ALS Association of Georgia

ALS Association of Georgia To empower, care for and support all those living with ALS in Georgia, while advocating for a cure. Since its founding in 1988, the ALS Association of Georgia has worked with ALS patients and their families to ensure the highest quality of life possible.

The progression of ALS varies significantly from one patient to another. No matter a patient’s situation, the ALS Association of Georgia is available to provide vital services and reliable information.

The progression of ALS varies significantly from one patient to another. No matter a patient’s situation, the ALS Association of Georgia is available to provide vital services and reliable information.

Operating as usual

Relive the magic of Walk Day! Thanks to our wonderful videographers for capturing this special day :)https://vimeo.com/6...
10/22/2021
2021 Georgia Walk to Defeat ALS

Relive the magic of Walk Day! Thanks to our wonderful videographers for capturing this special day :)

https://vimeo.com/637166157

This is "2021 Georgia Walk to Defeat ALS" by GA Chapter Walk to Defeat ALS on Vimeo, the home for high quality videos and the people who love them.

2021 Walk to Defeat ALS pt. 2
10/12/2021

2021 Walk to Defeat ALS pt. 2

2021 Walk to Defeat ALS 9/25/2021
10/12/2021

2021 Walk to Defeat ALS 9/25/2021

We invite you to join us on October 15th at 11AM for our 3rd in our Symposium Series: From Buttons to Bluetooth - Home I...
10/08/2021

We invite you to join us on October 15th at 11AM for our 3rd in our Symposium Series: From Buttons to Bluetooth - Home Is My Safe Space.

This webinar will focus on the benefits of Occupational Therapy when managing the symptoms of ALS, to include high and low-tech tools, as well as home modifications.

Click here to register: http://webga.alsa.org/site/Calendar?id=231594&view=Detail

We invite you to join us on October 15th at 11AM for our 3rd in our Symposium Series: From Buttons to Bluetooth - Home Is My Safe Space.

This webinar will focus on the benefits of Occupational Therapy when managing the symptoms of ALS, to include high and low-tech tools, as well as home modifications.

Click here to register: http://webga.alsa.org/site/Calendar?id=231594&view=Detail

10/06/2021

KUDOS TO OUR AMAZING ALS COMMUNITY AND SUPPORTERS 👏

We are thrilled to share that The Walk has officially raised $500,000 for families living with ALS in Georgia!!

We have reached our Walk goal, but we will never stop fighting for our families and for a cure.

Our work isn’t done, so The Walk to Defeat ALS continues!

$500,000 and counting......

If you are looking for a community to connect with that may be on the same journey as you, try one of our monthly Suppor...
10/05/2021

If you are looking for a community to connect with that may be on the same journey as you, try one of our monthly Support Groups. Either choose a date/time that is convenient for you or a city that is near to where you live. You will find a group of people willing to share and learn from one another. Reach out to [email protected] for more info.
#ALSSupport #ALSCommunity

If you are looking for a community to connect with that may be on the same journey as you, try one of our monthly Support Groups. Either choose a date/time that is convenient for you or a city that is near to where you live. You will find a group of people willing to share and learn from one another. Reach out to [email protected] for more info.
#ALSSupport #ALSCommunity

A big THANK YOU to our 2021 Walk to Defeat ALS National Sponsors for their continued support of our mission and organiza...
09/30/2021

A big THANK YOU to our 2021 Walk to Defeat ALS National Sponsors for their continued support of our mission and organization!

A big THANK YOU to our 2021 Walk to Defeat ALS National Sponsors for their continued support of our mission and organization!

09/25/2021
As we continue our Why I Walk Series, today we're featuring Team Captain of Larry's Legacy, Kyle Pickett.Kyle and his mo...
09/08/2021

As we continue our Why I Walk Series, today we're featuring Team Captain of Larry's Legacy, Kyle Pickett.

Kyle and his mom, Gina, have been participating in The Walk for 13 years; and today, you'll hear why.

“I walk in honor & memory of my dad. He was a loving father, a great husband, an avid Boston fan and a man of God…..and there are so many other families like mine….so I continue to walk…” - Kyle Pickett

To hear Kyle's story, click here - https://bit.ly/2X3gXAZ

As we continue our Why I Walk Series, today we're featuring Team Captain of Larry's Legacy, Kyle Pickett.

Kyle and his mom, Gina, have been participating in The Walk for 13 years; and today, you'll hear why.

“I walk in honor & memory of my dad. He was a loving father, a great husband, an avid Boston fan and a man of God…..and there are so many other families like mine….so I continue to walk…” - Kyle Pickett

To hear Kyle's story, click here - https://bit.ly/2X3gXAZ

09/01/2021

In honor WALK MONTH, we are launching the first part of a month-long series: Why I Walk!

Each week, we will feature a different Walker or Team Captain's story of why they Walk!

"I Walk for my children, for my sister's children & for your children, so that they can grow up in a world without ALS" - Jessica Smith, Team Captain

TOMORROW NIGHT, one of our Walk to Defeat ALS Team Captains, Kay Morris and her brother will be pairing wine & their pas...
08/27/2021

TOMORROW NIGHT, one of our Walk to Defeat ALS Team Captains, Kay Morris and her brother will be pairing wine & their passion for raising awareness and funds for their Walk team, in memory of their mother.

The event will take place at The Vineyard Wine Market from 7 - 9. Additional details are in the flier below.

If you love some great wine and raising money for a great cause, I encourage you to attend and invite your friends and family as well!!

If you have questions or would like to register for this great event, reach out to [email protected]

TOMORROW NIGHT, one of our Walk to Defeat ALS Team Captains, Kay Morris and her brother will be pairing wine & their passion for raising awareness and funds for their Walk team, in memory of their mother.

The event will take place at The Vineyard Wine Market from 7 - 9. Additional details are in the flier below.

If you love some great wine and raising money for a great cause, I encourage you to attend and invite your friends and family as well!!

If you have questions or would like to register for this great event, reach out to [email protected]

We are looking for individuals and large groups to volunteer at our 20th Anniversary of our Walk to Defeat ALS at Georgi...
08/06/2021

We are looking for individuals and large groups to volunteer at our 20th Anniversary of our Walk to Defeat ALS at Georgia State Stadium on Saturday, September 25, 2021 from 8am- 12pm. Community service/volunteer hours can be signed off if needed! If you or a group you are involved in are interested in volunteering, please contact our Ellen Strickland Alsa Georgia at [email protected]

We are looking for individuals and large groups to volunteer at our 20th Anniversary of our Walk to Defeat ALS at Georgia State Stadium on Saturday, September 25, 2021 from 8am- 12pm. Community service/volunteer hours can be signed off if needed! If you or a group you are involved in are interested in volunteering, please contact our Ellen Strickland Alsa Georgia at [email protected]

Join us for Part 2 of our Symposium Educational Webinar Series on August 20th as we focus on "The 3 H's: Home Care, Home...
07/20/2021

Join us for Part 2 of our Symposium Educational Webinar Series on August 20th as we focus on "The 3 H's: Home Care, Home Health & Hospice." We have three experts that will speak on each topic and help you better understand what you need and when. Click here to register: http://webga.alsa.org/site/PageServer?pagename=GA_8_patient_family_services

Join us for Part 2 of our Symposium Educational Webinar Series on August 20th as we focus on "The 3 H's: Home Care, Home Health & Hospice." We have three experts that will speak on each topic and help you better understand what you need and when. Click here to register: http://webga.alsa.org/site/PageServer?pagename=GA_8_patient_family_services

If you have recently experienced the loss of a loved one, as the result of an ALS diagnosis, The ALS Association of Geor...
07/09/2021

If you have recently experienced the loss of a loved one, as the result of an ALS diagnosis, The ALS Association of Georgia offers continued support. See below for more info and consider joining us on July 15th at 7:00PM.

If you have recently experienced the loss of a loved one, as the result of an ALS diagnosis, The ALS Association of Georgia offers continued support. See below for more info and consider joining us on July 15th at 7:00PM.

Are you a family who has been touched by ALS with children & young adults between the ages of 6-21? Camp HLC (Hope Loves...
06/28/2021
Camp HLC | Hope Loves Company, Inc. | ALS | United States

Are you a family who has been touched by ALS with children & young adults between the ages of 6-21?

Camp HLC (Hope Loves Company) is for those that have or have had a loved one battling ALS. It is a 3-day overnight retreat and there is one hosted in Georgia in October! Or there is a Virtual option in July. You can learn more or register at: https://www.hopelovescompany.org/camp-hlc

Camp HLC is a three-day, overnight retreat for children and young adults, ages 6-21, who have or have had a loved one battling ALS. It is an opportunity to have fun, to be challenged through team building exercises and to meet other children who are in the same situation. Camp is provided free for o...

Don't forget to register to join us on June 15th for Part 1 - "Long Term Care Planning, ALS and Beyond" of our Symposium...
06/11/2021

Don't forget to register to join us on June 15th for Part 1 - "Long Term Care Planning, ALS and Beyond" of our Symposium Educational Webinar Series. This years series will inform patients and caregivers, educate community providers who work in partnership with patients, and empower those on the journey to make decisions.
Click to register: http://webga.alsa.org/site/Calendar?id=231592&view=Detail

Don't forget to register to join us on June 15th for Part 1 - "Long Term Care Planning, ALS and Beyond" of our Symposium Educational Webinar Series. This years series will inform patients and caregivers, educate community providers who work in partnership with patients, and empower those on the journey to make decisions.
Click to register: http://webga.alsa.org/site/Calendar?id=231592&view=Detail

If you'd like to learn more about the HEALEY ALS Platform Trial, join Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD,...
06/10/2021

If you'd like to learn more about the HEALEY ALS Platform Trial, join Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc today (6/10), at 5:00 pm EDT, for the latest updates, plus Q&A from the audience. You can also send questions in advance to [email protected].
Register here: https://partners.zoom.us/.../WN_JW9rQBhTRFW5uoUIDtJguw
#HealeyHope

If you'd like to learn more about the HEALEY ALS Platform Trial, join Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc today (6/10), at 5:00 pm EDT, for the latest updates, plus Q&A from the audience. You can also send questions in advance to [email protected].
Register here: https://partners.zoom.us/.../WN_JW9rQBhTRFW5uoUIDtJguw
#HealeyHope

Join us on June 15th for Part 1 - "Long Term Care Planning, ALS and Beyond" of our Symposium Educational Webinar Series....
06/03/2021

Join us on June 15th for Part 1 - "Long Term Care Planning, ALS and Beyond" of our Symposium Educational Webinar Series. This years series will inform patients and caregivers, educate community providers who work in partnership with patients, and empower those on the journey to make decisions.
Click to register: http://webga.alsa.org/site/Calendar?id=231592&view=Detail

Join us on June 15th for Part 1 - "Long Term Care Planning, ALS and Beyond" of our Symposium Educational Webinar Series. This years series will inform patients and caregivers, educate community providers who work in partnership with patients, and empower those on the journey to make decisions.
Click to register: http://webga.alsa.org/site/Calendar?id=231592&view=Detail

“I believe that the hardest part of healing after you’ve lost someone you love, is to recover the “you” that went away w...
06/02/2021

“I believe that the hardest part of healing after you’ve lost someone you love, is to recover the “you” that went away with them.”

If you have recently experienced a loss as the result of an ALS diagnosis, there is continued support. We invite you to join us on June 17th at 7pm, via Zoom. Check out the info below and reach out to our Care Services Team at [email protected] if you'd like to join us.

“I believe that the hardest part of healing after you’ve lost someone you love, is to recover the “you” that went away with them.”

If you have recently experienced a loss as the result of an ALS diagnosis, there is continued support. We invite you to join us on June 17th at 7pm, via Zoom. Check out the info below and reach out to our Care Services Team at [email protected] if you'd like to join us.

The 1st Annual Lou Gehrig’s Day is Wednesday June 2nd! Join us at at Truist Park when the Braves take on the Washington ...
06/01/2021

The 1st Annual Lou Gehrig’s Day is Wednesday June 2nd! Join us at at Truist Park when the Braves take on the Washington Nationals at 7:20pm. Click on the link below to purchase special group seating for this game. Tickets for this section are $24 with $4 from every ticket coming back to the Georgia Chapter.

Check out the website to purchase tickets, make a donation and get the latest updates on game day! braves.com/ALS
#LG4Day #LouGehrigDay #alsawareness

The 1st Annual Lou Gehrig’s Day is Wednesday June 2nd! Join us at at Truist Park when the Braves take on the Washington Nationals at 7:20pm. Click on the link below to purchase special group seating for this game. Tickets for this section are $24 with $4 from every ticket coming back to the Georgia Chapter.

Check out the website to purchase tickets, make a donation and get the latest updates on game day! braves.com/ALS
#LG4Day #LouGehrigDay #alsawareness

Lou Gehrig’s Day at Truist Park is on June 2nd at 7pm. Click on the link below to purchase special group seating for thi...
05/25/2021

Lou Gehrig’s Day at Truist Park is on June 2nd at 7pm. Click on the link below to purchase special group seating for this game. Tickets for this section are $24 with $4 from every ticket coming back to the Chapter.

Check out the website to purchase tickets, make a donation and get the latest updates on game day!

braves.com/ALS

Lou Gehrig’s Day at Truist Park is on June 2nd at 7pm. Click on the link below to purchase special group seating for this game. Tickets for this section are $24 with $4 from every ticket coming back to the Chapter.

Check out the website to purchase tickets, make a donation and get the latest updates on game day!

braves.com/ALS

If you are a person with ALS or a caregiver, tell the FDA and the pharmaceutical companies about your willingness to acc...
05/20/2021
We Can’t Wait

If you are a person with ALS or a caregiver, tell the FDA and the pharmaceutical companies about your willingness to accept the risks of experimental treatments to extend your life and make every moment count. Click below to learn how you can share your testimony before 5/25.
#ALS #EveryMomentMatters

FDA Agrees to Hear ALS Community Calls for Faster Access to Experimental Treatments

If you have recently experienced a loss as the result of an ALS diagnosis, there is continued support. We invite you to ...
05/17/2021

If you have recently experienced a loss as the result of an ALS diagnosis, there is continued support. We invite you to join us on June 17th at 7pm, via Zoom. Check out the info below and reach out to our Care Services Team at [email protected] if you'd like to join us.

If you have recently experienced a loss as the result of an ALS diagnosis, there is continued support. We invite you to join us on June 17th at 7pm, via Zoom. Check out the info below and reach out to our Care Services Team at [email protected] if you'd like to join us.

May is ALS Awareness Month. At The ALS Association of Georgia, we work to empower individuals diagnosed with ALS, and th...
05/14/2021

May is ALS Awareness Month. At The ALS Association of Georgia, we work to empower individuals diagnosed with ALS, and their families, to make informed decisions about their care and to live their best life. Join with us this month to spread awareness for families living with ALS. #EveryMomentMatters

May is ALS Awareness Month. At The ALS Association of Georgia, we work to empower individuals diagnosed with ALS, and their families, to make informed decisions about their care and to live their best life. Join with us this month to spread awareness for families living with ALS. #EveryMomentMatters

05/13/2021
May is ALS Awareness Month. ALS eventually takes away everything, and we won’t stop fighting until we've created a world...
05/11/2021

May is ALS Awareness Month. ALS eventually takes away everything, and we won’t stop fighting until we've created a world without this devastating disease. Join with us this month to spread awareness for families living with ALS. #EveryMomentMatters

May is ALS Awareness Month. ALS eventually takes away everything, and we won’t stop fighting until we've created a world without this devastating disease. Join with us this month to spread awareness for families living with ALS. #EveryMomentMatters

05/04/2021

We're 4 months away!! Have you registered?!
If not, don't wait!!
Join us as we celebrate 20 Years of The Walk to Defeat ALS in Georgia. Visit web.alsa.org/georgiawalk to join the party!!

Are you a family who has been touched by ALS and have kids ages 8-17? If so, The Joe Martin ALS Foundation in partnershi...
04/28/2021

Are you a family who has been touched by ALS and have kids ages 8-17? If so, The Joe Martin ALS Foundation in partnership with The ALS Association North Carolina Chapter have a FREE summer camp opportunity to offer, virtually. You can find out more here and register at: https://joemartinalsfoundation.org/joescamp/

Are you a family who has been touched by ALS and have kids ages 8-17? If so, The Joe Martin ALS Foundation in partnership with The ALS Association North Carolina Chapter have a FREE summer camp opportunity to offer, virtually. You can find out more here and register at: https://joemartinalsfoundation.org/joescamp/

April is Occupational Therapy Month and we'd like to say THANK YOU to all the OTs out there that assist those living wit...
04/27/2021

April is Occupational Therapy Month and we'd like to say THANK YOU to all the OTs out there that assist those living with ALS, especially our OTs in the ALS Clinics. Special shout out to Nichole Patel, OTR/L at Emory ALS Center, Jennifer Peth, MS OTR/LC/NDT at Atrium Health Navicent Rehabilitation Hospital, and Stephanie Johnson, MHS, OTR/L at Augusta University Health.

April is Occupational Therapy Month and we'd like to say THANK YOU to all the OTs out there that assist those living with ALS, especially our OTs in the ALS Clinics. Special shout out to Nichole Patel, OTR/L at Emory ALS Center, Jennifer Peth, MS OTR/LC/NDT at Atrium Health Navicent Rehabilitation Hospital, and Stephanie Johnson, MHS, OTR/L at Augusta University Health.

The Emory ALS Center has a research study opportunity:Longitudinal Study: Microbiome in the Progression of ALS (MPALS)Ha...
04/26/2021

The Emory ALS Center has a research study opportunity:

Longitudinal Study: Microbiome in the Progression of ALS (MPALS)

Have you recently been diagnosed with ALS?
Do you have a spouse, partner, or other live-in caregiver?

Some ALS patients progress very quickly and others very slowly, and reasons for these differences in progression are unknown. Under the leadership of Dr. Vicki Hertzberg, Emory Nursing researchers are looking for volunteers for a study of patients who have been recently diagnosed with amyotrophic lateral sclerosis (ALS) and their spouses, partners, or live-in caregivers. Participants will be asked to complete several questionnaires and to provide 3 stool and saliva samples over a 6-month period.

To participate, you must:
· Have been diagnosed with ALS in the last 6 months
· Be receiving nutrition orally (no feeding tube)
· Have a spouse, partner, or other live-in caregiver who is also willing to participate.

Why participate:
· Compensation
· No clinic visits required, with sample collection via mail
· Our study will contribute to the understanding of why some ALS patients progress rapidly and others more slowly.

For more information, please email:
[email protected]
Or call: 404-712-4182
Or complete our information form (https://redcap.emory.edu/surveys/?s=LANY4DR3D8) and Emory will contact you.

The Emory ALS Center has a research study opportunity:

Longitudinal Study: Microbiome in the Progression of ALS (MPALS)

Have you recently been diagnosed with ALS?
Do you have a spouse, partner, or other live-in caregiver?

Some ALS patients progress very quickly and others very slowly, and reasons for these differences in progression are unknown. Under the leadership of Dr. Vicki Hertzberg, Emory Nursing researchers are looking for volunteers for a study of patients who have been recently diagnosed with amyotrophic lateral sclerosis (ALS) and their spouses, partners, or live-in caregivers. Participants will be asked to complete several questionnaires and to provide 3 stool and saliva samples over a 6-month period.

To participate, you must:
· Have been diagnosed with ALS in the last 6 months
· Be receiving nutrition orally (no feeding tube)
· Have a spouse, partner, or other live-in caregiver who is also willing to participate.

Why participate:
· Compensation
· No clinic visits required, with sample collection via mail
· Our study will contribute to the understanding of why some ALS patients progress rapidly and others more slowly.

For more information, please email:
[email protected]
Or call: 404-712-4182
Or complete our information form (https://redcap.emory.edu/surveys/?s=LANY4DR3D8) and Emory will contact you.

Address

5881 Glenridge Dr
Atlanta, GA
30328

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

(404) 636-9909

Products

Through the Patient Services Program, the ALS Association of Georgia employs Patient Services staff members who are available to ALS patients and their families from the time of diagnosis. The Patient Services staff assesses a patient’s needs, recommends equipment and helps families plan for the future.

The ALS Association of Georgia also offers a medical equipment loan program through which patients may receive items not covered by insurance, such as power wheelchairs, communication devices or shower chairs, etc. The ALS Association of Georgia delivers equipment to ALS patients and provides training for families.

In addition to offering one-on-one patient consultation and medical equipment, the ALS Association of Georgia Patient Services Program provides:

Support Groups• for patients, family members, caregivers and friends

Child and Family Counseling• to address the emotional difficulties related to ALS

ALS Clinics• at Emory University and Georgia Regents University staffed by top neurologists, speech and respiratory therapists, social workers and dietitians

Hope for tomorrow through • ALS Association-funded research at Emory University and across the nation. The ALS Association funds more ALS research than any other organization

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Hello everyone, My colleague Kim Hager and I are interested in studying the experiences and barriers to accessing mental health services for families. For the purpose of our research, we intend to compare three groups – caregivers of children with one or more mental health conditions, caregivers of children with mental health conditions and common medical conditions, and caregivers of children with mental health conditions and rare diseases. Caregivers include biological parents, adoptive parents, foster parents, step-parents, guardians and kinship homes with children under the age of 18. The survey is nationwide and open to families who live anywhere within the United States. The hope is the survey results will assist mental health providers in tailoring services to meet families’ needs. The study was approved by the IRB and survey is anonymous. Please help us by filling out the survey and/or sharing it. English survey: https://www.surveymonkey.com/r/PQFSMVV Spanish survey:https://es.surveymonkey.com/r/2DXD5TX Thank you and we appreciate all your help.
My husband ALS stopped after completing the Tree of Life clinic herbal supplement which includes his weakness in his right arm and his speech, visit tree of life for home remedies from www treeoflifehealthclinics com are the best, and they save lives.
Is anyone on Radicava?? Do you put it in at home??? I have Bulbar ALS since my fist symptoms last November.
Ask Your Senators: Sign the FY2021 ALS Appropriations Dear Colleague Letter to Support Funding for ALS Research
This book is really an als awareness book, I’m currently reading it , hard to read but makes you aware of what loved ones go through with this horrible disease
so my friend Val is doing a ALS charity stream, so come hang out and show some support if you want. Would love for you guys to come hang out!!!!
Hello! I hope this post finds you well. I am doing a project for school about a great company called Blossom Foods, that provides pureed and soft textured foods, for those suffering with dysphagia (difficulty swallowing) , a problem that is connected with ALS. If you guys could please take time and fill it out I would highly appreciate it. Also, check them out, they provide tasty pureed options for those that need it! Best Regards, Katherine
Anyone near Paulding County?!?
join us! We go LIVE @7:30pm 👉🏻Share this post for an entry 👉🏻Tag a friend on this original post for another entry 👉🏻Be sure to LIKE our Shirley’s Angels Team page and your tagged friend likes the page for 3rd entry 👉🏻COMMENT “Done” once completed all steps! (Hint)- the the more friends you tag the more entries you get! See you tonight!!!
#ATLWalkToDefeatALS 2018
On behalf of my family, thank you all for putting together an awesome event yesterday and leading the way for ALS research. My family had a blast, my mother was proud, and we can't wait for the next opportunity to do our part!