Interview 28 – Updates from the Canadian Rheumatology Association with Dr. Ahmad Zbib
Dr. Ahmad Zbib attended the American University of Beirut (Lebanon) where he earned a Bachelor of Science in biology and later attended The Lithuanian University of Health Sciences, earning his MD in general medicine in 2003. He currently holds the position of Chief Executive Officer at the Canadian Rheumatology Association. Dr. Zbib shares updates from the Canadian Rheumatology Association and tells us more about the Canadian Rheumatology Association Foundation.
Resources
• About the Canadian Rheumatology Association - https://rheum.ca/
• About the Canadian Rheumatology Association Foundation - https://crafoundation.ca/
• We Are All Perfectly Fine: A Memoir of Love, Medicine and Healing by Dr. Jillian Horton - https://bit.ly/3IK793q
#CRArthritis #ASM24
Canadian Rheumatology Association
Arthritis Consumer Experts
Arthritis Research Canada
Rheumatoid arthritis prediction and prevention, and the impact of RA on First Nations People
Dr. Hani El-Gabalawy is a physician and researcher, currently holding positions as a professor of medicine and immunology, and an endowed Rheumatology Research Chair at the University of Manitoba. He is widely recognized for his contributions in the field of rheumatology and immunology, with a specific focus on rheumatoid arthritis and Indigenous Health.
In this #CRArthritis interview, Dr. El-Gabalawy summarizes the key take aways from his presentations on rheumatoid arthritis prediction and prevention, and the impact of rheumatoid arthritis on First Nations People.
Resources
• Emerging Approaches to the Detection and Prevention of Rheumatoid Arthritis in Predisposed Indigenous North American Population https://bit.ly/43oDki9
• Disparities in rheumatoid arthritis outcomes for North American Indigenous Populations https://www.tandfonline.com/doi/full/10.1080/22423982.2023.2166447
• Arthritis Call to Action: Indigenous Health https://arthritiscalltoaction.ca/indigenous-health/
#CRArthritis #ASM24
University of Manitoba
Arthritis Consumer Experts
Arthritis Research Canada
Interview 24 – 18F-Fluorodeoxyglucose positron emission tomography (PET) imaging and giant cell arteritis
Dr. Alison Clifford is an Associate Professor in the Department of Rheumatology at the University of Alberta. She is also an associate member of CanVasc, the Canadian network for vasculitis invesitgators. Her interest is in vasculitis, or inflammation of the blood vessel walls. Vasculitis results in reduced blood flow to the body’s organs, potentially leading to serious tissue damage. In this #CRArthritis interview, she talks about the 18F-Flurodeoxyglucose positron emission tomography (PET) imaging and giant cell arteritis, the most common form of vasculitis in North America.
Resources
• About PET/CT in giant cell arteritis - https://academic.oup.com/rheumatology/article/62/4/1366/6712341
• Vasculitis Foundation Canada - https://vasculitis.ca/
• About giant cell arteritis - https://rheumatology.org/patients/giant-cell-arteritis
Vasculitis Foundation Canada / Fondation vasculites Canada
Arthritis Consumer Experts
Arthritis Research Canada
Interview 26 – Virtual and remote occupational therapy and complex osteoarthritis with Ms. Morag Crocker
Morag Crocker is an occupational therapist and occupational therapy practice coordinator at the Mary Pack Arthritis Program. As coordinator, she helps bring arthritis travelling occupational therapy service to remote communities like Bella Bella, Bella Coola, Hazelton, Smithers, Terrace, Haida Gwaii and Williams Lake.
In this #CRArthritis interview, she shares how travelling occupational therapy works and explains what the tertiary arthritis program is at the Mary Pack Arthritis Centre. She also provides a definition of what complex osteoarthritis is and some tips on how to manage complex osteoarthritis.
Resources
• About Vancouver Coastal Health’s Mary Pack Arthritis Program - http://mpap.vch.ca/
• Travelling Occupational Therapy Clinics (as of March 2023) -http://mpap.vch.ca/services/travelling-clinics
• OsteoArthritis Service Integration System (OASIS) - https://www.vch.ca/en/service/oasis#short-description--6221
• Arthritis Consumer Experts’ About Osteoarthritis Page - https://bit.ly/ACEAboutOsteoarthritisEN
#osteoarthritis #HCPs #alliedhealth #occuationaltherapy
Canadian Association of Occupational Therapists
Canadian Physiotherapy Association/Association canadienne de physiothérapie
Canadian Rheumatology Association
Arthritis Society Canada
OA Action Alliance
Canadian Spondyloarthritis Association
Arthritis Consumer Experts
Interview 25 - The role of AHPA in arthritis care with Michelle Bridge
Today on #CRArthritis, we are featuring interviews with allied health care professionals (AHPA)!
Michelle Bridge is the President of Arthritis Health Professions Association. She is an Advanced Clinician Practitioner in Arthritis Care (ACPAC)-trained Occupational Therapist, with Arthritis Society Canada’s Arthritis Rehabilitation and Education Program, covering Windsor-Essex county in Ontario. She explains what the Arthritis Health Professions Association is and what it offers for its members. Furthermore, she highlights the role that allied health care professionals play in arthritis care.
#ASM24
Arthritis Consumer Experts
Arthritis Society Canada
Arthritis Research Canada
Canadian Rheumatology Association
Interview 22 – A unique perspective of living with arthritis with Mr. Michael Kuluva
An American fashion designer and founder of the New York fashion label Tumbler and Tipsy, Michael Kuluva was diagnosed with rheumatoid arthritis (RA) when he was 28. Michael is a passionate advocate for RA and makes a point of including people with mobility challenges in his work.
He recounts with Anita Chan his RA journey, shares lifestyle tips for patients living with arthritis, and his work as a patient advocate.
Resources
• Reporting of Determinants of Health Inequities in Rheumatoid Arthritis Randomized Controlled Trials in Canada: A Scoping Review - https://bit.ly/DeterminantsofHealthInequitiesinRAReview
• About Michael Kuluva - https://www.michaelkuluva.net/home
• Follow Michael on social media: X (@MichaelKuluva), Instagram (@MichaelKuluva)
#CRArthritis #ASM24 #rheumatoidarthritis #equalrepresentation #ArthritisResearch
Arthritis Consumer Experts
Canadian Rheumatology Association
Arthritis Research Canada
MichaelKuluva
Arthritis Society Canada
NYFW
Interview 21 – Towards improving representation in rheumatology research (in Canada and Beyond)
Dr. De Vera is a pharmacoepidemiologist and assistant professor in medication adherence in the Faculty of Pharmaceutical Sciences at UBC. Megan Thomas is a PhD student at the University of British Columbia in the Department of Pharmaceutical Sciences, specializing in epidemiology and health outcomes. Anna Samson is a person living with ankylosing spondylitis and fibromyalgia. She is studying English at McMaster University and is an advocate for disability and mental health.
They discuss highlights from their workshop on working towards improving representation in rheumatology research. They also report on determinants of health inequities and some of the barriers researchers and arthritis health care providers may face in underrepresented populations.
Resources
• Reporting of Determinants of Health Inequities in Rheumatoid Arthritis Randomized Controlled Trials in Canada: A Scoping Review - https://bit.ly/DeterminantsofHealthInequitiesinRAReview
• Reporting of determinants of health inequities and participant characteristics in randomized controlled trials of juvenile idiopathic arthritis in Canada: A scoping review - https://bit.ly/DeterminantsofHealthInequitiesJIAReview
• Reporting of determinants of health inequities and participant characteristics in randomized controlled trials of systemic lupus erythematosus in Canada: A scoping review - https://bit.ly/DeterminantsofHealthInequitiesSLEReview
#CRArthritis #ASM24 #healthinequity #equalrepresentation #socialdeterminants
Arthritis Consumer Experts
Canadian Rheumatology Association
Arthritis Research Canada
University of British Columbia
McMaster University
Interview 20 – Patient and family engagement in rheumatology research
Dr. Batthish is an Associate Professor of Pediatrics in the Faculty of Health Sciences at McMaster University. Her research interests are in juvenile arthritis care, treatments and outcomes. Dr. Beattie is an Associate Member in Rehabilitation Science in the Faculty of Health Sciences in McMaster University. Her research interests are in autoimmunity, clinical science, patient and citizen engagement, and patient-centered care in rheumatology and rheumatoid arthritis. Meghan Pancucci is a student at McMaster University and plays for the university's water polo team.
The trio talks about their workshop, which is designed for researchers and family advocates who have an interest in engagement patients/families in rheumatology research. They talk about what family engagement in research means and its benefits for patients, health care providers, and researchers, and how families may be engaged with researchers in projects at different stages of the research life cycle.
Resources
• Matching researchers’ needs and patients’ contributions: practical tips for meaningful patient engagement from the field of rheumatology - https://ard.bmj.com/content/82/3/312
• Patient Engagement in Research Scale - https://www.arthritisresearch.ca/peirs/
#CRArthritis #ASM24 #ArthritisResearch
Arthritis Consumer Experts
Arthritis Research Canada
McMaster University
Arthritis Society Canada
Cassie + Friends Society
Interview 19 - Emergency medical records (EMRs) do NOT SAVE time for healthcare providers and improve quality of care
Dr. Appleton is an Assistant Professor at Western University. He joined the Division of Rheumatology in 2016 as a Clinician Scientist and provides clinical service to patients with inflammatory disorders in addition to running the translational early osteoarthritis research program.
In this interview, he outlines the opposition points he plans to use at this year’s Great Debate to argue against the efficacy of emergency medical records.
Resources:
• Canadian Medical Protective Association: Electronic records handbook - https://www.cmpa-acpm.ca/en/advice-publications/handbooks/electronic-records-handbook
• Canada Health Infoway: Integrating digital health into the health care experience - https://bit.ly/IntegratingDigitalHealth
#CRArthritis #ASM24 #EMRs
Canadian Rheumatology Association
Arthritis Consumer Experts
Arthritis Research Canada
Arthritis Society Canada
University Health Network
Interview 18 - Emergency medical records SAVE time for healthcare providers and improve quality of care
Dr. Katz is an award-winning clinician, medical educator, researcher, and medical community leader. He is a Professor of Medicine at the University of Alberta, and the Director of the Division of Rheumatology and Section Head for Rheumatology for Alberta Health Services. Dr. Hall is a Clinical Associate Professor in the Faculty of Pharmacy and Pharmaceutical Sciences at the University of Alberta.
The duo joins Kelly Lendvoy to share some key arguments that they will be presenting at this year’s Great Debate on why emergency medical records save time for health care providers and improve quality of care.
Resources:
• Canadian Medical Protective Association: Electronic records handbook - https://www.cmpa-acpm.ca/en/advice-publications/handbooks/electronic-records-handbook
• Canada Health Infoway: Integrating digital health into the health care experience - https://bit.ly/IntegratingDigitalHealth
#CRArthritis #ASM24 #EMRs
Arthritis Consumer Experts
Canadian Rheumatology Association
Arthritis Society Canada
University of Alberta
Canadian Medical Association
Interview 15 - Optimizing care for patients with rheumatic and musculoskeletal diseases by utilizing ACPAC-trained clinicians with Dr. Vandana Ahluwalia
Dr. Vandana Ahluwalia speaks to Kelly Lendvoy on how including an Advanced Clinician Practitioner in Arthritis Care (ACPAC) trained professionals can help to address gaps in patient care. ACPAC is an academic and clinical training program developed to prepare experienced physical therapists, occupational therapists, chiropractors and nurses in the assessment and management of arthritis.
Dr. Vandana Ahluwalia heads the Rheumatology Division of the William Osler Health Centre in Brampton, Ontario. She sees patients in her Brampton community practice as well as in the combined Rheumatology/Orthopedics MSK clinic at Brampton Civic Hospital. She is also actively involved in clinical trials and studies related to inflammatory arthritis and has co-authored various articles within this therapeutic area.
Resources
• Advanced Clinician Practitioner in Arthritis Care Program - https://acpacprogram.ca/program/
• An Advanced Clinician Practitioner in Arthritis Care (ACPAC) Maintains a Positive Patient Experience While Increasing Capacity in Rheumatology Community Care - https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8184238/
• JointHealth™ insight: Today’s arthritis experience in Canada - https://jointhealth.org/programs-jhinsight-view.cfm?id=1301&locale=en-CA
#CRArthritis #ASM24 #arthritis #PatientCare
Arthritis Consumer Experts
Canadian Rheumatology Association
Arthritis Research Canada
Arthritis Society Canada