National Meningitis Association

National Meningitis Association The National Meningitis Association (NMA) is dedicated to educating families, medical professionals and others about meningitis and its prevention.

The National Meningitis Association (NMA) is a nonprofit organization founded by parents of children who have died or live with long-term effects of meningococcal disease. The information contained on this page is not a substitute for medical advice or treatment, and NMA recommends consultation with your clinician or other health care provider. Information on this page is provided for informational purposes only.

Operating as usual

10/22/2021

#ICYMI: NMA President Leslie Maier and advocate Jonathan DeGuzman joined a LIVE virtual chat hosted by the @33rdPTA in Los Angeles alongside award-winning actress @IamMollyRingwald and Dr. Oliver Brooks, in collaboration with Sanofi.

We discussed how we can help protect teens against meningococcal #meningitis, a disease they’re at increased risk for. For the best protection, the CDC recommends a first dose of the MenACWY vaccine at 11-12 years and a second dose at 16 years.

Talk to your teen’s doctor about the CDC-recommended second dose of the MenACWY vaccine, and also ask about the MenB vaccine and other adolescent vaccines. Check out The16Vaccine.org to learn more. #The16Vaccine

The World Health Organization has announced the launch of a new initiative, “Global Roadmap to Defeat Meningitis by 2030...
09/29/2021
WHO plans to eliminate bacterial meningitis epidemics by 2030

The World Health Organization has announced the launch of a new initiative, “Global Roadmap to Defeat Meningitis by 2030”, which aims to eliminate most cases of bacterial meningitis by 2030.

NMA applauds this WHO-led program and highly supports the initiative to protect everyone from this horrific disease.

https://www.reuters.com/business/healthcare-pharmaceuticals/who-plans-eliminate-bacterial-meningitis-epidemics-by-2030-2021-09-28/

The World Health Organization (WHO) is aiming to eliminate the most deadly form of meningitis by 2030 through increased awareness and access to treatments, global plans launched by the UN-agency on Tuesday to combat the inflammatory disease showed.

Parents, tune in on Wednesday, September 22 at 6 PM CT for a LIVE discussion about why your teens need to be vaccinated ...
09/16/2021

Parents, tune in on Wednesday, September 22 at 6 PM CT for a LIVE discussion about why your teens need to be vaccinated for meningococcal #meningitis. @theDallasMoms is hosting the event, featuring NMA President Leslie Maier, advocate John Grimes, @IamMollyRingwald and Dr. Albert Karam, in collaboration with @SanofiUS.

Let’s help protect our teens from meningococcal #meningitis. RSVP here: bit.ly/16vaccinedallas. Learn more at The16Vaccine.org. #The16Vaccine

Parents, tune in on Wednesday, September 22 at 6 PM CT for a LIVE discussion about why your teens need to be vaccinated for meningococcal #meningitis. @theDallasMoms is hosting the event, featuring NMA President Leslie Maier, advocate John Grimes, @IamMollyRingwald and Dr. Albert Karam, in collaboration with @SanofiUS.

Let’s help protect our teens from meningococcal #meningitis. RSVP here: bit.ly/16vaccinedallas. Learn more at The16Vaccine.org. #The16Vaccine

If you’re a parent of a teen, join us on Wednesday, September 22 at 6 PM CT! @theDallasMoms is going LIVE on Facebook wi...
09/09/2021

If you’re a parent of a teen, join us on Wednesday, September 22 at 6 PM CT! @theDallasMoms is going LIVE on Facebook with NMA President Leslie Maier, advocate John Grimes, @IamMollyRingwald and Dr. Albert Karam, in collaboration with @SanofiUS. RSVP here: bit.ly/16vaccinedallas

Teens are at increased risk for meningococcal #meningitis, which is why the CDC recommends a first dose of the MenACWY at ages 11-12 and a second dose at age 16. Talk to your teen’s doctor about this, and also ask about the MenB vaccine and other adolescent vaccines. Visit The16Vaccine.org to learn more.

If you’re a parent of a teen, join us on Wednesday, September 22 at 6 PM CT! @theDallasMoms is going LIVE on Facebook with NMA President Leslie Maier, advocate John Grimes, @IamMollyRingwald and Dr. Albert Karam, in collaboration with @SanofiUS. RSVP here: bit.ly/16vaccinedallas

Teens are at increased risk for meningococcal #meningitis, which is why the CDC recommends a first dose of the MenACWY at ages 11-12 and a second dose at age 16. Talk to your teen’s doctor about this, and also ask about the MenB vaccine and other adolescent vaccines. Visit The16Vaccine.org to learn more.

As the 2020 Paralympics kick off in Tokyo, NMA would like to wish all Paralympians the best as they compete. We’d like t...
08/26/2021
Nothing Got in the Way of These Paralympians

As the 2020 Paralympics kick off in Tokyo, NMA would like to wish all Paralympians the best as they compete. We’d like to also take a moment to remember Paralympian and NMA advocate Nick Springer, who became a Paralympic gold medalist in wheelchair rugby, just nine years after contracting meningococcal disease.

https://www.nytimes.com/interactive/2021/08/24/sports/olympics/paralympics-obituaries.html?fbclid=IwAR2wmcUnj20Aj6hA4rLTN2AEqOHeQaoneyw5MWIADxUK8YgkchHtDajO4JA

With the Paralympics underway in Tokyo, we’re remembering the lives of athletes with a variety of disabilities around the world who found freedom in their sports.

08/26/2021

One in five meningococcal meningitis survivors live with permanent disabilities. A second dose of the CDC-recommended MenACWY vaccine can help protect your child from contracting this rare but potentially deadly disease. Parents, learn more about The 16 Vaccine: the16vaccine.org

08/24/2021

As an award-winning actress, singer, writer and advocate, @IamMollyRingwald wears many hats. But according to Molly, her most important role is being a mom and protecting the health of her three kids is her main priority.

Vaccination against meningococcal disease can help save many lives, which is why she wants to help educate more parents through #The16Vaccine. Teens are especially vulnerable and, though rare, meningococcal #meningitis can take a life in as little as 24 hours. Now is the time to act.

Parents, please talk to your teen’s doctor about the @CDC-recommended second dose of the MenACWY vaccine at age 16 and also ask about the MenB vaccine and other adolescent vaccines. Learn more and see advocate stories at The16Vaccine.org. #NIAM21

08/19/2021

Vaccination is the best defense against meningococcal meningitis which can have long-term impacts that can result from infection. Parents, make sure your teen receives the CDC-recommended second dose of the MenACWY vaccine. Also ask their doctor about MenB and other adolescent vaccines. the16vaccine.org/doctors-guide

08/16/2021

Anyone can get meningococcal #meningitis, but #DYK teens are at an increased risk? Yet millions in the U.S. are left unprotected. We teamed up with Molly Ringwald to help parents advocate for their teens.
Though rare, meningococcal disease can take the life of an otherwise healthy teen in as little as one day or lead to lifelong complications. For the best protection, CDC recommends a first dose of the MenACWY vaccine at 11-12 years old and a second dose at 16 years old.
Parents, don’t forget to schedule your teen’s 16-year vaccination visit and also ask about the MenB vaccine and other adolescent vaccines. Learn more: The16Vaccine.org #The16Vaccine #NIAM21

08/09/2021

NMA President Leslie Maier lost her son, Chris, to meningococcal disease when he was a high school senior – within 24 hours of his first symptom. At the time, she didn’t know it was vaccine-preventable.

Today, we know vaccination is the best defense. Unfortunately, around half of teens nationwide didn’t receive the potentially life-saving second dose of the MenACWY vaccine, which is recommended at age 16 by @CDC. By working together with @IamMollyRingwald on #The16Vaccine, we hope to educate more parents of teens and help change this.

Parents, please don’t wait. Talk to your teen’s doctor about the MenACWY vaccine, and also ask about the MenB vaccine and other adolescent vaccines. Learn more here: The16Vaccine.org #NIAM21

07/30/2021

Meningococcal meningitis is a rare but potentially deadly bacterial infection. A second dose of the CDC-recommended MenACWY vaccine can help protect your teen, who is at increased risk, from this vaccine-preventable disease. Parents, take action now: the16vaccine.org/the-16-vaccine

Due to healthcare resources being rerouted to control the pandemic, children’s immunization rates have dropped to its lo...
07/29/2021
A double vaccine crisis is endangering millions of children - STAT

Due to healthcare resources being rerouted to control the pandemic, children’s immunization rates have dropped to its lowest level since 2009. Life-threatening diseases like polio, measles, and bacterial meningitis pose a great risk to children, which is why it is so critical that parents keep their children’s immunizations up to date. With schools returning in the next month, parents, please make sure your children have gotten all their CDC-recommended vaccinations.

https://www.statnews.com/2021/07/29/double-vaccine-crisis-endangering-millions-of-children/

Decades of progress vaccinating children against some of the world's most dangerous diseases is being severely threatened by Covid-19.

Save the date! On Thursday, July 29 at 6:30 PM PT, Thirty-Third District PTA is hosting a live panel via Zoom / Facebook...
07/22/2021

Save the date! On Thursday, July 29 at 6:30 PM PT, Thirty-Third District PTA is hosting a live panel via Zoom / Facebook with NMA President Leslie Maier, NMA advocate Jonathan DeGuzman, Molly Ringwald and Dr. Oliver Brooks, in collaboration with Sanofi US.

We’re chatting about why vaccination for meningococcal #meningitis is so important – now more than ever, especially given how much adolescent immunization rates have dropped over the past year. Those numbers are even lower in certain areas, like Los Angeles.

Parents, please tune in and talk to your teen’s doctor about the CDC-recommended second dose of the MenACWY vaccine. Also ask about the MenB vaccine and other adolescent vaccines. RSVP here: bit.ly/PTA16vaccine. Visit The16Vaccine.org to learn more.

Save the date! On Thursday, July 29 at 6:30 PM PT, Thirty-Third District PTA is hosting a live panel via Zoom / Facebook with NMA President Leslie Maier, NMA advocate Jonathan DeGuzman, Molly Ringwald and Dr. Oliver Brooks, in collaboration with Sanofi US.

We’re chatting about why vaccination for meningococcal #meningitis is so important – now more than ever, especially given how much adolescent immunization rates have dropped over the past year. Those numbers are even lower in certain areas, like Los Angeles.

Parents, please tune in and talk to your teen’s doctor about the CDC-recommended second dose of the MenACWY vaccine. Also ask about the MenB vaccine and other adolescent vaccines. RSVP here: bit.ly/PTA16vaccine. Visit The16Vaccine.org to learn more.

Loss from contracting meningococcal meningitis can take many forms. For survivors like Francesca, it can mean permanent ...
07/22/2021

Loss from contracting meningococcal meningitis can take many forms. For survivors like Francesca, it can mean permanent disabilities like loss of hearing.

Parents, visit the16vaccine.org and learn more about how to help protect your teen with the second dose of the MenACWY vaccine. Talk to your teen’s doctor and ask about other adolescent vaccinations.

Loss from contracting meningococcal meningitis can take many forms. For survivors like Francesca, it can mean permanent disabilities like loss of hearing.

Parents, visit the16vaccine.org and learn more about how to help protect your teen with the second dose of the MenACWY vaccine. Talk to your teen’s doctor and ask about other adolescent vaccinations.

07/20/2021
pids.org

NMA fully supports the Pediatric Infectious Diseases Society's (PIDS) latest statement on childhood vaccinations. Parents, please talk to your child's doctor to ensure that they are following the CDC's immunization schedule, which includes the first dose of the MenACWY vaccine at age 11-12, with a second dose at age 16. Please also ask about other adolescent vaccines, including MenB.

https://pids.org/wp-content/uploads/2021/07/PIDS-statement_7.16.21.pdf

07/16/2021

At 16, the CDC recommends a second dose of the MenACWY vaccine to help protect against meningococcal meningitis, which can claim a life in as little as 24 hours.

Krystle, a meningitis survivor, is using her second chance to help protect teens. Learn more: the16vaccine.org

07/08/2021

Symptoms of meningococcal disease can first appear flu-like, and then rapidly worsen. The infection can become deadly in a matter of hours.

Listen to Leslie’s story and speak to your teen’s doctor about the CDC-recommended second dose of the MenACWY vaccine. https://the16vaccine.org/doctors-guide

The Fryers didn’t know meningitis could take away their daughter until it was too late. CDC recommends teens receive a s...
07/01/2021

The Fryers didn’t know meningitis could take away their daughter until it was too late.

CDC recommends teens receive a second dose of MenACWY vaccine at age 16. Parents, talk to your teen’s doctor today and also ask about other vaccines like MenB. the16vaccine.org/doctors-guide

The Fryers didn’t know meningitis could take away their daughter until it was too late.

CDC recommends teens receive a second dose of MenACWY vaccine at age 16. Parents, talk to your teen’s doctor today and also ask about other vaccines like MenB. the16vaccine.org/doctors-guide

“My son Chris contracted meningococcal meningitis as a healthy high school senior. He lost his life in 24 hours.”Meningi...
06/24/2021

“My son Chris contracted meningococcal meningitis as a healthy high school senior. He lost his life in 24 hours.”

Meningitis can strike quickly and without mercy. Parents, don’t wait. Talk to your teen’s doctor today about the @CDC-recommended second dose of the MenACWY vaccine and ask about MenB. the16vaccine.org/doctors-guide

“My son Chris contracted meningococcal meningitis as a healthy high school senior. He lost his life in 24 hours.”

Meningitis can strike quickly and without mercy. Parents, don’t wait. Talk to your teen’s doctor today about the @CDC-recommended second dose of the MenACWY vaccine and ask about MenB. the16vaccine.org/doctors-guide

06/15/2021

Meningococcal meningitis can threaten the life of a healthy teenager in as little as 24 hours.

Visit the16vaccine.org to learn about this devastating disease, and make sure your child receives the CDC-recommended second dose of MenACWY and other potentially life-saving vaccines.

06/09/2021

Francesca was excited as the end of her senior year approached, filled with moments she would remember for the rest of her life. She never expected meningococcal meningitis would almost take her life just before prom.

Parents, don’t wait until it’s too late. The CDC recommends teens receive a second dose of the MenACWY vaccine at age 16 to help protect against this rare but potentially deadly disease. Talk to your teen’s doctor today: https://the16vaccine.org/doctors-guide

“I asked the doctor, ‘could this be meningitis?’ and his face turned white. Shortly after, our daughter was pronounced d...
06/02/2021

“I asked the doctor, ‘could this be meningitis?’ and his face turned white. Shortly after, our daughter was pronounced dead.”

Meningococcal meningitis is a rare, but potentially deadly disease. Vaccination is the best defense. Ask your teen’s doctor about the @CDC-recommended second dose of the MenACWY vaccine to help protect them: the16vaccine.org

“I asked the doctor, ‘could this be meningitis?’ and his face turned white. Shortly after, our daughter was pronounced dead.”

Meningococcal meningitis is a rare, but potentially deadly disease. Vaccination is the best defense. Ask your teen’s doctor about the @CDC-recommended second dose of the MenACWY vaccine to help protect them: the16vaccine.org

We are excited to announce that Minnesota Governor Tim Walz and Lt. Governor Peggy Flanagan have declared June 2021 Adol...
06/01/2021

We are excited to announce that Minnesota Governor Tim Walz and Lt. Governor Peggy Flanagan have declared June 2021 Adolescent Immunization Awareness Month in Minnesota. NMA is proud to have played a role in this proclamation. It is more important now than ever before to make sure your child is up-to-date on CDC-recommended immunizations, including meningococcal disease vaccines. The pandemic has caused a decline in childhood and adolescent vaccine rates – it would be a shame to see a rise in the case numbers of vaccine-preventable diseases. We urge Minnesota parents and parents across the country to make sure your child has received all their doses of the MenACWY and the MenB vaccines, and that they are up to date on other adolescent vaccines.

We are excited to announce that Minnesota Governor Tim Walz and Lt. Governor Peggy Flanagan have declared June 2021 Adolescent Immunization Awareness Month in Minnesota. NMA is proud to have played a role in this proclamation. It is more important now than ever before to make sure your child is up-to-date on CDC-recommended immunizations, including meningococcal disease vaccines. The pandemic has caused a decline in childhood and adolescent vaccine rates – it would be a shame to see a rise in the case numbers of vaccine-preventable diseases. We urge Minnesota parents and parents across the country to make sure your child has received all their doses of the MenACWY and the MenB vaccines, and that they are up to date on other adolescent vaccines.

05/27/2021

Vaccination is the best defense against meningococcal meningitis which can have long-term impacts that can result from infection. Parents, make sure your teen receives the CDC-recommended second dose of the MenACWY vaccine. Also ask their doctor about MenB and other adolescent vaccines. the16vaccine.org/doctors-guide

05/20/2021
16 Vaccine

We’re excited to introduce the one and only Molly Ringwald as our national spokesperson for #The16Vaccine, in collaboration with Sanofi US.

Together, to help protect teens from meningococcal disease, we’re rallying parents to talk to their teen’s doctor today about the CDC-recommended second dose of the MenACWY vaccine at age 16, and also ask about the MenB vaccine and other adolescent vaccines. Visit The16Vaccine.org to learn more and hear firsthand stories from survivors and their families.

05/13/2021
American Academy of Pediatrics Calls for Children and Teens Age 12 and Up to Get the COVID-19 Vaccine

The FDA has authorized the Pfizer COVID vaccine for use in adolescents ages 12-15. This is the first vaccine to be made available for those under the age of 16. If your child is eligible, we encourage you to get them vaccinated against COVID as soon as you can.

This is also a reminder to keep up with other routine vaccinations they may have missed during this pandemic. “The American Academy of Pediatrics (AAP) supports giving other childhood and adolescent immunizations at the same time as COVID-19 vaccines, particularly for children and teens who are behind on their immunizations.”

Vaccines are our way out of the pandemic. #GetVaccinatedNow #VaccinesWork

https://services.aap.org/en/news-room/news-releases/aap/2021/american-academy-of-pediatrics-calls-for-children-and-teens-age-12-and-up-to-get-the-covid-19-vaccine/

In a new policy statement published today, the American Academy of Pediatrics (AAP) recommends vaccinating all children ages 12 and older who are eligible for the federally authorized COVID-19 vaccine.

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Comments

Paralympic swimmer Ellie Challis who lost her limbs to meningitis as a baby was inspired by a dolphin with no tail who learnt to swim again
Please Facebookers encourage those around you to be vaccinated. My disability is the direct result of meningitis. I contracted meningitis at. 9 months old. I have brain damage in numerous parts of my brain. Learning disabilities as well as memory problems. I had so many problems just to get through grade school. Want more for your children. Get them vaccinated. P
I live in Michigan, but is there a way I can be involved with your group to spread awareness? I'm a bacterial meningitis survivor. Thank you.
I like your page, but would also like to see posts that reflect how meningitis also affects adults. I was 22 years old when I contacted bacterial pneumonococcal meningitis. Now at 50 years of age, I have lasting effects to this day.
We’re saddened to hear about a case of bacterial meningitis in Michigan. Wishing the affected individual a speedy recovery.
David Schandler i have been very sick past 2 months and desperate for any info people can give me. getting worse. Going to emergency number of times and they just do the same tests over and over and find nothing. I came across and an article and it sounds like a very good possibility I have this. I am writing to you because you have had this twice and desperate for info. I am wondering what your symptoms were, how did you find out what is it, and how long did you have it? I am an healthy adult and here are my symptoms I have had, I have sore throat for a couple days, followed by severe fatigue and then, sore throat went away in a few days which might have been a cold which instigated this. I had respiratory problems, shortness of breath hyperventilating, as a couple weeks progressed I can't walk much farther than a block now without being out of breath. I have numbness in my hands feet that comes and goes, pins and needles in fingers tips, head pressure, feeling light headed, disorientated, nauseous, hard to focus, stiff neck, black pooh for like 3 weeks and i dont see it now, my toe nails seemed to be effected. I get anxiety now and some other things I never had. Any info I would very grateful, as doctors here in toronto seem clueless or dont care, sorry for the long message
My daughter just came home from the hospital diagnosed with aseptic meningitis and we are at a loss. They have her on high doses of steroids and fluid pills. She hurts every day with a headache and I'm so helpless. I have done tons of research on my own and am wondering why the steroids. Here is her back story. Started complaining a month ago with headaches. A week later she was vomiting. Took her to local hospital and they said it was nothing. Then she started complaining about her neck and back hurting. Took her 3 different times to Dr and hospital and they said it was nothing. I finally took her to Texas children's hospital in Houston where they did mri and she was seen to have intercranial hypertension and papilledema. They did a lumbar and said her pressures where VERY high. Above 45. They then said her white blood cells showed inflammation in the spinal fluid. Admitted her and ran every test imaginable. Said it was NOT bacterial meningitis but viral. After 5 days they started her on very high doses of steroids through her iv. After three days they sent her home on high dose oral prednisone for me to taper her off of over 4 weeks. She is also on Diamox for fluid. From everything I have read they say not to treat with steroids. I am so confused and scared. She has had a headache everyday for a month and still hurts to this day. She just got released Friday night. Any info you can give me would be so appreciated
Question, I recently heard there is a new strain of Meningitis, that even the vaccine does not prevent. I also heard that the medical community knows very little about it, except for the fact that it is in the air and really not very preventable.
Ashlee has fought a tough fight! Contracting viral meningitis encephalitis just two weeks after birth, Ashlee has never had the quality of life so many of us take for granted every day. Now her poor little body, weighing less than 30 lbs at age 11, is shutting down. Her Mom, my sister and a Single parent of 6, must now face the final days of her struggle and not having the means in which to lay her child to rest. Please donate to her cause; there is no gift too small. Thank you.
Please read this and pass it along to others - Every time someones gets vaccinated - Another life is saved...
Hello, everyone! I just lost my niece to fungal meningitis a few weeks ago. I decided to join this group because losing her has inspired me join a cause that can help prevent another family from losing a loved one. How can I help? Where do I being?