NYMAC - New York Mid-Atlantic Caribbean Regional Genetics Network

08/25/2021

Assuring the Delivery of Genetic Services Among People Who Are Medically Underserved in the United States | CDC

FREE Webinar Alert! 💥Mark your calendar for the CDC's upcoming presentation, 'Assuring the Delivery of Genetic Services Among People Who Are Medically Underserved in the United States'.

📆 August 26, 2021, 12pm EDT
✔️ Registration is required

#genomics #genetics #geneticcounseling

The mission of Public Health Genomics is to integrate advances in human genetics into public health research, policy, and programs

08/23/2021

According to the CDC, knowledge of family history can be important in determining a child’s health risks. If a child presents symptoms, family history can help determine a diagnosis or suggest strategies for families to employ to minimize or postpone the onset of certain diseases.
Learn more about how to collect your family's health history and more on our site → www.NYMACGenetics.org

According to the CDC, knowledge of family history can be important in determining a child’s health risks. If a child presents symptoms, family history can help determine a diagnosis or suggest strategies for families to employ to minimize or postpone the onset of certain diseases.
Learn more about how to collect your family's health history and more on our site → www.NYMACGenetics.org

08/21/2021

Living with a genetic condition can impact the daily lives of patients and their families. NYMAC is committed to working across our region to support families in accessing the care and support they need, including genetic evaluation, genetic testing, counseling, peer support, and other services.

Learn more ➡️ www.NYMACGenetics.org

Living with a genetic condition can impact the daily lives of patients and their families. NYMAC is committed to working across our region to support families in accessing the care and support they need, including genetic evaluation, genetic testing, counseling, peer support, and other services.

Learn more ➡️ www.NYMACGenetics.org

08/19/2021

Find a Genetics Clinic

We’ve made finding your nearest genetics clinic the way it should be; fast and easy. By entering your address into our secure site, we’ll show you the closest clinic from our database of 1,337 locations. You can also use our Specialty Area filter to identify the locations that offer the specific care your family needs.
Access care near you with the touch of a button here →

Search for genetics clinics within our regional network using ACMG's Genetics Clinics Database. Our region includes Washington, D.C., Delaware, Maryland, New Jersey, New York, Pennsylvania, Puerto Rico, U.S. Virgin Islands, Virginia, and West Virginia.

08/17/2021

School and Support Resources

Before we know it, classes will be back in session. ✏️Our school and support resources are ready! Whether you’re a parent or an educator, you can get the education and help you need with powerful organizations such as National Association of Special Education Teachers (NASET), GEMSS Genetics Education Materials for School Success, and more, on our website just in time for the new school year.
Learn more ➡️www.NYMACGenetics.org

National Association of Special Education Teachers: Genetics in Special Education Series (naset.org) Genetics Education Support System GESS includes a range of useful genetics themed resources for families, outreach workers, and medical staff. Resources include links to basic information on genetics...

08/16/2021

Did you know that Hemophilia A and B are carried on the X chromosome? In other words, both types affect boys more than girls. However, females can be carriers of the disease. Hemophilia is often detected early in life, with severe cases usually diagnosed within a month after birth and mild cases within the infant’s first 18 months.
Visit our site to find resources on newborn screening and more!
www.NYMACGenetics.org

Did you know that Hemophilia A and B are carried on the X chromosome? In other words, both types affect boys more than girls. However, females can be carriers of the disease. Hemophilia is often detected early in life, with severe cases usually diagnosed within a month after birth and mild cases within the infant’s first 18 months.
Visit our site to find resources on newborn screening and more!
www.NYMACGenetics.org

08/13/2021

What is Cystic Fibrosis? A progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time. People with CF typically have inherited two non-working copies of the CF gene, one copy from each parent. Genetic testing is available.

Visit our website to learn how to access care near you!
➡️ www.NYMACGenetics.org

What is Cystic Fibrosis? A progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time. People with CF typically have inherited two non-working copies of the CF gene, one copy from each parent. Genetic testing is available.

Visit our website to learn how to access care near you!
➡️ www.NYMACGenetics.org

08/09/2021

What is hereditary hemochromatosis (HH)? To put it simply, it's a genetic disease that alters the body's ability to regulate iron absorption. When the body absorbs too much iron, it can be deposited in the cells of the pancreas, heart, liver, joints and pituitary gland. Often passed down through a mutation of the HFE gene, HH can lead to liver cancer, diabetes, cirrhosis of the liver, and other, more severe, diseases.
Need more information? Check out our website for more resources → www.NYMACGenetics.org

What is hereditary hemochromatosis (HH)? To put it simply, it's a genetic disease that alters the body's ability to regulate iron absorption. When the body absorbs too much iron, it can be deposited in the cells of the pancreas, heart, liver, joints and pituitary gland. Often passed down through a mutation of the HFE gene, HH can lead to liver cancer, diabetes, cirrhosis of the liver, and other, more severe, diseases.
Need more information? Check out our website for more resources → www.NYMACGenetics.org

08/05/2021

Home

Are you struggling to find the advocacy and support your family needs? Check out our database with organizations like Genetic Alliance, the world’s leading nonprofit health advocacy organization committed to transforming health through genetics. Their open network connects members of parent and family groups, community organizations, disease-specific advocacy organizations, professional societies, educational institutions, corporations, and government agencies to create novel partnerships.

Visit our site for more advocacy and support resources!
NYMACGenetics.org

Your Resource to Find Genetics Services and Information New York Mid-Atlantic Caribbean Regional Genetics Network Find a Genetics Clinic Who We Are NYMAC The New York Mid-Atlantic Caribbean Regional Genetics Network (NYMAC) is one of seven federally-funded regional genetics networks in the U.S. and....

08/03/2021

Assuring the Delivery of Genetic Services Among People Who Are Medically Underserved in the United States | CDC

FREE Webinar Alert! 💥Mark your calendar for the CDC's upcoming presentation, 'Assuring the Delivery of Genetic Services Among People Who Are Medically Underserved in the United States'.

📆 August 26, 2021, 12pm EDT
✔️ Registration is required

#genomics #genetics #geneticcounseling

The mission of Public Health Genomics is to integrate advances in human genetics into public health research, policy, and programs

08/02/2021

Home

What is Muscular Dystrophy? A group of inherited diseases that weaken and damage your muscles over time. Those with MD may experience symptoms such as trouble walking, loss of reflexes, poor posture, and breathing difficulties. Despite over 30 variations of MD, your healthcare provider can help you find a diagnosis by running only a few tests.

Visit our website to learn how to access care near you!
www.NYMACGenetics.org

Your Resource to Find Genetics Services and Information New York Mid-Atlantic Caribbean Regional Genetics Network Find a Genetics Clinic Who We Are NYMAC The New York Mid-Atlantic Caribbean Regional Genetics Network (NYMAC) is one of seven federally-funded regional genetics networks in the U.S. and....

07/31/2021

Parent Corner

Reading stories from other parents and families is one of the easiest ways to value your mental health in times of stress and doubt! When parents connected with us about having a safe place to share their stories we created 'The Parent Corner', a place to read real-life stories and discover life-changing organizations, such as Ability Advocates, Parent to Parent USA, and The Corbin Story. Our growing list of unique experiences is curated to bring a sense of connection and serve as a reminder that you are not alone.

Have a story to share? We’d love to hear from you!
✉️[email protected]

Inception of the Parent Corner took place at the November meeting of the Consumer Collaborative Network, where parents expressed an interest in having a place to share their stories. We were the proud parents of one extremely active baby girl, a child that was up and moving around in her crib at day...

07/27/2021

Home

Living with a genetic condition can impact the daily lives of patients and their families. NYMAC is committed to working across our region to support families in accessing the care and support they need, including genetic evaluation, genetic testing, counseling, peer support, and other services.

Learn how we can be a resource for you 👉www.NYMACGenetics.org

Your Resource to Find Genetics Services and Information New York Mid-Atlantic Caribbean Regional Genetics Network Find a Genetics Clinic Who We Are NYMAC The New York Mid-Atlantic Caribbean Regional Genetics Network (NYMAC) is one of seven federally-funded regional genetics networks in the U.S. and....

07/26/2021

All Abilities. Limitless Possibilities.

Happy Disability Pride Month! Today marks the 31st anniversary of the Americans with Disabilities Act (ADA) being signed into law! From ensuring equal opportunity to protection from discrimination, the ADA has improved the lives of millions of Americans. To celebrate, you can join @easterseals, a non-profit organization dedicated to those of all abilities with limitless possibilities, for a Virtual Disability Pride Parade by using the hashtag #VirtualDisabilityPride.
Get more details! → http://Easterseals.com
#DisabilityPrideMonth

All Abilities. Limitless Possibilities.

07/23/2021

What is Cystic Fibrosis? A progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time. People with CF typically have inherited two non-working copies of the CF gene, one copy from each parent. Genetic testing is available.

Visit our website to learn how to access care near you!
www.NYMACGenetics.org

What is Cystic Fibrosis? A progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time. People with CF typically have inherited two non-working copies of the CF gene, one copy from each parent. Genetic testing is available.

Visit our website to learn how to access care near you!
www.NYMACGenetics.org

07/17/2021

Home

When it comes to our mission, it couldn’t be more simple. We’re here to...
• Support a regional infrastructure for genetic services
• Provide education and resources to families and providers
• Facilitate the use of telehealth in genetics
Ready to learn more? 📲
Check out our website → www.NYMACGenetics.org

Your Resource to Find Genetics Services and Information New York Mid-Atlantic Caribbean Regional Genetics Network Find a Genetics Clinic Who We Are NYMAC The New York Mid-Atlantic Caribbean Regional Genetics Network (NYMAC) is one of seven federally-funded regional genetics networks in the U.S. and....

07/16/2021

Interested in learning more about autonomic nervous system disorders? Tune in ALL weekend long to Dysautonomia International's 9th Annual Conference which offers educational information for patients, caregivers, medical professionals, and more!

07/05/2021

What is Cystic Fibrosis? A progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time. People with CF typically have inherited two non-working copies of the CF gene, one copy from each parent. Genetic testing is available.

Visit our website to learn how to access care near you!
www.NYMACGenetics.org

What is Cystic Fibrosis? A progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time. People with CF typically have inherited two non-working copies of the CF gene, one copy from each parent. Genetic testing is available.

Visit our website to learn how to access care near you!
www.NYMACGenetics.org

06/30/2021

Did you know??
Yesterday was the First International Neonatal Screening Day!
Read more here:
https://www.isns-neoscreening.org/wp-content/uploads/2021/06/Press-release-INBS-16-June-announcement.pdf

06/25/2021

Happy Rare Chromosome Disorder Awareness Day! It’s our mission to educate and provide for those seeking valuable genetic information. Today, you can get involved with Unique - Rare Chromosome Disorder Support Group, an organization that aims to inform, support, and alleviate the isolation of anyone affected by a rare chromosome or gene disorder. Then, take it a step further by sharing what you’ve learned online!

Find out more ways to get involved on Unique’s website → https://rarechromo.org/rarechromoday/
#RareChromoDay #RareChromo #UniqueNotAlone

Happy Rare Chromosome Disorder Awareness Day! It’s our mission to educate and provide for those seeking valuable genetic information. Today, you can get involved with Unique - Rare Chromosome Disorder Support Group, an organization that aims to inform, support, and alleviate the isolation of anyone affected by a rare chromosome or gene disorder. Then, take it a step further by sharing what you’ve learned online!

Find out more ways to get involved on Unique’s website → https://rarechromo.org/rarechromoday/
#RareChromoDay #RareChromo #UniqueNotAlone

06/19/2021

What is Cystic Fibrosis? A progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time. People with CF typically have inherited two non-working copies of the CF gene, one copy from each parent. Genetic testing is available.

Visit our website to learn how to access care near you!
www.NYMACGenetics.org

What is Cystic Fibrosis? A progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time. People with CF typically have inherited two non-working copies of the CF gene, one copy from each parent. Genetic testing is available.

Visit our website to learn how to access care near you!
www.NYMACGenetics.org

06/17/2021

Struggling to get a diagnosis for yourself or a family member? Sometimes the answers can be found in your genes! At NYMAC, we make it easier for families to connect to the genetic services and information they need.

Explore our Genetics Resources ➡️www.NYMAC.org

Struggling to get a diagnosis for yourself or a family member? Sometimes the answers can be found in your genes! At NYMAC, we make it easier for families to connect to the genetic services and information they need.

Explore our Genetics Resources ➡️www.NYMAC.org

06/15/2021

Providers, looking for a helping hand with telegenetics efforts? We have FREE annual telegenetics training and online modules, plus live webinars to bring you the resources you need. Additionally, through our Telegenetics Community of Practice (TCOP), you can receive email notifications with shared resources, templates, factsheets, and opportunities for collaboration and mentorship.

Find more telegenetics resources on our website 👉https://nymacgenetics.org/providers/telemedicine-and-telegenetics/

Providers, looking for a helping hand with telegenetics efforts? We have FREE annual telegenetics training and online modules, plus live webinars to bring you the resources you need. Additionally, through our Telegenetics Community of Practice (TCOP), you can receive email notifications with shared resources, templates, factsheets, and opportunities for collaboration and mentorship.

Find more telegenetics resources on our website 👉https://nymacgenetics.org/providers/telemedicine-and-telegenetics/

06/14/2021

Home

Living with a genetic condition can impact the daily lives of patients and their families. NYMAC is committed to working across our region to support families in accessing the care and support they need, including genetic evaluation, genetic testing, counseling, peer support, and other services.

Learn how we can be a resource for you 👉www.NYMACGenetics.org

Your Resource to Find Genetics Services and Information New York Mid-Atlantic Caribbean Regional Genetics Network Find a Genetics Clinic Who We Are NYMAC The New York Mid-Atlantic Caribbean Regional Genetics Network (NYMAC) is one of seven federally-funded regional genetics networks in the U.S. and....