A provincial organization providing people with ALS and their families with medical equipment, resources, and support.
Operating as usual
2022 Move to Cure ALS Walk Season - https://mailchi.mp/alssask/2022-move-to-cure-als-walk-season
The ALS Society of SK is proud to be presenting our annual fundraising Walks. This year under the name Move to Cure ALS Walks we are hosting a Walk in Regina on June 18th from 9 am to noon starting at the Regina Science Centre (2903 Powerhouse Drive – Regina) and a Walk in Saskatoon on June 26th f...
Just a quick post to inform you that the date for the Regina Walk is now June 18th. All the details for both the Regina and Saskatoon Walks are available on our website: www.alssask.ca
ALS Society of SK - April Newsletter 2022 - https://mailchi.mp/alssask/als-society-of-sk-april-newsletter-2022
ALS researchers from around the world continue to build upon existing work and make new discoveries in the hopes of realizing a future without ALS. In the March 2022 Research Update, you’ll learn about advancements in our understanding of risk factors for ALS, a new platform designed to accelerate...
Please help support the ALS Society and purchase some 50/50 tickets. www.als5050.ca.
Echolotto Terms & Conditions As of November 21st, 2019 OFFICIAL RULES: By participating, entrants agree to be bound by these Official Rules and by the decisions of ALS Society of Saskatchewan which shall be binding and final as to all matters related to the Raffle. The Raffle is subject to all appli...
Hello everyone!
We are so happy to announce that we are hosting a virtual 50/50 to support those affected by ALS in Saskatchewan. The pot is constantly growing and with two weeks left who knows where we can get to. We encourage all of you who want to support the ALS Society of SK to purchase your tickets soon as the draw will be held on October 29th, 2021.
To purchase your tickets please buy them here: www.als5050.ca
Echolotto Terms & Conditions As of November 21st, 2019 OFFICIAL RULES: By participating, entrants agree to be bound by these Official Rules and by the decisions of ALS Society of Saskatchewan which shall be binding and final as to all matters related to the Raffle. The Raffle is subject to all appli...
Just wanted to take a minute to thank all those who came and walked with us today. We had people from Flin Flon, Victoria, Yorkton, Saskatoon, Moose Jaw, Emerald Park and Regina and together we walked in honour of those affected by ALS. We won’t know how much we raised for a few more days but let is be clear in saying that every donation, every step and every heartfelt comment fuels the ALS Society of SK to do more and continue providing the best supports for our ALS family in Saskatchewan.
Thank you so much from your ALS SK staff and volunteers
A group had approached us to announce that they have begun recruiting for a research project, “Low force and low movement accessible switches for adults with Amyotrophic Lateral Sclerosis or Muscular Dystrophy: A quasi-experimental study of function and quality of life.”
This study is looking for people with ALS or Muscular Dystrophy who would like to test and provide feedback on one of two new adaptive technologies: the Twitch Switch and the Lift Switch. The goal of this project is to use participant’s feedback for development, implementation and validation of these devices. The twitch switch can use small movements, slow movements, or low force on any body part, with up to three twitch sites. The lift switch can be used for those with low endurance or fatigue and can make other accessible switches even more accessible. These devices can be used to access computers or other wireless enabled devices.
If you know of someone who might be interested in this opportunity, please have them contact Electrical Engineer, Francois St-Onge at 506-262-6861 or [email protected] or go to https://canada.opinio.net/s?s=396 (https://canada.opinio.net/s?s=396&lang=fr) for more information.
This research project has been approved by the Horizon Health Network Human Research Protection Program [RS-2021-3013].
If you wish to speak to someone not involved with the study about any concerns please contact the Horizon Health Research Ethics Office at 506-648-6094, [email protected].
Please find all the details about our upcoming Regina ALS Awareness Walk below. September 25th between 10 am and noon in waves every 30 minutes. You can also support us in other ways. See link below for more details.
The ALS Society of SK is honoured to be a part of this upcoming Walk for ALS in honour of Tim Dlouhy. This event is coming up on July 25th at Birds Point Resort Village. To participate please contact one of the organizers. All details below in the attached picture.
Thanks again for thinking of us and helping to support those affected by ALS right here in SK.
This is our last post for the ALS Awareness Month. This month we raised over $31,000, we engaged with 2,431 people via our social media posts (this means they clicked on a link). We had 13,460 people see our content on our social media. We had 997 of you watch a video on our page and maybe most of all you learned a little something about ALS. You can now help us spread the word about this disease and help us move the dial on getting better recognition for this most devastating diagnosis.
Would you mind taking one minute and telling us how this last month was for you? Did you learn anything? Do you feel like you want to help the ALS cause in SK? Leave a comment attached to this post.
If you are not sick of us yet and want to reach out to the ALS Society of Saskatchewan please do so by one of five ways:
1. Check our website and share it with those around you. www.alssask.ca
2. Email or call us and see how you can help us get the word out about ALS by volunteering or joining our Board of Directors. Our email is [email protected] and our phone number is (306) 949-4100.
3. Connect through our social media and help spread the word online.
4. Are you a local business who has an ALS connection and want to help us? Are you local filmmaker and you would be willing to help us document our clients and their journey? Are you a concerned citizen looking to support us by helping advocate for the disease? Contact us.
5. Lastly, are you someone who would like to make a huge difference in the life of the ALS Society of SK? Would you consider leaving a legacy gift in your will? Would you be willing to donate a car, land or property in exchange for a tax receipt? Or do you want to set up an ongoing donation? For all of these please contact our staff so they can help you help us.
Once again, a huge thank you for this wonderful 30 days together. Together we can help find a cure and support those affected by ALS right here in Saskatchewan.
Thank you! Here we are the last day of the June ALS Awareness Month and together this month we discovered more about this devastating disease. We also explored stories from across North America including right here in Saskatchewan from those affected by the disease. We also raised funds to help support the ALS Society of SK. We are proud to announce that together we raised $31,000 this month. Thank you so much for everything. Despite the month of June coming to an end please know that you can support us throughout the year.
We will always keep you informed via our website and page.
www.alssask.ca
ALS Society of Saskatchewan
Amyotrophic lateral sclerosis (also known as Lou Gehrig’s disease) is a fatal neuro degenerative disease. ALS has no known cure or effective treatment yet. Approximately 2,500 – 3,000 Canadians currently live with this fatal disease. Subscribe to our mailing list Need more information? Contact U...
On this second to last day of our ALS Awareness Month here is a simple video put together in 2017 to show that we, all citizens in the world are UNITED IN THE FIGHT AGAINST ALS/MND. Let us not give up and together let us find a cure. Thank you everyone for your continued support. https://www.youtube.com/watch?v=cgGDD8Br7N8
To support the ALS Society of Saskatchewan please donate here: https://app.simplyk.io/en/peer-to-peer/30425d53-5d7c-49cb-8eb9-a621bec4e039
For the entire month of June the ALS Society of Saskatchewan is raising funds in honor of the 2021 Virtual ALS Walk or Run Fundraiser. We are raising funds to help continue the great work that we as a Society do on a daily basis. We will also be continuing into the start of July to make sure we can catch as many donations as possible.
From providing equipment to those diagnosed with ALS, providing them with adaptive technology or by providing them emotional support, we are proud to offer all of our services at no fee to those affected by ALS in Saskatchewan.
Please help us reach our goal of raising $25,000 during the month of June. We will be periodically updating you throughout the month on how we are reaching our goal.
Please donate by using the link below. You will also note on the donation page that you can also support us by creating your very own pledge page by pressing on the FUNDRAISE button. On this page you will be able to personalize the donation experience for your family and friends, set your own goal of raising funds for the month, create your own messaging and add a few personal pictures before being provided a personal link which you can then share with everyone around you.
We thank everyone ahead of time for all the support they will provide us in June.
https://app.simplyk.io/en/peer-to-peer/30425d53-5d7c-49cb-8eb9-a621bec4e039
Amyotrophic lateral sclerosis (ALS) is a group of rare neurological diseases that mainly involve the nerve cells (neurons) responsible for controlling voluntary muscle movement. Voluntary muscles produce movements like chewing, walking, and talking. The disease is progressive, meaning the symptoms ...
The next video in our series is a little closer to home. This video is about Chris Snow, the Calgary Flames Assistant General Manager who was diagnosed with ALS. Please listen to his story. https://www.youtube.com/watch?v=pCokzL3gSNA
If you want to support the ALS Society of SK please donate here: https://app.simplyk.io/en/peer-to-peer/30425d53-5d7c-49cb-8eb9-a621bec4e039
Last June, Chris Snow found out he is afflicted by Familial ALS. Four men in the last two generations of Snows have died from the disease. It’s been seven ...
Well we are almost to the end of the month and we would like to make a big last push for donations to help us support those affected by ALS right here in Saskatchewan. A huge thank you to those who have already given and a big please and thank you to those who haven't. All of your donations mean the world to us.
To donate click here: https://app.simplyk.io/en/peer-to-peer/30425d53-5d7c-49cb-8eb9-a621bec4e039
To buy 50/50 tickets click here: https://als5050.ca/
To visit our website and see what we have to offer: www.alssask.ca
Amyotrophic lateral sclerosis (ALS) is a group of rare neurological diseases that mainly involve the nerve cells (neurons) responsible for controlling voluntary muscle movement. Voluntary muscles produce movements like chewing, walking, and talking. The disease is progressive, meaning the symptoms ...
Here is a series of stories (3 of them) from ABC News in the USA looking back at the Ice Bucket Challenge, 5 years later. You will notice that the video does not end properly as they said they would post a part 2 to the video. Unfortunately that video cannot be found.
https://www.youtube.com/watch?v=OAnZSeBJUSg
If you want to support the ALS Society of SK please donate here: https://app.simplyk.io/en/peer-to-peer/30425d53-5d7c-49cb-8eb9-a621bec4e039
Motocross dad Thurman Maynard, former undercover cop Sarah Olsen and Pete Frates, who helped launch the "Ice Bucket Challenge," share their stories of hope, ...
Well we are almost to the end of the month and we would like to make a big last push for donations to help us support those affected by ALS right here in Saskatchewan. A huge thank you to those who have already given and a big please and thank you to those who haven't. All of your donations mean the world to us.
To donate click here: https://app.simplyk.io/en/peer-to-peer/30425d53-5d7c-49cb-8eb9-a621bec4e039
To buy 50/50 tickets click here: https://als5050.ca/
To visit our website and see what we have to offer: www.alssask.ca
Amyotrophic lateral sclerosis (ALS) is a group of rare neurological diseases that mainly involve the nerve cells (neurons) responsible for controlling voluntary muscle movement. Voluntary muscles produce movements like chewing, walking, and talking. The disease is progressive, meaning the symptoms ...
Here is our third video on MND from Australia. This one is told from the perspective of someone who has been diagnosed. Louise is a clinical psychologist, Louise Pearson, who was diagnosed with motor neuron disease (MND/ALS) in 2007. Louise has met each challenge with a can-do attitude that has left those who know her in awe.
Here is her story: https://www.youtube.com/watch?v=mmSBAIRqbes
If you want to help support the ALS Society of SK please donate here: https://app.simplyk.io/en/peer-to-peer/30425d53-5d7c-49cb-8eb9-a621bec4e039
In 2013 we spoke with Sydney-based clinical psychologist, Louise Pearson, who was diagnosed with motor neurone disease (MND/ALS) in 2007. Louise has met each...
In the next video we want to share with you (again from Australia if you watched yesterdays video) an amazing story told from the perspective of the loved ones whose partner and mother is diagnosed with ALS (Motor Neuron Disease). Getting the perspective of the caregiver is a great gift to our community as so many times the caregivers, loved ones are forgotten in the process.
Please take the 20 minutes to appreciate the video. https://www.youtube.com/watch?v=dWgrNzGBPEc
If you want to help support the ALS Society of SK please donate here: https://app.simplyk.io/en/peer-to-peer/30425d53-5d7c-49cb-8eb9-a621bec4e039
Produced by Exponline OfficialDirected by Tomas Gonzalez Editorial by Natalia LizamaSocial: https://www.instagram.com/exponlineofficial/If you are in a posit...
Well we are almost to the end of the month and we would like to make a big last push for donations to help us support those affected by ALS right here in Saskatchewan. A huge thank you to those who have already given and a big please and thank you to those who haven't. All of your donations mean the world to us.
To donate click here: https://app.simplyk.io/en/peer-to-peer/30425d53-5d7c-49cb-8eb9-a621bec4e039
To buy 50/50 tickets click here: https://als5050.ca/
To visit our website and see what we have to offer: www.alssask.ca
Amyotrophic lateral sclerosis (ALS) is a group of rare neurological diseases that mainly involve the nerve cells (neurons) responsible for controlling voluntary muscle movement. Voluntary muscles produce movements like chewing, walking, and talking. The disease is progressive, meaning the symptoms ...
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This is why we endeavor to support those living with ALS. All of us here have lived through and witnessed the reality of the disease, and how it changes the circumstances of those living with ALS, their families, their peers, and their community. We doubt anyone in this community needs reminding of the effects of this disease, but at-large, diseases like ALS (and other MNDs) are compartmentalized and differentiated from others like it. Unless you have experienced ALS first-hand it might never cross your mind. However, what a disease like ALS represents is the unexpected, where one day you are fine, and then the next day you are not. And from that point on, the life you had envisioned for yourself and family has changed. June 16 “(Not so) Feel Good” challenge: “share this video” This video tells a universal tale. That the unexpected creeps in out of nowhere, with no regard for who you are, where you are, and all that you have. We apologize for the sadness this video might arouse, but in that sadness, we are reminded of the strength, will, and the potential those living with ALS have. Each day we inch closer to an ALS free future with the humility of knowing that it is going to take time. But what we are doing today, tomorrow, this month and the next are taking the steps necessary to bring about that future. Visit our neighbors @ALSALBERTA where they post #seizetheday4ALS challenges that inspire embracing the present and living in the moment. #WalktoEndALS #ALSDoesntStop
Please join us for the ALS Society's AGM which takes place Sunday, May 5, at 1:00 pm in the Asher Auditorium at the Saskatoon City Hospital We are in need of volunteers in the areas of Accounting, Human Resources, and Event Planning. If interested, contact our office (949-1400), send us a message, or show up to the AGM.
Do you feel it? Spring is coming... it is in the air! #alssask #alssaskatchewan #whatawinter #yellowcoatsandtoothpickboats #greenisthecolor
Countdown to Carlyle #WalkforALS coming up this Saturday. Register now! Let's get this walking started! www.walkforals.ca #carlylewalk #carlylecommunity #carlylesaskatchewan
One of our prizes drives up with Carson at the wheel! #walkforals #alssask
Kim's Walk is coming this Saturday June 2nd, lauching ALS Awareness month. Challenge yourself to walk from Regina to Lumsden! Details for the #walkforals follow: Details : 33 kms from Regina to Lumsden Highway support and lunch at the finish provided. Assistance with return transportation can be arranged in advance. Location : Finning Tractor 2360 Pasqua St N, Regina Date : June 2 2018 Walk Check in Time :6:00AM Walk Start Time : 6:30AM Contact : Kim Dolinski Email : [email protected] Phone : 306-949-4100
Call for VOLUNTEERS for our Saskatoon ALS Walk on Sunday, June 24th. Contact Sandra: phone (306)715-8622; or email [email protected]
New from Dr. Taylor about an upcoming clinical trial in Saskatoon. The first in Saskatchewan! More to come...
Dr. Taylor talks about discoveries in ALS and putting together the pieces...
At approximately 7:00, listen to Dr. Taylor talk about cognitive issues in ALS.
We are seeking leaders for our Board of Directors. If you are a clinician, someone with a lived experience of ALS, or an interested community member, please call our office at 949-4100 to apply to become a member of the Board family.
Our Services: to accommodate the needs of clients with ALS with equipment, information, referrals and support to the best of our abilities. To promote education and awareness through engagement to the wider community. To act as an advocate for our clients and families with government, health regions and community.
Saskatchewan Voice of People with Disabilitie
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