01/19/2021
Community, Work & Independence, Inc.
After getting the COVID-19 vaccine, Andy Bauer, CWI's Cronin Road IRA, received a Vaccine Record Card. Congrats Andy!
NY Alliance
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The New York Alliance for Inclusion and Innovation, a statewide association of non-profit providers, is the result of the coming together of NYSACRA and NYSRA; both representing 40 years, respectively, of advancing the interests of provider organizations
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The New York Alliance embraces its Core Values of Community, Leadership, Collaboration, Integrity and Equality. We foster choice and independence in diverse, inclusive communities and also inspire creativity and innovation, where people thrive and succeed We will build strong coalitions and engage key stakeholders to advocate for all people with disabilities, shape sound public policies which respond to people’s needs and support initiatives which advance positive, high quality outcomes We will develop strategic alliances to ensure that people with disabilities and all stakeholders embrace a truly person-centered system of supports and services We believe responsible words and actions should be held to the highest standards of honesty, fairness, respect and professionalism We value the rights of all people by fostering equal and fair treatment, respecting ideas and personal values and embracing diversity It is our mission to serve as a catalyst for positive change, and leading resource for people with disabilities, their families, and the organizations providing support services. We do this through our Advocacy, the advancing of public policy, education and training and Technical assistance.
The New York Alliance embraces its Core Values of Community, Leadership, Collaboration, Integrity and Equality. We foster choice and independence in diverse, inclusive communities and also inspire creativity and innovation, where people thrive and succeed We will build strong coalitions and engage key stakeholders to advocate for all people with disabilities, shape sound public policies which respond to people’s needs and support initiatives which advance positive, high quality outcomes We will develop strategic alliances to ensure that people with disabilities and all stakeholders embrace a truly person-centered system of supports and services We believe responsible words and actions should be held to the highest standards of honesty, fairness, respect and professionalism We value the rights of all people by fostering equal and fair treatment, respecting ideas and personal values and embracing diversity It is our mission to serve as a catalyst for positive change, and leading resource for people with disabilities, their families, and the organizations providing support services. We do this through our Advocacy, the advancing of public policy, education and training and Technical assistance.
Mission: NYSACRA MISSION NYSACRA represents the collective voice of its members in promoting the full participation of persons with developmental disabilities in the communities of New York State. NYSACRA executes this mission by: • influencing public policy, public understanding, and community action dedicated to quality services designed to realize inclusion and meet individual need; • acting as a resource to provide services, advocacy, information, technical assistance, education, collaboration, and networking experiences to our members; and • promoting choice, quality supports, and services in the community, in partnership with people with developmental disabilities, their families, those who provide their supports, and others involved in their lives.
Operating as usual
01/15/2021
Top Ten Reasons To Get The Vaccine
Racker’s Center Executive Director, Dan Brown, shares their Top 10 Reasons to get the COVID-19 Vaccine. #GetVaccinated, #DoYourPart, #StrengthTogether #Vaxxie
https://bit.ly/3qlwR2S
01/13/2021
People Inc.
At People Inc., we’re doing everything we can to promote the safety and well-being of the people we support, our employees, families and community. Our Nursing Department led the way by receiving the COVID-19 vaccination. Pictured here is Tanya Perri, RN and vice president of Clinical Services. #PeopleIncStrong
01/12/2021
NY Alliance's cover photo
01/12/2021
NY Alliance's cover photo
01/09/2021
Community, Work & Independence, Inc.
CWI's Amber Coppolo, LMSW, Division Director of Clinical Services, and Dr. Michael Homenick, Consulting Psychologist, share some photos taken while they received COVID-19 vaccines.
01/08/2021
COVID-19's Impact on the Employment of People Living with Disabilities
COVID-19's Impact on the Employment of People Living with Disabilities
The coronavirus pandemic has hit people living with disabilities hard -- from the effects of social isolation to the ability to retain employment. HMM correspondent Corinne Carey talked with President
01/08/2021
Webinar: Your Questions and Our Answers About The COVID-19 Vaccine For Direct Support Professionals
Webinar: Your Questions and Our Answers About The COVID-19 Vaccine For Direct Support Professionals
Please join our Medical Advisor, Rick Rader, MD and Biochemist, Mark Macbeth, PhD to learn more about the newly released COVID-19 Vaccines. Dr. Rader and Dr. Macbeth will teach us about several aspects of the vaccines and will answer your questions about the vaccine's safety and efficacy. Our pres...
01/06/2021
Join the Conversation. Register here: https://nyalliance.org/meetinginfo.php
01/05/2021
Community, Work & Independence, Inc.
CWI's Kerry Brush, RN, holds her COVID-19 Vaccination Card indicating she recently received the first dose of the Moderna vaccine at the Moreau Family Health Center.
01/04/2021
NY Alliance President & CEO, Michael Seereiter's full note can be viewed at https://conta.cc/3ocRL3H.
12/31/2020
A Safe, Happy and Healthy New Year!
12/31/2020
New Hope Community, Inc.
Today we worked with Garnet Health Medical Center Catskills and had our first group of individuals from our residences, along with a small group of staff and nurses, get their vaccinations at Garnet. There are two additional all-day and one partial-day clinics set up for early next week. We continue to stay on track and make the important progress to keep everyone safe and healthy.
#vaccinate #healthy #igotvaccinated #FightCovid
12/24/2020
On behalf of the NY Alliance, we wish you a happy, healthy and safe holiday ❄️
12/23/2020
Advocates for Disabled Community Applaud New York Vaccine Plan
Advocates for Disabled Community Applaud New York Vaccine Plan
The rollout is beginning this week.
12/10/2020
Disability advocates urge Cuomo to reconsider budget cuts
“We are asking the Governor to reconsider the cuts to our programs, to our providers, and ultimately, to our loved ones,” said New York State Assemblywoman Melissa Miller at the Save Our Services Virtual Rally. https://bit.ly/3n5Cykc
More than 1,000 people participated in a virtual statewide rally Wednesday calling on New York Gov. Andrew Cuomo to reconsider budget cuts for services for
12/09/2020
At today’s SOS Rally, Self-Advocate Danielle Lazarra surrounded virtually by a sea of Save Our Services signs, shared the importance of services stating, “Please don’t cut our services because a little goes a long way”. A sentiment shared throughout the rally attended by more than 950 self-advocates, family members and other stakeholders including NYS legislators.
12/08/2020
Stephen "Dr. Bird" Birchak telling NY Alliance webinar participants today how to tap into your best when your best is needed - "Finding motivation and Strength in the Midst of a Crisis". See upcoming webinars at https://nyalliance.org/
12/07/2020
Save Our Services Virtual Rally: Join Families and advocates for a Virtual Rally via Zoom on Wednesday, December 9, 2020 at 11:00 a.m. to 12:30 p.m. Legislators have been invited to participate as well as the Governor and the Commissioner of OPWDD. Join the Rally by phone at 1-929-205-6099 or join with the following link:
https://us02web.zoom.us/j/84507001387?pwd=RVlDRytnRTFNNkhVLzZ0VllaaGpjdz09
Meeting ID: 819 8581 4195
Passcode: 477149
12/04/2020
Today is Flashback Friday! NY Alliance’s Flashback is on our Keynote Speaker from this week’s Leadership Conference - Dr. Chris Gibson, President of Siena College - who shared some true pearls with all who attended the event, emphasizing the importance of knowing your organization’s purpose and being able to communicate it in one sentence. Your Purpose leads to Principles, that lead to Priorities, that foster Planning. Yesss!
Share your Flashback Friday moment in the comments 🙂.
12/03/2020
Kesha Carter, Chief Diversity Officer with Coordinated Care Services, Inc. engages Leadership Conference attendees in a discussion on Integrating Diversity, Equity & Inclusion into Organizational Culture.
12/03/2020
Michael Seereiter, President & CEO kicks off day 3 of Leadership Conference with an Annual Update from OPWDD Commissioner Theodore A. Kastner, M.D., M.S., addressing the Vision for 2021 and Beyond
11/30/2020
Chris Gibson, Ph.D., President, at Siena College will kick off this year’s Virtual Leadership Conference addressing Leadership in the Time of a Pandemic; followed by Melinda Abrams, Senior Vice President of The Commonwealth Fund who will discuss The Crises and Opportunities of the COVID-19 Pandemic. Follow https://bit.ly/3fPFm20 for full agenda.
11/25/2020
Wishing provider agencies, DSPs, and everyone a happy, healthy and safe Thanksgiving holiday.
11/24/2020
New York Disability Advocates
People with intellectual and developmental disabilities matter. Let's make sure they have equal access to quality care and equal opportunity to live fulfilling lives. www.nydisabilityadvocates.com
11/24/2020
Cuts to Developmentally Disabled Services Could Go Deeper Amid Pandemic
"It's not a secret. It's COVID. A lot of things are getting cut. We're all aware of that. But this is not an excuse to continue to keep stripping our community of the supports and services we need so desperately, for our individuals, our loved ones, to continue to successfully integrate into society." ~ Assemblywoman Missy Miller
The state faces a looming budget crisis.
11/23/2020
An outbreak at a group home and a frantic effort to Clorox wipe the virus away
As we near a national time of Thanksgiving, we are thankful for Direct Support Professionals who are essential workers combatting the challenges associated with COVID-19; and we are thankful for the Provider Organizations they represent who provide services and supports to individuals with disabilities as these organizations face reductions in federal funding, state funding, and the workforce.
As covid-19 threatened a group home for disabled women, their caregivers opened a stash of Clorox wipes, hoping to stop the infection from spreading
11/20/2020
Developmental Disabilities Heighten Risk of Covid Death
Scientists at Syracuse University who worked collaboratively with the NY Alliance’s Ryan Cox reported in June that people with disabilities living in group homes in New York State had far higher rates of Covid-19, compared with other state residents, and that their risk of dying was markedly higher. https://nyti.ms/3nIo8Gz
People with intellectual disabilities and developmental disorders are three times more likely to die of Covid-19, compared with patients without the conditions, a new analysis found.
10/27/2020
Join the NY Alliance on October 29, 2020 at 9:30-11:00AM for “An Agency Wide Culture of Employment First” webinar as we recognize National Disability Employment Awareness Month (NDEAM). More here: https://bit.ly/3kzfjxV
10/07/2020
WNY and Finger Lakes October Virtual Rally!
WNY and Finger Lakes October Virtual Rally!
Throughout the Month of October As we continue to collaborate on advocacy efforts, the NY Alliance encourages you to share the information below with your network of family members and friends! Click
10/06/2020
The University of Albany School of Education presents Equity in Transition Summit: Navigating Transition Now Remote service, Mental Health and Intersections of Identity on October 12, 2020 at 10:00 AM to 2:00 PM. Follow here https://bit.ly/3dgykSZ for more information and to register.
10/02/2020
Help New York stop the spread. Add your phone to get #COVID19 exposure alerts.
10/02/2020
In a Times Union editorial found here - https://bit.ly/3d3xLfb - former NYS Assemblyman, Harvey Weisenberg, states “…let your voice be heard by making sure Gov. Andrew Cuomo continues to make our special people a priority in the state budget”.
09/25/2020
Help us thank eVero Corporation for sponsoring today's Data Technology Summit "Panelogue Discussion: I/DD Data Collection and Analysis – What Should We Be Looking to Measure". You can visit eVero online at https://www.evero.com/
09/24/2020
N.Y.‘s most vulnerable will suffer if the state cancels funding: disability advocates
Advocates tell the impact of the pandemic on individuals with disabilities and the organizations who provide supports and services in Daily News article.
https://bit.ly/32WNQ2y
New York Disability Advocates say their clients are most "at-risk" if services are cut.
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Albany, NY
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Our Keynote Dr. Stephen Birchak is keeping the room laughing this morning.
Our Keynote Frank Pastizzo is having fun this morning teaching juggling.
Over the past year Direct Support Professionals across New York State banded together and are making their voices heard on the need for a living wage. What does the direct support profession mean to those receiving the services and just how important is a living wage? Ed Bartz is a self-advocate with The Arc of Rensselaer County and he shares his story and lifelong journey as a person with a disability. In Ed’s words, he details the meaningful work of the direct support profession and just what his staff means to him.
Fantastic video unveiled at NYSACRA's Annual Conference introducing our wonderful conference committee and some of the terrific NYSACRA staff.
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Our Story
The New York Alliance for Inclusion and Innovation (New York Alliance) envisions a society where people with disabilities live full, productive and meaningful lives with access to opportunities of independence, inclusion, employment and other life-enrichment experiences. We are committed to improving the lives of people with disabilities through our advocacy, advancement of public policy, education and training and technical assistance. Visit the New York Alliance at www.nyalliance.org to learn more.
Nearby health & beauty businesses
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New York Health Information Management Associ
230 Washington Avenue Extension -
New York State Academy of Nutrition and Diete
230 Washington Avenue Extension, Suite 101 -
300 Washington Avenue Extension
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New York State Association of County Health O
One United Way, Pine West Plaza -
1 Rapp Rd Suite B
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Epilepsy Foundation of Northeastern New York
3 Washington Sq -
Albany Molecular Research, Inc. - AMRI
26 Corporate Circle -
Lush Cosmetics Albany - Crossgates Mall
1 Crossgates Mall Rd -
1 Crossgates Mall Rd
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1 Crossgates Mall Rd #C220
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500 New Karner Road
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1 Gracemore St, Guilderland
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6 executive park drive
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4201B Albany Street
Other Disability services in Albany
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New York State Developmental Disabilities Pla
99 Washington Ave, Suite 1230 -
UAlbany's Center for Autism and Related Disab
1535 Western Ave -
1510 Central Avenue, Suite 330
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Diocese of Albany Ministry for People with Di
40 N Main Ave -
500 New Karner Road
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Catholic Charities Disabilities Services
1 Park Pl, Ste 100 -
Achieve Beyond - Pediatric Autism Services -
90 State Street, Suite 700 -
300 Washington Avenue Extension
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Consumer Directed Personal Assistance Associa
119 Washington Ave, Ste 3A -
University at Albany Disability Resource Cent
1400 Washington Ave
Comments
Since everyone's loved one handles things differently - what works for one may not be good for another. But in general - my suggestions to OPWDD would be to have an appt with the Group home. A parent/family member/advocate (PFA) would be free of symptoms and fever. A PFA would wear a mask. If the agency feels necessary - a PFA could wear a covering or a some type of gown and put on prior to visit as well as surgical gloves. If the loved one is able to, the IDD could wear a mask, too but this is not required. The PFA and IDD could have a nice visit outside- go for a walk, etc. Both parents or 2 ppl living in the same home (such as siblings, grandparents, mom and sibling) could visit together.
After everyone who resides in the GH has received visitors - and everyone has remained symptom free, then visitors can then take their loved one out to an open area, such as a hiking trail, their backyard, etc.
Again, after everyone remains symptom free - progress to allow parents inside the home/ with masks on - OR allow a home visit- assuming less than 10 people in the home and that they follow to the best of their ability social distancing guidelines.
I realize that some parents may disagree with this - that it is too slow a progression - but I think they safeguards would be in place and social distancing guidelines are all adhered to.
I advocate for a visit to start asap - hopefully within a week or 2 - as with restrictions being loosened in NY, and the number of Covid cases are at its lowest since beginning of March, this is probably the safest time to visit!
Additionally:
With individuals with IDD being restricted to the home/property - they are less active - the impact can affect their health - lead to weight gain, higher A1C and hyperlipidemia, depression, lower the immune system, problems sleeping, etc.
Seeing family members/loved ones - getting outside - into the sun and being more active with help their spirits, their mental and physical health including their immune system.
Therefore - in the best interest of those with Intellectual Disabilities who we want to protect and keep safe and healthy - visitation with family members and outside and low population area-activities would be healthier and in their best interests!
Respectfully,
Stephanie Brenner, MS, RDN
Mother, Guardian, Advocate
(MS in Public Health and Nutrition, Registered Dietitian/. Nutritionist)
Today's meeting was upsetting - but I'm grateful to know there are so many other loving, dedicated family members who are advocating for their children and siblings! I have had my son with me for 3 months. I am also an advocate (quasi guardian) for a wonderful man who lives with my son. I could not handle having both of them and I'm very sad about that. I've talked to the DC Health Dept in setting up guidelines for when I bring my son back - and between those conversations, my educational and personal experience - I suggest to help prepare for a visit I recommend:
DOCUMENTATION!
-Take Daily Temperatures - Document
-Free from Covid symptoms? Yes- Document
-Remaining Socially Distant? - Yes- Document
-Wear a mask in public? - Yes- Document
-Come in contact with anyone with Covid or who might have Covid? -No - Document!
In case the State requires you to be free of a fever or symptoms and to have adhered to social distancing guidelines - this documentation might be very helpful!!
Perhaps - document when you FaceTime or zoom - how your child's spirits are - any negative behaviors worsening? Any weight gain, loss? (unplanned and unwanted).
I used to work in Public Health and documentation is key.
Wishing everyone will reunite with their loved one soon - meaning this week or by end of June for sure!!!! (before cases start to rise as things open up!!!!!!!)
The Social Brain, a 5013c for Brain Injury Survivors and St Joseph's College, Patchogue NY have a developed a FREE webinar on Traumatic Brain Injuries overview . Wed Aug 7th 7-8pm. This webinar is open to everyone and we look forward to having friends and professionals listen in, ask questions, and find resources that evening. please share our link and invite othershttps://register.gotowebinar.com/register/1493921142180573698
HELP WANTED
Looking for Direct Support Professionals aka Community Habilitation Specialist
Your invited to attend the monthly Family and Staff Connections
A Family and Staff Connection is an event that provides information, support, socialization, and prospective staff for People with Developmental Disabilities receiving Self Direction through OPWDD.
We usually offer monthly connections in Nassau County at the Rockville Centre Library, as well as several Suffolk County Library’s. This provides a safe environment for families to come and interview prospective staff such as Community Habilitation Staff or Job Coaches.
Families will bring questions. Staff should bring at least 20 or more resumes to share with families and brokers.
When is the next Family and Staff Connections?
Nassau County – 2019
Dates
February 4
March 4
April 1
May 6
June 10
Place: Rockville Centre Library at 221 North Village Ave, Rockville Centre, NY
Time: 6:30 p.m. to 8:30p.m.
Note: $1.00 Entrance FEE (to cover cost for materials)
RSVP to: [email protected]. In the subject line put “I will attend the Nassau County Family and Staff Connections”. In the email include the following: if you are a Direct Support Staff that are looking for positions, please indicate if you are “CLEARED” through Independent Support Services or another Fiscal Intermediary. Include a copy of your resume with response. Also, bring at least 20 or more resumes. We are asking that you wear your Fiscal Intermediary ID. If you don’t have one, contact the FI Human resources department.
Reminder: -DOORS OPEN AT 6:30 p.m.-
Thank you: Donna Irving
Check out our webpage: http://www.longislandcssandfriends.com/
Join our Facebook group: https://www.facebook.com/groups/889671771094194/
Join our Yahoo group: https://sg.groups.yahoo.com/neo/groups/longislandcssandfriends/info
Also check out Supporting Our Young Adults Network (SOYAN) https://www.facebook.com/SOYANLI/
⛳️ Please join us on 9/24 for a Golf Tournament to benefit Devereux adult services. More info and Registration online at [email protected]