05/20/2024
This , check out our 2024 posts to learn more about the latest research, updates, and news on and more: https://arthritisbroadcastnetwork.org/
World AiArthritis Day
Arthritis Consumer Experts
Arthritis Research Canada
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05/20/2024
There are more than 100 types of arthritis affecting people of all ages. To help consumer identify arthritis, Arthritis Consumer Experts and Arthritis Research Canada developed an easy-to-use Arthritis Screening Exam.
On , please consider taking and sharing this exam: https://arthritisbroadcastnetwork.org/arthritis-screening/
World AiArthritis Day
Arthritis Society Canada
05/19/2024
Approximately 300 million people worldwide are diagnosed with at least one AiArthritis disease. However, research suggests that over 50% of patients go undiagnosed or are diagnosed with an "undifferentiated" disease, increasing this number to an estimated 450 million.
Learn more here: https://www.aiarthritis.org/aiarthritisday
Arthritis Consumer Experts
World AiArthritis Day
Arthritis Research Canada
Arthritis Society Canada
05/19/2024
May 20th is World AUTOimmune & AUTOinflammatory Arthritis Day! We will be joining the conversation online and sharing resources to help raise awareness.
Learn more: https://www.aiarthritis.org/aiarthritisday
Arthritis Consumer Experts
World AiArthritis Day
Arthritis Research Canada
Society Canada
03/20/2024
Dr. Ahmad Zbib attended the American University of Beirut (Lebanon) where he earned a Bachelor of Science in biology and later attended The Lithuanian University of Health Sciences, earning his MD in general medicine in 2003. He currently holds the position of Chief Executive Officer at the Canadian Rheumatology Association. Dr. Zbib shares updates from the Canadian Rheumatology Association and tells us more about the Canadian Rheumatology Association Foundation.
Resources
• About the Canadian Rheumatology Association - https://rheum.ca/
• About the Canadian Rheumatology Association Foundation - https://crafoundation.ca/
• We Are All Perfectly Fine: A Memoir of Love, Medicine and Healing by Dr. Jillian Horton - https://bit.ly/3IK793q
Canadian Rheumatology Association
Arthritis Consumer Experts
Arthritis Research Canada
03/19/2024
Dr. Hani El-Gabalawy is a physician and researcher, currently holding positions as a professor of medicine and immunology, and an endowed Rheumatology Research Chair at the University of Manitoba. He is widely recognized for his contributions in the field of rheumatology and immunology, with a specific focus on rheumatoid arthritis and Indigenous Health.
In this interview, Dr. El-Gabalawy summarizes the key take aways from his presentations on rheumatoid arthritis prediction and prevention, and the impact of rheumatoid arthritis on First Nations People.
Resources
• Emerging Approaches to the Detection and Prevention of Rheumatoid Arthritis in Predisposed Indigenous North American Population https://bit.ly/43oDki9
• Disparities in rheumatoid arthritis outcomes for North American Indigenous Populations https://www.tandfonline.com/doi/full/10.1080/22423982.2023.2166447
• Arthritis Call to Action: Indigenous Health https://arthritiscalltoaction.ca/indigenous-health/
University of Manitoba
Arthritis Consumer Experts
Arthritis Research Canada
03/15/2024
Dr. Alison Clifford is an Associate Professor in the Department of Rheumatology at the University of Alberta. She is also an associate member of CanVasc, the Canadian network for vasculitis invesitgators. Her interest is in vasculitis, or inflammation of the blood vessel walls. Vasculitis results in reduced blood flow to the body’s organs, potentially leading to serious tissue damage. In this interview, she talks about the 18F-Flurodeoxyglucose positron emission tomography (PET) imaging and giant cell arteritis, the most common form of vasculitis in North America.
Resources
• About PET/CT in giant cell arteritis - https://academic.oup.com/rheumatology/article/62/4/1366/6712341
• Vasculitis Foundation Canada - https://vasculitis.ca/
• About giant cell arteritis - https://rheumatology.org/patients/giant-cell-arteritis
Vasculitis Foundation Canada / Fondation vasculites Canada
Arthritis Consumer Experts
Arthritis Research Canada
03/15/2024
Morag Crocker is an occupational therapist and occupational therapy practice coordinator at the Mary Pack Arthritis Program. As coordinator, she helps bring arthritis travelling occupational therapy service to remote communities like Bella Bella, Bella Coola, Hazelton, Smithers, Terrace, Haida Gwaii and Williams Lake.
In this interview, she shares how travelling occupational therapy works and explains what the tertiary arthritis program is at the Mary Pack Arthritis Centre. She also provides a definition of what complex osteoarthritis is and some tips on how to manage complex osteoarthritis.
Resources
• About Vancouver Coastal Health’s Mary Pack Arthritis Program - http://mpap.vch.ca/
• Travelling Occupational Therapy Clinics (as of March 2023) -http://mpap.vch.ca/services/travelling-clinics
• OsteoArthritis Service Integration System (OASIS) - https://www.vch.ca/en/service/oasis -description--6221
• Arthritis Consumer Experts’ About Osteoarthritis Page - https://bit.ly/ACEAboutOsteoarthritisEN
Canadian Association of Occupational Therapists
Canadian Physiotherapy Association/Association canadienne de physiothérapie
Canadian Rheumatology Association
Arthritis Society Canada
OA Action Alliance
Canadian Spondyloarthritis Association
Arthritis Consumer Experts
03/15/2024
Today on , we are featuring interviews with allied health care professionals (AHPA)!
Michelle Bridge is the President of Arthritis Health Professions Association. She is an Advanced Clinician Practitioner in Arthritis Care (ACPAC)-trained Occupational Therapist, with Arthritis Society Canada’s Arthritis Rehabilitation and Education Program, covering Windsor-Essex county in Ontario. She explains what the Arthritis Health Professions Association is and what it offers for its members. Furthermore, she highlights the role that allied health care professionals play in arthritis care.
Arthritis Consumer Experts
Arthritis Society Canada
Arthritis Research Canada
Canadian Rheumatology Association
03/08/2024
Happy International Women's Day!
Thank you to all the women arthritis patients, doctors, and researchers from that stopped by this year! 🥰
Arthritis Consumer Experts
Arthritis Research Canada
Arthritis Society Canada
03/02/2024
An American fashion designer and founder of the New York fashion label Tumbler and Tipsy, Michael Kuluva was diagnosed with rheumatoid arthritis (RA) when he was 28. Michael is a passionate advocate for RA and makes a point of including people with mobility challenges in his work.
He recounts with Anita Chan his RA journey, shares lifestyle tips for patients living with arthritis, and his work as a patient advocate.
Resources
• Reporting of Determinants of Health Inequities in Rheumatoid Arthritis Randomized Controlled Trials in Canada: A Scoping Review - https://bit.ly/DeterminantsofHealthInequitiesinRAReview
• About Michael Kuluva - https://www.michaelkuluva.net/home
• Follow Michael on social media: X (), Instagram ()
Arthritis Consumer Experts
Canadian Rheumatology Association
Arthritis Research Canada
MichaelKuluva
Arthritis Society Canada
NYFW
03/02/2024
Dr. De Vera is a pharmacoepidemiologist and assistant professor in medication adherence in the Faculty of Pharmaceutical Sciences at UBC. Megan Thomas is a PhD student at the University of British Columbia in the Department of Pharmaceutical Sciences, specializing in epidemiology and health outcomes. Anna Samson is a person living with ankylosing spondylitis and fibromyalgia. She is studying English at McMaster University and is an advocate for disability and mental health.
They discuss highlights from their workshop on working towards improving representation in rheumatology research. They also report on determinants of health inequities and some of the barriers researchers and arthritis health care providers may face in underrepresented populations.
Resources
• Reporting of Determinants of Health Inequities in Rheumatoid Arthritis Randomized Controlled Trials in Canada: A Scoping Review - https://bit.ly/DeterminantsofHealthInequitiesinRAReview
• Reporting of determinants of health inequities and participant characteristics in randomized controlled trials of juvenile idiopathic arthritis in Canada: A scoping review - https://bit.ly/DeterminantsofHealthInequitiesJIAReview
• Reporting of determinants of health inequities and participant characteristics in randomized controlled trials of systemic lupus erythematosus in Canada: A scoping review - https://bit.ly/DeterminantsofHealthInequitiesSLEReview
Arthritis Consumer Experts
Canadian Rheumatology Association
Arthritis Research Canada
University of British Columbia
McMaster University
03/02/2024
Dr. Batthish is an Associate Professor of Pediatrics in the Faculty of Health Sciences at McMaster University. Her research interests are in juvenile arthritis care, treatments and outcomes. Dr. Beattie is an Associate Member in Rehabilitation Science in the Faculty of Health Sciences in McMaster University. Her research interests are in autoimmunity, clinical science, patient and citizen engagement, and patient-centered care in rheumatology and rheumatoid arthritis. Meghan Pancucci is a student at McMaster University and plays for the university's water polo team.
The trio talks about their workshop, which is designed for researchers and family advocates who have an interest in engagement patients/families in rheumatology research. They talk about what family engagement in research means and its benefits for patients, health care providers, and researchers, and how families may be engaged with researchers in projects at different stages of the research life cycle.
Resources
• Matching researchers’ needs and patients’ contributions: practical tips for meaningful patient engagement from the field of rheumatology - https://ard.bmj.com/content/82/3/312
• Patient Engagement in Research Scale - https://www.arthritisresearch.ca/peirs/
Arthritis Consumer Experts
Arthritis Research Canada
McMaster University
Arthritis Society Canada
Cassie + Friends Society
03/02/2024
Dr. Appleton is an Assistant Professor at Western University. He joined the Division of Rheumatology in 2016 as a Clinician Scientist and provides clinical service to patients with inflammatory disorders in addition to running the translational early osteoarthritis research program.
In this interview, he outlines the opposition points he plans to use at this year’s Great Debate to argue against the efficacy of emergency medical records.
Resources:
• Canadian Medical Protective Association: Electronic records handbook - https://www.cmpa-acpm.ca/en/advice-publications/handbooks/electronic-records-handbook
• Canada Health Infoway: Integrating digital health into the health care experience - https://bit.ly/IntegratingDigitalHealth
Canadian Rheumatology Association
Arthritis Consumer Experts
Arthritis Research Canada
Arthritis Society Canada
University Health Network
03/02/2024
Dr. Katz is an award-winning clinician, medical educator, researcher, and medical community leader. He is a Professor of Medicine at the University of Alberta, and the Director of the Division of Rheumatology and Section Head for Rheumatology for Alberta Health Services. Dr. Hall is a Clinical Associate Professor in the Faculty of Pharmacy and Pharmaceutical Sciences at the University of Alberta.
The duo joins Kelly Lendvoy to share some key arguments that they will be presenting at this year’s Great Debate on why emergency medical records save time for health care providers and improve quality of care.
Resources:
• Canadian Medical Protective Association: Electronic records handbook - https://www.cmpa-acpm.ca/en/advice-publications/handbooks/electronic-records-handbook
• Canada Health Infoway: Integrating digital health into the health care experience - https://bit.ly/IntegratingDigitalHealth
Arthritis Consumer Experts
Canadian Rheumatology Association
Arthritis Society Canada
University of Alberta
Canadian Medical Association
03/02/2024
Dr. Vis speaks to Kelly Lendvoy about sarcoidosis management. Sarcoidosis is a disease characterized by the growth of tiny collections of inflammatory cells in any part of the body — most commonly the lungs and lymph nodes. But it can also affect the eyes, skin, heart and other organs.
Dr. Vis is a clinical lecturer of medicine at the University of Calgary. He also sees patients at South Health Campus Pulmonary Diagnostics division. There he specializes in the diagnosis and treatment of many ailments and diseases affecting the lungs and respiratory system as a whole.
Resources
• University of Calgary: More about Daniel Vis’s research - https://www.researchgate.net/scientific-contributions/Daniel-Vis-2115303649
• American Lung Association: Treating and Managing Sarcoidosis - https://www.lung.org/lung-health-diseases/lung-disease-lookup/sarcoidosis/treating-and-managing
• Many Patients with Sarcoidosis Also Have Sarcoid Arthritis - https://sarcoidosisnews.com/news/patients-sarcoidosis-sarcoid-arthritis/
03/01/2024
Dr. Vandana Ahluwalia speaks to Kelly Lendvoy on how including an Advanced Clinician Practitioner in Arthritis Care (ACPAC) trained professionals can help to address gaps in patient care. ACPAC is an academic and clinical training program developed to prepare experienced physical therapists, occupational therapists, chiropractors and nurses in the assessment and management of arthritis.
Dr. Vandana Ahluwalia heads the Rheumatology Division of the William Osler Health Centre in Brampton, Ontario. She sees patients in her Brampton community practice as well as in the combined Rheumatology/Orthopedics MSK clinic at Brampton Civic Hospital. She is also actively involved in clinical trials and studies related to inflammatory arthritis and has co-authored various articles within this therapeutic area.
Resources
• Advanced Clinician Practitioner in Arthritis Care Program - https://acpacprogram.ca/program/
• An Advanced Clinician Practitioner in Arthritis Care (ACPAC) Maintains a Positive Patient Experience While Increasing Capacity in Rheumatology Community Care - https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8184238/
• JointHealth™ insight: Today’s arthritis experience in Canada - https://jointhealth.org/programs-jhinsight-view.cfm?id=1301&locale=en-CA
Arthritis Consumer Experts
Canadian Rheumatology Association
Arthritis Research Canada
Arthritis Society Canada
03/01/2024
Arthritis Consumer Experts’ National Survey findings reveal that Black, Indigenous Peoples and people of colour (BIPOC) respondents face significantly greater barriers when accessing arthritis care, and when they do, benefit less from their interactions.
Amorell Saunders N'Daw is a trained journalist and Equity, Diversity, and Inclusion (EDI) advocate. Dr. Alan Zhou is a Rheumatology Resident at the University of Toronto. He works in the Division of Adult Rheumatology at University Health Network's Toronto Western Hospital.
Dr. Zhou and Ms. N’Daw discuss how rheumatologists can ensure patients’ cultural backgrounds and beliefs are respected and integrated into their clinical practice and
strategies to overcome language barriers and ensure clear communication with patients from diverse backgrounds.
Resources
• Equity in Health Systems Lab - https://www.eqhslab.com/aboutus
• Arthritis Consumer Experts National Survey on Arthritis and Health Inequities - https://jointhealth.org/programs-jhinsight-view.cfm?id=1286&locale=en-CA
• Canadian Medical Protective Association: Cultural Safety - https://www.cmpa-acpm.ca/en/education-events/good-practices/professionalism-ethics-and-wellness/cultural-safety
Canadian Rheumatology Association
University Health Network
Arthritis Research Canada
Arthritis Society Canada
Arthritis Consumer Experts
03/01/2024
This features Natasha Trehan, person living with juvenile idiopathic arthritis and Founder of Take a Pain Check Foundation, Dr. Michelle Batthish, pediatric rheumatologist at McMaster Children’s Hospital, and Dr. Stephanie Garner, Adult Rheumatologist at the University of Calgary. Together, the trio defines what the emerging adult is and highlights the challenges that may arise in the transition from pediatric rheumatology care to adult rheumatology care.
Resources
• Youth and Young Adults with Rheumatic Disease - https://arthritispatient.ca/youth-and-young-adults-with-rheumatic-disease/
• MyTransition App: An app to help prepare patients between the age of 12 and 18 to take charge of their health care - https://apps.apple.com/ca/app/mytransition-app/id1327036414
Canadian Rheumatology Association
Arthritis Consumer Experts
Cassie + Friends Society
SickKids Foundation
Canucks for Kids Fund
Arthritis Society Canada
03/01/2024
Dr. Pope, Professor of Medicine in the Division of Rheumatology and also Epidemiology and Biostatistics at the University of Western Ontario, discusses about testing for the right things in people living with arthritis. She shares how the guidelines outlined in Choosing Wisely Canada can help, along with open communication between rheumatologist and patient, can contribute to shared decision making and improved health outcomes. She concludes by providing some arthritis research updates.
Resources:
• Choosing Wisely Canada – Rheumatology - https://choosingwiselycanada.org/recommendation/rheumatology/
• JointHealth™ Education Rheumatoid Arthritis: Setting treatment goals and building a treatment plan - https://education.jointhealth.org/jointhealth-education/course-1-ra/ra-lesson-3/
Canadian Rheumatology Association
Arthritis Research Canada
Arthritis Society Canada
Arthritis Consumer Experts
03/01/2024
Natasha Trehan, person living with juvenile idiopathic arthritis and Founder of Take a Pain Check Foundation, shares how her lived experiences and passion towards supporting youth and young adults with rheumatic disease have shaped her workshop on working towards health equity. She will be sharing her perspectives on shared decision making and clinical practice guidelines. Her co-presenters, Drs Cheryl Barnabe, Karine Toupin-April, and Elizabeth Stringer will share highlights on cultural and social aspects of shared decision making in pediatric and adult rheumatology.
Resources:
• Take a Pain Check Foundation - https://www.takeapaincheck.com/
• Follow Natasha Trehan on X () - https://twitter.com/natasha_trehan
• Arthritis Call to Action: An access point into Truth and Reconciliation for the arthritis community in Canada - https://arthritiscalltoaction.ca/
• Arthritis Consumer Experts’ Special Series on Health Inequities in Arthritis - https://advocacy.jointhealth.org/health-inequities/
Arthritis Research Canada
Canadian Arthritis Patient Alliance
Arthritis Consumer Experts
Take a Pain Check
Canadian Rheumatology Association
02/29/2024
Dr. Toupin-April speaks to Kelly Lendvoy about how the practice of shared decision making can be implemented effectively in arthritis care, taking into account the diverse needs of specific patient populations, and how they can contribute to reducing health disparities. She offers examples of how guidelines can be made relevant and accessible to Indigenous communities, immigrants, and other minority groups to ensure equitable care outcomes.
Resources:
• Arthritis Consumer Experts’ Special Series on Health Inequities in Arthritis - https://advocacy.jointhealth.org/health-inequities/
• OMERACT Outcome Measures in Rheumatology® - https://omeract.org/
Canadian Rheumatology Association
Arthritis Consumer Experts
Arthritis Research Canada
University of Ottawa
02/29/2024
Dr. Eder, scientist at Women’s College Research Institute (WCRI), staff rheumatologist and Co-Director of the Cardio-Rheumatology Program at Women’s College Hospital (WCH), and Research Director, Division of Rheumatology at University of Toronto, discusses how psoriasis and psoriatic arthritis are connected. She shares with the audience the PRESTO tool, a new prediction tool for psoriatic arthritis in psoriasis patients, and how scientists and rheumatologists are identifying high-risk individuals and exploring opportunities for early interception.
Resources:
• PRESTO: New Prediction Tool for Psoriatic Arthritis in Psoriasis patients - https://www.womenscollegehospital.ca/wch-scientists-develop-tool-predicting-risk-of-psoriatic-arthritis-a-global-first/
• Arthritis Consumer Experts’ About Psoriatic Arthritis page - https://bit.ly/ACEAboutPsAEN
Canadian Spondyloarthritis Association
Canadian Rheumatology Association
Arthritis Research Canada
Arthritis Consumer Experts
Psoriasis Society of Canada
02/28/2024
Ms. Irwin, research trainee at Arthritis Research Canada, looks at how higher rates and frequencies of emergency visits and hospitalizations for patients with inflammatory arthritis and gout have negative impacts for both patient health outcomes and healthcare costs.
Canadian Spondyloarthritis Association
Canadian Rheumatology Association
Arthritis Consumer Experts
Canadian Medical Association
02/28/2024
Dr. Bernatsky, rheumatologist, James McGill professor, and senior scientist in the Centre for Health Outcomes Research and Division of Clinical Epidemiology at the Research Institute of the MUHC, discusses the crucial role antimalarials such as hydroxychloroquine play in the management of inflammatory arthritis, like rheumatoid arthritis, offering a favorable balance between efficacy and safety. The benefits of these medications include slowing down disease progression, reducing joint pain and protecting against organ damage, especially in systemic lupus erythematosus.
Resources:
• Smoking status, antimalarial use heavily influence cancer risk in SLE -https://www.healio.com/news/rheumatology/20200929/smoking-status-antimalarial-use-heavily-influence-cancer-risk-in-sle
• Arthritis Consumer Experts’ About Lupus page - https://bit.ly/ACEaboutlupusEN
Arthritis Consumer Experts
Arthritis Research Canada
Canadian Rheumatology Association
Arthritis Society Canada
McGill University Health Center
Lupus Canada
02/28/2024
Today is !
Youth who are bullied are at ⬆️ risk for depression, anxiety, mood disorders, suicidal thoughts & behaviours & substance use.
To our friends attending , show us your pink colours to support !
Canadian Rheumatology Association
CMHA National / ACSM National
Pink Shirt Day
Arthritis Research Canada
Cassie + Friends Society
Arthritis Society Canada
02/28/2024
Dr. Horton, an award-winning medical educator, writer, musician, and podcaster, previews her keynote lecture on critical frameworks for tackling our burnout crisis. She also shares what she's witnessed as a doctor and the necessity for compassion for both healthcare workers as well as those on the receiving end of healthcare.
Resources:
• The Stanford Model of Professional FulfillmentTM - https://wellmd.stanford.edu/about/model-external.html
• We Are All Perfectly Fine: A Memoir of Love, Medicine and Healing - https://www.harpercollins.ca/9781443461665/we-are-all-perfectly-fine/
• Canadian Medical Association: Physician Wellness: New 2021 National Physician Health Survey findings – burnout, short-staffing and an overburdened system take their toll - https://www.cma.ca/physician-wellness-hub/content/physician-wellness-new-2021-national-physician-health-survey-findings-burnout-short-staffing-and
Canadian Rheumatology Association
Canadian Medical Association
Arthritis Consumer Experts
Arthritis Research Canada
Canadian Physiotherapy Association/Association canadienne de physiothérapie
02/28/2024
Dr. Ma, Assistant Professor of Teaching in the School of Kinesiology at the University of British Columbia, defines what strength training is and explains the benefits of it for people living with rheumatoid arthritis. She shares what is important to consider before coming up with an exercise plan, some barriers to physical activity, and how the I START tool can help health care providers tailor exercise prescription for people living with rheumatoid arthritis.
Resources:
• I START Toolkit for patient -https://educ-tmfal-2022.sites.olt.ubc.ca/files/2023/12/I-START-Toolkit-Version-8.0-Client-Fillable-.pdf
• I START Exercise Videos -https://www.youtube.com/playlist?list=PLzMTc9GVRYFlBCOx91qCRNSfKINpMvk5j
• Arthritis At Home Exercise Snacks with Dr. Jasmin Ma - https://arthritisathome.jointhealth.org/?s=exercise+snacks+jasmin+ma
Canadian Rheumatology Association
Arthritis Consumer Experts
Arthritis Research Canada
Arthritis Society Canada
Canadian Physiotherapy Association/Association canadienne de physiothérapie
02/28/2024
Cheryl Koehn, ACE’s President provides the background for the annual event, building on the tremendous success of our previous Facebook/X Live Events at the Canadian Rheumatology Association (CRA)/Arthritis Health Professional Association (AHPA) annual meetings in Canada. As the largest arthritis health care provider event in the country, this meeting holds immense value for patients and health care professionals.
Resources:
• JointHealth™ insight – Arthritis Consumer Experts National Survey on Health Literacy: Part 2 - https://bit.ly/JHIHealthLiteracyPart2EN
• JointHealth™ insight – Arthritis Consumer Experts National Survey on Health Literacy: Part 1 - https://bit.ly/JHIHealthLiteracyPart1EN
Arthritis Research Canada
Arthritis Consumer Experts
Arthritis Society Canada
02/14/2024
Happy Valentine's Day!
What are you grateful for today? We are grateful for our guests at the
Canadian Rheumatology Association and Arthritis Health Professions Association Annual Scientific Meeting for sharing their learnings with the arthritis community.
Stay tuned for this year’s interviews!
Arthritis Research Canada
Arthritis Society Canada
Cassie + Friends Society
Canadian Spondyloarthritis Association
Lupus Canada
Scleroderma Canada
Arthritis Consumer Experts
Canadian Arthritis Patient Alliance
Address
#210/1529 West 6th Avenue
Vancouver, BC
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Videos
Interview 28 – Updates from the Canadian Rheumatology Association with Dr. Ahmad Zbib
Dr. Ahmad Zbib attended the American University of Beirut (Lebanon) where he earned a Bachelor of Science in biology and later attended The Lithuanian University of Health Sciences, earning his MD in general medicine in 2003. He currently holds the position of Chief Executive Officer at the Canadian Rheumatology Association. Dr. Zbib shares updates from the Canadian Rheumatology Association and tells us more about the Canadian Rheumatology Association Foundation. Resources • About the Canadian Rheumatology Association - https://rheum.ca/ • About the Canadian Rheumatology Association Foundation - https://crafoundation.ca/ • We Are All Perfectly Fine: A Memoir of Love, Medicine and Healing by Dr. Jillian Horton - https://bit.ly/3IK793q #CRArthritis #ASM24 Canadian Rheumatology Association Arthritis Consumer Experts Arthritis Research Canada
Rheumatoid arthritis prediction and prevention, and the impact of RA on First Nations People
Dr. Hani El-Gabalawy is a physician and researcher, currently holding positions as a professor of medicine and immunology, and an endowed Rheumatology Research Chair at the University of Manitoba. He is widely recognized for his contributions in the field of rheumatology and immunology, with a specific focus on rheumatoid arthritis and Indigenous Health. In this #CRArthritis interview, Dr. El-Gabalawy summarizes the key take aways from his presentations on rheumatoid arthritis prediction and prevention, and the impact of rheumatoid arthritis on First Nations People. Resources • Emerging Approaches to the Detection and Prevention of Rheumatoid Arthritis in Predisposed Indigenous North American Population https://bit.ly/43oDki9 • Disparities in rheumatoid arthritis outcomes for North American Indigenous Populations https://www.tandfonline.com/doi/full/10.1080/22423982.2023.2166447 • Arthritis Call to Action: Indigenous Health https://arthritiscalltoaction.ca/indigenous-health/ #CRArthritis #ASM24 University of Manitoba Arthritis Consumer Experts Arthritis Research Canada
Interview 24 – 18F-Fluorodeoxyglucose positron emission tomography (PET) imaging and giant cell arteritis
Dr. Alison Clifford is an Associate Professor in the Department of Rheumatology at the University of Alberta. She is also an associate member of CanVasc, the Canadian network for vasculitis invesitgators. Her interest is in vasculitis, or inflammation of the blood vessel walls. Vasculitis results in reduced blood flow to the body’s organs, potentially leading to serious tissue damage. In this #CRArthritis interview, she talks about the 18F-Flurodeoxyglucose positron emission tomography (PET) imaging and giant cell arteritis, the most common form of vasculitis in North America. Resources • About PET/CT in giant cell arteritis - https://academic.oup.com/rheumatology/article/62/4/1366/6712341 • Vasculitis Foundation Canada - https://vasculitis.ca/ • About giant cell arteritis - https://rheumatology.org/patients/giant-cell-arteritis Vasculitis Foundation Canada / Fondation vasculites Canada Arthritis Consumer Experts Arthritis Research Canada
Interview 26 – Virtual and remote occupational therapy and complex osteoarthritis with Ms. Morag Crocker
Morag Crocker is an occupational therapist and occupational therapy practice coordinator at the Mary Pack Arthritis Program. As coordinator, she helps bring arthritis travelling occupational therapy service to remote communities like Bella Bella, Bella Coola, Hazelton, Smithers, Terrace, Haida Gwaii and Williams Lake. In this #CRArthritis interview, she shares how travelling occupational therapy works and explains what the tertiary arthritis program is at the Mary Pack Arthritis Centre. She also provides a definition of what complex osteoarthritis is and some tips on how to manage complex osteoarthritis. Resources • About Vancouver Coastal Health’s Mary Pack Arthritis Program - http://mpap.vch.ca/ • Travelling Occupational Therapy Clinics (as of March 2023) -http://mpap.vch.ca/services/travelling-clinics • OsteoArthritis Service Integration System (OASIS) - https://www.vch.ca/en/service/oasis#short-description--6221 • Arthritis Consumer Experts’ About Osteoarthritis Page - https://bit.ly/ACEAboutOsteoarthritisEN #osteoarthritis #HCPs #alliedhealth #occuationaltherapy Canadian Association of Occupational Therapists Canadian Physiotherapy Association/Association canadienne de physiothérapie Canadian Rheumatology Association Arthritis Society Canada OA Action Alliance Canadian Spondyloarthritis Association Arthritis Consumer Experts
Interview 25 - The role of AHPA in arthritis care with Michelle Bridge
Today on #CRArthritis, we are featuring interviews with allied health care professionals (AHPA)! Michelle Bridge is the President of Arthritis Health Professions Association. She is an Advanced Clinician Practitioner in Arthritis Care (ACPAC)-trained Occupational Therapist, with Arthritis Society Canada’s Arthritis Rehabilitation and Education Program, covering Windsor-Essex county in Ontario. She explains what the Arthritis Health Professions Association is and what it offers for its members. Furthermore, she highlights the role that allied health care professionals play in arthritis care. #ASM24 Arthritis Consumer Experts Arthritis Society Canada Arthritis Research Canada Canadian Rheumatology Association
Interview 22 – A unique perspective of living with arthritis with Mr. Michael Kuluva
An American fashion designer and founder of the New York fashion label Tumbler and Tipsy, Michael Kuluva was diagnosed with rheumatoid arthritis (RA) when he was 28. Michael is a passionate advocate for RA and makes a point of including people with mobility challenges in his work. He recounts with Anita Chan his RA journey, shares lifestyle tips for patients living with arthritis, and his work as a patient advocate. Resources • Reporting of Determinants of Health Inequities in Rheumatoid Arthritis Randomized Controlled Trials in Canada: A Scoping Review - https://bit.ly/DeterminantsofHealthInequitiesinRAReview • About Michael Kuluva - https://www.michaelkuluva.net/home • Follow Michael on social media: X (@MichaelKuluva), Instagram (@MichaelKuluva) #CRArthritis #ASM24 #rheumatoidarthritis #equalrepresentation #ArthritisResearch Arthritis Consumer Experts Canadian Rheumatology Association Arthritis Research Canada MichaelKuluva Arthritis Society Canada NYFW
Interview 21 – Towards improving representation in rheumatology research (in Canada and Beyond)
Dr. De Vera is a pharmacoepidemiologist and assistant professor in medication adherence in the Faculty of Pharmaceutical Sciences at UBC. Megan Thomas is a PhD student at the University of British Columbia in the Department of Pharmaceutical Sciences, specializing in epidemiology and health outcomes. Anna Samson is a person living with ankylosing spondylitis and fibromyalgia. She is studying English at McMaster University and is an advocate for disability and mental health. They discuss highlights from their workshop on working towards improving representation in rheumatology research. They also report on determinants of health inequities and some of the barriers researchers and arthritis health care providers may face in underrepresented populations. Resources • Reporting of Determinants of Health Inequities in Rheumatoid Arthritis Randomized Controlled Trials in Canada: A Scoping Review - https://bit.ly/DeterminantsofHealthInequitiesinRAReview • Reporting of determinants of health inequities and participant characteristics in randomized controlled trials of juvenile idiopathic arthritis in Canada: A scoping review - https://bit.ly/DeterminantsofHealthInequitiesJIAReview • Reporting of determinants of health inequities and participant characteristics in randomized controlled trials of systemic lupus erythematosus in Canada: A scoping review - https://bit.ly/DeterminantsofHealthInequitiesSLEReview #CRArthritis #ASM24 #healthinequity #equalrepresentation #socialdeterminants Arthritis Consumer Experts Canadian Rheumatology Association Arthritis Research Canada University of British Columbia McMaster University
Interview 20 – Patient and family engagement in rheumatology research
Dr. Batthish is an Associate Professor of Pediatrics in the Faculty of Health Sciences at McMaster University. Her research interests are in juvenile arthritis care, treatments and outcomes. Dr. Beattie is an Associate Member in Rehabilitation Science in the Faculty of Health Sciences in McMaster University. Her research interests are in autoimmunity, clinical science, patient and citizen engagement, and patient-centered care in rheumatology and rheumatoid arthritis. Meghan Pancucci is a student at McMaster University and plays for the university's water polo team. The trio talks about their workshop, which is designed for researchers and family advocates who have an interest in engagement patients/families in rheumatology research. They talk about what family engagement in research means and its benefits for patients, health care providers, and researchers, and how families may be engaged with researchers in projects at different stages of the research life cycle. Resources • Matching researchers’ needs and patients’ contributions: practical tips for meaningful patient engagement from the field of rheumatology - https://ard.bmj.com/content/82/3/312 • Patient Engagement in Research Scale - https://www.arthritisresearch.ca/peirs/ #CRArthritis #ASM24 #ArthritisResearch Arthritis Consumer Experts Arthritis Research Canada McMaster University Arthritis Society Canada Cassie + Friends Society
Interview 19 - Emergency medical records (EMRs) do NOT SAVE time for healthcare providers and improve quality of care
Dr. Appleton is an Assistant Professor at Western University. He joined the Division of Rheumatology in 2016 as a Clinician Scientist and provides clinical service to patients with inflammatory disorders in addition to running the translational early osteoarthritis research program. In this interview, he outlines the opposition points he plans to use at this year’s Great Debate to argue against the efficacy of emergency medical records. Resources: • Canadian Medical Protective Association: Electronic records handbook - https://www.cmpa-acpm.ca/en/advice-publications/handbooks/electronic-records-handbook • Canada Health Infoway: Integrating digital health into the health care experience - https://bit.ly/IntegratingDigitalHealth #CRArthritis #ASM24 #EMRs Canadian Rheumatology Association Arthritis Consumer Experts Arthritis Research Canada Arthritis Society Canada University Health Network
Interview 18 - Emergency medical records SAVE time for healthcare providers and improve quality of care
Dr. Katz is an award-winning clinician, medical educator, researcher, and medical community leader. He is a Professor of Medicine at the University of Alberta, and the Director of the Division of Rheumatology and Section Head for Rheumatology for Alberta Health Services. Dr. Hall is a Clinical Associate Professor in the Faculty of Pharmacy and Pharmaceutical Sciences at the University of Alberta. The duo joins Kelly Lendvoy to share some key arguments that they will be presenting at this year’s Great Debate on why emergency medical records save time for health care providers and improve quality of care. Resources: • Canadian Medical Protective Association: Electronic records handbook - https://www.cmpa-acpm.ca/en/advice-publications/handbooks/electronic-records-handbook • Canada Health Infoway: Integrating digital health into the health care experience - https://bit.ly/IntegratingDigitalHealth #CRArthritis #ASM24 #EMRs Arthritis Consumer Experts Canadian Rheumatology Association Arthritis Society Canada University of Alberta Canadian Medical Association
Interview 17 – Practical lessons in sarcoidosis management with Dr. Daniel Vis
Dr. Vis speaks to Kelly Lendvoy about sarcoidosis management. Sarcoidosis is a disease characterized by the growth of tiny collections of inflammatory cells in any part of the body — most commonly the lungs and lymph nodes. But it can also affect the eyes, skin, heart and other organs. Dr. Vis is a clinical lecturer of medicine at the University of Calgary. He also sees patients at South Health Campus Pulmonary Diagnostics division. There he specializes in the diagnosis and treatment of many ailments and diseases affecting the lungs and respiratory system as a whole. Resources • University of Calgary: More about Daniel Vis’s research - https://www.researchgate.net/scientific-contributions/Daniel-Vis-2115303649 • American Lung Association: Treating and Managing Sarcoidosis - https://www.lung.org/lung-health-diseases/lung-disease-lookup/sarcoidosis/treating-and-managing • Many Patients with Sarcoidosis Also Have Sarcoid Arthritis - https://sarcoidosisnews.com/news/patients-sarcoidosis-sarcoid-arthritis/
Interview 15 - Optimizing care for patients with rheumatic and musculoskeletal diseases by utilizing ACPAC-trained clinicians with Dr. Vandana Ahluwalia
Dr. Vandana Ahluwalia speaks to Kelly Lendvoy on how including an Advanced Clinician Practitioner in Arthritis Care (ACPAC) trained professionals can help to address gaps in patient care. ACPAC is an academic and clinical training program developed to prepare experienced physical therapists, occupational therapists, chiropractors and nurses in the assessment and management of arthritis. Dr. Vandana Ahluwalia heads the Rheumatology Division of the William Osler Health Centre in Brampton, Ontario. She sees patients in her Brampton community practice as well as in the combined Rheumatology/Orthopedics MSK clinic at Brampton Civic Hospital. She is also actively involved in clinical trials and studies related to inflammatory arthritis and has co-authored various articles within this therapeutic area. Resources • Advanced Clinician Practitioner in Arthritis Care Program - https://acpacprogram.ca/program/ • An Advanced Clinician Practitioner in Arthritis Care (ACPAC) Maintains a Positive Patient Experience While Increasing Capacity in Rheumatology Community Care - https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8184238/ • JointHealth™ insight: Today’s arthritis experience in Canada - https://jointhealth.org/programs-jhinsight-view.cfm?id=1301&locale=en-CA #CRArthritis #ASM24 #arthritis #PatientCare Arthritis Consumer Experts Canadian Rheumatology Association Arthritis Research Canada Arthritis Society Canada
Interview 14 - Cross-cultural communication: Embracing the diversity of your rheumatology patients
Arthritis Consumer Experts’ National Survey findings reveal that Black, Indigenous Peoples and people of colour (BIPOC) respondents face significantly greater barriers when accessing arthritis care, and when they do, benefit less from their interactions. Amorell Saunders N'Daw is a trained journalist and Equity, Diversity, and Inclusion (EDI) advocate. Dr. Alan Zhou is a Rheumatology Resident at the University of Toronto. He works in the Division of Adult Rheumatology at University Health Network's Toronto Western Hospital. Dr. Zhou and Ms. N’Daw discuss how rheumatologists can ensure patients’ cultural backgrounds and beliefs are respected and integrated into their clinical practice and strategies to overcome language barriers and ensure clear communication with patients from diverse backgrounds. Resources • Equity in Health Systems Lab - https://www.eqhslab.com/aboutus • Arthritis Consumer Experts National Survey on Arthritis and Health Inequities - https://jointhealth.org/programs-jhinsight-view.cfm?id=1286&locale=en-CA • Canadian Medical Protective Association: Cultural Safety - https://www.cmpa-acpm.ca/en/education-events/good-practices/professionalism-ethics-and-wellness/cultural-safety #CRArthritis #asm24 #culturalsafety Canadian Rheumatology Association University Health Network Arthritis Research Canada Arthritis Society Canada Arthritis Consumer Experts
Interview 13 – The emerging adult with rheumatic disease: What adult rheumatologist need to know
This #CRArthritis features Natasha Trehan, person living with juvenile idiopathic arthritis and Founder of Take a Pain Check Foundation, Dr. Michelle Batthish, pediatric rheumatologist at McMaster Children’s Hospital, and Dr. Stephanie Garner, Adult Rheumatologist at the University of Calgary. Together, the trio defines what the emerging adult is and highlights the challenges that may arise in the transition from pediatric rheumatology care to adult rheumatology care. Resources • Youth and Young Adults with Rheumatic Disease - https://arthritispatient.ca/youth-and-young-adults-with-rheumatic-disease/ • MyTransition App: An app to help prepare patients between the age of 12 and 18 to take charge of their health care - https://apps.apple.com/ca/app/mytransition-app/id1327036414 #CRArthritis #asm24 Canadian Rheumatology Association Arthritis Consumer Experts Cassie + Friends Society SickKids Foundation Canucks for Kids Fund Arthritis Society Canada
Interview 12 - Testing for the right things and research updates in arthritis with Dr. Janet Pope
Dr. Pope, Professor of Medicine in the Division of Rheumatology and also Epidemiology and Biostatistics at the University of Western Ontario, discusses about testing for the right things in people living with arthritis. She shares how the guidelines outlined in Choosing Wisely Canada can help, along with open communication between rheumatologist and patient, can contribute to shared decision making and improved health outcomes. She concludes by providing some arthritis research updates. Resources: • Choosing Wisely Canada – Rheumatology - https://choosingwiselycanada.org/recommendation/rheumatology/ • JointHealth™ Education Rheumatoid Arthritis: Setting treatment goals and building a treatment plan - https://education.jointhealth.org/jointhealth-education/course-1-ra/ra-lesson-3/ #CRArthritis #asm24 Canadian Rheumatology Association Arthritis Research Canada Arthritis Society Canada Arthritis Consumer Experts
Interview 11 - Part 2: Clinical practice guidelines and interprofessional shared decision making
Natasha Trehan, person living with juvenile idiopathic arthritis and Founder of Take a Pain Check Foundation, shares how her lived experiences and passion towards supporting youth and young adults with rheumatic disease have shaped her workshop on working towards health equity. She will be sharing her perspectives on shared decision making and clinical practice guidelines. Her co-presenters, Drs Cheryl Barnabe, Karine Toupin-April, and Elizabeth Stringer will share highlights on cultural and social aspects of shared decision making in pediatric and adult rheumatology. Resources: • Take a Pain Check Foundation - https://www.takeapaincheck.com/ • Follow Natasha Trehan on X (@Natasha_trehan) - https://twitter.com/natasha_trehan • Arthritis Call to Action: An access point into Truth and Reconciliation for the arthritis community in Canada - https://arthritiscalltoaction.ca/ • Arthritis Consumer Experts’ Special Series on Health Inequities in Arthritis - https://advocacy.jointhealth.org/health-inequities/ #CRArthritis #ASM24 Arthritis Research Canada Canadian Arthritis Patient Alliance Arthritis Consumer Experts Take a Pain Check Canadian Rheumatology Association
Interview 10 - Part 1: Clinical practice guidelines and interprofessional shared decision making
Dr. Toupin-April speaks to Kelly Lendvoy about how the practice of shared decision making can be implemented effectively in arthritis care, taking into account the diverse needs of specific patient populations, and how they can contribute to reducing health disparities. She offers examples of how guidelines can be made relevant and accessible to Indigenous communities, immigrants, and other minority groups to ensure equitable care outcomes. Resources: • Arthritis Consumer Experts’ Special Series on Health Inequities in Arthritis - https://advocacy.jointhealth.org/health-inequities/ • OMERACT Outcome Measures in Rheumatology® - https://omeract.org/ #CRAthritis #ASM24 #healthequity Canadian Rheumatology Association Arthritis Consumer Experts Arthritis Research Canada University of Ottawa
Interview 6 - From psoriasis to psoriatic arthritis: Towards prevention with Dr. Lihi Eder
Dr. Eder, scientist at Women’s College Research Institute (WCRI), staff rheumatologist and Co-Director of the Cardio-Rheumatology Program at Women’s College Hospital (WCH), and Research Director, Division of Rheumatology at University of Toronto, discusses how psoriasis and psoriatic arthritis are connected. She shares with the audience the PRESTO tool, a new prediction tool for psoriatic arthritis in psoriasis patients, and how scientists and rheumatologists are identifying high-risk individuals and exploring opportunities for early interception. Resources: • PRESTO: New Prediction Tool for Psoriatic Arthritis in Psoriasis patients - https://www.womenscollegehospital.ca/wch-scientists-develop-tool-predicting-risk-of-psoriatic-arthritis-a-global-first/ • Arthritis Consumer Experts’ About Psoriatic Arthritis page - https://bit.ly/ACEAboutPsAEN #ASM24 #CRArthritis Canadian Spondyloarthritis Association Canadian Rheumatology Association Arthritis Research Canada Arthritis Consumer Experts Psoriasis Society of Canada
Interview 5 - Acute care use remains high despite advances in management of IA/gout with Kara Irwin
Ms. Irwin, research trainee at Arthritis Research Canada, looks at how higher rates and frequencies of emergency visits and hospitalizations for patients with inflammatory arthritis and gout have negative impacts for both patient health outcomes and healthcare costs. #CRArthritis #ASM24 Canadian Spondyloarthritis Association Canadian Rheumatology Association Arthritis Consumer Experts Canadian Medical Association
Interview 4 - Antimalarials in rheumatology with Dr. Sasha Bernatsky
Dr. Bernatsky, rheumatologist, James McGill professor, and senior scientist in the Centre for Health Outcomes Research and Division of Clinical Epidemiology at the Research Institute of the MUHC, discusses the crucial role antimalarials such as hydroxychloroquine play in the management of inflammatory arthritis, like rheumatoid arthritis, offering a favorable balance between efficacy and safety. The benefits of these medications include slowing down disease progression, reducing joint pain and protecting against organ damage, especially in systemic lupus erythematosus. Resources: • Smoking status, antimalarial use heavily influence cancer risk in SLE -https://www.healio.com/news/rheumatology/20200929/smoking-status-antimalarial-use-heavily-influence-cancer-risk-in-sle • Arthritis Consumer Experts’ About Lupus page - https://bit.ly/ACEaboutlupusEN #CRArthritis #ASM24 Arthritis Consumer Experts Arthritis Research Canada Canadian Rheumatology Association Arthritis Society Canada McGill University Health Center Lupus Canada
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