Present for You provides compassionate non-medical support for people and families living with serious illness and those at the end of life.
Present for You and Goodwin Hospice are improving end of life care. ❤️
On today’s podcast, we get to the bottom of what exactly is an end-of-life doula. We talk about what they do, how often they are used, and who pays for their work.
https://hospicenews.com/2023/11/16/breaking-down-costs-rois-of-hospice-death-doula-partnerships/
Doulas make a difference in quality of care!
Some hospices that have layered end-of-life doulas (EOLDs) into their workforce are seeing a return on these investments in various forms – including
I’m looking forward to speaking at the 2023 C-TAC-CAPC Leadership Summit in October! I will be speaking about Serious Illness/End of Life Doulas as non-traditional care staff. I hope you can join me in Washington, DC for this unique event bringing together national changemakers working to improve quality of life for people living with a serious illness.
The C-TAC - CAPC Summit 2023 brings leaders from across the country for a face-to-face gathering to empower, inspire, educate and connect as the mission continues. October 23-24, 2023 in Washington, DC. C-TAC - CAPC Summit 2023 will focus on Transforming Care for People Facing Serious Illness.
https://www.newyorker.com/news/the-weekend-essay/the-hidden-harms-of-cpr
The brutal procedure can save lives, but only in particular cases. Why has it become a default treatment?
https://www.psychologytoday.com/us/blog/the-green-goodbye/202308/the-pioneering-work-of-death-doulas
Once, we were all death doulas. Deep down, we still are.
You are not alone❤️
Love this!
https://apple.news/A2WaFs0bjTBWeMS-DhkQjaw
Taryn Smith, a 26-year-old TikToker, was in the shower when she had a funny thought: What if she died in a chicken suit? What happened next represents the way we use social media to mourn.
Oh so true!
Love this.
"The problem in middle life, when the body has reached its climax of power and begins to decline, is to identify yourself, not with the body, which is falling away, but with the consciousness of which it is a vehicle. This is something I learned from myths. What am I? Am I the bulb that carries the light? Or am I the light of which the bulb is a vehicle?
One of the psychological problems in growing old is the fear of death. People resist the door of death. But this body is a vehicle of consciousness, and if you can identify with the consciousness, you can watch this body go like an old car. There goes the fender, there goes the tire, one thing after another— but it’s predictable. And then, gradually, the whole thing drops off, and consciousness, rejoins consciousness. It is no longer in this particular environment."
~Joseph Campbell
From The Power of Myth
https://jcf.org/titles/joseph-campbell-and-the-power-of-myth-with-bill-moyers-book/
Have you thought of it this way?
Lovely!
I counted my years and found that I have less time to live from here on than I have lived up to now.
I feel like that child who won a packet of sweets: he ate the first with pleasure, but when he realized that there were few left, he began to enjoy them intensely.
I no longer have time for endless meetings where statutes, rules, procedures and internal regulations are discussed, knowing that nothing will be achieved.
I no longer have time to support the absurd people who, despite their chronological age, haven't grown up.
My time is too short:
I want the essence,
my soul is in a hurry.
I don't have many sweets
in the package anymore.
I want to live next to human people,
very human,
who know how to laugh at their mistakes,
and who are not inflated by their triumphs,
and who take on their responsibilities.
Thus human dignity is defended and we move towards truth and honesty.
It is the essential that makes life worth living.
I want to surround myself with people who know how to touch hearts, people who have been taught by the hard blows of life to grow with gentle touches of the soul.
Yes, I'm in a hurry, I'm in a hurry to live with the intensity that only maturity can give.
I don't intend to waste any of the leftover sweets.
I am sure they will be delicious, much more than what I have eaten so far.
My goal is to reach the end satisfied
and at peace with my loved ones
and my conscience.
We have two lives.
And the second begins when you realize you only have one.
~Mário Raul de Morais Andrade
(Oct 9, 1893 – Feb 25, 1945)
Brazilian poet, novelist, musicologist, art historian and critic, photographer
https://theconversationproject.org/tcp-blog/anticipatory-grief-giving-a-name-to-the-feeling/
After losing my brother and my mom to cancer, I went on a quest to understand a feeling that I could not name. I was confused about how I could already feel despair when the people I love were still with me. For me, anticipatory grief is that feeling when I know something horrible is going to happen...
Good read! https://www.nextavenue.org/solo-ager-hired-a-death-doula/
I know I need support navigating the complexities of dying and I want to die on my own terms
End of life Doulas as part of the Hospice Team - A win-win-win! Thank you Goodwin Hospice!
https://goodwinliving.org/blog/goodwin-hospice-offers-unique-end-of-life-doula-care/
Goodwin Hospice Offers Unique End-of-Life Doula Care By Erica Sadiq “Sometimes warm air just knows where it’s needed.” –A patient’s son on their family’s Goodwin Hospice end-of-life doula experience For most of us, when we hear someone talk about care provided by a doula, we most likely ...
I unknowingly became a community death-care advocate by comforting and supporting the dying in their final moments.
https://www.youtube.com/watch?v=M4hkIy6J4Tk
Host Ruth Pegeron interviews Jane Euler, End-Of-Life Doula, on end-of-life issues regarding guidance and care for families and individuals living with seriou...
https://www.nytimes.com/2023/02/05/opinion/doctors-universal-health-care.html
The end of medical ideology.
Legacy! Let’s talk about it!
Love stays forever.
August is Make-a-Will month!
https://www.freewill.com/
FreeWill lets you make your last will and testament quick, easy, and completely free. It is a simple online legal will maker that helps you compile will forms to print and sign, or to take as a basic will template to an estate planning lawyer. FreeWill is built alongside will making experts.
Your medical team should be your partner. We can help you advocate for yourself!
The experience of having one’s concerns dismissed by a medical provider, often referred to as medical gaslighting, can happen to anyone. Here are some tips on how to advocate for yourself in a medical setting. https://nyti.ms/3Sa9qZ4
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