07/22/2026
Hi everyone,
I want to provide an update on Aidan.
I know I haven’t posted in almost 3 years!! Life has been quite busy! (Quick update: Aidan graduated last year. He also passed his apprenticeship test to be an electrician, he is just waiting for the interview portion of the hiring process. Our middle son, Sullivan, graduated this year. He started his apprenticeship for Tool and Die and is working full time for a great company. Declan will be starting 8th grade and plays soccer).
This is going to be a long, detailed post. I apologize now, especially since it drives my husband crazy. :-) I just like to keep everyone informed and I don’t know how to do it in a CliffsNotes fashion. lol
This journey began two years ago, pretty much to the day. While last summer's procedures for bile duct drainage were successful, the damage to the smaller ducts deep within Aidan's liver are irreversible. This damage causes fluid to pool and grow bacteria, leading to recurring infections that require heavy antibiotics. These episodes are unfortunately becoming more frequent.
In early February, the medical team determined it was time to re-list Aidan for a liver transplant. He underwent a week of extensive testing and evaluations with a multidisciplinary team. While his initial MELD (Model for End-Stage Liver Disease) score was too low (9 out of 40) for UNOS (United Network for Organ Sharing) to list him, the team presented his case again recently. We are relieved to share that as of several weeks ago, Aidan is officially on the liver transplant list. His MELD score has recently risen from 13 to 15.
A MELD score is solely based on 5 lab values: Total Bilirubin, Albumin, Sodium, Creatinine, and INR. And even though Aidan is very sick, some of the labs are in the normal range, resulting in the low MELD score. Aidan's team did plead his case to UNOS to increase his score, but Aidan didn't meet the criteria.
Because his score is still relatively low, the wait for a deceased donor could be a year or more. Consequently, a living donor remains Aidan's best option. Jeff began testing but was unfortunately ruled out due to his overall small liver capacity, if he were to donate to Aidan, he wouldn’t have enough left to survive. I was then unfortunately ruled out as well, due to my health history. This leaves us to explore all available options.
Hi everyone,
I want to provide an update on Aidan.
I know I haven’t posted much lately; life has been quite overwhelming, and I’ve been doing my best to keep up.
This is going to be a long, detailed post. I apologize now, especially since it drives my husband crazy. :-) I just like to keep everyone informed and I don’t know how to do it in a CliffsNotes fashion. lol
This journey began two years ago, pretty much to the day. While last summer's procedures for bile duct drainage were successful, the damage to the smaller ducts deep within Aidan's liver are irreversible. This damage causes fluid to pool and grow bacteria, leading to recurring infections that require heavy antibiotics. These episodes are unfortunately becoming more frequent.
In early February, the medical team determined it was time to re-list Aidan for a liver transplant. He underwent a week of extensive testing and evaluations with a multidisciplinary team. While his initial MELD (Model for End-Stage Liver Disease) score was too low (9 out of 40) for UNOS (United Network for Organ Sharing) to list him, the team presented his case again recently. We are relieved to share that as of several weeks ago, Aidan is officially on the liver transplant list. His MELD score has recently risen from 13 to 15.
A MELD score is solely based on 5 lab values: Total Bilirubin, Albumin, Sodium, Creatinine, and INR. And even though Aidan is very sick, some of the labs are in the normal range, resulting in the low MELD score. Aidan's team did plead his case to UNOS to increase his score, but Aidan didn't meet the criteria.
Because his score is still relatively low, the wait for a deceased donor could be a year or more. Consequently, a living donor remains Aidan's best option. Jeff began testing but was unfortunately ruled out due to his overall small liver capacity, if he were to donate to Aidan, he wouldn’t have enough left to survive. I was then unfortunately ruled out as well, due to my health history. This leaves us to explore all available options.
If you have ever felt called to consider becoming a living donor, we encourage you to learn more. You can apply (anonymously if you choose) through the Cleveland Clinic at the following link: https://my.clevelandclinic.org/departments/transplant/programs/liver/living-donor-clinic
The application is brief, and a transplant representative will contact you after. The only requirements at this point are the potential candidate must be between 18 and 60 years of age and have a blood type of A or O.
While this brings up a lot of PTSD for Jeff and I, Aidan is excited about this new journey and being able to take his life back again instead of being defined by his illness. And while he tries to keep doing what he loves like working, WW2 reenactments, playing bass guitar and hiking, he is losing his stamina and strength to be as active as he was just six months ago.
Lastly, Jeff’s brother Dave started a GiveSendGo for us to raise money to cover expenses incurred during this long process, please hit the link and/or share it: https://www.givesendgo.com/aidans-army
Whether you can give financially, share Aidan’s story, or simply keep him in your prayers, every act of kindness gives our family renewed strength and reminds us that we are not walking this journey alone.
Please follow Aidan’s medical journey here. Individual messages can be overwhelming, rather than reaching out to Aidan, we will use this page to keep everyone in the loop. This will allow him to focus on his current health and hopefully get out there and live life.
We thank you all for your continued support and concern for Aidan. Your love means the world to us.
Joshua 1:9 Be Strong & of Good Courage.In September 2007, just days after celebrating his first birthday and learning he would soon become a big bro…