCI your input would be greatly appreciated!

Dr. Anne Berndl designed a survey that collects information on the experiences of women with SCI regarding bladder, bowel, sexual health and pregnancy to address the lack of knowledge about reproductive and urogenital health in this population.

Dr. Berndl is a Maternal-Fetal Medicine specialist at Sunnybrook Health Sciences Centre in Toronto, Ontario. She focuses on pregnancy and physical disability.

This study was created with input from women with SCI and is funded by the Ontario Neurotrauma Foundation. It is anonymous and takes about 30 minutes to complete. You may skip any questions that you do not feel comfortable answering.

If you are interested, please visit the survey through the link below: https://questionnaire.simplesurvey.com/f/l/sci-up-survey

Thank you in advance!
Don’t forget that we have Mindfulness with Mary-Jo every Wednesday at 12-1 PM PST/3 PM EST! You can find more info and register at SCI BC Event Calendar http://sci-bc.ca/events-directory/ or at http://sci-and-u.ca/basic_pages/34. We hope you can join us 😊
Struggling even more so living with your spinal cord injury during this Covid-19 pandemic? Feeling extra stressed and anxious during these turbulent times? Please join us for our SCI&U Weekly Mindfulness Series!

The Craig Neilsen Foundation has graciously funded a series of mindfulness events for our spinal cord injury community on YouTube and Zoom.

Our next session will be:
Wednesday, May 13 at 12 PM PST/3 PM EST

For more info and how to register, please visit us at https://sci-and-u.ca/basic_pages/34
This post is for all women, 18+ with a spinal cord injury. If you have the time we would really like your input.

Dr. Anne Berndl developed a survey that collects information on the experiences of women with SCI regarding bladder, bowel, sexual health and pregnancy to address the lack of knowledge about reproductive and urogenital health in this population.

Dr. Berndl is a Maternal-Fetal Medicine specialist at Sunnybrook Health Sciences Centre in Toronto, Ontario. She focuses on pregnancy and physical disability.

This study was created with input from women with SCI It is completely anonymous and takes about 30 minutes to complete. You may skip any questions that you do not feel comfortable answering.

If you are interested, please visit the survey through the link below: https://questionnaire.simplesurvey.com/f/l/sci-up-survey
Thank you in advance!
Irreversible damage to the nerves that control the bladder & bowels. Urological impacts are some of the most serious health issues that children & adults with spina bifida must navigate.kidney failure has been a leading cause of death among this population - which results from the problems caused by nerve damage to the urinary system. Some of those impacts include improperly functioning bladder sphincter muscles (too relaxed; too tight), bladder emptying problems (too relaxed; overactive), urine retention due to improper emptying, small hard bladders that require augmentation surgeries, frequent UTIs, complications due to reflux of urine into the kidneys, hydronephrosis, urosepsis, and kidney failure from long term stress/damage to the kidneys. Because the nerves that control the bladder are so low on the spinal cord, most spinal lesions will result in some impact to the bladder and bowels. The severity of the impact is different for each person. Often we assume that lower limb paralysis is the most devastating impact to a person with Spina Bifida. You can be healthy & live a full life without function of your calves, ankles, or feet. But you can't be healthy or live a full life without finding effective ways to manage a damaged urinary system. Most people with spina bifida will need to work closely with a specialized urologist throughout their lives.

Spina bifida facts These are the 2 main types of bladder augmentation surgeries:

“What is bladder augmentation?
• Bladder augmentation is for children/adults with bladders that are too small or have pressure that's too high to store urine normally, causing incontinence.The surgery increases bladder size & capacity & also lowers the pressure within the bladder.

• There are two types of bladder augmentation. In ileal augmentation a segment of the child/adults intestine is removed & then attached to the bladder to make the bladder larger. In gastric augmentation, also known as a gastrocystoplasty, a segment of the child/adult stomach is removed & attached to the bladder.

• There are many factors considered in the decision whether to use a segment of the stomach or intestine. Your surgeon or nurse practitioner will discuss there recommendation with you before the operation. However, even if your surgeon would prefer to do a gastric augmentation, he/she may realize during the procedure that this isn't the best option & part of the intestine will be used instead. For this reason, the intestine is always cleared out before the surgery. Are any artificial parts added to the bladder? No. The surgeon will use a segment of your child'/adult own intestine or stomach to augment the bladder.”

° Long-term effects of gastric augmentation?
•The stomach secretes acid regardless of where it's placed in the body — even when it's attached to the bladder. For this reason, your child or again if your a adult may need to need to take a medication for several months following the operation.(I never needed any medications) These medications are long-acting antacids. Some children & ad6 feel discomfort around the bladder every now and then, these medications may provide relief.

Over the long term, the acid usually causes no problems in fact, it may reduce the rate of urinary tract infections but in a few children/adults too much acid can alter their blood chemical balance. If your child or if your a adult gets the flu, you could be particularly susceptible to dehydration.

° What are the long-term effects of ileal augmentation?
• The intestines secrete mucous regardless of where they're placed in the body — even when attached to the bladder. This is not a problem, but the mucous can block the catheters & lead to blocked urine flow, especially soon after the operation. It's important to empty your child/adult bladder frequently. The nurses/doctors will review bladder irrigation with you several times while your in the hospital. It's very simple to empty yourbladder it just takes practice.
Your child or if your a adult will always have mucous in the urine after this type of operation. Again, this is not a problem so long as the bladder is regularly & consistently emptied. If there's increased mucous one day, simply increase the frequency of clean, intermittent catheterization to every 2 hours & perhaps

° Urinary tract infections after the surgery?
• For unknown reasons, some children/adults are particularly prone to urinary tract infections after bladder augmentation. It's important to differentiate between bacteria in the urine & an infection. Children & adults who catheterize normally have some bacteria in their urine because they're constantly introducing a foreign object the catheter into their bladder. This is not a problem so long as the urine is emptied out of the bladder every 3 to 4 hours. If the urine looks cloudy or dark, simply increase the frequency of the catheterizations to every 2 hours for a few days and try to increase intake of fluids. Usually, the urine will clear. However, if your child or if your a adult develops a fever, lack of appetite, stomach cramping, back pain and is generally not feeling well, there may be more bacteria than normal. In this case, you may need to have a urine test and possibly a course of antibiotics.

International Federation for Spina Bifida and Hydrocephalus Spina Bifida And It's Types Spina bifida • Hydrocephalus • Information • Networking • Equality - SHINE Spina Bifida Foundation - India Spina Bifida Foundation Pakistan Spina Bifida Association Spina Bifida Association of California Our Lives, with spina bifida - in Canada Life After Spinal Cord Injury [SCI] Spinal Cord Injury Spinal Cord Injury USA Pak bureaucrats( spinal cord of Pakistan) Spinal Cord Injury Canada India Spinal Cord Injury Day

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