Hemophilia Foundation - Pakistan

Hemophilia Foundation - Pakistan HFP is a national network of Persons with Bleeding Disorders in Pakistan and has official recognition from the World Federation of Hemophilia [WFH] as NMO.
(32)

For over 2 decades, the “Pakistan Hemophilia Patients Welfare Society® [PHPWS]” has provided national leadership to improve and sustain care for people with inherited bleeding disorders, including hemophilia, von Willebrand disease, rare factor deficiencies, and inherited platelet disorders. We save and improve lives of our community by:
•Empowering patients in order to make them community activis

For over 2 decades, the “Pakistan Hemophilia Patients Welfare Society® [PHPWS]” has provided national leadership to improve and sustain care for people with inherited bleeding disorders, including hemophilia, von Willebrand disease, rare factor deficiencies, and inherited platelet disorders. We save and improve lives of our community by:
•Empowering patients in order to make them community activis

Operating as usual

08/06/2021

Thank you Novo Nordisk Haemophilia Foundation for your support!!!

Hemophilia Foundation - Pakistan [HFP] with the support of World Federation of Hemophilia / Federación Mundial de Hemofi...
06/06/2021

Hemophilia Foundation - Pakistan [HFP] with the support of World Federation of Hemophilia / Federación Mundial de Hemofilia [WFH] has initiated activities under "WFH Covid-19 Relief Fund". The first virtual activity [ONLINE ADVOCACY TRAINING] was organized on 30th May, 2021. This activity was planned to train the HFP-Chapters on the use of virtual advocacy tool and making them realize the importance of sustaining the Government Advocacy efforts during Covid-19 scenario. As a continuity of this activity now HFP-Chapters will be do the same training at chapter level.

Youth Leardership Training:Share your experiences, build your network amongst future leaders, and catch updates on lates...
18/05/2021

Youth Leardership Training:
Share your experiences, build your network amongst future leaders, and catch updates on latest #hemophilia topics trending today. Learn more and register now: http://ow.ly/fZQg50EPjJi

New Global Youth Leadership Training! Learn more about youth-led initiatives in international #bleedingdisorders communities. Share your experiences, build your network amongst future leaders, and catch updates on latest #hemophilia topics trending today. Learn more and register now: http://ow.ly/fZQg50EPjJi

WHD 2021 [Press Release-HFP]
17/04/2021

WHD 2021 [Press Release-HFP]

WHD 2021 [Press Release-HFP]

Timeline Photos
30/03/2021

Timeline Photos

2 days until our #WHD2021 Microsite is open for story submissions! Our worldhemophiliaday.org site is a unique and intimate platform where people with bleeding disorders and caregivers everywhere can share their personal stories and pictures. Your #bleedingdisorders experience can inspire and uplift others!

It is your turn now to nominate who could be the winner of the NNHF Community Award 2021! 📩 send us your nomination ❗️Se...
24/02/2021

It is your turn now to nominate who could be the winner of the NNHF Community Award 2021! 📩 send us your nomination ❗️

Send your nomination before 1 April 2021 to Novo Nordisk Haemophilia Foundation: http://bit.ly/3byEb4D

Who has been essential in impacting haemophilia care showing incredible dedication to your community? It is payback time! Nominate them now and they may be the winner of the NNHF Community award 2021. Send your nomination before 1 April 2021: http://bit.ly/3byEb4D

Congrats to the whole team of HFP-Karachi Chapter on establishing new Hemophilia Treatment Centre [HTC]Hemophilia Welfar...
03/01/2021

Congrats to the whole team of HFP-Karachi Chapter on establishing new Hemophilia Treatment Centre [HTC]

Hemophilia Welfare Society Karachi

A Quantum Leap Forward

Hemophilia Welfare Society Karachi held an inaugural ceremony at its new premises. It was an honor for us that Dr. Abdul Bari Khan-CEO, The Indus Hospital (TIH) accepted our request to be the chief guest and cut the inaugural ribbon. Accompanied with him was Dr. Saba Jamal-Director Blood Center TIH who is a very important link between the HWSK and TIH.
We warm-heartedly welcomed Dr. Dur-e-Naz-Director, Sindh Blood Transfusion Authority, who accepted our invitation to come at the opening ceremony and has given assurance to have a close nexus between Sindh Ministry of Health and Hemophilia Welfare Society Karachi - HWSK
We also had the honor of being present on the occasion, our chief patron Mr. Anis ur Rehman who has been the driving force in taking the quality of hemophilia treatment a few notches up.
Also present was Dr. Munira Borhany -Consultant Hematology from National Institute Of Blood Diseases & Bone Marrow Transplantation - NIBD who is also our HoD of the HTC and Dr.
Shabneez Hussain -MD Fatimid Foundation Fatimid Foundation, Mr. Asad Ali-CEO Husaini Hematology & Oncology Trust. (HHOT), Doctor Sarfraz Jafri, HWSK Chairman Medical Advisory Board.
Ateeq ur Rehman, MD from Afzaal Memorial Thalassemia Foundation - Official (AMT)

In our new premises, we have a fully-fledged physiotherapy unit, which is very important for the hemophiliacs to render their joints safe from irreversible deformities and from recurring bleeds. We have also increased our capacity to store CFCs, blood components for other bleeding disorder patients. We are now in a position to treat more patients at a time as we have an increased number of beds and have our own pharmacy from where the patients could get medicine free of charge.

Not only that we have shifted to a new location which is spacious but we have also augmented our repertoire of treatment facilities on offer to our patients in addition to the Coagulation Factor Concentrates (CFCs) that we get from World Federation of Hemophilia / Federación Mundial de Hemofilia (WFH) through the aegis of Hemophilia Foundation - Pakistan HFP, which are very dynamic organizations working for the cause of hemophilia.


We acknowledge the tireless efforts on the part of Mr. Akhtar Shaheen Rind, our media, coordinator who did a tremendous job in assembling a full array of print and electronic media to extensively cover the event. We extend our heartiest THANK YOU to the medial channels and newspapers who responded well for covering the event.
And last but not least we would like to extend our heartiest CONGRATULATIONS to the HWSK team and its volunteers. It wouldn’t have been possible to make the event a resounding success had it not been for their tireless efforts in this regard.

April 17, 2021 is World #Hemophilia Day! This year's theme is "Adapting to change: sustaining care in a new world". This...
15/12/2020

April 17, 2021 is World #Hemophilia Day! This year's theme is "Adapting to change: sustaining care in a new world". This important event is about bringing the global bleeding disorders community together. With the COVID-19 pandemic having a major impact on people with a bleeding disorder, that objective has never been more important. Find out more about WFH in 2021 by clicking here: http://ow.ly/yWdt50CKKTi

April 17, 2021 is World #Hemophilia Day! This year's theme is "Adapting to change: sustaining care in a new world". This important event is about bringing the global bleeding disorders community together. With the COVID-19 pandemic having a major impact on people with a bleeding disorder, that objective has never been more important. Find out more about WFH in 2021 by clicking here: http://ow.ly/yWdt50CKKTi

22/11/2020
Novo Nordisk Haemophilia Foundation

After her parents were told she had an abnormal bleeding disorder, it took 20 years before Dr. Shahla T. Sohail received a confirmed diagnosis of type III von Willebrand disease. Her experience inspired her to dedicate her time to women with bleeding disorders and become an active member of the national women’s group established through the NNHF Pakistan 6 project. She is now considered a role model by many.

Read about her journey at https://bit.ly/2UKg4sA

Dr. Sohail is sharing her experience as part of the '15 years, 15 stories' series, marking 15 years since the Novo Nordisk Haemophilia Foundation was established.

#15years15stories #ImpactingCareTogether #haemophilia #hemophilia

After her parents were told she had an abnormal bleeding disorder, it took 20 years before Dr Shahla T. Sohail received a confirmed diagnosis of type III von Willebrand disease. Her experience inspired her to dedicate her time to women with bleeding disorders and become an active member of the national women’s group established through the NNHF Pakistan 6 project. She is now considered a role model by many. Read about her journey at https://bit.ly/2UKg4sA

Dr Sohail is sharing her experience as part of the '15 years, 15 stories' series, marking 15 years since the Novo Nordisk Haemophilia Foundation was established.

Feeling inspired? Share your story with us.

Hemophilia Foundation - Pakistan Pakistan Hemophilia Patients Welfare Society Masood Fareed Malik Shahla Sohail

#15years15stories #ImpactingCareTogether #haemophilia #hemophilia

Great work Haemophilia Patients Welfare Society - Rawalpindi
22/11/2020

Great work Haemophilia Patients Welfare Society - Rawalpindi

Meeting at the Haemophilia centre with Prof Tahira Zafar and the staff.
We are observing all SOPs to keep everyone safe!
Please remember to wear a mask and maintain a safe distance!

Learn more about advocacy! On Tuesday, November 10, at 11:00 a.m. EST, the WFH is hosting a webinar for patients with #b...
10/11/2020

Learn more about advocacy! On Tuesday, November 10, at 11:00 a.m. EST, the WFH is hosting a webinar for patients with #bleedingdisorders in the Middle East. A panel of NMO speakers from the U.S.A, Egypt, Morocco and Pakistan will share their advocacy initiatives. Simultaneous translation will be provided in Arabic, English, and French. Find out more here: http://ow.ly/eAZR50C9k0z

Learn more about advocacy! On Tuesday, November 10, at 11:00 a.m. EST, the WFH is hosting a webinar for patients with #bleedingdisorders in the Middle East. A panel of NMO speakers from the U.S.A, Egypt, Morocco and Pakistan will share their advocacy initiatives. Simultaneous translation will be provided in Arabic, English, and French. Find out more here: http://ow.ly/eAZR50C9k0z

Hemophilia Foundation-Pakistan [HFP] organized “2nd National Hemophilia Retreat” for Bleeding Disorder Community of Paki...
20/10/2020

Hemophilia Foundation-Pakistan [HFP] organized “2nd National Hemophilia Retreat” for Bleeding Disorder Community of Pakistan. A great opportunity to learn and become a community activist and explore the natural beauty at the same time.

30/09/2020
Novo Nordisk Haemophilia Foundation

It is time to unveil the winner of the NNHF Community Award 2020...
Congratulations to Mr. MasoodFareedMalik, haemophilia patient advocate and winner of the NNHF Community Award 2020!
Mr. Malik has made a difference to thousands of people with bleeding disorders in a country where until recently it was only possible to get proper treatment and care in major cities.
Join us in celebrating him and his team Hemophilia Foundation - Pakistan
Watch video and read more: https://bit.ly/2ELCg17

It is time to unveil the winner of the NNHF Community Award 2020...
Congratulations to Mr Masood Fareed Malik, haemophilia patient advocate and winner of the NNHF Community Award 2020!

Mr Masood Fareed Malik has made a difference to thousands of people with bleeding disorders in a country where until recently it was only possible to get proper treatment and care in major cities.

Join us in celebrating him and his team Hemophilia Foundation - Pakistan

Watch video and read more: https://bit.ly/2ELCg17

On Friday, September 18 at 11:00 a.m. EDT (6pm time in Saudi Arabia), the WFH will host a 90-minute webinar for National...
09/09/2020

On Friday, September 18 at 11:00 a.m. EDT (6pm time in Saudi Arabia), the WFH will host a 90-minute webinar for National Member Organizations in the Middle East to provide information on Effective Patient Education Programs for Bleeding Disorders in this challenging era. Leading international and regional NMO speakers will share their experience and the lessons learnt through years of designing and implementing such programs. The webinar will be in English with simultaneous interpretation into Arabic and French.

Find out more and register to attend here: http://ow.ly/ZCja50BlT0c

On Friday, September 18 at 11:00 a.m. EDT (6pm time in Saudi Arabia), the WFH will host a 90-minute webinar for National Member Organizations in the Middle East to provide information on Effective Patient Education Programs for Bleeding Disorders in this challenging era. Leading international and regional NMO speakers will share their experience and the lessons learnt through years of designing and implementing such programs. The webinar will be in English with simultaneous interpretation into Arabic and French. Find out more and register to attend here: http://ow.ly/ZCja50BlT0c

The WFH is publishing a 3-part series about how NMOs in the Middle East region have responded to the COVID-19 pandemic. ...
21/07/2020

The WFH is publishing a 3-part series about how NMOs in the Middle East region have responded to the COVID-19 pandemic. Read part 2 about what is being done in Iran, Pakistan, Afghanistan and Morocco here: http://ow.ly/k10Z50ADo1q

#hemophilia

The WFH is publishing a 3-part series about how NMOs in the Middle East region have responded to the COVID-19 pandemic. Read part 2 about what is being done in Iran, Pakistan, Afghanistan and Morocco here: http://ow.ly/k10Z50ADo1q #hemophilia

Thank you World Federation of Hemophilia / Federación Mundial de Hemofilia for highlighting Covid-19 success story from ...
09/07/2020
COVID-19 success stories from the field: Iran, Pakistan, Afghanistan and Morocco – Hemophilia World News

Thank you World Federation of Hemophilia / Federación Mundial de Hemofilia for highlighting Covid-19 success story from Pakistan.

https://news.wfh.org/covid-19-success-stories-from-the-field-iran-pakistan-afghanistan-and-morocco/

#HFP
#WFH
#TreatmentforAll

The following is the second in a 3-part series about how NMOs in the Middle East region have responded to the coronavirus disease 2019 (COVID-19) pandemic while simultaneously pushing ahead their advocacy efforts to ensure better access to care and treatment for their local bleeding disorders commun...

The current Pakistan project adds to the success of the fifth NNHF project in Pakistan by continuing to build the capaci...
15/06/2020

The current Pakistan project adds to the success of the fifth NNHF project in Pakistan by continuing to build the capacity of the bleeding disorders community in the country. The Hemophilia Foundation-Pakistan (HFP) showed the world that a united and empowered bleeding disorders community has a stronger voice, and that better practice sharing across regions can improve haemophilia care across the country.

Thank you Novo Nordisk Haemophilia Foundation for highlighting our work.

More about the project activities here: https://bit.ly/2ALa5gs

“The shift to a united organisation was not without challenges, but people saw that with greater community involvement and uniting our efforts we can create greater change for people with bleeding disorders in Pakistan” shares Mr Masood Fareed Malik, president of Hemophilia Foundation - Pakistan.

Building on the success of the fifth NNHF project in Pakistan, through the sixth project, the National patient organisation and its provincial chapters were empowered to take responsibility for improving haemophilia care in their provinces thus ensuring their impact is cohesive and sustainable. Special working groups were established, which includes a National Women’s group, a National youth group and a National Medical Advisory Board.

Advocacy with the government is the next step in further advancing haemophilia care in Pakistan.

More about the project activities here: https://bit.ly/2ALa5gs

#impactingcaretogether
with Hemophilia Foundation - Pakistan

Hemophilia Foundation - Pakistan's cover photo
05/06/2020

Hemophilia Foundation - Pakistan's cover photo

Story from the field.Novo Nordisk Haemophilia Foundation
21/04/2020

Story from the field.

Novo Nordisk Haemophilia Foundation

"As a boy with haemophilia, doctors advised that I should not play, study or work. Refraining children with haemophilia from doing any physical activity is taking away the joy of being physically active," shares Mohsin Hassan Qazi from Karachi, Pakistan.
He is now contributing to raising awareness about haemophilia and about the importance of living an active life, together with Hemophilia Welfare Society Karachi.

Read his story: https://bit.ly/2VGDcIw

Mohsin Hassan Qazi, living with severe haemophilia A, shared his story with us as part of our ‘Get+involved: share your story’ series to celebrate World Haemophilia Day 2020.

#WHD2020 #ImpactingCareTogether

A message from the President of Hemophilia Foundation-Pakistan [HFP].I take this opportunity to thank everyone involved ...
17/04/2020

A message from the President of Hemophilia Foundation-Pakistan [HFP].

I take this opportunity to thank everyone involved in the care and treatment of Hemophilia and other bleeding disorders whether in Pakistan or globally.

In celebrating World Hemophilia Day 2020, the theme Get+Involved reminds us that we should continuously get involved in the care and treatment of hemophilia whether in our community or globally, especially with the new challenges due to the Covid-19 pandemic.

As persons with bleeding disorder, we should take the necessary precaution to stay at home, keep to the recommended social distance, avoid gatherings and maintain good hygiene practices to prevent spreading of the corona virus. Let us continue to bond virtually via online meetings and chats. Let us together, fight this pandemic and continue to celebrate World Hemophilia Day with much improvement to treatment and care of Hemophilia globally.

Special thanks to the HFP-Chapters and their HTCs staff for the great work they are doing for the bleeding disorders community at the grass-root level.

Much love from Hemophila Foundation-Pakistan [HFP].

Warm regards,
Masood Fareed Malik

#HFP
#whd2020
#getinvolved

Story from the field.
16/04/2020

Story from the field.

1 day to World Haemophilia Day!
Syed Shabistan, President and Founder at Hemophilia Foundation-Pakistan – Peshawar Chapter, shared his story with us as part of our ‘Get+involved: share your story’ series to celebrate World Haemophilia Day 2020 😀
Read the full story of Syed here: https://bit.ly/3el9L7r
Get involved and share your story with us!

with Hemophilia Patients Welfare Society - Peshawar Chapter and Hemophilia Foundation - Pakistan
#WHD2020 #GetInvolved

Address

Pakistan
Islamabad
54600

Alerts

Be the first to know and let us send you an email when Hemophilia Foundation - Pakistan posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Business

Send a message to Hemophilia Foundation - Pakistan:

Videos

Our Story

For over 2 decades, the “Hemophilia Foundation-Pakistan [HFP]” has provided national leadership to improve and sustain care for people with inherited bleeding disorders, including hemophilia, von Willebrand disease, rare factor deficiencies, and inherited platelet disorders. We save and improve lives of our community by:- • Empowering patients in order to make them community activists; • Advocating for adequate supply of safe treatment products; and • Educating people with bleeding disorders to help them live healthier, longer and more productive lives. Through our network of committed volunteers and associated stakeholders, the HFP acts as a catalyst to bring about needed change. To this effect, the HFP operates through its Chapters to work with motivated health care providers, patients, their families and members of the community to foster quality health care for people with bleeding disorders. The Hemophilia Foundation-Pakistan [HFP], a national not-for-profit organization, was established in 1995. It is a national network of patients with Hemophilia and has official recognition from the World Federation of Hemophilia [WFH] as National Member Organization [NMO].

Nearby health & beauty businesses


Other Islamabad health & beauty businesses

Show All

Comments

Hemophilia Society Delhi is organising an online Patient Education program on 11 Dec. 2020 from 3PM To 4 PM Topic हेमोफ़िलिया में COVID एवम् अन्य संक्रमण से बचाव के कारगर नुस्ख़ by Prof. Naresh Gupta Medical Consultant, MAMC, Advisor for Haemophilia, Lok Nayak Hospital, New Delhi & President Health Environment Foundation and Sunita Aggarwal Professor of Medicine, MAMC & Incharge HDCC, Lok Nayak Hospital, New Delhi. Timing of above talk : 3pm to 3.40 pm Q & A : 3.40pm to 4pm. POSITIVELY ATTEND THIS INFORMATIVE SESSION on 11th DEC 2020 , From 3pm to 4pm. Kindly note to join a Microsoft Teams meeting Join the meeting on your computer or mobile app
M Umar is a patient o Hemophilia in Chak no 208p Sadiq abad Dist Raheem yar khan, Plz Help this patient, I am nabour of this patient
#April is not ended; #hpwsPeshawarChapter will celebrate the day on 27th of April/19. #ChallengesHaveSolution #SpiritMakesItPossible #LoveForRED❤ #ReachingOutThe1stStepToCare🌏
Community Support Building Seminar by HPWS-Peshawar Chapter. March 30, 2019
Fund Raising Activities at #InternationalPublicHealthConference, Khyber Medical University Peshawar. Thanks to HFP for providing Promotional Materials
Hi, Can you help me find a DR who could help me treat Hemophilia?
i am suffering with heamophilia .very hard and painfull life we are 3 brother and 2 sister suffring .we are poor and cannot treatment it is so difficult life please help us .we wants to live.
My hemo hero
"Prevention and Management of Blood Disorders under Shariah Guidance" By: Dr. Munira Borhany & Qazi Dr. Shaikh Abbas Borhany Link to download:http://www.durrenajaf.com/upload/59074801dd2a3.pdf Abstract: Objective: The purpose of writing this article is to convince the Muslim communities worldwide - the second largest religious entity of the world - to adopt modern medical steps, which provide safety and care. Methods and Discussion: Irrespective of their education, Muslims are highly influenced by Islam. They never consider science equal to their religion; therefore, in Muslim countries it is very difficult for any government, authority or institution to enforce norms in the respective medical sector through acts or ordinances. Instead, the canon source of Shariah can communicate this message easily. The masses practice their daily affairs as per Shariah as they believe that Shariah is the fountain of divine wisdom. Providing Muslim religious sources in this research paper is purely to communicate a scientific study under the guidance of Shariah to the community worldwide. Conclusion: It is hoped that numerous Muslims would take advantage from it. The Ulama [Muslim clergy] and Madrasahs [Seminaries] have a pivotal role in influencing health education and its promotion amongst members of the Muslim community. They can provide potential access to people for raising, understanding and encouraging the use of health services as well as ethnic blood donor drives.