ALS Society of Saskatchewan

ALS Society of Saskatchewan A provincial organization providing people with ALS and their families with medical equipment, resources, and support.
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Operating as usual

The ALS Society of SK is honoured to be a part of this upcoming Walk for ALS in honour of Tim Dlouhy. This event is comi...
07/14/2021

The ALS Society of SK is honoured to be a part of this upcoming Walk for ALS in honour of Tim Dlouhy. This event is coming up on July 25th at Birds Point Resort Village. To participate please contact one of the organizers. All details below in the attached picture.

Thanks again for thinking of us and helping to support those affected by ALS right here in SK.

The ALS Society of SK is honoured to be a part of this upcoming Walk for ALS in honour of Tim Dlouhy. This event is coming up on July 25th at Birds Point Resort Village. To participate please contact one of the organizers. All details below in the attached picture.

Thanks again for thinking of us and helping to support those affected by ALS right here in SK.

This is our last post for the ALS Awareness Month. This month we raised over $31,000, we engaged with 2,431 people via o...
06/30/2021

This is our last post for the ALS Awareness Month. This month we raised over $31,000, we engaged with 2,431 people via our social media posts (this means they clicked on a link). We had 13,460 people see our content on our social media. We had 997 of you watch a video on our page and maybe most of all you learned a little something about ALS. You can now help us spread the word about this disease and help us move the dial on getting better recognition for this most devastating diagnosis.

Would you mind taking one minute and telling us how this last month was for you? Did you learn anything? Do you feel like you want to help the ALS cause in SK? Leave a comment attached to this post.

If you are not sick of us yet and want to reach out to the ALS Society of Saskatchewan please do so by one of five ways:

1. Check our website and share it with those around you. www.alssask.ca
2. Email or call us and see how you can help us get the word out about ALS by volunteering or joining our Board of Directors. Our email is [email protected] and our phone number is (306) 949-4100.
3. Connect through our social media and help spread the word online.
4. Are you a local business who has an ALS connection and want to help us? Are you local filmmaker and you would be willing to help us document our clients and their journey? Are you a concerned citizen looking to support us by helping advocate for the disease? Contact us.
5. Lastly, are you someone who would like to make a huge difference in the life of the ALS Society of SK? Would you consider leaving a legacy gift in your will? Would you be willing to donate a car, land or property in exchange for a tax receipt? Or do you want to set up an ongoing donation? For all of these please contact our staff so they can help you help us.

Once again, a huge thank you for this wonderful 30 days together. Together we can help find a cure and support those affected by ALS right here in Saskatchewan.

This is our last post for the ALS Awareness Month. This month we raised over $31,000, we engaged with 2,431 people via our social media posts (this means they clicked on a link). We had 13,460 people see our content on our social media. We had 997 of you watch a video on our page and maybe most of all you learned a little something about ALS. You can now help us spread the word about this disease and help us move the dial on getting better recognition for this most devastating diagnosis.

Would you mind taking one minute and telling us how this last month was for you? Did you learn anything? Do you feel like you want to help the ALS cause in SK? Leave a comment attached to this post.

If you are not sick of us yet and want to reach out to the ALS Society of Saskatchewan please do so by one of five ways:

1. Check our website and share it with those around you. www.alssask.ca
2. Email or call us and see how you can help us get the word out about ALS by volunteering or joining our Board of Directors. Our email is [email protected] and our phone number is (306) 949-4100.
3. Connect through our social media and help spread the word online.
4. Are you a local business who has an ALS connection and want to help us? Are you local filmmaker and you would be willing to help us document our clients and their journey? Are you a concerned citizen looking to support us by helping advocate for the disease? Contact us.
5. Lastly, are you someone who would like to make a huge difference in the life of the ALS Society of SK? Would you consider leaving a legacy gift in your will? Would you be willing to donate a car, land or property in exchange for a tax receipt? Or do you want to set up an ongoing donation? For all of these please contact our staff so they can help you help us.

Once again, a huge thank you for this wonderful 30 days together. Together we can help find a cure and support those affected by ALS right here in Saskatchewan.

Thank you! Here we are the last day of the June ALS Awareness Month and together this month we discovered more about thi...
06/30/2021
ALS Saskatchewan | Saskatchewan chapter of the ALS Society

Thank you! Here we are the last day of the June ALS Awareness Month and together this month we discovered more about this devastating disease. We also explored stories from across North America including right here in Saskatchewan from those affected by the disease. We also raised funds to help support the ALS Society of SK. We are proud to announce that together we raised $31,000 this month. Thank you so much for everything. Despite the month of June coming to an end please know that you can support us throughout the year.

We will always keep you informed via our website and page.

www.alssask.ca

ALS Society of Saskatchewan

Amyotrophic lateral sclerosis (also known as Lou Gehrig’s disease) is a fatal neuro degenerative disease. ALS has no known cure or effective treatment yet. Approximately 2,500 – 3,000 Canadians currently live with this fatal disease. Subscribe to our mailing list Need more information? Contact U...

On this second to last day of our ALS Awareness Month here is a simple video put together in 2017 to show that we, all c...
06/29/2021
United in the worldwide fight against ALS/MND

On this second to last day of our ALS Awareness Month here is a simple video put together in 2017 to show that we, all citizens in the world are UNITED IN THE FIGHT AGAINST ALS/MND. Let us not give up and together let us find a cure. Thank you everyone for your continued support. https://www.youtube.com/watch?v=cgGDD8Br7N8

To support the ALS Society of Saskatchewan please donate here: https://app.simplyk.io/en/peer-to-peer/30425d53-5d7c-49cb-8eb9-a621bec4e039

For the entire month of June the ALS Society of Saskatchewan is raising funds in honor of the 2021 Virtual ALS Walk or R...
06/29/2021
2021 Virtual ALS Walk or Run Fundraiser

For the entire month of June the ALS Society of Saskatchewan is raising funds in honor of the 2021 Virtual ALS Walk or Run Fundraiser. We are raising funds to help continue the great work that we as a Society do on a daily basis. We will also be continuing into the start of July to make sure we can catch as many donations as possible.

From providing equipment to those diagnosed with ALS, providing them with adaptive technology or by providing them emotional support, we are proud to offer all of our services at no fee to those affected by ALS in Saskatchewan.

Please help us reach our goal of raising $25,000 during the month of June. We will be periodically updating you throughout the month on how we are reaching our goal.

Please donate by using the link below. You will also note on the donation page that you can also support us by creating your very own pledge page by pressing on the FUNDRAISE button. On this page you will be able to personalize the donation experience for your family and friends, set your own goal of raising funds for the month, create your own messaging and add a few personal pictures before being provided a personal link which you can then share with everyone around you.

We thank everyone ahead of time for all the support they will provide us in June.

https://app.simplyk.io/en/peer-to-peer/30425d53-5d7c-49cb-8eb9-a621bec4e039

Amyotrophic lateral sclerosis (ALS) is a group of rare neurological diseases that mainly involve the nerve cells (neurons) responsible for controlling voluntary muscle movement. Voluntary muscles produce movements like chewing, walking, and talking. The disease is progressive, meaning the symptoms ...

The next video in our series is a little closer to home. This video is about Chris Snow, the Calgary Flames Assistant Ge...
06/28/2021
Chris And Kelsie Snow Still Full Of Hope In Spite Of ALS Diagnosis

The next video in our series is a little closer to home. This video is about Chris Snow, the Calgary Flames Assistant General Manager who was diagnosed with ALS. Please listen to his story. https://www.youtube.com/watch?v=pCokzL3gSNA

If you want to support the ALS Society of SK please donate here: https://app.simplyk.io/en/peer-to-peer/30425d53-5d7c-49cb-8eb9-a621bec4e039

Last June, Chris Snow found out he is afflicted by Familial ALS. Four men in the last two generations of Snows have died from the disease. It’s been seven ...

Well we are almost to the end of the month and we would like to make a big last push for donations to help us support th...
06/28/2021
2021 Virtual ALS Walk or Run Fundraiser

Well we are almost to the end of the month and we would like to make a big last push for donations to help us support those affected by ALS right here in Saskatchewan. A huge thank you to those who have already given and a big please and thank you to those who haven't. All of your donations mean the world to us.

To donate click here: https://app.simplyk.io/en/peer-to-peer/30425d53-5d7c-49cb-8eb9-a621bec4e039

To buy 50/50 tickets click here: https://als5050.ca/

To visit our website and see what we have to offer: www.alssask.ca

Amyotrophic lateral sclerosis (ALS) is a group of rare neurological diseases that mainly involve the nerve cells (neurons) responsible for controlling voluntary muscle movement. Voluntary muscles produce movements like chewing, walking, and talking. The disease is progressive, meaning the symptoms ...

Here is a series of stories (3 of them) from ABC News in the USA looking back at the Ice Bucket Challenge, 5 years later...
06/27/2021
ALS patients share about their life 5 years after 'Ice Bucket Challenge': Part 1 I Nightline

Here is a series of stories (3 of them) from ABC News in the USA looking back at the Ice Bucket Challenge, 5 years later. You will notice that the video does not end properly as they said they would post a part 2 to the video. Unfortunately that video cannot be found.

https://www.youtube.com/watch?v=OAnZSeBJUSg

If you want to support the ALS Society of SK please donate here: https://app.simplyk.io/en/peer-to-peer/30425d53-5d7c-49cb-8eb9-a621bec4e039

Motocross dad Thurman Maynard, former undercover cop Sarah Olsen and Pete Frates, who helped launch the "Ice Bucket Challenge," share their stories of hope, ...

Well we are almost to the end of the month and we would like to make a big last push for donations to help us support th...
06/27/2021
2021 Virtual ALS Walk or Run Fundraiser

Well we are almost to the end of the month and we would like to make a big last push for donations to help us support those affected by ALS right here in Saskatchewan. A huge thank you to those who have already given and a big please and thank you to those who haven't. All of your donations mean the world to us.

To donate click here: https://app.simplyk.io/en/peer-to-peer/30425d53-5d7c-49cb-8eb9-a621bec4e039

To buy 50/50 tickets click here: https://als5050.ca/

To visit our website and see what we have to offer: www.alssask.ca

Amyotrophic lateral sclerosis (ALS) is a group of rare neurological diseases that mainly involve the nerve cells (neurons) responsible for controlling voluntary muscle movement. Voluntary muscles produce movements like chewing, walking, and talking. The disease is progressive, meaning the symptoms ...

Here is our third video on MND from Australia. This one is told from the perspective of someone who has been diagnosed. ...
06/26/2021
Louise talks about living with MND

Here is our third video on MND from Australia. This one is told from the perspective of someone who has been diagnosed. Louise is a clinical psychologist, Louise Pearson, who was diagnosed with motor neuron disease (MND/ALS) in 2007. Louise has met each challenge with a can-do attitude that has left those who know her in awe.

Here is her story: https://www.youtube.com/watch?v=mmSBAIRqbes

If you want to help support the ALS Society of SK please donate here: https://app.simplyk.io/en/peer-to-peer/30425d53-5d7c-49cb-8eb9-a621bec4e039

In 2013 we spoke with Sydney-based clinical psychologist, Louise Pearson, who was diagnosed with motor neurone disease (MND/ALS) in 2007. Louise has met each...

Well we are almost to the end of the month and we would like to make a big last push for donations to help us support th...
06/26/2021
2021 Virtual ALS Walk or Run Fundraiser

Well we are almost to the end of the month and we would like to make a big last push for donations to help us support those affected by ALS right here in Saskatchewan. A huge thank you to those who have already given and a big please and thank you to those who haven't. All of your donations mean the world to us.

To donate click here: https://app.simplyk.io/en/peer-to-peer/30425d53-5d7c-49cb-8eb9-a621bec4e039

To buy 50/50 tickets click here: https://als5050.ca/

To visit our website and see what we have to offer: www.alssask.ca

Amyotrophic lateral sclerosis (ALS) is a group of rare neurological diseases that mainly involve the nerve cells (neurons) responsible for controlling voluntary muscle movement. Voluntary muscles produce movements like chewing, walking, and talking. The disease is progressive, meaning the symptoms ...

In the next video we want to share with you (again from Australia if you watched yesterdays video) an amazing story told...
06/25/2021
Anna's Motor Neurone Disease (MND) Story

In the next video we want to share with you (again from Australia if you watched yesterdays video) an amazing story told from the perspective of the loved ones whose partner and mother is diagnosed with ALS (Motor Neuron Disease). Getting the perspective of the caregiver is a great gift to our community as so many times the caregivers, loved ones are forgotten in the process.

Please take the 20 minutes to appreciate the video. https://www.youtube.com/watch?v=dWgrNzGBPEc

If you want to help support the ALS Society of SK please donate here: https://app.simplyk.io/en/peer-to-peer/30425d53-5d7c-49cb-8eb9-a621bec4e039

Produced by Exponline OfficialDirected by Tomas Gonzalez Editorial by Natalia LizamaSocial: https://www.instagram.com/exponlineofficial/If you are in a posit...

Well we are almost to the end of the month and we would like to make a big last push for donations to help us support th...
06/25/2021
2021 Virtual ALS Walk or Run Fundraiser

Well we are almost to the end of the month and we would like to make a big last push for donations to help us support those affected by ALS right here in Saskatchewan. A huge thank you to those who have already given and a big please and thank you to those who haven't. All of your donations mean the world to us.

To donate click here: https://app.simplyk.io/en/peer-to-peer/30425d53-5d7c-49cb-8eb9-a621bec4e039

To buy 50/50 tickets click here: https://als5050.ca/

To visit our website and see what we have to offer: www.alssask.ca

Amyotrophic lateral sclerosis (ALS) is a group of rare neurological diseases that mainly involve the nerve cells (neurons) responsible for controlling voluntary muscle movement. Voluntary muscles produce movements like chewing, walking, and talking. The disease is progressive, meaning the symptoms ...

Many of you may not know that the ALS goes by other names across the world. In the USA you will typically be told you ha...
06/24/2021
The Long Goodbye: Motor Neurone Disease | Australia

Many of you may not know that the ALS goes by other names across the world. In the USA you will typically be told you have Lou Gehrig's Disease, internationally you will likely be told you have MND or Motor Neuron Disease. This story we've attached today is an amazing report on a few individuals being diagnosed with MND from Australia. I hope you can feel these stories as much as we did as rarely have we found a video that speaks so poignantly to the reality of ALS.

Please take the 20 minutes to listen to this video because you will be changed by watching it. https://www.youtube.com/watch?v=tr6jFySacFQ

If you also have the ability to support in our cause to raise funds for the ALS Society of SK please do so here: https://app.simplyk.io/en/peer-to-peer/30425d53-5d7c-49cb-8eb9-a621bec4e039

Broadcast: 30 October 2011 on Sunday Night, Seven Network, Australia.Tim entered the world of Scott Sullivan, an ordinary man who showed extraordinary courag...

Thank you to everyone who will be attending tonight's AGM. We look forward to seeing you via Zoom at 6pm and hope that t...
06/24/2021

Thank you to everyone who will be attending tonight's AGM. We look forward to seeing you via Zoom at 6pm and hope that together we can plan another great year for the ALS Society of SK. Contact the office if you have any questions.

[email protected] or (306) 949-4100

Thank you to everyone who will be attending tonight's AGM. We look forward to seeing you via Zoom at 6pm and hope that together we can plan another great year for the ALS Society of SK. Contact the office if you have any questions.

[email protected] or (306) 949-4100

ALS is not about simply surviving a terminal diagnosis, Lindsay asks us to slow down and appreciate the small moments.He...
06/23/2021
Behind ALS: Follow the Muse, The Lindsay Abromaitis-Smith Story

ALS is not about simply surviving a terminal diagnosis, Lindsay asks us to slow down and appreciate the small moments.

Here is a beautiful video about Lindsay who has ALS. Her disease does not define her and what she wants to achieve.

Please enjoy this video.

https://www.youtube.com/watch?v=Xnt1kwbyyGg

In the second documentary short in our “Behind ALS” series, Lindsay Abromaitis-Smith deeply inspires the lives of everyone around her. Produced in partnershi...

For the entire month of June the ALS Society of Saskatchewan is raising funds in honor of the 2021 Virtual ALS Walk or R...
06/22/2021
2021 Virtual ALS Walk or Run Fundraiser

For the entire month of June the ALS Society of Saskatchewan is raising funds in honor of the 2021 Virtual ALS Walk or Run Fundraiser. We are raising funds to help continue the great work that we as a Society do on a daily basis.

From providing equipment to those diagnosed with ALS, providing them with adaptive technology or by providing them emotional support, we are proud to offer all of our services at no fee to those affected by ALS in Saskatchewan.

Please help us reach our goal of raising $25,000 during the month of June. We will be periodically updating you throughout the month on how we are reaching our goal.

Please donate by using the link below. You will also note on the donation page that you can also support us by creating your very own pledge page by pressing on the FUNDRAISE button. On this page you will be able to personalize the donation experience for your family and friends, set your own goal of raising funds for the month, create your own messaging and add a few personal pictures before being provided a personal link which you can then share with everyone around you.

We thank everyone ahead of time for all the support they will provide us in June.

https://app.simplyk.io/en/peer-to-peer/30425d53-5d7c-49cb-8eb9-a621bec4e039

Amyotrophic lateral sclerosis (ALS) is a group of rare neurological diseases that mainly involve the nerve cells (neurons) responsible for controlling voluntary muscle movement. Voluntary muscles produce movements like chewing, walking, and talking. The disease is progressive, meaning the symptoms ...

Address

2430 8th Avenue Unit C
Regina, SK
S4R 5E3

Opening Hours

Monday 9am - 3pm
Tuesday 9am - 3pm
Wednesday 9am - 3pm
Thursday 9am - 3pm
Friday 9am - 3pm

Telephone

306-949-4100

Website

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Videos

Testimonial from an ALS client
Testimonial from an ALS client

ALS Youth Retreat
ALS Youth Retreat

ALS destroys your body one part at a time
ALS destroys your body one part at a time

Virtual Walk to End ALS 2020
Virtual Walk to End ALS 2020

Join us at 1pm.

“Head and Shoulders – ALS Awareness, 2008” ~ Please Share
“Head and Shoulders – ALS Awareness, 2008” ~ Please Share

This is why we endeavor to support those living with ALS. All of us here have lived through and witnessed the reality of the disease, and how it changes the circumstances of those living with ALS, their families, their peers, and their community. We doubt anyone in this community needs reminding of the effects of this disease, but at-large, diseases like ALS (and other MNDs) are compartmentalized and differentiated from others like it. Unless you have experienced ALS first-hand it might never cross your mind. However, what a disease like ALS represents is the unexpected, where one day you are fine, and then the next day you are not. And from that point on, the life you had envisioned for yourself and family has changed. June 16 “(Not so) Feel Good” challenge: “share this video” This video tells a universal tale. That the unexpected creeps in out of nowhere, with no regard for who you are, where you are, and all that you have. We apologize for the sadness this video might arouse, but in that sadness, we are reminded of the strength, will, and the potential those living with ALS have. Each day we inch closer to an ALS free future with the humility of knowing that it is going to take time. But what we are doing today, tomorrow, this month and the next are taking the steps necessary to bring about that future. Visit our neighbors @ALSALBERTA where they post #seizetheday4ALS challenges that inspire embracing the present and living in the moment. #WalktoEndALS #ALSDoesntStop

Dr. Kerri Schellenberg
Dr. Kerri Schellenberg

Please join us for the ALS Society's AGM which takes place Sunday, May 5, at 1:00 pm in the Asher Auditorium at the Saskatoon City Hospital We are in need of volunteers in the areas of Accounting, Human Resources, and Event Planning. If interested, contact our office (949-1400), send us a message, or show up to the AGM.

Do you feel it? Spring is coming... it is in the air! #alssask #alssaskatchewan #whatawinter #yellowcoatsandtoothpickboats #greenisthecolor

Countdown to Carlyle #WalkforALS coming up this Saturday. Register now! Let's get this walking started! www.walkforals.ca #carlylewalk #carlylecommunity #carlylesaskatchewan

One of our prizes drives up with Carson at the wheel! #walkforals #alssask

Kim's Walk is coming this Saturday June 2nd, lauching ALS Awareness month. Challenge yourself to walk from Regina to Lumsden! Details for the #walkforals follow: Details : 33 kms from Regina to Lumsden Highway support and lunch at the finish provided. Assistance with return transportation can be arranged in advance. Location : Finning Tractor 2360 Pasqua St N, Regina Date : June 2 2018 Walk Check in Time :6:00AM Walk Start Time : 6:30AM Contact : Kim Dolinski Email : [email protected] Phone : 306-949-4100

Call for VOLUNTEERS for our Saskatoon ALS Walk on Sunday, June 24th. Contact Sandra: phone (306)715-8622; or email [email protected]

New from Dr. Taylor about an upcoming clinical trial in Saskatoon. The first in Saskatchewan! More to come...

Dr. Taylor talks about discoveries in ALS and putting together the pieces...

At approximately 7:00, listen to Dr. Taylor talk about cognitive issues in ALS.

We are seeking leaders for our Board of Directors. If you are a clinician, someone with a lived experience of ALS, or an interested community member, please call our office at 949-4100 to apply to become a member of the Board family.

Dr. Kerri Schellenberg talks about the exciting changes that have taken place at the ALS clinic in Saskatoon. It is truly a multidisciplinary clinic! Thank you Dr. Schellenberg and your team for all your good work!

October 21 is the draw date for the provincial 50/50 lottery! We will keep you posted!

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Accommodating the needs of clients with ALS with equipment, information, referrals and support

Our Services: to accommodate the needs of clients with ALS with equipment, information, referrals and support to the best of our abilities. To promote education and awareness through engagement to the wider community. To act as an advocate for our clients and families with government, health regions and community.

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Garth’s journey began in July 2019 with his first symtom. After many doctors visits and tests it was determined in the fall of 2019 that he had a Motor Neurone disease but unable to define which one. We headed to our favourite winter home and let that sink in. Garth did well that winter and we decided not to return to Saskatchewan in January for our clinical visit. Then COVID arrived by the time he had his next appointment in Saskatoon it would be a virtual call at home. The advancement that summer was slow and we were able to enjoy family, walks, and Garth golfed till the final day of the season. We were told it was definitely ALS durning our September virtual meeting ... at that time it was no surprise to us. Of course the ALS has advanced and we have risen to the challenges. We Are thankful for the support the AlS Society has provided for us. ❤️🤗❤️ We also appreciate all the love and support calls and messages from our family and friends. We try to find our blessings in every day!❤️ This week we are so thankful to receive this electric wheelchair so we can enjoy getting out and about this summer 🤗
Hello fellow ALS Community members, please join me on this years #WalktoEndALS https://www.deaneswalktoendals.com/ PLEASE SHARE! LET'S WORK TOGETHER TO INSPIRE POLICY REFORM!
https://www.thesuburban.com/blogs/cohen_confidential_with_mike_cohen/centre-masliach-founder-seeks-support-for-als-petition-online-concert-to-promote-the-cause/article_7d2cf3ea-4bd5-11eb-b3a3-f732037eb7df.html?fbclid=IwAR0hCJUWyHJdGYE1PoMqPw4vL_d80BmTwrPwr1He_LHCRD5IVJ6cEHRwoww
Watch this report on ALS from CTV News! We have reached 8,200 signatures! We have until Jan. 5th at 2 pm to reach our goal of 10,000 signatures. Let's send a STRONG message to the Minister of Health that we want timely access to new ALS treatments. Please share this post. Here's the link to the petition: https://petitions.ourcommons.ca/en/Petition/Sign/e-2971 https://montreal.ctvnews.ca/canadians-with-als-fear-lengthy-wait-for-new-potentially-life-saving-drugs-1.5244926?cache=%3FclipId%3D68597
Hello, friends! I invite you to share and re-share this video in which I interview neurologist Dr. Angela Genge about the petition to accelerate access to new ALS treatments! https://www.youtube.com/watch?v=rEd-KZLagNs Good news! We have well over 6,000 signatures from every province and territory! I hope that this video will help us reach 10,000 signatures by January 5th, 2021 at 2 pm. Thank you and happy holidays to all! Norman MacIsaac, ALS Ambassador
Dear fellow pALS and cALS. If you haven't already done so, please get all your family and friends to sign this petition for TIMELY ACCESS TO ALS TREATMENTS in Canada. Thank you, fellow ALS warriors! Here's the petition: https://petitions.ourcommons.ca/en/Petition/Details?Petition=e-2971 For more information: http://www.more-than-als.com/?p=833
Hey fellow pALS and cALS, my name is Deane Gorsline and I will be this year's lead pALS for the Ottawa Walk to End ALS. I will be attempting a 1700min (28hrs) Walk to End ALS on Parliament Hill on 21 Jun 2020. I will be doing this in order to highlight an the length of time it has taken between Health Canada to federally approve Edaravone for use, on the 04 Oct 2018, and the first province, Quebec, to approve it for coverage on the 29 Apr 2020. On average three Canadian pALS die every day. As a result of this 574-day delay for coverage approximately 1700 pALS and their families have each lost out on time together. As such, I am calling upon the Federal government to take a leadership role to remedy the provincial approval quagmire that, to date, has only seen three of ten provinces approve Edaravone for coverage. HELP me by: 1) Sharing this post; and 2) Participating on the 21 Jun to help me complete 1700 Burpees and walk 1700 kms to show the government that Canadians won't tolerate policy that shorts life expectancy! For more information on how you help me raise awareness please see: https://www.deaneswalktoendals.com/ #Deane Gorsline #WalktoEndALS #Burpeesfordrugaccess #1700burpees #ALS #ALSburpeechallenge #PattyHajdu #JustinTrudeau #TeamALSOttawa #ALSCanada We are cognizant of the global pandemic and economic strain Canadians are under, so just participating in the 1700 burpee goal or walk and tagging it on social media is greatly appreciated.
Hey fellow pALS and cALS, my name is Deane Gorsline and will be this lead pALS for the Ottawa Walk to End ALS. I will attempting a 1700min (28hrs) Walk to End ALS on Parliament Hill on 21 Jun 2020. I will be doing this in order to highlight an the length of time it has taken between Health Canada to federally approve Edaravone for use, on the 04 Oct 2018, and the first province, Quebec, to approve it for coverage on the 29 Apr 2020. On average three Canadian pALS die every day. As a result of this 574-day delay for coverage approximately 1700 pALS and their families have each lost out on time together. As such, I am calling upon the Federal government to take a leadership role to remedy the provincial approval quagmire that, to date, has only seen three of ten provinces approve Edaravone for coverage. For more information on how you help me raise awareness please see: https://www.deaneswalktoendals.com/ Donate to your Provincial Society but HELP me complete 1700 Burpees! #ALSburpeechallenge
RIP Chris 😢
Congratulations to our ED Denis and his wife Kathy on the birth of their daughter!!!🥰🥰
ALS Society of Saskatchewan is present at today’s Throne Speech to launch the next Legislative session.
Come visit our booth at the University of Regina during today’s volunteer fair. We are in the kinesiology building gym 3. We are recruiting volunteers for our multiple events coming in the next year.