When Aladdin was first born they told us outside of eating and sleeping, there wouldn’t be much he could do. They said he would have very low quality life due to the severity of his Schizencephaly (how much brain he had missing) combined with his Hydrocephalus (fluid on the brain) and ACC (missing his part of the brain that lets the right and left communicate)
All 3 of these were working against him.
As soon as we got home. We started therapy 3 times a week. We were told it was gonna be a long road. There was already a plan in place when he graduated from early intervention to have him on a waiting list with a PT and OT for older kids.
Here we are, he is 10 months old. And he just got discharged from therapy today. We went through the checklist today and he has checked off all of the 12 month old things on the list.
I don’t make this post to brag, or to rub it in the faces of families who have had a hard road with their medically complex babies.
I make this post to let you know there is hope. This is nothing other than the hand of God working in Aladdins life. This can’t be explained by doctors, therapists, surgeons, or specialists. Most of all I make this post to bring glory to God.
Your road may be longer, it may be harder, but there is hope. When there is absolutely no way possible, God says “Let me show you what I can do” 💙