Mended Little Hearts National Organization

Mended Little Hearts National Organization Empowering families affected by CHD!
Hope, Help, Healing
Mended Little Hearts is a program of the Mended Hearts Inc., a non-profit, volunteer-based organization providing hope, help and healing to heart patients and their families since 1951.

The Mended Little Hearts program works nationally and in communities to support children with congenital heart defects and their families.

For many parents, hearing the heartbeat of their unborn child becomes their first, loving bond to that child. It's no wonder, then, that discovering that their child has a heart defect, whether diagnosed in the womb, shortly after birth or during childhood, can be devastating. Mended Little Hearts, a support program for parents of children with heart defects and heart disease, is dedicated to inspiring hope in those who care for the littlest heart patients of all. Mended Little Hearts offers resources and a caring support network as families find answers and move forward to find healing and hope. For families with children who live with heart defects and disease, Mended Little Hearts is a support network providing education, advocacy, awareness, and outreach.

Mission: To empower families affected by congenital heart disease.

Are you looking for more information on helping children transition to specialized adult care? Learn more about our alig...
05/19/2019
Supporting Teen's Transition to Adult Care - Mended Hearts Treatment & Support

Are you looking for more information on helping children transition to specialized adult care? Learn more about our alignment with the Adult Congenital Heart Association! http://ow.ly/xJKa50u0rey #1in110 #CHDAware #RememberOurHearts #MLH #CHD

Mended Hearts Treatment & Support - MLH aligns itself with the Adult Congenital Heart Association (ACHA). in its policy that all adults with CHD receive care from a cardiologist who

"Logan was so happy and his eyes would look into your soul. He wanted to be held all the time and sleep on our chests. H...
05/19/2019
You Look Fine From the Outside - Mended Hearts Posts

"Logan was so happy and his eyes would look into your soul. He wanted to be held all the time and sleep on our chests. He had the biggest smile and twinkle in his eyes." http://ow.ly/o3Tt50u0r0N #1in110 #CHDAware #RememberOurHearts #MLH #CHD

Crytal and her family joined "clubs" they never wanted a part of — the heart warriors and heart angels. Read what the heart community has meant to them.

To help families affected by CHDs, we created the Mended Little Heart Guide. This guide will help you to navigate common...
05/18/2019
HeartGuides Patient and Family Education - Mended Hearts

To help families affected by CHDs, we created the Mended Little Heart Guide. This guide will help you to navigate common questions and concerns and, most importantly, lets you know you’re not alone. http://ow.ly/zkiN50u0qzh #1in110 #CHDAware #RememberOurHearts #MLH #CHD

Mended Hearts and Mended Little Hearts' HeartGuides are in-depth digital resources for heart patients and their caregivers.

Check out the winning entries from this year's #RockYourScar photo contest in the current issue of Heartbeat magazine! h...
05/17/2019
Heartbeat Magazine - Mended Hearts Magazines

Check out the winning entries from this year's #RockYourScar photo contest in the current issue of Heartbeat magazine! http://ow.ly/3Ieg50u0qfJ #RockYourScar #HeartHealthy

Mended Hearts Magazines - Heartbeat Magazine Heartbeat is the bi-monthly magazine Mended Hearts distributes to members and subscribers all over the nation. Each issue focuses on the topics that

"Learn to be thankful for every minute you have with your child. It is the hardest job in the world, and you are doing e...
05/17/2019
Learning to Be Thankful - Mended Hearts Posts

"Learn to be thankful for every minute you have with your child. It is the hardest job in the world, and you are doing everything you can." http://ow.ly/rbGj50u0qf9 #1in110 #CHDAware #RememberOurHearts #MLH #CHD

  By Melissa O’Donnell, new mom and new CHD advocate and student “I am going to send you to cardiology. It’s probably nothing, but I need you to go now.” My husband and I had just arrived at our two-week pediatric check up. I whispered, “It’s probably nothing” and rolled my eyes at Ry...

Learn more about the latest innovations in CHD treatment and care from experts from around the nation at our #CHDSymposi...
05/16/2019

Learn more about the latest innovations in CHD treatment and care from experts from around the nation at our #CHDSymposium2019 in Milwaukee, WI, July 12-13. Find out more and sign up today at http://ow.ly/GNNp50u0pRQ #1in110 #CHDAware #RememberOurHearts #MLH #CHD

05/16/2019
Parent Experiences of Caring for a Child with a Ventricular Assist Device (VAD)

If you are a parent of a child age 4 to 18 with a VAD or a young adult age 19 to 25 with a VAD who lives (or lived) at home, you may be eligible to participate in a study on Parent Experiences of Caring for a Child with a Ventricular Assist Device (VAD). You may even be eligible if you or your child has already received a transplant. This study is approved through the Institutional Review Board at the University of Delaware, and will close on 5/31/2019.

For more information or to enroll, please email Leigh at [email protected] or access the study at http://j.mp/2rirBAm.

My name is Leigh Ann DiFusco, and I am a doctoral student in the School of Nursing at the University of Delaware. I am interested in learning more about parent experiences of caring for a child with a Ventricular Assist Device (VAD) who was sent home from the hospital.

Last year, Alin, a doctor-in-training, became a critically ill patient herself. Read her incredible story, and how the e...
05/15/2019
A Doctor Turned Heart Patient Gives Back - Mended Hearts Posts

Last year, Alin, a doctor-in-training, became a critically ill patient herself. Read her incredible story, and how the experience has shaped her career in medicine. http://ow.ly/8Jcw50u09Bk #1in110 #CHDAware #RememberOurHearts #MLH #CHD

This doctor was diangosed with genetic dilated cardiomyopathy, requiring a heart transplant. Today, she's working with Mended Hearts to spread awareness.

Excitement for #CHDSymposium2019 is building 🎉Join us in Milwaukee at Children's Hospital of Wisconsin, our gracious ...
05/15/2019
CHD Symposium 2019

Excitement for #CHDSymposium2019 is building 🎉

Join us in Milwaukee at Children's Hospital of Wisconsin, our gracious and generous host, July 12-13, as we welcome CHD patients, parents, families, medical professionals, and advocates to this amazing educational and inspirational event!

❤️ 🇳 🇪 🇼 🇹 🇭 🇮 🇸 🇾 🇪 🇦 🇷 ❤️

- CHD Leaders' Summit for ALL CHD leaders from ANY organization on Friday, July 12.
- The cost is only $55 per person or $100 per couple in the same household and includes two lunches and one dinner.

❤️ ⓈⒶⓉⓊⓇⒹⒶⓎ ⒶⒼⒺⓃⒹⒶ ❤️
- 8:30 – 9:00am Keynote: Navin Kumar, CHD Patient, early-onset Parkinsons, medal-winning table tennis player, now Hollywood movie actor

- 9:05 – 11:00am Panel 1: Innovations for the Early Years and Beyond
• Innovations in CHD Surgeries, Dr. Mike Mitchell, Children’s Hospital of Wisconsin
• Empowered Parents—Making Choices in the ICU, Deb Discenza, Preemie World
• Non-surgical interventions, Dr. Shabana Shahanavaz, St. Louis Children’s Hospital
• Diagnosing and Educating Parents & Families, Dr. Ryan Moore, Cincinnati Children’s Hospital Medical Center

- 11:15 – 12:35pm Panel 2: Issues Children and Families Face During School-Age Years
• Talking to a School-Age Child about CHD and Health Issues, Meena LaRonde, RN, MSN, Boston Children’s Hospital
• You Fixed My Heart, So Why is School So Hard? Learning and Emotional Challenges in Children with CHD, Cheryl Brosig, Children’s Hospital of Wisconsin
• Is Your Child’s School Ready for CHD? Project Adam

12:40 – 1:30 Lunch

1:30 – 2:45pm Panel 3: Adolescence and Teen Years
• Managing Health Issues for the Older Child
• Dealing with Fear and Anxiety, Leslie Scott, Children’s Hospital of Wisconsin & Sara Reynolds, Texas Children’s Hospital
• Transitioning to Adult CHD Care, Adrienne Gara, University of Virginia

3:00 – 4:30pm Panel 4: CHD According to Me Panel—Growing Up with CHD
• Medical Professional & Adult with CHD—Chrissy Barbera
• Parent of a young child—Ryan Freund
• An elementary school-aged CHD child—Aidan Pearsall
• A teen-aged CHD child—Caleb Schendel
• A young adult with CHD—Kayla Dennis
• An adult and mom with CHD—Nicole Sanchez

4:30 – 4:45pm Where Do We Go from Here?

Bereavement Breakout Schedule will also be scheduled.

How do you join us? Register TODAY at
http://chdsymposium2019.mendedlittlehearts.net

Questions? Just ask!

#MLH #1in110 #CHDAware #RememberOurHearts #HeartWarriors #CHDSymposium2019 #ChildrensHospitalOfWisconsin

Join us for the 6th Annual CHD Symposium, July 12-13, generously hosted by Children's Hospital of Wisconsin and including a NEW CHD Leaders' Summit! The theme this year is 'Growing with CHD: Planting Seeds for a Brighter Future.'

Is your birthday coming up? Create a Facebook birthday fundraiser in support of Mended Hearts! Simply choose MH or MLH f...
05/15/2019

Is your birthday coming up? Create a Facebook birthday fundraiser in support of Mended Hearts! Simply choose MH or MLH from the list of nonprofits, select a goal and let Facebook do the rest. #1in110 #CHDAware #RememberOurHearts #MLH #CHD

Congratulations to Heartbeat Magazine - it just won a 2019 Communicator Award for Best Magazine, Non-Profit for the Janu...
05/15/2019

Congratulations to Heartbeat Magazine - it just won a 2019 Communicator Award for Best Magazine, Non-Profit for the January/February issue! The Communicator Awards is a leading international awards program recognizing excellence in marketing and communications. For more information, please see the link below. #Heartbeat #Mendedhearts #MLH #PeertoPeerSupport #1in110 #CHDAware madison/miles media://www.communicatorawards.com/awards-2/

Plant the Seeds for a Brighter Future at the #CHDSymposium2019 in Milwaukee, WI, July 12-13! Find out more by visiting u...
05/14/2019

Plant the Seeds for a Brighter Future at the #CHDSymposium2019 in Milwaukee, WI, July 12-13! Find out more by visiting us at http://ow.ly/k9Ck50u09xG #1in110 #CHDAware #RememberOurHearts #MLH #CHD

Many severe congenital heart defects will create signs or symptoms, often soon after birth. If your child has some or al...
05/14/2019
Signs and Symptoms of CHD - Mended Hearts Stories

Many severe congenital heart defects will create signs or symptoms, often soon after birth. If your child has some or all of these symptoms, speak with your pediatrician. http://ow.ly/dbh250u09vZ #1in110 #CHDAware #RememberOurHearts #MLH #CHD

Mended Hearts Stories - Signs and Symptoms of CHD According to the NHLBI, the Centers for Disease Control and Prevention, and the American Heart Association, many congenital heart defects have no signs or

Parents of children with CHDs who suspect developmental problems or delays should have their child screened as early as ...
05/13/2019
Developmental and Educational Issues - Mended Hearts Stories

Parents of children with CHDs who suspect developmental problems or delays should have their child screened as early as possible. Learn more about CHDs and neurodevelopmental issues here: http://ow.ly/va1J50u09uY #1in110 #CHDAware #RememberOurHearts #MLH #CHD

Mended Hearts Stories - Developmental and Educational Issues Neurodevelopmental Issues The good news is that many children with congenital heart defects are now surviving into adulthood; however, researchers are

Larry uses his voice to advocate for other heart patients like himself and ensure that members of Congress care about he...
05/13/2019

Larry uses his voice to advocate for other heart patients like himself and ensure that members of Congress care about healthcare laws. #PowerofthePatientVoice #MotivationMonday #1in110 #CHDAware #RememberOurHearts #MLH #CHD

We are always looking for new stories to share on the Mended Little Hearts blog! Here's how to submit your story. http:/...
05/12/2019

We are always looking for new stories to share on the Mended Little Hearts blog! Here's how to submit your story. http://ow.ly/2b1o50u09og #1in110 #CHDAware #RememberOurHearts #MLH #CHD

On Mother's Day, we keep close to our hearts, all of the moms touched by CHD.  You are the fighters, the wipers of tears...
05/12/2019

On Mother's Day, we keep close to our hearts, all of the moms touched by CHD. You are the fighters, the wipers of tears, the cheerleaders, and the advocates.

This Mother's Day, just like every day, we are here for the mom who had to say goodbye too soon. For the mother who is missing their child today just like she did yesterday and will tomorrow....

For the mom, on Mother's Day, who is sitting bedside in the hospital with their child... we are with you. We know that today is a day like any other; a day where you are doing everything you can for your child.

We invite you to share your Mother's Day with us; share stories, photos, or a moment of remembrance.

#MLH #1in110 #CHDAware #HeartWarriors #RememberOurHearts #MothersDay #CHDSymposium2019

Like many heart parents, Sara didn't know what to expect following her child's #CHD diagnosis. Read how she's learned to...
05/11/2019
A Heart Mom Takes Things Day by Day - Mended Hearts Posts

Like many heart parents, Sara didn't know what to expect following her child's #CHD diagnosis. Read how she's learned to take things day by day and how the experience has changed her life. http://ow.ly/wvWz50u08Y1 #1in110 #CHDAware #RememberOurHearts #MLH #CHD

  By Sara Toner I stepped into the role of being a heart mom not knowing where it would take me. I didn’t entirely understand the meaning of CHD, and why there were so many subcategories that fit under it. My son Tyler was diagnosed with hypoplastic left heart syndrome (HLHS) when I was six … C...

Learn more about the latest innovations in CHD treatment and care from experts from around the nation at our #CHDSymposi...
05/11/2019

Learn more about the latest innovations in CHD treatment and care from experts from around the nation at our #CHDSymposium2019 in Milwaukee, WI, July 12-13. Find out more and sign up today at http://ow.ly/w4Vw50u08W4 #CHD #1in110 #CHDAware

What can you do to spread #CHD awareness? Check out this list of suggestions! http://ow.ly/dayB50u08Vw #1in110 #CHDAware...
05/10/2019
CHD Awareness - Mended Hearts Stories

What can you do to spread #CHD awareness? Check out this list of suggestions! http://ow.ly/dayB50u08Vw #1in110 #CHDAware #RememberOurHearts #MLH

Mended Hearts Stories - CHD Awareness Raising awareness is important because not only are most people unaware of CHD, the more awareness we raise, the more likely it is that people will give

Have you checked out the Mended Hearts Marketplace yet? We have items that make for great souvenirs and thank you gifts ...
05/10/2019
Products Archive - Mended Hearts Products

Have you checked out the Mended Hearts Marketplace yet? We have items that make for great souvenirs and thank you gifts to members, patients and families! http://ow.ly/N6vB50u08US #CHD #CHDAware #1in110

Shop the Mended Hearts Marketplace. From pens, mugs, tote bags, to t-shirts and caps, you can order Mended Hearts specialty items and wearables online.

Don't forget to contact your congressperson about important policies regarding funding, research and more! Our website s...
05/09/2019
Contact Your Congressperson - Mended Hearts Posts

Don't forget to contact your congressperson about important policies regarding funding, research and more! Our website shares tips on where to find your legislators as well as tools to help you talk to them. http://ow.ly/8sb450u08Tm #1in110 #CHDAware #RememberOurHearts #MLH #CHD

Here are some tools from Mended Hearts to use when reaching out and connecting with your policy makers.

Panthers tight end and Heart Dad, Greg Olsen along with his wife, Kara, make charitable donation to help impact the live...
05/09/2019
Greg Olsen donates $2.5 million to pediatric cardiac center

Panthers tight end and Heart Dad, Greg Olsen along with his wife, Kara, make charitable donation to help impact the lives of so many CHD children.

#1in110 #MLH #CHDAware #HeartWarriors #RememberOurHearts

Panthers tight end Greg Olsen's foundation donated $2.5 million to the Atrium Health's Levine Children's Hospital in Charlotte. The funds will go toward a pediatric cardiovascular and congenital heart outpatient clinic. Olsen's commitment is the largest The HEARTest Yard Pediatric Cardiac

Bill uses his voice to provide peer-to-peer support and empower heart patients through hospital visits. #PowerofthePatie...
05/08/2019

Bill uses his voice to provide peer-to-peer support and empower heart patients through hospital visits. #PowerofthePatientVoice #HeartHealthy

Have you registered for the CHD Symposium 2019? Learn more about the symposium and how you can connect with the heart co...
05/07/2019

Have you registered for the CHD Symposium 2019? Learn more about the symposium and how you can connect with the heart community here: http://ow.ly/4CQk50u08Kf #CHDSymposium2019 #CHD #CHDAware #1in110

05/06/2019

"Some HCM patients can continue their prior activity level once diagnosed. Some have restrictions placed. I was the latter. I had to give up ballet due to my HCM." http://ow.ly/GDlH50u08GR #1in110 #CHDAware #RememberOurHearts #MLH #CHD

#NationalNursesWeek starts today! Let’s sing the praises of these amazing men and women who work tirelessly for their ...
05/06/2019

#NationalNursesWeek starts today!

Let’s sing the praises of these amazing men and women who work tirelessly for their patients. Nurses are the heart of healthcare. They are the ones who tend to patients and their families alike. They advocate. They support. They hold hands. They make a lasting impression.

Shout out the nurses who have made a difference in your life!

#MLH #1in110 #Nurses #NursesWeek #WeLoveNurses #HeartWarriors #RememberOurHearts

Today is International Bereaved Mother’s Day. This is a special day for the moms of angels. International Bereaved Mot...
05/05/2019

Today is International Bereaved Mother’s Day. This is a special day for the moms of angels. International Bereaved Mother's Day takes place on the Sunday before Mother's Day.

For bereaved parents, one of the greatest fears is that people will forget about their child. Talk about their child and let them talk about him/her. Remember the bereaved moms on this special day (as well as next Sunday).

Our wish for these special women, set some time for yourself today and do something special in your little one's memory. You're stronger than you ever thought you could be!!

💙❤ - Sharee McCoy, Bereavement Chair, MLH National

***If you are a parent looking for online bereavement support, there is a Mended Little Angels closed group on Facebook.
Here is the link: https://www.facebook.com/groups/mendedlittleangels/?ref=share

Address

8150 N. Central Expressway, M2248
Albany, GA
75206

General information

Since 2004, Mended Little Hearts has provided families and caregivers of children with heart defects and heart disease, patients an outlet through which they can find answers, education, resources and access to local-based peer-to-peer support – building hope for the future. With Mended Little Hearts, children with congenital heart defects (CHD) and their families find strength and understanding from those who share the same experience.

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