9.30.22 CCAM End
As #ChildhoodCancerAwarenessMonth comes to a close, we want to thank you for all of the ways you’ve taken action this month against the childhood cancer community’s biggest crisis. PBTF is committed to leading the way toward a future without pediatric brain cancer, and we’re able to do that because of families and supporters like you who walk alongside us as we work to improve families’ access to new treatments and better care. Together, we can help families thrive. Together, we will #CancerChildhoodCancer.
Anthony Making a Difference One Walk at a Time
Eight-year-old Anthony is making a difference this September by participating in the Starry Night 51-Mile Challenge in honor of children like him who have been diagnosed with a brain tumor.
An extremely happy and smiley newborn, Anthony’s personality suddenly changed when he was only 5 months old. His parents knew something was wrong. They took him to the doctors where he was diagnosed with a choroid plexus papilloma brain tumor.
Anthony is now tumor-free and is enjoying walking around his community while sharing his walks on TikTok to spread awareness. Hear more stories like Anthony’s, connect with other families, and make a difference this Childhood Cancer Awareness Month by joining our Starry Night Community Facebook group: https://buff.ly/3eYHWGJ
When a child is diagnosed with brain cancer, parents often find themselves searching for answers on their own. Inspired by patient advocate Jace Ward's vision, the newly launched My DIPG Navigator connects families facing a DIPG or DMG diagnosis with resources to feel confident they’re making the most-informed decisions throughout their cancer journey.
We’re proud to team up with ChadTough Defeat DIPG Foundation, patient families, and other nonprofit funding partners to make this nurse navigator program free for any DIPG/DMG patient family across the country.
Watch the video and learn more at https://bit.ly/3PexYi5
#dipg #braintumorawarenessmonth #cancelchildhoodcancer
Valentina has been navigating her diagnosis with pediatric low-grade glioma since age one. Now, at age five, her journey is still ongoing.
While pediatric low-grade gliomas have higher survival rates than other types of pediatric brain tumors, many PLGG patients face a life of chronic relapses and significant challenges.
PBTF funds research along every stage of the drug discovery process, advancing the medical community’s understanding of these recurrences and uncovering promising new treatments that target tumor mutations. As a result, members of the pharmaceutical industry are beginning to invest in brain tumor treatments specifically designed for pediatric patients like Valentina.
Learn more about Valentina: https://bit.ly/3FhvJWN
Valentina's journey with a brain tumor started in June 2018 when she was diagnosed with a low-grade brain stem glioma at one year old. Low-grade gliomas are the most common form of brain tumors diagnosed in children, accounting for 30%-50% of all central nervous system tumors.
Valentina and her family are still fighting every day for more moments like these. Stay tuned throughout the week to learn more about her journey.
Stay connected with us to hear more about how we're working to make a world without childhood brain tumors closer to a reality: https://bit.ly/3yjcNW6
Jayden’s journey is one that no child should ever have to endure. With your donation, one day they won’t.
Twitch and Facebook Gaming creators are coming together to support kids like Jayden. Interested in streaming or supporting creators through our PBTF GameOn #RaidforKids event taking place May 16th through 24th? JOIN TODAY: https://tiltify.com/pediatric-brain-tumor-foundation/raid-for-kids
#PBTFGameOn #curethekids #pbtf
There are more than 28,000 children and teens battling brain tumors in the U.S. The largest patient advocacy funder of pediatric brain tumor research and leading champion for families and survivors, the Pediatric Brain Tumor Foundation helps families like Jakob's tackle this disease.
Our mission is to care for patient families the moment symptoms start, cure all childhood brain tumors, and help survivors and families thrive no matter where their journey takes them.
Join us in making a world without childhood brain tumors a reality. Stay up to date on everything we're doing and what you can do to get involved: http://www.curethekids.org/stay-connected/
It takes the average family 100 miles to get to the hospital for treatment. Unfortunately, rising gas prices means that many families are struggling to get there.
How far will you go to help them?
Start your journey today by joining our Walk 100 Miles in May Challenge group. Raise $150 to provide a gas card for a family to travel to the hospital and as an added bonus, you get a PBTF shirt! 🏃♀️
JOIN US: https://www.facebook.com/groups/walk100milespbtf
For more information, contact Emily Clark at [email protected].
#pbtf #curethekids #cancelchildhoodcancer
Anyone can be an advocate!
This week during National Adolescent and Young Adult Cancer Awareness Week, how will you use your voice to make a difference for those diagnosed with brain tumors?
Grace Wethor's journey with advocacy started as a way for her to give back and blossomed into a huge passion of hers. Watch the video below to hear how she uses her story to enact change and advocate for others in the brain tumor community.
If you're interested in learning more about how you can be an advocate like Grace, fill out this form by April 8 so we can connect you with resources and provide information about upcoming advocacy trainings. http://www.curethekids.org/advocacy-interest-form.html
#AYAWeek #AYACancer #Advocacy
International Children's Book Day highlights the importance of reading and celebrates children's love for books all over the world. Books are a magical way to help a child's imagination run wild while teaching them valuable life skills and lessons.
This year, we're celebrating International Children's Book Day with Rene Marsh's inspirational story written in honor of her son Blake. This book proves with hope and faith, any challenge can be overcome.
For more information about "The Miracle Workers: Boy vs. Beast" and to order a copy for your family, click here: https://bit.ly/3qXd1hf
Meet our newest Vs. Cancer National Event Star Ambassador— Holmes!
Holmes is a middle schooler, baseball player, and pediatric brain tumor survivor. This season, his baseball team at Brevard Middle School will host their very own Vs. Cancer game! Follow our Vs. Cancer page for more updates on Holmes, his team at Brevard Middle School, and his work as a Vs. Cancer National Event Star Ambassador.
#VsCancer #StrongerTogether #PBTF #CareCureThrive #CancelChildhoodCancer
Three years ago today, CNN's René Marsh and her husband Kedric held their son Blake in their arms for the first time. When he passed away last April from infant pineoblastoma, they committed themselves to changing the cruel reality of the deadliest disease facing this country’s children, joining forces with the Pediatric Brain Tumor Foundation to raise funds for pioneering pediatric brain tumor research.
On Blake’s birthday, we’re honored to join his family in announcing that PBTF’s scientific advisors have unanimously approved for funding a new research initiative helmed by Dr. Paul Northcott of St. Jude Children's Research Hospital, through the largest known fundraising effort focused specifically on infant pineoblastoma.
📽️ courtesy of René Marsh
#pineoblastoma #cancelchildhoodcancer #braintumors
Inside every child battling a brain tumor is a world of potential – potential that’s at constant risk because pediatric-first brain tumor research has taken a backseat for far too long.
These children, survivors and their families need an army of committed advocates like you, working alongside PBTF to persuade government and industry leaders that they can’t wait any longer for better treatments and quality of care.
Your voice can make a difference. Sign up today to learn about upcoming brain tumor and childhood cancer advocacy trainings and ways to get involved: https://bit.ly/3pUCTcV
#pbtf #curethekids #cancelchildhoodcancer
When children are in the hospital and undergoing treatment for cancer, they are often separated from their friends. The Imaginary Friend Society wants to remind you of the many different ways to stay in touch with buddies and pals. 💙
PBTF's Imaginary Friend Society helps answer children's questions about a wide range of complicated cancer topics. Learn more at imaginaryfriendsociety.com.
#imaginaryfriendsociety #curethekids #friendship
‼️‼️ MATCH ALERT ‼️‼️ Thanks to a generous anonymous donor, your year-end gift to PBTF will make DOUBLE the impact in children’s lives!
Starting today, every dollar donated will be matched up to $13,000 in honor of the 13 children and teens diagnosed with brain tumors each day.
Plus, when your gift is received before January 1st, it will be tax-deductible for 2021.
DONATE NOW: http://curethekids.org/givenow
#carecurethrive #donate #cancelchildhoodcancer
The holidays can be difficult for children who have to spend it in the hospital, so the Pediatric Brain Tumor Foundation collaborated with pro-bono partners RPA Advertising , Blame Your Brother Creative Studio and Yessian Music / West - plus one special guest star! Together, we can make sure every child knows the holiday spirit will find them, no matter where they are. 🌟
WATCH NOW: https://www.youtube.com/watch?v=_XflceII9OM
You, too, can make the holidays brighter for kids with brain cancer. Donate now to light the way to a cure: curethekids.org/givenow
#carecurethrive #cancelchildhoodcancer
When a child is diagnosed with a brain tumor, having a community to turn to means hope. Please consider making a donation today towards our $320,000 year-end goal and light the way to a cure for more families in 2022 and beyond.
Text KIDSCURE to 24365 or visit www.curethekids.org/givenow to give the gift of hope today.
#pbtf #carecurethrive #donate
K-State Sports has been the top Vs. Cancer team for the last four years -- a title they take very seriously. This past year, they took their partnership with Vs. Cancer one step further by connecting with the Evans family. This season was dedicated to Noah Evans, who passed away following his battle with brain cancer on January 14, 2021. Although Noah was never able to attend a game, he lives on through the K-State baseball program. While attending a clinical trial at Duke University for her son Noah, Lori Evans saw a Vs. Cancer sticker placed on the side of the DVD player in the treatment room. She thought of the great memories Noah experienced thanks to the K-State Baseball team and their fundraising efforts with the Pediatric Brain Tumor Foundation’s Vs. Cancer program. She later discovered the trial was partially funded by PBTF.
“I felt like the Kansas State baseball team, Vs. Cancer, the Pediatric Brain Tumor Foundation, everyone was there with us, with Noah, during that treatment,” shares Lori in this video.
Learn more about Noah and Kansas State Baseball's fundraising efforts here:
http://www.curethekids.org/about-us/news-room/pbtf-news/2021/k-state-baseball-changing-the-game-for-kids.html
Meet Annie, Ben, and Lila Howington:
At only 3 months old Lila was diagnosed with a malignant brain tumor and given a 50% chance of survival. The doctor later said that had it been 10 years earlier, it would've been a 0% chance of survival due to the lack of research.
Since 2008, Raleigh-based celebrity and brain tumor survivor Bob Dumas has rallied his community for a cure -- raising more than $2 million for the Pediatric Brain Tumor Foundation. Your support of Bob's Buddies will give these children the healthy, happy futures they deserve.
If you are in a position to support, we strongly encourage you to donate to Bob's Buddies. You can do so by texting "BUDDY" to +1 (844) 492-1398 or visiting bit.ly/bobsbuddies. Please like and share this video to help spread the message. 💚
Aimee supports Bob's Buddies so that families don't have to lose anyone to brain cancer. ❤️
Your support of Bob's Buddies will give these children the healthy, happy futures they deserve. Since 2008, Raleigh-based celebrity and brain tumor survivor Bob Dumas has rallied his community for a cure -- raising more than $2 million for the Pediatric Brain Tumor Foundation's research programs.
If you are in a position to support, we strongly encourage you to donate to Bob's Buddies. You can do so by texting "BUDDY" to (844) 492-1398 or visiting bit.ly/bobsbuddies.📱
#bobsbuddies #pbtf #childhoodcancer #childhoodcancerawareness #pediatriccancer #braintumors #vscancer
Happy Halloween! 🎃 Will you be celebrating by going trick or treating? 🍫 If so, stay safe, have fun, and share your Halloween costume with us in the comments below! ⤵️
If you run into any extra scary tricks this Halloween, our Imaginary Friend Society is here with some helpful advice for you and your Boo Crew! 👻👻👻
#carecurethrive #pbtf #happyhalloween
⚾️ While professional baseball pitchers across the nation prepared to #GoHead2Head to #CancelChildhoodCancer this September, there were two VIPs behind the scenes who were rooting the pitchers on, reminding them why striking out cancer is so important, and submitting motivational videos to each of the participating pitchers throughout the month.
💛 Those two are Kingston and Keagan, Pediatric Brain Tumor Foundation Stars and BIG baseball fans! Both Stars know how it feels to battle a brain tumor and how important it is that people like our professional pitchers support the mission to END childhood cancer.
🙏 To thank Kingston and Keagan for their hard work, a few of our pitchers submitted videos. Watch our Vs. Cancer athletes from the MLB and Minor League Baseball to hear exactly how Kingston and Keagan made an impact on them.
#pbtf #CareCureThrive
The final week of the #GoHead2Head Challenge starts TODAY, with NBC's Bring The Funny finalists The CHRIS and PAUL Show joining the fight to cure childhood brain cancer!
Follow them on social media and donate at https://team.curethekids.org/thechrisandpaulshow to help unlock our $50,000 #ChildhoodCancerAwarenessMonth fundraising match.
Thank you Chris and Paul for teaming up with PBTF to take pediatric brain tumors head-on!
PBTF HEAD2HEAD
September 16-26 Facebook Gaming creator Starbeast and many other content creators are coming together to #GoHead2Head to #CancelChildhoodCancer. Every dollar raised through this PBTF GameON will help the Pediatric Brain Tumor Foundation continue to fund millions of dollars in scientific discovery to address key gaps in research and drug development and equip families with the information, emotional support and emergency financial assistance they need to navigate their child's brain tumor journey.
If you’re a creator interested in joining this challenge, send us a direct message or email [email protected]!
Meet Keagan, one of the PBTF's Stars that your support in September is helping.
Keagan LOVES baseball and his passion for sports gives him strength along his brain tumor journey.
He has a message for our pro pitchers and everyone who has decided to #GoHead2Head to #CancelChildhoodCancer this September!
DONATE TODAY at the Donate button below! ⤵️
#pbtf #carecurethrive #childhoodcancerawarenessmonth
Understanding COVID-19 Vaccine Trials and Considerations for Pediatric Cancer Patients
On June 30, 2021, the Pediatric Brain Tumor Foundation welcomed three renowned experts to discuss the current state of COVID-19 vaccine studies in children and considerations for vaccinating children in treatment and post treatment for a brain tumor.
The PBTF presented “Understanding COVID-19 Vaccine Trials and Considerations for Pediatric Cancer Patients” and was joined by:
🔹 Dr. David Kimberlin, Vice Chair for Clinical and Translational Research and Co-Director of the Division of Pediatric Infectious Diseases at the University of Alabama at Birmingham;
🔹 Dr. Eugene Hwang, Associate Chief of Oncology and Director of the Clinical Neuro-Oncology Immunotherapeutics Program at the Center for Blood and Cancer Disorders, Children’s National Hospital; and
🔹 Dr. Miguela Caniza, Director of the Global Infectious Disease Program, Departments of Global Pediatric Medicine and Infectious Disease at St. Jude Children’s Research Hospital
See the full webinar here: https://www.youtube.com/watch?v=zkaVJ7-oiJ8
Learn more about this and PBTF’s other webinars at curethekids.org/family-resources/webinars. If you have questions, need support or would like a copy of the presentation slides, please email [email protected].
#carecurethrive #pbtf #webinar
PBTF TikTok launch 8.9.2021
📢 THIS JUST IN: The Pediatric Brain Tumor Foundation is now on TikTok!
Follow now for even more ways to support the PBTF - because only together can we achieve a world without childhood brain tumors.
FOLLOW TODAY: https://vm.tiktok.com/ZMdESr4E3/
#tiktok #PBTF #carecurethrive #childhoodcancer
PBTF Webinar with Dr. Mary Baron Nelson of Children's Hospital Los Angeles
It’s easy to be overwhelmed by all of the information you may receive after a child’s brain tumor diagnosis. In this PBTF webinar, Dr. Mary Baron Nelson of Children's Hospital Los Angeles, shares information to help a family navigate the first part of the journey, including:
🔹 How a tumor’s location can impact a child physically or emotionally
🔹 What the most common tumor types are in children and available treatments
🔹 How location of the tumor, age of the child, genetics, and pathology all factor into the treatments chosen
WATCH NOW: https://youtu.be/YDZkOO4KhyQ
Learn more about this and PBTF’s other webinars at http://www.curethekids.org/family-resources/webinars/
#pbtf #carecurethrive
PBTF's Imaginary Friend Society – Finding Out You Have Cancer
Being diagnosed with a brain tumor or other type of cancer can be scary and confusing for anyone, but especially for a child.
Merlinda, the wizard from PBTF’s Imaginary Friend Society, helps families explain it in ways kids can understand.
Through patient family education, financial relief, and emotional support, PBTF is there for families from the moment of diagnosis. Visit http://www.curethekids.org/family-resources to learn more.
#pbtf #carecurethrive #childhoodcancer
Community_Fundraising_Video_1080p
Our volunteer community fundraisers raise more than $1.4 million annually, but to our families, they do so much more. They are advocates, champions and heroes who spend time to host their very own fundraising events - both big and small - and bring PBTF's mission to cities across the U.S.!
If you're interested in learning how you can start your own fundraiser, contact Emily at [email protected].
#pbtf #carecurethrive