Clicky

Pediatric Brain Tumor Foundation

Pediatric Brain Tumor Foundation Together to for a world without childhood brain tumors.

The Pediatric Brain Tumor Foundation is there for families facing the deadliest and most common childhood cancer, responding with resources and community support that address every family member’s needs. The largest patient advocacy funder of pediatric brain tumor research, PBTF also funds and advocates for innovative projects that lead to vital discoveries, new clinical trials, and better treatments – all bringing us closer to a cure.

Operating as usual

Become a childhood brain cancer advocate. It’s never been more necessary – or easier. Read this month’s Advocacy Alert a...
01/20/2023

Become a childhood brain cancer advocate. It’s never been more necessary – or easier. Read this month’s Advocacy Alert at https://buff.ly/3CYOHBu for a list of ways you can make your voice heard. We hope these ideas spark your interest and inspire you to join our efforts to enact change for families facing the childhood cancer community’s biggest crisis.

Navigating the different phases of your family’s brain tumor journey is overwhelming. Each phase brings its own set of u...
01/19/2023

Navigating the different phases of your family’s brain tumor journey is overwhelming. Each phase brings its own set of unique challenges but know that you don't have to face these challenges alone.

The Pediatric Brain Tumor Foundation's Peer to Peer Mentoring Program provides one-on-one support from other parents, caregivers, siblings, and survivors who have gone through a similar experience. No matter what phase of the journey you're on, there’s a mentor who’s ready to walk alongside you. Complete our brief, online application at http://www.curethekids.org/peer-mentoring and a member of our Family Support team will contact you.

01/17/2023
Thank You for Shining Your Light in 2022!

As a member of the Pediatric Brain Tumor Foundation’s community, you’re part of countless lives you’ve never met. Each of their stories are filled with unique challenges and triumphs. And all of them have hope because of your support.

We are grateful for every donor who shined this light of hope throughout the holiday season. Together, you raised over half a million dollars to help children with brain tumors and their families!

When you invest in the Pediatric Brain Tumor Foundation’s research, advocacy, and support programs, you’re investing in a healthier, happier future for families. Thank you!

Seizures are one of the more common symptoms and side effects of a pediatric brain tumor, both before diagnosis and afte...
01/16/2023

Seizures are one of the more common symptoms and side effects of a pediatric brain tumor, both before diagnosis and after treatment. Knowing how to correctly identify a seizure and the proper steps to take when someone is experiencing a seizure is very important.

There's still time to register for this Thursday’s Seizure First Aid Ready webinar, presented by The Epilepsy Foundation of America. Register to join us at http://www.curethekids.org/webinar.

A pediatric brain tumor is life-changing, but it’s not the only thing that defines the children and families we meet. Wh...
01/13/2023

A pediatric brain tumor is life-changing, but it’s not the only thing that defines the children and families we meet. Whether you’re showing off your amazing cooking skills, blowing everyone away with your songwriting talents, or tearing it up on the field, you prove time and again there’s so much more to this community's stories.

If your child or another member of your family has a talent, interest, or achievement you'd like to share and celebrate, let us know! Submit your video to us at http://www.curethekids.org/tiktok to be featured on our TikTok channel and help us show there's more to your child and family than a diagnosis.

The start of the new year brings hope and promise to people around the world. Today, video game streamers are joining fo...
01/12/2023

The start of the new year brings hope and promise to people around the world. Today, video game streamers are joining forces to share that hope with families facing the childhood cancer community’s biggest crisis. Our first-ever PBTF GameON marathon event - A New Year, A New Hope for a Cure - kicks off this morning. For 36 hours, streamers will be raising money to fund new scientific breakthroughs and provide financial, educational and emotional support to families.

Follow on Twitter for highlights throughout the event and visit https://tiltify.com/pediatric-brain-tumor-foundation/newhope to show them your support.

The economic impact of a pediatric brain tumor diagnosis can be catastrophic. In addition to substantial medical costs, ...
01/11/2023

The economic impact of a pediatric brain tumor diagnosis can be catastrophic. In addition to substantial medical costs, 1 in 4 families lose more than 40% of their annual household income because of work disruptions related to treatment. Families who are at or below the federal poverty level suffer these losses disproportionally, with a study showing that 50% of the poorest families lost more than 40% of their annual income, compared to 5% of the wealthiest families.

This month, the Pediatric Brain Tumor Foundation recognizes National Poverty in America Awareness Month and is raising awareness about the financial burden families experience while seeking quality care for their child. Through direct family support and state and federal advocacy efforts, we are working tirelessly to address the impact pediatric brain tumors have on every member of a family. Stay up-to-date about resources available to families and ways to help by signing up for email updates at http://www.curethekids.org/stay-connected.

Nearly a year ago during a routine eye exam, Makayln’s optometrist noticed she had swollen optic nerves. After further t...
01/10/2023

Nearly a year ago during a routine eye exam, Makayln’s optometrist noticed she had swollen optic nerves. After further testing, she was diagnosed with juvenile pilocytic astrocytoma at 15-years-old.

When her parents discovered the Pediatric Brain Tumor Foundation, they found information to help their entire family navigate Makayln’s diagnosis, as well as a tight-knit community that could offer the type of support that can only be found by connecting with other families who had experienced a similar diagnosis.

Learn more about Makayln and how her family found strength on their journey at https://curethekids.org/news/makayln-finding-strength-in-each-other/

The topline results from Day One Biopharmaceuticals’ Phase 2 FIREFLY-1 clinical trial are in, and the data on tovorafeni...
01/09/2023

The topline results from Day One Biopharmaceuticals’ Phase 2 FIREFLY-1 clinical trial are in, and the data on tovorafenib (DAY101) holds promise for children with recurrent or progressive low-grade glioma.

The once-weekly targeted therapy shrank tumors by at least 50% in the majority of children in the trial, with another 28% of patients experiencing stable disease. These results lay the groundwork for Day One's New Drug Application to the FDA, with Day One also expanding their development of tovorafenib as a front-line therapy for newly diagnosed pediatric low grade glioma patients.

You can read more about the trial results here: https://ir.dayonebio.com/news-releases/news-release-details/day-one-announces-topline-data-pivotal-phase-2-firefly-1-trial

A seizure can be one of the first signs a child has a brain tumor, and it can remain as a late-term effect following tre...
01/06/2023

A seizure can be one of the first signs a child has a brain tumor, and it can remain as a late-term effect following treatment. Since seizures are one of the most common side effects, it is important to understand them and how to take care of someone having a seizure.

Learn more during our next webinar, Seizure First Aid Ready, Presented by Epilepsy Foundation of America, on January 19th at 1pm ET/10 am PT. Register today at http://www.curethekids.org/webinar.

One of the most common late effects of treatment for pediatric brain tumors is the impairment or loss of vision. Regular...
01/04/2023

One of the most common late effects of treatment for pediatric brain tumors is the impairment or loss of vision. Regular eye exams during and after treatment can help your child's ophthalmologist determine how their vision has been impacted and assist with the best course of action.

On World Braille Day, we celebrate the importance of braille as a system of communication for more than those who are visually impaired. Many individuals benefit from using braille as it communicates not only words, but music and art, too.

If you know a pediatric brain tumor survivor whose vision has been impacted by treatment, download our Survivorship Resource Guidebook to learn more about eye health: http://www.curethekids.org/survivorship-guidebook

01/03/2023
YOUNG FAMILY% Advocacy% 24 sec

Families around the country continue to face the deadliest and most commonly diagnosed childhood cancer, and they need passionate advocates like you who will speak out about the urgent need for a cure.

Join Pro Football Hall of Famer Bryant Young and his wife Kristin in advocating to end the childhood cancer community’s biggest crisis. Sign up to learn about upcoming action days and legislation that’s impacting children with brain tumors, survivors, and their families: http://www.curethekids.org/advocate

From all of us at the Pediatric Brain Tumor Foundation, we wish you and yours a wonderful, healthy, and joyful new year!...
01/01/2023

From all of us at the Pediatric Brain Tumor Foundation, we wish you and yours a wonderful, healthy, and joyful new year!

Our resolution for 2023, as it is every year, is to make the future brighter for children with brain tumors and their families. We look forward to accomplishing even more together throughout the year and are grateful to walk alongside every member of this community as we work to end childhood brain cancer.

Make your last act of 2022 an act of compassion and generosity. Your year-end donation – no matter what size - is meanin...
12/31/2022

Make your last act of 2022 an act of compassion and generosity. Your year-end donation – no matter what size - is meaningful:

🔵 It means newly diagnosed families have access to information and resources as they learn to navigate the complexities of their child's brain cancer treatment.
🟡 It means gifted researchers have the tools and funding needed to discover the next scientific breakthrough.
🔵 It means survivors can thrive as they transition into life after treatment and adulthood.
🟡 It means parents, caregivers and siblings have a safe place to find support from others who have walked a similar journey.

Donate toward our $365,000 year-end goal at http://www.curethekids.org/holiday2022 so we can be there for children with brain cancer, survivors, and their families every day of the year. All donations received before the clock strikes midnight are tax-deductible for 2022.

Adita is a smart, caring, and sweet child who loves school and has a very loving relationship with her little brother, M...
12/30/2022

Adita is a smart, caring, and sweet child who loves school and has a very loving relationship with her little brother, Mario. Her life forever changed in November 2017 when she started her pediatric brain tumor journey.

Through her journey, Adita's family cherished having the Pediatric Brain Tumor Foundation to turn to – a community that understands the intricacies of a pediatric brain tumor diagnosis. Our survivorship research guidebook and virtual family support groups have been very beneficial to their entire family as they continue to navigate their journey.

You can help make a difference in the lives of families like Adita’s. Donate today towards our year-end fundraising goal of $365,000 so that more kids can thrive through diagnosis and into survivorship: http://www.curethekids.org/holiday2022.

Your support of the Pediatric Brain Tumor Foundation ensures that researchers like Duke University’s Dr. Zachary Reitman...
12/29/2022

Your support of the Pediatric Brain Tumor Foundation ensures that researchers like Duke University’s Dr. Zachary Reitman have the seed funding needed to uncover new scientific breakthroughs. A recipient of our Early Career Development grant, Dr. Reitman recently celebrated the publication of a milestone study for his lab.

Learn more about this paper and how the results will guide clinical trial design for children with brainstem gliomas at: https://curethekids.org/news/early-career-development-grantee-publishes-milestone-research-study/

12/28/2022

Last week, we shared the awesome winter friends that LexisNexis volunteers drew for patient families. We loved them so much that we decided to draw our own! Follow along and get creative in this easy step-by-step tutorial on how to draw a snowman who's ready to have a fun day full of ice skating and iced cocoa. (We don’t want them to melt!)

We’d love to see how your family’s snowman turns out. Drop a photo of your drawings below in the comments.

There are only a few days left to make a difference in 2022: www.curethekids.org/holiday2022. When you support the Pedia...
12/27/2022

There are only a few days left to make a difference in 2022: www.curethekids.org/holiday2022. When you support the Pediatric Brain Tumor Foundation, you can be confident your generosity is leading the way toward a future without childhood brain cancer.

Our commitment to transparency, accountability, and progress consistently earns the Pediatric Brain Tumor Foundation the highest ratings for nonprofits, including Charity Navigator's 4-Star rating, Candid's GuideStar Platinum Seal of Transparency, and the Better Business Bureau’s Wise Giving Alliance accreditation.

Can we count on your best gift toward our $365,000 year-end goal to help accelerate the discovery of cures and provide the highest levels of support for children with brain cancer?

In this season of giving we are grateful to have the opportunity to support a number of charities.As we approach the New...
12/27/2022

In this season of giving we are grateful to have the opportunity to support a number of charities.

As we approach the New Year, we look forward to continuing our fight for justice and focusing on making a positive difference.


Brady Center to Prevent Gun Violence
ACLU
Legal Services of Greater Miami, Inc.
MOTHERS FIGHTING FOR JUSTICE
Catholic Legal Services Archdiocese of Miami, Inc.
Cannonball Youth Club, Inc.
The Battier Take Charge Foundation
Hard Knocks Youth Foundation
Tamiami Colts FANIT RUN 4 BEIGEL
PKD Foundation
Margaux's Miracle Foundation
Georgia Transplant Foundation. Juvenile Diabetes Foundation (JDF).
The Leukemia & Lymphoma Society
Pediatric Brain Tumor Foundation
National Center for Victims of Crime.
Blue Dragon Children's Foundation
A Sense of Home
Live For Brie Foundation Inc.
Florida Justice Association
Coral Gables Community Foundation
United Way
Archdiocese of Miami
Progressive Officers Club

The Pediatric Brain Tumor Foundation is proud to honor the incredible diversity of our community, and today we celebrate...
12/26/2022

The Pediatric Brain Tumor Foundation is proud to honor the incredible diversity of our community, and today we celebrate the culture, heritage, and history of Kwanzaa.

May you and yours enjoy peace, love, and unity for a very !

No one loves the holidays more than pediatric brain tumor survivor, Courtney! Courtney was diagnosed with medulloblastom...
12/25/2022

No one loves the holidays more than pediatric brain tumor survivor, Courtney!

Courtney was diagnosed with medulloblastoma in May 2009, just weeks after her 8th birthday. During her time at the hospital she lost the ability to communicate. With the help of her family, medical team, and Christmas songs, she was able to relearn how to talk.

Courtney never let her diagnosis slow her down. Now 20 years old, she has gone on to become a talented seamstress and loves to make blankets and cookies to give to others.

With your help this holiday season, we are building a brighter future for children and survivors like Courtney: http://www.curethekids.org/holiday2022. Thank you for your support and we hope you have a wonderful holiday!

As 2022 comes to a close, we want to thank you for your incredible support this year. Throughout it all, you have been t...
12/23/2022

As 2022 comes to a close, we want to thank you for your incredible support this year. Throughout it all, you have been there for the families and communities we serve. And we are here for you:

🔵 If you or a family you know are in need of support during this holiday season, please call 800-253-6530 ext. 3 or email [email protected] and a member of our Family Support team will respond to you within 1 business day.
🔵 If you need assistance with a donation or other matter, please call 800-253-6530, ext. 1 to speak with a member of our Donor and General Support team.

We hope that this holiday season is a time of rest, renewal, and quality time with your loved ones. Thank you for being an important part of our community.

Our wonderful friends at LexisNexis recently joined us in spreading holiday joy to patient families across the country -...
12/22/2022

Our wonderful friends at LexisNexis recently joined us in spreading holiday joy to patient families across the country -- designing and handmaking these beautiful cards with notes of care inside. These cards are now on their way to young children who were diagnosed with a brain tumor this year.

Thank you to LexisNexis and all of our volunteers who generously give their time and talent so families know they aren't alone on their journey.

IMPORTANT UPDATE (12/22/22): Following the Senate's vote, the House of Representatives has unanimously passed the Childh...
12/21/2022

IMPORTANT UPDATE (12/22/22): Following the Senate's vote, the House of Representatives has unanimously passed the Childhood Cancer STAR Reauthorization Act. The bill now heads to President Biden’s desk for his final signature! Thank you to everyone who advocated for this reauthorization — your efforts have ensured crucial research will continue for years to come!

***

Last night, the Senate unanimously passed the Childhood Cancer STAR Reauthorization Act. First passed in 2018, the STAR Act is the most comprehensive legislation addressing pediatric cancer in U.S. history. Its reauthorization provides four additional years of funding for the programs established in the original STAR Act. Thank you to everyone who advocated for patient families and kids with brain cancer in 2022.
The bill now moves to the House of Representatives for a vote before the end of the year. If you haven’t done so, please reach out to your local legislator and urge them to support the STAR Reauthorization Act when it is brought to the House floor for a vote. For instructions on how to call your legislator, please read more on our site: https://curethekids.org/news/star-reauthorization-act-passes

Here are some important details from the Senate’s recently released omnibus spending bill, setting the stage for a busy ...
12/20/2022

Here are some important details from the Senate’s recently released omnibus spending bill, setting the stage for a busy 2023.
The highlights include:
• The STAR Act and NCI’s Childhood Cancer Data Initiative each receive full funding for 2023
• 2.7% funding increase for the NCI in 2023
• Additional year of funding for the Gabriella Miller Kids First Pediatric Research Program

The Pediatric Brain Tumor Foundation will continue to advocate for the legislative pieces that were not included in this session’s year-end package so children and families navigating the diagnosis of a brain tumor can receive the care they deserve. Please remember to save the dates for our planned days of action on April 24-25, 2023. Sign up to be an advocate and receive registration information at http://curethekids.org/advocate. Thank you for being passionate about continuing to better serve children with brain cancer.

Address

6065 Roswell Road NE, Suite 505
Atlanta, GA
30328

Opening Hours

Monday 8:30am - 5pm
Tuesday 8:30am - 5pm
Wednesday 8:30am - 5pm
Thursday 8:30am - 5pm
Friday 8:30am - 5pm

Alerts

Be the first to know and let us send you an email when Pediatric Brain Tumor Foundation posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Business

Send a message to Pediatric Brain Tumor Foundation:

Videos

Our Story

The Pediatric Brain Tumor Foundation began with friends helping friends. When a colleague's child was diagnosed with a brain tumor, motorcycle enthusiasts Mike and Dianne Traynor wanted to do something to help. In 1984, they joined other dedicated volunteers to organize a motorcycle charity ride in Atlanta, to raise money for childhood brain tumor research.

More than 35 years after that first Ride for Kids event, the PBTF is now the leading nonprofit dedicated to children and teens with brain tumors.

Because of supporters like you, the PBTF serves the more than 28,000 kids battling brain tumors by investing in the most promising research, offering comprehensive family support and rallying communities across the country to join the fight.

It’s easy to get involved! Host a Facebook fundraiser online or get involved at a signature fundraising event near you:

Nearby health & beauty businesses


Other Atlanta health & beauty businesses

Show All

Comments

Today, 13 kids will be diagnosed with a brain tumor. Help me fight for these futures during this week’s fundraising challenge with the Pediatric Brain Tumor Foundation’s Starry Night Walk to Cure Childhood Brain Tumors. Donate now at https://team.curethekids.org/teambrody
Have you heard about the ? It started with this young man, Eric Montgomery, wanting to raise money for pediatric brain cancer research. Thanks to Swifty Foundation it has evolved into a collaborative effort that also includes Dragon Master Foundation, Pediatric Brain Tumor Foundation and The Kortney Rose Foundation to try and attract attention nationwide to the need for greater funding for kids with cancer.

Our president, Amanda Haddock, is talking to students about Eric's journey and how they can follow along and send encouragment or even plan their own fundraiser to help! If your class is interested in having a speaker about the Hike4Pennies, send us a message and we'll get something set up!
Norm Rickana from “Ride for Kids” stopped by the Police Department today to present Chief Lowery a plaque for the continued support of this charity event.

Ride for kids is a charity motorcycle event that happens nationwide. The motorcycle ride raises money for the Pediatric Brain Tumor Foundation. The Florissant Police Department Motorcycle Unit participates and helps es**rt hundreds of motorcycles that are participating in the event. We are happy to help and will continue to be a part of this charitable event.

Rideforkids.org
Today is the big day!! Eric is starting his Pacific Crest Trail hike!! We are so excited about this effort and our collaboration with Swifty Foundation, The Kortney Rose Foundation, and Pediatric Brain Tumor Foundation to raise money and awareness for pediatric brain cancer research. Learn more about the project at FourPennies.org.

We are encouraging groups, especially kids’ groups, to follow along and send Eric encouragement for his trip. The goal is to sponsor every step of his trip at four cents a step. Please help us get him sponsored all the way to Canada to help kids with brain cancer! Follow on social media using
The Connecticut Brain Tumor Alliance ("CTBTA") is proud to announce that we have teamed up with the Pediatric Brain Tumor Foundation to help families facing a pediatric brain tumor diagnosis.

A brain tumor diagnosis can be scary for anyone, but for children, it can be even scarier. All at once, they and their families are bombarded with terminology and procedures that are intimidating and unfamiliar. Things like radiation, blood transfusions, chemotherapy, and surgery -- just to name a few.

To help navigate this journey, the CTBTA is delighted to introduce families to the Imaginary Friend Society and to be an Official Distribution Partner for an important series of animated films aimed at explaining treatment experiences in ways that are easy to understand. Each video is hosted by a different friendly creature to provide children with courage and confidence. Topics include "Losing Your Hair," "Feeling Sad," "Chemotherapy," "Returning to School," "What is an MRI," and "Help for Brothers and Sisters." Watch any of these videos right now at https://www.imaginaryfriendsociety.com/films/ and help spread the word about this family resource.

Thank you!
Thank you for joining us at Think Fit For Kids To Benefit A Kids' Brain Tumor Cure, Tiffany Armstrong (on right in photo) and Brittany Shade from Pediatric Brain Tumor Foundation
Calling all Triangle friends!!

The 7th annual Ella's Race less than one month away. This 10K, 5K and 1 mile run/walk in Raleigh benefits the Pediatric Brain Tumor Foundation and The Cure Starts Now. Register today at ellasrace.com - winners get FREE Chick-fil-A for a year!

Looking for a reason to start running or get outside as the weather is getting nicer? Try doing it while giving back to a wonderful cause.
Ella's Race 2018 is in it's 7th year. This 1 mile/5K/10K race gives back to the Pediatric Brain Tumor Foundation and The Cure Starts Now in loving memory of Ella Newmiller.
Join us in the fight against pediatric cancer! “Mason’s 24 Straight” dates are July 29-30, 2018. Call 770.814.0841 or private message us to learn more. Pediatric Brain Tumor Foundation Rally Foundation for Childhood Cancer Research 1 Million 4 Anna Foundation
and the Pediatric Brain Tumor Foundation wish you a wonderful Valentine's Day filled with lots of love!
How far would YOU go to raise awareness for kids' ? How about the summit of Mount Kilimanjaro? Go get 'em, AJ! Pediatric Brain Tumor Foundation
Pediatric Brain Tumor Foundation is creating lovable characters to provide answers, smiles and support for children facing cancer. In honor of , take a look at their films here: http://ow.ly/aaX630ianza
x

Other Atlanta health & beauty businesses (show all)

Ride for Kids - Western Pennsylvania Vaya Health Mes Ami Salon & Boutique Creative Dental Solutions Hair by Brittany Orth Moonflower Psychiatry Asheville Neurology Specialists, PA Mountain Adaptive - Asheville Turbo Lymph Care Asheville Furniture Painters Messino Cancer Centers Prosper Beyond Stephanie Sexton, Mary Kay Independent Beauty Consultant BodyWise Meek Personal Training