Living with Fibromyalgia

31/10/2026

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30/10/2026

Brain fog can make finding words, focusing, or remembering feel harder. It’s a debiliating symptom, not a character flaw. 💜

What helps you most when brain fog shows up: writing things down, simplifying tasks, resting, or something else?

30/10/2026

Do you feel like you are always having to play catch-up due to the challenges of living with a debilitating chronic illness? If so, this new series is a gentle space for us to share our thoughts and navigate it together.

It seems as we get older, the months fly by so quickly, don't they? We are only nine weeks away from a new year, and I've been sitting with a big question: "What are you chasing?"

Following an unexpected loss this week, I've been reflecting on the years I spent self-sabotaging. For so long, I held myself back from creating because of fear of failure, fear of success, and the sheer overwhelm of living with a chronic illness.

I used to beat myself up for not showing up on video the way the digital world expects. Now? I am embracing audio, resting in bed in my pyjamas, and trusting that the people who are meant to connect will connect.

I’d love for you to read my latest reflection. Inside, I talk about Jean-Paul Sartre, Viktor Frankl, and why redefining what "success" looks like is essential for us warriors.

I can't wait to hear your thoughts on this one. Grab a warm drink and listen to the audio/read it here 👇

Introduction: A 9-Week Series Leading Up to the New Year

29/10/2026

Fibromyalgia is a functional disorder of the nervous system where the brain’s “software” misfires despite the physical “hardware” (the nerves, muscles, and bones) being completely intact.

23/10/2026

How many times have you been told that your pain is "all in your head" or just down to stress?

For decades, the physical reality of fibromyalgia has been dismissed due to a lack of clear biological markers. But science is finally catching up with what our bodies have known all along.

A landmark 2026 genetic study looking at over 2.5 million individuals has provided powerful new evidence that fibromyalgia has a true biological foundation rooted largely in the central nervous system and neural cell types.

While this is emerging research, not a cure or a standalone diagnostic test, it marks a monumental shift. It proves once and for all that our symptoms are physical, measurable, and biological.

To every warrior who has ever left a doctor's office feeling dismissed or disbelieved: your pain is real, your nervous system is working overtime, and you are not imagining this. 💜

Drop a 💜 if this brings you validation today, and share this post with someone who needs to see the science behind our invisible illness.

22/10/2026

Does anyone else find that the only truly comfortable position is reclining or lying flat? Sitting or standing for too long just seems to amplify all the aches?

22/10/2026

Access is inclusion, not special treatment. 💜 Mobility aids, flexible plans, seating, quiet spaces and extra time can make daily life more manageable for chronic illness warriors. What support or adjustment helps you protect your energy?

20/10/2026

Fibromyalgia feels like waking up with a severe case of flu symptoms that you never recover from. You wake up daily to endure it, knowing there is no magic pill to cure it. 💊

19/10/2026

Something for you to know: Living with fibromyalgia means there is never a day off, even when the symptoms are quiet and hidden beneath the surface.

19/10/2026

What is the one financial challenge or hidden cost of chronic illness you wish people understood better?