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ALS Society of Saskatchewan

ALS Society of Saskatchewan A provincial organization providing people with ALS and their families with medical equipment, resources, and support.

Operating as usual

Just a quick post to inform you that the date for the Regina Walk is now June 18th. All the details for both the Regina ...
05/01/2022

Just a quick post to inform you that the date for the Regina Walk is now June 18th. All the details for both the Regina and Saskatoon Walks are available on our website: www.alssask.ca

Please help support the ALS Society and purchase some 50/50 tickets. www.als5050.ca.
10/16/2021
ALS Society of Saskatchewan

Please help support the ALS Society and purchase some 50/50 tickets. www.als5050.ca.

Echolotto Terms & Conditions As of November 21st, 2019 OFFICIAL RULES: By participating, entrants agree to be bound by these Official Rules and by the decisions of ALS Society of Saskatchewan which shall be binding and final as to all matters related to the Raffle. The Raffle is subject to all appli...

Hello everyone!We are so happy to announce that we are hosting a virtual 50/50 to support those affected by ALS in Saska...
10/15/2021
ALS Society of Saskatchewan

Hello everyone!

We are so happy to announce that we are hosting a virtual 50/50 to support those affected by ALS in Saskatchewan. The pot is constantly growing and with two weeks left who knows where we can get to. We encourage all of you who want to support the ALS Society of SK to purchase your tickets soon as the draw will be held on October 29th, 2021.

To purchase your tickets please buy them here: www.als5050.ca

Echolotto Terms & Conditions As of November 21st, 2019 OFFICIAL RULES: By participating, entrants agree to be bound by these Official Rules and by the decisions of ALS Society of Saskatchewan which shall be binding and final as to all matters related to the Raffle. The Raffle is subject to all appli...

Just wanted to take a minute to thank all those who came and walked with us today. We had people from Flin Flon, Victori...
09/26/2021

Just wanted to take a minute to thank all those who came and walked with us today. We had people from Flin Flon, Victoria, Yorkton, Saskatoon, Moose Jaw, Emerald Park and Regina and together we walked in honour of those affected by ALS. We won’t know how much we raised for a few more days but let is be clear in saying that every donation, every step and every heartfelt comment fuels the ALS Society of SK to do more and continue providing the best supports for our ALS family in Saskatchewan.

Thank you so much from your ALS SK staff and volunteers

A group had approached us to announce that they have begun recruiting for a research project, “Low force and low movemen...
09/14/2021

A group had approached us to announce that they have begun recruiting for a research project, “Low force and low movement accessible switches for adults with Amyotrophic Lateral Sclerosis or Muscular Dystrophy: A quasi-experimental study of function and quality of life.”

This study is looking for people with ALS or Muscular Dystrophy who would like to test and provide feedback on one of two new adaptive technologies: the Twitch Switch and the Lift Switch. The goal of this project is to use participant’s feedback for development, implementation and validation of these devices. The twitch switch can use small movements, slow movements, or low force on any body part, with up to three twitch sites. The lift switch can be used for those with low endurance or fatigue and can make other accessible switches even more accessible. These devices can be used to access computers or other wireless enabled devices.

If you know of someone who might be interested in this opportunity, please have them contact Electrical Engineer, Francois St-Onge at 506-262-6861 or [email protected] or go to https://canada.opinio.net/s?s=396 (https://canada.opinio.net/s?s=396&lang=fr) for more information.

This research project has been approved by the Horizon Health Network Human Research Protection Program [RS-2021-3013].
If you wish to speak to someone not involved with the study about any concerns please contact the Horizon Health Research Ethics Office at 506-648-6094, [email protected].

The ALS Society of SK is honoured to be a part of this upcoming Walk for ALS in honour of Tim Dlouhy. This event is comi...
07/14/2021

The ALS Society of SK is honoured to be a part of this upcoming Walk for ALS in honour of Tim Dlouhy. This event is coming up on July 25th at Birds Point Resort Village. To participate please contact one of the organizers. All details below in the attached picture.

Thanks again for thinking of us and helping to support those affected by ALS right here in SK.

This is our last post for the ALS Awareness Month. This month we raised over $31,000, we engaged with 2,431 people via o...
06/30/2021

This is our last post for the ALS Awareness Month. This month we raised over $31,000, we engaged with 2,431 people via our social media posts (this means they clicked on a link). We had 13,460 people see our content on our social media. We had 997 of you watch a video on our page and maybe most of all you learned a little something about ALS. You can now help us spread the word about this disease and help us move the dial on getting better recognition for this most devastating diagnosis.

Would you mind taking one minute and telling us how this last month was for you? Did you learn anything? Do you feel like you want to help the ALS cause in SK? Leave a comment attached to this post.

If you are not sick of us yet and want to reach out to the ALS Society of Saskatchewan please do so by one of five ways:

1. Check our website and share it with those around you. www.alssask.ca
2. Email or call us and see how you can help us get the word out about ALS by volunteering or joining our Board of Directors. Our email is [email protected] and our phone number is (306) 949-4100.
3. Connect through our social media and help spread the word online.
4. Are you a local business who has an ALS connection and want to help us? Are you local filmmaker and you would be willing to help us document our clients and their journey? Are you a concerned citizen looking to support us by helping advocate for the disease? Contact us.
5. Lastly, are you someone who would like to make a huge difference in the life of the ALS Society of SK? Would you consider leaving a legacy gift in your will? Would you be willing to donate a car, land or property in exchange for a tax receipt? Or do you want to set up an ongoing donation? For all of these please contact our staff so they can help you help us.

Once again, a huge thank you for this wonderful 30 days together. Together we can help find a cure and support those affected by ALS right here in Saskatchewan.

Thank you! Here we are the last day of the June ALS Awareness Month and together this month we discovered more about thi...
06/30/2021
ALS Saskatchewan | Saskatchewan chapter of the ALS Society

Thank you! Here we are the last day of the June ALS Awareness Month and together this month we discovered more about this devastating disease. We also explored stories from across North America including right here in Saskatchewan from those affected by the disease. We also raised funds to help support the ALS Society of SK. We are proud to announce that together we raised $31,000 this month. Thank you so much for everything. Despite the month of June coming to an end please know that you can support us throughout the year.

We will always keep you informed via our website and page.

www.alssask.ca

ALS Society of Saskatchewan

Amyotrophic lateral sclerosis (also known as Lou Gehrig’s disease) is a fatal neuro degenerative disease. ALS has no known cure or effective treatment yet. Approximately 2,500 – 3,000 Canadians currently live with this fatal disease. Subscribe to our mailing list Need more information? Contact U...

On this second to last day of our ALS Awareness Month here is a simple video put together in 2017 to show that we, all c...
06/29/2021
United in the worldwide fight against ALS/MND

On this second to last day of our ALS Awareness Month here is a simple video put together in 2017 to show that we, all citizens in the world are UNITED IN THE FIGHT AGAINST ALS/MND. Let us not give up and together let us find a cure. Thank you everyone for your continued support. https://www.youtube.com/watch?v=cgGDD8Br7N8

To support the ALS Society of Saskatchewan please donate here: https://app.simplyk.io/en/peer-to-peer/30425d53-5d7c-49cb-8eb9-a621bec4e039

For the entire month of June the ALS Society of Saskatchewan is raising funds in honor of the 2021 Virtual ALS Walk or R...
06/29/2021
2021 Virtual ALS Walk or Run Fundraiser

For the entire month of June the ALS Society of Saskatchewan is raising funds in honor of the 2021 Virtual ALS Walk or Run Fundraiser. We are raising funds to help continue the great work that we as a Society do on a daily basis. We will also be continuing into the start of July to make sure we can catch as many donations as possible.

From providing equipment to those diagnosed with ALS, providing them with adaptive technology or by providing them emotional support, we are proud to offer all of our services at no fee to those affected by ALS in Saskatchewan.

Please help us reach our goal of raising $25,000 during the month of June. We will be periodically updating you throughout the month on how we are reaching our goal.

Please donate by using the link below. You will also note on the donation page that you can also support us by creating your very own pledge page by pressing on the FUNDRAISE button. On this page you will be able to personalize the donation experience for your family and friends, set your own goal of raising funds for the month, create your own messaging and add a few personal pictures before being provided a personal link which you can then share with everyone around you.

We thank everyone ahead of time for all the support they will provide us in June.

https://app.simplyk.io/en/peer-to-peer/30425d53-5d7c-49cb-8eb9-a621bec4e039

Amyotrophic lateral sclerosis (ALS) is a group of rare neurological diseases that mainly involve the nerve cells (neurons) responsible for controlling voluntary muscle movement. Voluntary muscles produce movements like chewing, walking, and talking. The disease is progressive, meaning the symptoms ...

The next video in our series is a little closer to home. This video is about Chris Snow, the Calgary Flames Assistant Ge...
06/28/2021
Chris And Kelsie Snow Still Full Of Hope In Spite Of ALS Diagnosis

The next video in our series is a little closer to home. This video is about Chris Snow, the Calgary Flames Assistant General Manager who was diagnosed with ALS. Please listen to his story. https://www.youtube.com/watch?v=pCokzL3gSNA

If you want to support the ALS Society of SK please donate here: https://app.simplyk.io/en/peer-to-peer/30425d53-5d7c-49cb-8eb9-a621bec4e039

Last June, Chris Snow found out he is afflicted by Familial ALS. Four men in the last two generations of Snows have died from the disease. It’s been seven ...

Well we are almost to the end of the month and we would like to make a big last push for donations to help us support th...
06/28/2021
2021 Virtual ALS Walk or Run Fundraiser

Well we are almost to the end of the month and we would like to make a big last push for donations to help us support those affected by ALS right here in Saskatchewan. A huge thank you to those who have already given and a big please and thank you to those who haven't. All of your donations mean the world to us.

To donate click here: https://app.simplyk.io/en/peer-to-peer/30425d53-5d7c-49cb-8eb9-a621bec4e039

To buy 50/50 tickets click here: https://als5050.ca/

To visit our website and see what we have to offer: www.alssask.ca

Amyotrophic lateral sclerosis (ALS) is a group of rare neurological diseases that mainly involve the nerve cells (neurons) responsible for controlling voluntary muscle movement. Voluntary muscles produce movements like chewing, walking, and talking. The disease is progressive, meaning the symptoms ...

Here is a series of stories (3 of them) from ABC News in the USA looking back at the Ice Bucket Challenge, 5 years later...
06/27/2021
ALS patients share about their life 5 years after 'Ice Bucket Challenge': Part 1 I Nightline

Here is a series of stories (3 of them) from ABC News in the USA looking back at the Ice Bucket Challenge, 5 years later. You will notice that the video does not end properly as they said they would post a part 2 to the video. Unfortunately that video cannot be found.

https://www.youtube.com/watch?v=OAnZSeBJUSg

If you want to support the ALS Society of SK please donate here: https://app.simplyk.io/en/peer-to-peer/30425d53-5d7c-49cb-8eb9-a621bec4e039

Motocross dad Thurman Maynard, former undercover cop Sarah Olsen and Pete Frates, who helped launch the "Ice Bucket Challenge," share their stories of hope, ...

Well we are almost to the end of the month and we would like to make a big last push for donations to help us support th...
06/27/2021
2021 Virtual ALS Walk or Run Fundraiser

Well we are almost to the end of the month and we would like to make a big last push for donations to help us support those affected by ALS right here in Saskatchewan. A huge thank you to those who have already given and a big please and thank you to those who haven't. All of your donations mean the world to us.

To donate click here: https://app.simplyk.io/en/peer-to-peer/30425d53-5d7c-49cb-8eb9-a621bec4e039

To buy 50/50 tickets click here: https://als5050.ca/

To visit our website and see what we have to offer: www.alssask.ca

Amyotrophic lateral sclerosis (ALS) is a group of rare neurological diseases that mainly involve the nerve cells (neurons) responsible for controlling voluntary muscle movement. Voluntary muscles produce movements like chewing, walking, and talking. The disease is progressive, meaning the symptoms ...

Here is our third video on MND from Australia. This one is told from the perspective of someone who has been diagnosed. ...
06/26/2021
Louise talks about living with MND

Here is our third video on MND from Australia. This one is told from the perspective of someone who has been diagnosed. Louise is a clinical psychologist, Louise Pearson, who was diagnosed with motor neuron disease (MND/ALS) in 2007. Louise has met each challenge with a can-do attitude that has left those who know her in awe.

Here is her story: https://www.youtube.com/watch?v=mmSBAIRqbes

If you want to help support the ALS Society of SK please donate here: https://app.simplyk.io/en/peer-to-peer/30425d53-5d7c-49cb-8eb9-a621bec4e039

In 2013 we spoke with Sydney-based clinical psychologist, Louise Pearson, who was diagnosed with motor neurone disease (MND/ALS) in 2007. Louise has met each...

In the next video we want to share with you (again from Australia if you watched yesterdays video) an amazing story told...
06/25/2021
Anna's Motor Neurone Disease (MND) Story

In the next video we want to share with you (again from Australia if you watched yesterdays video) an amazing story told from the perspective of the loved ones whose partner and mother is diagnosed with ALS (Motor Neuron Disease). Getting the perspective of the caregiver is a great gift to our community as so many times the caregivers, loved ones are forgotten in the process.

Please take the 20 minutes to appreciate the video. https://www.youtube.com/watch?v=dWgrNzGBPEc

If you want to help support the ALS Society of SK please donate here: https://app.simplyk.io/en/peer-to-peer/30425d53-5d7c-49cb-8eb9-a621bec4e039

Produced by Exponline OfficialDirected by Tomas Gonzalez Editorial by Natalia LizamaSocial: https://www.instagram.com/exponlineofficial/If you are in a posit...

Well we are almost to the end of the month and we would like to make a big last push for donations to help us support th...
06/25/2021
2021 Virtual ALS Walk or Run Fundraiser

Well we are almost to the end of the month and we would like to make a big last push for donations to help us support those affected by ALS right here in Saskatchewan. A huge thank you to those who have already given and a big please and thank you to those who haven't. All of your donations mean the world to us.

To donate click here: https://app.simplyk.io/en/peer-to-peer/30425d53-5d7c-49cb-8eb9-a621bec4e039

To buy 50/50 tickets click here: https://als5050.ca/

To visit our website and see what we have to offer: www.alssask.ca

Amyotrophic lateral sclerosis (ALS) is a group of rare neurological diseases that mainly involve the nerve cells (neurons) responsible for controlling voluntary muscle movement. Voluntary muscles produce movements like chewing, walking, and talking. The disease is progressive, meaning the symptoms ...

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2430 8th Avenue Unit C
Regina, SK
S4R 5E3

Opening Hours

Monday 9am - 3pm
Tuesday 9am - 3pm
Wednesday 9am - 3pm
Thursday 9am - 3pm
Friday 9am - 3pm

Telephone

306-949-4100

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Accommodating the needs of clients with ALS with equipment, information, referrals and support

Our Services: to accommodate the needs of clients with ALS with equipment, information, referrals and support to the best of our abilities. To promote education and awareness through engagement to the wider community. To act as an advocate for our clients and families with government, health regions and community.

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Comments

My first symptoms of ALS occurred in 2014, but was diagnosed in 2016. I had severe symptoms ranging from shortness of breath, balance problems, couldn't walk without a walker or a power chair, i had difficulty swallowing and fatigue. I was given medications which helped but only for a short burst of time, then I decided to try alternative measures and began on ALS Formula treatment from Tree of Life Health clinic. It has made a tremendous difference for me (Visit w w w. treeoflifeherbalclinic .com ). I had improved walking balance, increased appetite, muscle strength, improved eyesight and others. ]
Totals have been counted and draws have been made!
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We would like to sincerely thank each and every person within our community and area that made a donation to ALS in June
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Between all of the events and fundraising initiatives that were done just over $11,400 was raised for the ALS society
.
Thank you all from the bottom of our hearts 💜
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 Diamonds on Broadway ALS Society of Saskatchewan
"When a parent is in need, every day is Mother's Day. An eighth grader at Delavan Phoenix Middle School, Zach helps his mom, Brenda, in and out of her wheelchair. He also helps her take her pills at night. [...] Zachery has learned how to cook and do other household chores as well as helping his mother at every turn when he is home."



ALS Society of Alberta ALS Society of BC ALS Canada ALS Society of Manitoba ALS Society of Newfoundland and Labrador ALS Society of New Brunswick and Nova Scotia ALS Society of PEI Société de la SLA du Québec - ALS Society of Quebec ALS Society of Saskatchewan

Photos from: https://bit.ly/3gQREcA
Let's to this elegantly written heartbreaking but beautifully inspiring story by Phil Avillo about his life with ALS. Definitely worth the read.

"A malevolent mistress moved in with me permanently more than two years ago. I call her Lady ALS because even some of the most avowed enemies treat each other respectfully.

She has made her presence felt every day. She envelops and is entwined through every fiber of my body. She has wasted my muscles, leaving sacks of skin hanging loosely from my bones. She sleeps with me. She eats with me. She bathes with me. She dresses with me. She writes with me. She reads with me. She will die with me."



ALS Society of Alberta ALS Society of BC ALS Canada ALS Society of Manitoba ALS Society of Newfoundland and Labrador ALS Society of PEI Société de la SLA du Québec - ALS Society of Quebec ALS Society of Saskatchewan

https://bit.ly/3xTED83
2021 GRILLIN' FOR GRATITUDE

Grillin' for Gratitude June 19th - 11 am-2 pm
Charity: ALS Society of Saskatchewan
- also the Saskatchewan Fire Fighters Calendar is available to buy on June 15th ( learn more https://saskfirefighterscalendar.com/where-to-buy/ )

Grillin' for Gratitude provides local charities & non-profits with a turn-key fundraising opportunity. Charities can leverage a fully stocked BBQ booth at the Street Stall Saturday's market at Market Square in River Landing. Wiegers Financial & Benefits is a proud title sponsor.

We Make a Difference In People's Lives
https://www.wiegers.ca
Garth’s journey began in July 2019 with his first symtom. After many doctors visits and tests it was determined in the fall of 2019 that he had a Motor Neurone disease but unable to define which one. We headed to our favourite winter home and let that sink in. Garth did well that winter and we decided not to return to Saskatchewan in January for our clinical visit. Then COVID arrived by the time he had his next appointment in Saskatoon it would be a virtual call at home. The advancement that summer was slow and we were able to enjoy family, walks, and Garth golfed till the final day of the season. We were told it was definitely ALS durning our September virtual meeting ... at that time it was no surprise to us. Of course the ALS has advanced and we have risen to the challenges. We Are thankful for the support the AlS Society has provided for us. ❤️🤗❤️

We also appreciate all the love and support calls and messages from our family and friends. We try to find our blessings in every day!❤️

This week we are so thankful to receive this electric wheelchair so we can enjoy getting out and about this summer 🤗
It's and this story is the perfect introduction!

Rifton

For more information visit:

ALS Society of Alberta ALS Society of BC ALS Canada ALS Society of Manitoba ALS Society of Newfoundland and Labrador ALS Society of PEI Société de la SLA du Québec - ALS Society of Quebec ALS Society of Saskatchewan

https://bit.ly/3gu70me
Hello fellow ALS Community members, please join me on this years

https://www.deaneswalktoendals.com/

PLEASE SHARE! LET'S WORK TOGETHER TO INSPIRE POLICY REFORM!
It is Brain Awareness Week - the perfect time to determine what wheelchair is best for you or your family member/client. Some brain injury and/or stroke survivors or individuals diagnosed with a disease or disorder that affects the brain (, , , etc.) may need to use a wheelchair and it’s important that you are fitted properly and prescribed a chair to help with your needs. This highly educational and helpful article in Rehab Management explains Kessler Institute for Rehabilitation's process.



To read the entire article on page 24 of the September/October 2016 Edition go to: https://bit.ly/2OG3NGb

Brain Canada Brain Injury Canada The Brain Injury Association Of Durham Region Brain Injury Association of London & Region Brain Injury Association of Peel and Halton (BIAPH) Brain Injury Society of Toronto Brain Tumour Foundation of Canada Fraser Valley Brain Injury Association Ontario Brain Injury Association The Ontario Brain Institute Seizure & Brain Injury Centre Southern Alberta Brain Injury Society Central Alberta Brain Injury Society Northern Brain Injury Association Nanaimo Brain Injury Society Manitoba Brain Injury Association Saskatchewan Brain Injury Association BRAIN Injury PEI BRAIN Injury PEI Multiple Sclerosis Society of Canada MS Society of Canada- AB & NWT Division MS Society of Canada, Atlantic Division MS Society of Canada, BC & Yukon Division MS Society of Canada - Manitoba Division MS Society of Canada - Saskatchewan Division ALS Society of Alberta ALS Society of BC ALS Canada ALS Society of Manitoba ALS Society of PEI Société de la SLA du Québec - ALS Society of Quebec ALS Society of Saskatchewan, Parkinson Canada Parkinson Society British Columbia Parkinson Association of Alberta Parkinson Canada - Saskatchewan Parkinson Canada - Manitoba Parkinson Society Southwestern Ontario Parkinson QuébecParkinson Society Nova Scotia PEI Chapter, Parkinson Canada
Watch this report on ALS from CTV News! We have reached 8,200 signatures! We have until Jan. 5th at 2 pm to reach our goal of 10,000 signatures. Let's send a STRONG message to the Minister of Health that we want timely access to new ALS treatments. Please share this post. Here's the link to the petition: https://petitions.ourcommons.ca/en/Petition/Sign/e-2971

https://montreal.ctvnews.ca/canadians-with-als-fear-lengthy-wait-for-new-potentially-life-saving-drugs-1.5244926?cache=%3FclipId%3D68597
Hello, friends!
I invite you to share and re-share this video in which I interview neurologist Dr. Angela Genge about the petition to accelerate access to new ALS treatments!
https://www.youtube.com/watch?v=rEd-KZLagNs
Good news! We have well over 6,000 signatures from every province and territory! I hope that this video will help us reach 10,000 signatures by January 5th, 2021 at 2 pm.
Thank you and happy holidays to all!
Norman MacIsaac, ALS Ambassador
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