Together to for a world without childhood brain tumors.
The Pediatric Brain Tumor Foundation is there for families facing the deadliest and most common childhood cancer, responding with resources and community support that address every family member’s needs. The largest patient advocacy funder of pediatric brain tumor research, PBTF also funds and advocates for innovative projects that lead to vital discoveries, new clinical trials, and better treatments – all bringing us closer to a cure.
Operating as usual
Become a childhood brain cancer advocate. It’s never been more necessary – or easier. Read this month’s Advocacy Alert at https://buff.ly/3CYOHBu for a list of ways you can make your voice heard. We hope these ideas spark your interest and inspire you to join our efforts to enact change for families facing the childhood cancer community’s biggest crisis.
Navigating the different phases of your family’s brain tumor journey is overwhelming. Each phase brings its own set of unique challenges but know that you don't have to face these challenges alone.
The Pediatric Brain Tumor Foundation's Peer to Peer Mentoring Program provides one-on-one support from other parents, caregivers, siblings, and survivors who have gone through a similar experience. No matter what phase of the journey you're on, there’s a mentor who’s ready to walk alongside you. Complete our brief, online application at http://www.curethekids.org/peer-mentoring and a member of our Family Support team will contact you.
As a member of the Pediatric Brain Tumor Foundation’s community, you’re part of countless lives you’ve never met. Each of their stories are filled with unique challenges and triumphs. And all of them have hope because of your support.
We are grateful for every donor who shined this light of hope throughout the holiday season. Together, you raised over half a million dollars to help children with brain tumors and their families!
When you invest in the Pediatric Brain Tumor Foundation’s research, advocacy, and support programs, you’re investing in a healthier, happier future for families. Thank you!
Seizures are one of the more common symptoms and side effects of a pediatric brain tumor, both before diagnosis and after treatment. Knowing how to correctly identify a seizure and the proper steps to take when someone is experiencing a seizure is very important.
There's still time to register for this Thursday’s Seizure First Aid Ready webinar, presented by The Epilepsy Foundation of America. Register to join us at http://www.curethekids.org/webinar.
A pediatric brain tumor is life-changing, but it’s not the only thing that defines the children and families we meet. Whether you’re showing off your amazing cooking skills, blowing everyone away with your songwriting talents, or tearing it up on the field, you prove time and again there’s so much more to this community's stories.
If your child or another member of your family has a talent, interest, or achievement you'd like to share and celebrate, let us know! Submit your video to us at http://www.curethekids.org/tiktok to be featured on our TikTok channel and help us show there's more to your child and family than a diagnosis.
The start of the new year brings hope and promise to people around the world. Today, video game streamers are joining forces to share that hope with families facing the childhood cancer community’s biggest crisis. Our first-ever PBTF GameON marathon event - A New Year, A New Hope for a Cure - kicks off this morning. For 36 hours, streamers will be raising money to fund new scientific breakthroughs and provide financial, educational and emotional support to families.
Follow on Twitter for highlights throughout the event and visit https://tiltify.com/pediatric-brain-tumor-foundation/newhope to show them your support.
The economic impact of a pediatric brain tumor diagnosis can be catastrophic. In addition to substantial medical costs, 1 in 4 families lose more than 40% of their annual household income because of work disruptions related to treatment. Families who are at or below the federal poverty level suffer these losses disproportionally, with a study showing that 50% of the poorest families lost more than 40% of their annual income, compared to 5% of the wealthiest families.
This month, the Pediatric Brain Tumor Foundation recognizes National Poverty in America Awareness Month and is raising awareness about the financial burden families experience while seeking quality care for their child. Through direct family support and state and federal advocacy efforts, we are working tirelessly to address the impact pediatric brain tumors have on every member of a family. Stay up-to-date about resources available to families and ways to help by signing up for email updates at http://www.curethekids.org/stay-connected.
Nearly a year ago during a routine eye exam, Makayln’s optometrist noticed she had swollen optic nerves. After further testing, she was diagnosed with juvenile pilocytic astrocytoma at 15-years-old.
When her parents discovered the Pediatric Brain Tumor Foundation, they found information to help their entire family navigate Makayln’s diagnosis, as well as a tight-knit community that could offer the type of support that can only be found by connecting with other families who had experienced a similar diagnosis.
Learn more about Makayln and how her family found strength on their journey at https://curethekids.org/news/makayln-finding-strength-in-each-other/
The topline results from Day One Biopharmaceuticals’ Phase 2 FIREFLY-1 clinical trial are in, and the data on tovorafenib (DAY101) holds promise for children with recurrent or progressive low-grade glioma.
The once-weekly targeted therapy shrank tumors by at least 50% in the majority of children in the trial, with another 28% of patients experiencing stable disease. These results lay the groundwork for Day One's New Drug Application to the FDA, with Day One also expanding their development of tovorafenib as a front-line therapy for newly diagnosed pediatric low grade glioma patients.
You can read more about the trial results here: https://ir.dayonebio.com/news-releases/news-release-details/day-one-announces-topline-data-pivotal-phase-2-firefly-1-trial
A seizure can be one of the first signs a child has a brain tumor, and it can remain as a late-term effect following treatment. Since seizures are one of the most common side effects, it is important to understand them and how to take care of someone having a seizure.
Learn more during our next webinar, Seizure First Aid Ready, Presented by Epilepsy Foundation of America, on January 19th at 1pm ET/10 am PT. Register today at http://www.curethekids.org/webinar.
One of the most common late effects of treatment for pediatric brain tumors is the impairment or loss of vision. Regular eye exams during and after treatment can help your child's ophthalmologist determine how their vision has been impacted and assist with the best course of action.
On World Braille Day, we celebrate the importance of braille as a system of communication for more than those who are visually impaired. Many individuals benefit from using braille as it communicates not only words, but music and art, too.
If you know a pediatric brain tumor survivor whose vision has been impacted by treatment, download our Survivorship Resource Guidebook to learn more about eye health: http://www.curethekids.org/survivorship-guidebook
Families around the country continue to face the deadliest and most commonly diagnosed childhood cancer, and they need passionate advocates like you who will speak out about the urgent need for a cure.
Join Pro Football Hall of Famer Bryant Young and his wife Kristin in advocating to end the childhood cancer community’s biggest crisis. Sign up to learn about upcoming action days and legislation that’s impacting children with brain tumors, survivors, and their families: http://www.curethekids.org/advocate
From all of us at the Pediatric Brain Tumor Foundation, we wish you and yours a wonderful, healthy, and joyful new year!
Our resolution for 2023, as it is every year, is to make the future brighter for children with brain tumors and their families. We look forward to accomplishing even more together throughout the year and are grateful to walk alongside every member of this community as we work to end childhood brain cancer.
Make your last act of 2022 an act of compassion and generosity. Your year-end donation – no matter what size - is meaningful:
🔵 It means newly diagnosed families have access to information and resources as they learn to navigate the complexities of their child's brain cancer treatment.
🟡 It means gifted researchers have the tools and funding needed to discover the next scientific breakthrough.
🔵 It means survivors can thrive as they transition into life after treatment and adulthood.
🟡 It means parents, caregivers and siblings have a safe place to find support from others who have walked a similar journey.
Donate toward our $365,000 year-end goal at http://www.curethekids.org/holiday2022 so we can be there for children with brain cancer, survivors, and their families every day of the year. All donations received before the clock strikes midnight are tax-deductible for 2022.
Adita is a smart, caring, and sweet child who loves school and has a very loving relationship with her little brother, Mario. Her life forever changed in November 2017 when she started her pediatric brain tumor journey.
Through her journey, Adita's family cherished having the Pediatric Brain Tumor Foundation to turn to – a community that understands the intricacies of a pediatric brain tumor diagnosis. Our survivorship research guidebook and virtual family support groups have been very beneficial to their entire family as they continue to navigate their journey.
You can help make a difference in the lives of families like Adita’s. Donate today towards our year-end fundraising goal of $365,000 so that more kids can thrive through diagnosis and into survivorship: http://www.curethekids.org/holiday2022.
Your support of the Pediatric Brain Tumor Foundation ensures that researchers like Duke University’s Dr. Zachary Reitman have the seed funding needed to uncover new scientific breakthroughs. A recipient of our Early Career Development grant, Dr. Reitman recently celebrated the publication of a milestone study for his lab.
Learn more about this paper and how the results will guide clinical trial design for children with brainstem gliomas at: https://curethekids.org/news/early-career-development-grantee-publishes-milestone-research-study/
Last week, we shared the awesome winter friends that LexisNexis volunteers drew for patient families. We loved them so much that we decided to draw our own! Follow along and get creative in this easy step-by-step tutorial on how to draw a snowman who's ready to have a fun day full of ice skating and iced cocoa. (We don’t want them to melt!)
We’d love to see how your family’s snowman turns out. Drop a photo of your drawings below in the comments.
There are only a few days left to make a difference in 2022: www.curethekids.org/holiday2022. When you support the Pediatric Brain Tumor Foundation, you can be confident your generosity is leading the way toward a future without childhood brain cancer.
Our commitment to transparency, accountability, and progress consistently earns the Pediatric Brain Tumor Foundation the highest ratings for nonprofits, including Charity Navigator's 4-Star rating, Candid's GuideStar Platinum Seal of Transparency, and the Better Business Bureau’s Wise Giving Alliance accreditation.
Can we count on your best gift toward our $365,000 year-end goal to help accelerate the discovery of cures and provide the highest levels of support for children with brain cancer?
In this season of giving we are grateful to have the opportunity to support a number of charities.
As we approach the New Year, we look forward to continuing our fight for justice and focusing on making a positive difference.
Brady Center to Prevent Gun Violence
ACLU
Legal Services of Greater Miami, Inc.
MOTHERS FIGHTING FOR JUSTICE
Catholic Legal Services Archdiocese of Miami, Inc.
Cannonball Youth Club, Inc.
The Battier Take Charge Foundation
Hard Knocks Youth Foundation
Tamiami Colts FANIT RUN 4 BEIGEL
PKD Foundation
Margaux's Miracle Foundation
Georgia Transplant Foundation. Juvenile Diabetes Foundation (JDF).
The Leukemia & Lymphoma Society
Pediatric Brain Tumor Foundation
National Center for Victims of Crime.
Blue Dragon Children's Foundation
A Sense of Home
Live For Brie Foundation Inc.
Florida Justice Association
Coral Gables Community Foundation
United Way
Archdiocese of Miami
Progressive Officers Club
The Pediatric Brain Tumor Foundation is proud to honor the incredible diversity of our community, and today we celebrate the culture, heritage, and history of Kwanzaa.
May you and yours enjoy peace, love, and unity for a very !
No one loves the holidays more than pediatric brain tumor survivor, Courtney!
Courtney was diagnosed with medulloblastoma in May 2009, just weeks after her 8th birthday. During her time at the hospital she lost the ability to communicate. With the help of her family, medical team, and Christmas songs, she was able to relearn how to talk.
Courtney never let her diagnosis slow her down. Now 20 years old, she has gone on to become a talented seamstress and loves to make blankets and cookies to give to others.
With your help this holiday season, we are building a brighter future for children and survivors like Courtney: http://www.curethekids.org/holiday2022. Thank you for your support and we hope you have a wonderful holiday!
Before sugar plums dance in your head this Christmas Eve, here’s a special treat for you and your family from Santa himself!
As 2022 comes to a close, we want to thank you for your incredible support this year. Throughout it all, you have been there for the families and communities we serve. And we are here for you:
🔵 If you or a family you know are in need of support during this holiday season, please call 800-253-6530 ext. 3 or email [email protected] and a member of our Family Support team will respond to you within 1 business day.
🔵 If you need assistance with a donation or other matter, please call 800-253-6530, ext. 1 to speak with a member of our Donor and General Support team.
We hope that this holiday season is a time of rest, renewal, and quality time with your loved ones. Thank you for being an important part of our community.
Our wonderful friends at LexisNexis recently joined us in spreading holiday joy to patient families across the country -- designing and handmaking these beautiful cards with notes of care inside. These cards are now on their way to young children who were diagnosed with a brain tumor this year.
Thank you to LexisNexis and all of our volunteers who generously give their time and talent so families know they aren't alone on their journey.
IMPORTANT UPDATE (12/22/22): Following the Senate's vote, the House of Representatives has unanimously passed the Childhood Cancer STAR Reauthorization Act. The bill now heads to President Biden’s desk for his final signature! Thank you to everyone who advocated for this reauthorization — your efforts have ensured crucial research will continue for years to come!
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Last night, the Senate unanimously passed the Childhood Cancer STAR Reauthorization Act. First passed in 2018, the STAR Act is the most comprehensive legislation addressing pediatric cancer in U.S. history. Its reauthorization provides four additional years of funding for the programs established in the original STAR Act. Thank you to everyone who advocated for patient families and kids with brain cancer in 2022.
The bill now moves to the House of Representatives for a vote before the end of the year. If you haven’t done so, please reach out to your local legislator and urge them to support the STAR Reauthorization Act when it is brought to the House floor for a vote. For instructions on how to call your legislator, please read more on our site: https://curethekids.org/news/star-reauthorization-act-passes
Ethan was compassionate, loving, and genuine, and dreamed of becoming a rap artist. At age six, he started a long journey with a low-grade brain stem glioma.
Ethan left a huge impact on the world, and we're honored to share his and his family’s story: https://www.curethekids.org/news/ethan-resilient-through-a-low-grade-brain-stem-glioma-journey
Here are some important details from the Senate’s recently released omnibus spending bill, setting the stage for a busy 2023.
The highlights include:
• The STAR Act and NCI’s Childhood Cancer Data Initiative each receive full funding for 2023
• 2.7% funding increase for the NCI in 2023
• Additional year of funding for the Gabriella Miller Kids First Pediatric Research Program
The Pediatric Brain Tumor Foundation will continue to advocate for the legislative pieces that were not included in this session’s year-end package so children and families navigating the diagnosis of a brain tumor can receive the care they deserve. Please remember to save the dates for our planned days of action on April 24-25, 2023. Sign up to be an advocate and receive registration information at http://curethekids.org/advocate. Thank you for being passionate about continuing to better serve children with brain cancer.
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As #ChildhoodCancerAwarenessMonth comes to a close, we want to thank you for all of the ways you’ve taken action this month against the childhood cancer community’s biggest crisis. PBTF is committed to leading the way toward a future without pediatric brain cancer, and we’re able to do that because of families and supporters like you who walk alongside us as we work to improve families’ access to new treatments and better care. Together, we can help families thrive. Together, we will #CancerChildhoodCancer.
Eight-year-old Anthony is making a difference this September by participating in the Starry Night 51-Mile Challenge in honor of children like him who have been diagnosed with a brain tumor. An extremely happy and smiley newborn, Anthony’s personality suddenly changed when he was only 5 months old. His parents knew something was wrong. They took him to the doctors where he was diagnosed with a choroid plexus papilloma brain tumor. Anthony is now tumor-free and is enjoying walking around his community while sharing his walks on TikTok to spread awareness. Hear more stories like Anthony’s, connect with other families, and make a difference this Childhood Cancer Awareness Month by joining our Starry Night Community Facebook group: https://buff.ly/3eYHWGJ
When a child is diagnosed with brain cancer, parents often find themselves searching for answers on their own. Inspired by patient advocate Jace Ward's vision, the newly launched My DIPG Navigator connects families facing a DIPG or DMG diagnosis with resources to feel confident they’re making the most-informed decisions throughout their cancer journey. We’re proud to team up with ChadTough Defeat DIPG Foundation, patient families, and other nonprofit funding partners to make this nurse navigator program free for any DIPG/DMG patient family across the country. Watch the video and learn more at https://bit.ly/3PexYi5 #dipg #braintumorawarenessmonth #cancelchildhoodcancer
Valentina has been navigating her diagnosis with pediatric low-grade glioma since age one. Now, at age five, her journey is still ongoing. While pediatric low-grade gliomas have higher survival rates than other types of pediatric brain tumors, many PLGG patients face a life of chronic relapses and significant challenges. PBTF funds research along every stage of the drug discovery process, advancing the medical community’s understanding of these recurrences and uncovering promising new treatments that target tumor mutations. As a result, members of the pharmaceutical industry are beginning to invest in brain tumor treatments specifically designed for pediatric patients like Valentina. Learn more about Valentina: https://bit.ly/3FhvJWN
Valentina's journey with a brain tumor started in June 2018 when she was diagnosed with a low-grade brain stem glioma at one year old. Low-grade gliomas are the most common form of brain tumors diagnosed in children, accounting for 30%-50% of all central nervous system tumors. Valentina and her family are still fighting every day for more moments like these. Stay tuned throughout the week to learn more about her journey. Stay connected with us to hear more about how we're working to make a world without childhood brain tumors closer to a reality: https://bit.ly/3yjcNW6
Jayden’s journey is one that no child should ever have to endure. With your donation, one day they won’t. Twitch and Facebook Gaming creators are coming together to support kids like Jayden. Interested in streaming or supporting creators through our PBTF GameOn #RaidforKids event taking place May 16th through 24th? JOIN TODAY: https://tiltify.com/pediatric-brain-tumor-foundation/raid-for-kids #PBTFGameOn #curethekids #pbtf
There are more than 28,000 children and teens battling brain tumors in the U.S. The largest patient advocacy funder of pediatric brain tumor research and leading champion for families and survivors, the Pediatric Brain Tumor Foundation helps families like Jakob's tackle this disease. Our mission is to care for patient families the moment symptoms start, cure all childhood brain tumors, and help survivors and families thrive no matter where their journey takes them. Join us in making a world without childhood brain tumors a reality. Stay up to date on everything we're doing and what you can do to get involved: http://www.curethekids.org/stay-connected/
It takes the average family 100 miles to get to the hospital for treatment. Unfortunately, rising gas prices means that many families are struggling to get there. How far will you go to help them? Start your journey today by joining our Walk 100 Miles in May Challenge group. Raise $150 to provide a gas card for a family to travel to the hospital and as an added bonus, you get a PBTF shirt! 🏃♀️ JOIN US: https://www.facebook.com/groups/walk100milespbtf For more information, contact Emily Clark at [email protected]. #pbtf #curethekids #cancelchildhoodcancer
Anyone can be an advocate! This week during National Adolescent and Young Adult Cancer Awareness Week, how will you use your voice to make a difference for those diagnosed with brain tumors? Grace Wethor's journey with advocacy started as a way for her to give back and blossomed into a huge passion of hers. Watch the video below to hear how she uses her story to enact change and advocate for others in the brain tumor community. If you're interested in learning more about how you can be an advocate like Grace, fill out this form by April 8 so we can connect you with resources and provide information about upcoming advocacy trainings. http://www.curethekids.org/advocacy-interest-form.html #AYAWeek #AYACancer #Advocacy
International Children's Book Day highlights the importance of reading and celebrates children's love for books all over the world. Books are a magical way to help a child's imagination run wild while teaching them valuable life skills and lessons. This year, we're celebrating International Children's Book Day with Rene Marsh's inspirational story written in honor of her son Blake. This book proves with hope and faith, any challenge can be overcome. For more information about "The Miracle Workers: Boy vs. Beast" and to order a copy for your family, click here: https://bit.ly/3qXd1hf
Meet our newest Vs. Cancer National Event Star Ambassador— Holmes! Holmes is a middle schooler, baseball player, and pediatric brain tumor survivor. This season, his baseball team at Brevard Middle School will host their very own Vs. Cancer game! Follow our Vs. Cancer page for more updates on Holmes, his team at Brevard Middle School, and his work as a Vs. Cancer National Event Star Ambassador. #VsCancer #StrongerTogether #PBTF #CareCureThrive #CancelChildhoodCancer
Three years ago today, CNN's René Marsh and her husband Kedric held their son Blake in their arms for the first time. When he passed away last April from infant pineoblastoma, they committed themselves to changing the cruel reality of the deadliest disease facing this country’s children, joining forces with the Pediatric Brain Tumor Foundation to raise funds for pioneering pediatric brain tumor research. On Blake’s birthday, we’re honored to join his family in announcing that PBTF’s scientific advisors have unanimously approved for funding a new research initiative helmed by Dr. Paul Northcott of St. Jude Children's Research Hospital, through the largest known fundraising effort focused specifically on infant pineoblastoma. 📽️ courtesy of René Marsh #pineoblastoma #cancelchildhoodcancer #braintumors
Inside every child battling a brain tumor is a world of potential – potential that’s at constant risk because pediatric-first brain tumor research has taken a backseat for far too long. These children, survivors and their families need an army of committed advocates like you, working alongside PBTF to persuade government and industry leaders that they can’t wait any longer for better treatments and quality of care. Your voice can make a difference. Sign up today to learn about upcoming brain tumor and childhood cancer advocacy trainings and ways to get involved: https://bit.ly/3pUCTcV #pbtf #curethekids #cancelchildhoodcancer
When children are in the hospital and undergoing treatment for cancer, they are often separated from their friends. The Imaginary Friend Society wants to remind you of the many different ways to stay in touch with buddies and pals. 💙 PBTF's Imaginary Friend Society helps answer children's questions about a wide range of complicated cancer topics. Learn more at imaginaryfriendsociety.com. #imaginaryfriendsociety #curethekids #friendship
‼️‼️ MATCH ALERT ‼️‼️ Thanks to a generous anonymous donor, your year-end gift to PBTF will make DOUBLE the impact in children’s lives! Starting today, every dollar donated will be matched up to $13,000 in honor of the 13 children and teens diagnosed with brain tumors each day. Plus, when your gift is received before January 1st, it will be tax-deductible for 2021. DONATE NOW: http://curethekids.org/givenow #carecurethrive #donate #cancelchildhoodcancer
The holidays can be difficult for children who have to spend it in the hospital, so the Pediatric Brain Tumor Foundation collaborated with pro-bono partners RPA Advertising , Blame Your Brother Creative Studio and Yessian Music / West - plus one special guest star! Together, we can make sure every child knows the holiday spirit will find them, no matter where they are. 🌟 WATCH NOW: https://www.youtube.com/watch?v=_XflceII9OM You, too, can make the holidays brighter for kids with brain cancer. Donate now to light the way to a cure: curethekids.org/givenow #carecurethrive #cancelchildhoodcancer
When a child is diagnosed with a brain tumor, having a community to turn to means hope. Please consider making a donation today towards our $320,000 year-end goal and light the way to a cure for more families in 2022 and beyond. Text KIDSCURE to 24365 or visit www.curethekids.org/givenow to give the gift of hope today. #pbtf #carecurethrive #donate
K-State Sports has been the top Vs. Cancer team for the last four years -- a title they take very seriously. This past year, they took their partnership with Vs. Cancer one step further by connecting with the Evans family. This season was dedicated to Noah Evans, who passed away following his battle with brain cancer on January 14, 2021. Although Noah was never able to attend a game, he lives on through the K-State baseball program. While attending a clinical trial at Duke University for her son Noah, Lori Evans saw a Vs. Cancer sticker placed on the side of the DVD player in the treatment room. She thought of the great memories Noah experienced thanks to the K-State Baseball team and their fundraising efforts with the Pediatric Brain Tumor Foundation’s Vs. Cancer program. She later discovered the trial was partially funded by PBTF. “I felt like the Kansas State baseball team, Vs. Cancer, the Pediatric Brain Tumor Foundation, everyone was there with us, with Noah, during that treatment,” shares Lori in this video. Learn more about Noah and Kansas State Baseball's fundraising efforts here: http://www.curethekids.org/about-us/news-room/pbtf-news/2021/k-state-baseball-changing-the-game-for-kids.html
Meet Annie, Ben, and Lila Howington: At only 3 months old Lila was diagnosed with a malignant brain tumor and given a 50% chance of survival. The doctor later said that had it been 10 years earlier, it would've been a 0% chance of survival due to the lack of research. Since 2008, Raleigh-based celebrity and brain tumor survivor Bob Dumas has rallied his community for a cure -- raising more than $2 million for the Pediatric Brain Tumor Foundation. Your support of Bob's Buddies will give these children the healthy, happy futures they deserve. If you are in a position to support, we strongly encourage you to donate to Bob's Buddies. You can do so by texting "BUDDY" to +1 (844) 492-1398 or visiting bit.ly/bobsbuddies. Please like and share this video to help spread the message. 💚
Aimee supports Bob's Buddies so that families don't have to lose anyone to brain cancer. ❤️ Your support of Bob's Buddies will give these children the healthy, happy futures they deserve. Since 2008, Raleigh-based celebrity and brain tumor survivor Bob Dumas has rallied his community for a cure -- raising more than $2 million for the Pediatric Brain Tumor Foundation's research programs. If you are in a position to support, we strongly encourage you to donate to Bob's Buddies. You can do so by texting "BUDDY" to (844) 492-1398 or visiting bit.ly/bobsbuddies.📱 #bobsbuddies #pbtf #childhoodcancer #childhoodcancerawareness #pediatriccancer #braintumors #vscancer
Happy Halloween! 🎃 Will you be celebrating by going trick or treating? 🍫 If so, stay safe, have fun, and share your Halloween costume with us in the comments below! ⤵️ If you run into any extra scary tricks this Halloween, our Imaginary Friend Society is here with some helpful advice for you and your Boo Crew! 👻👻👻 #carecurethrive #pbtf #happyhalloween
⚾️ While professional baseball pitchers across the nation prepared to #GoHead2Head to #CancelChildhoodCancer this September, there were two VIPs behind the scenes who were rooting the pitchers on, reminding them why striking out cancer is so important, and submitting motivational videos to each of the participating pitchers throughout the month. 💛 Those two are Kingston and Keagan, Pediatric Brain Tumor Foundation Stars and BIG baseball fans! Both Stars know how it feels to battle a brain tumor and how important it is that people like our professional pitchers support the mission to END childhood cancer. 🙏 To thank Kingston and Keagan for their hard work, a few of our pitchers submitted videos. Watch our Vs. Cancer athletes from the MLB and Minor League Baseball to hear exactly how Kingston and Keagan made an impact on them. #pbtf #CareCureThrive
The final week of the #GoHead2Head Challenge starts TODAY, with NBC's Bring The Funny finalists The CHRIS and PAUL Show joining the fight to cure childhood brain cancer! Follow them on social media and donate at https://team.curethekids.org/thechrisandpaulshow to help unlock our $50,000 #ChildhoodCancerAwarenessMonth fundraising match. Thank you Chris and Paul for teaming up with PBTF to take pediatric brain tumors head-on!
September 16-26 Facebook Gaming creator Starbeast and many other content creators are coming together to #GoHead2Head to #CancelChildhoodCancer. Every dollar raised through this PBTF GameON will help the Pediatric Brain Tumor Foundation continue to fund millions of dollars in scientific discovery to address key gaps in research and drug development and equip families with the information, emotional support and emergency financial assistance they need to navigate their child's brain tumor journey. If you’re a creator interested in joining this challenge, send us a direct message or email [email protected]!
Meet Keagan, one of the PBTF's Stars that your support in September is helping. Keagan LOVES baseball and his passion for sports gives him strength along his brain tumor journey. He has a message for our pro pitchers and everyone who has decided to #GoHead2Head to #CancelChildhoodCancer this September! DONATE TODAY at the Donate button below! ⤵️ #pbtf #carecurethrive #childhoodcancerawarenessmonth
On June 30, 2021, the Pediatric Brain Tumor Foundation welcomed three renowned experts to discuss the current state of COVID-19 vaccine studies in children and considerations for vaccinating children in treatment and post treatment for a brain tumor. The PBTF presented “Understanding COVID-19 Vaccine Trials and Considerations for Pediatric Cancer Patients” and was joined by: 🔹 Dr. David Kimberlin, Vice Chair for Clinical and Translational Research and Co-Director of the Division of Pediatric Infectious Diseases at the University of Alabama at Birmingham; 🔹 Dr. Eugene Hwang, Associate Chief of Oncology and Director of the Clinical Neuro-Oncology Immunotherapeutics Program at the Center for Blood and Cancer Disorders, Children’s National Hospital; and 🔹 Dr. Miguela Caniza, Director of the Global Infectious Disease Program, Departments of Global Pediatric Medicine and Infectious Disease at St. Jude Children’s Research Hospital See the full webinar here: https://www.youtube.com/watch?v=zkaVJ7-oiJ8 Learn more about this and PBTF’s other webinars at curethekids.org/family-resources/webinars. If you have questions, need support or would like a copy of the presentation slides, please email [email protected]. #carecurethrive #pbtf #webinar
📢 THIS JUST IN: The Pediatric Brain Tumor Foundation is now on TikTok! Follow now for even more ways to support the PBTF - because only together can we achieve a world without childhood brain tumors. FOLLOW TODAY: https://vm.tiktok.com/ZMdESr4E3/ #tiktok #PBTF #carecurethrive #childhoodcancer
It’s easy to be overwhelmed by all of the information you may receive after a child’s brain tumor diagnosis. In this PBTF webinar, Dr. Mary Baron Nelson of Children's Hospital Los Angeles, shares information to help a family navigate the first part of the journey, including: 🔹 How a tumor’s location can impact a child physically or emotionally 🔹 What the most common tumor types are in children and available treatments 🔹 How location of the tumor, age of the child, genetics, and pathology all factor into the treatments chosen WATCH NOW: https://youtu.be/YDZkOO4KhyQ Learn more about this and PBTF’s other webinars at http://www.curethekids.org/family-resources/webinars/ #pbtf #carecurethrive
Being diagnosed with a brain tumor or other type of cancer can be scary and confusing for anyone, but especially for a child. Merlinda, the wizard from PBTF’s Imaginary Friend Society, helps families explain it in ways kids can understand. Through patient family education, financial relief, and emotional support, PBTF is there for families from the moment of diagnosis. Visit http://www.curethekids.org/family-resources to learn more. #pbtf #carecurethrive #childhoodcancer
Our volunteer community fundraisers raise more than $1.4 million annually, but to our families, they do so much more. They are advocates, champions and heroes who spend time to host their very own fundraising events - both big and small - and bring PBTF's mission to cities across the U.S.! If you're interested in learning how you can start your own fundraiser, contact Emily at [email protected]. #pbtf #carecurethrive
The Pediatric Brain Tumor Foundation began with friends helping friends. When a colleague's child was diagnosed with a brain tumor, motorcycle enthusiasts Mike and Dianne Traynor wanted to do something to help. In 1984, they joined other dedicated volunteers to organize a motorcycle charity ride in Atlanta, to raise money for childhood brain tumor research.
More than 35 years after that first Ride for Kids event, the PBTF is now the leading nonprofit dedicated to children and teens with brain tumors.
Because of supporters like you, the PBTF serves the more than 28,000 kids battling brain tumors by investing in the most promising research, offering comprehensive family support and rallying communities across the country to join the fight.
It’s easy to get involved! Host a Facebook fundraiser online or get involved at a signature fundraising event near you:
- PBTF Facebook Fundraising: www.curethekids.org/get-involved/facebook-fundraising
- Ride for Kids: www.rideforkids.org | www.facebook.com/rideforkids
- Starry Night Walk to Cure Childhood Brain Tumors: www.mystarrynight.org
- Vs. Cancer: www.vs-cancer.org | www.facebook.com/VS.CancerFoundation
If you are or know of a family in need of support, please submit our family profile form so we can learn more about you and better understand how we can help. We’ll also send you informative emails about our programs and events.
There’s no charge for any of our services or activities, and we will not give or sell your address to anyone.
Ride for Kids - Western Pennsylvania
Asheville 28806Asheville Neurology Specialists, PA
Dogwood Road, AshevilleStephanie Sexton, Mary Kay Independent Beauty
Running Deer Road, Candler
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Ashford Creek Trl NE