Cushings Help Organization, Inc

Cushings Help Organization, Inc Welcome to Cushings Help, Inc. This site provides information, support, RSS feeds, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is a hormonal disorder.
Welcome to Cushings Help, Inc. This site provides information, support, RSS feeds, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is a hormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. This website also deals with Thyroid Disorders, Addison's Disease, Adrenal Disorders, Cushing's Syndrome, Pituitary Disorders, Pituitary disease, Growth Hormone, Pheochromacytomas, Fibromyalgia, Chronic Fatigue Syndrome, Hormone and Gland Disorders, Conn's Disease, Hyperaldosteronism, High Blood Pressure, Hypertension, Diabetes, Sheehan's Syndrome, Men1, Acromegaly, Nelson's Syndrome, PCOS, Arthritis, Bipolar Disorder, Headaches, Autoimmune Diseases, PTU, Cortisol, ACTH, and Thyroid Antibodies
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I'm sharing this image comparing mental illness with physical illness.  The mental illness column could very easily be c...
05/13/2019

I'm sharing this image comparing mental illness with physical illness. The mental illness column could very easily be changed to read Cushing's. :(

Archived Interview. Kathy was diagnosed with a pituitary tumor in 1991. At the time the only symptom she was aware of wa...
05/08/2019
Archived Interview: Kathy C, Pituitary Patient

Archived Interview. Kathy was diagnosed with a pituitary tumor in 1991. At the time the only symptom she was aware of was a severe headache. She had a transsphenoidal resection followed by radiation therapy. They could not remove all of the tumor. https://cushingsbios.com/2019/05/08/archived-interview-kathy-c-pituitary-patient/

Kathy was diagnosed with a pituitary tumor in 1991. At the time the only symptom she was aware of was a severe headache. She had a transsphenoidal resection followed by radiation therapy for 23 day…

Metoclopramide can increase cortisol levels after unilateral adrenalectomy and conceal adrenal insufficiency in bilatera...
05/08/2019
Metoclopramide Can Mask Adrenal Insufficiency After Gland Removal in BMAH Patients

Metoclopramide can increase cortisol levels after unilateral adrenalectomy and conceal adrenal insufficiency in bilateral macronodular adrenal hyperplasia patients...BMAH is a subtype of adrenal Cushing’s, characterized by the formation of nodules... https://cushieblog.com/2019/05/08/metoclopramide-can-mask-adrenal-insufficiency-after-gland-removal-in-bmah-patients/

Metoclopramide, a gastrointestinal medicine, can increase cortisol levels after unilateral adrenalectomy — the surgical removal of one adrenal gland — and conceal adrenal insufficiency in bilateral…

👥 Stanford Pituitary Patient Education Day | The Stanford Pituitary Center invites patients with pituitary disease, t...
05/08/2019
👥 Stanford Pituitary Patient Education Day

👥 Stanford Pituitary Patient Education Day | The Stanford Pituitary Center invites patients with pituitary disease, their family and friends to Stanford's Pituitary Patient Education Day! May 18, 2019https://cushieblogger.com/2019/03/21/stanford-pituitary-patient-education-day/

The Stanford Pituitary Center invites patients with pituitary disease, their family and friends to Stanford’s Pituitary Patient Education Day! May 18, 2019 at the Sheraton Palo Alto Hotel 625…

Comment added to Deborah S, Undiagnosed Bio. I am having the exact same thing (symptoms, test results and Dr. Frustratio...
05/03/2019
Deborah S, Undiagnosed Bio

Comment added to Deborah S, Undiagnosed Bio. I am having the exact same thing (symptoms, test results and Dr. Frustration) and driving myself crazy trying to figure it out. Did you ever get a proper diagnosis?

Read more at https://cushingsbios.com/2016/03/19/deborah-s-undiagnosed-bio/

  Hello all, I do not know where to begin. For many years I have been struggling with these symptoms. I have proximal weakness, intolerance to stress, blood pressure fluctuations, hyperpigment…

In Memory: Kathryn McBride ‘Bridie’ Miller,  Murdered May 1, 2007'Her name is Kathryn Miller and she is a patient of...
05/01/2019
In Memory: Kathryn McBride ‘Bridie’ Miller, May 1, 2007

In Memory: Kathryn McBride ‘Bridie’ Miller, Murdered May 1, 2007

'Her name is Kathryn Miller and she is a patient of Dr. Ludlam, that is how she and I met. She was diagnosed with cushings late last fall and had surgery in December ...'

https://cushingsbios.com/2019/05/01/in-memory-kathryn-mcbride-bridie-miller-2/

From the Message Boards at “My name is Caroline and I dont post often but have met a few of you guys and read the board regularly, it has definitely been a godsend to cushies everywhere. The …

🎤Archived Interview: Robin (staticnrg) and Mary O’Connor (MaryO) Discussed Spreading the Word about Cushing’s | C...
05/01/2019
🎤Archived Interview: Robin (staticnrg) and Mary O’Connor (MaryO) Discussed Spreading the Word about Cushing’s

🎤Archived Interview: Robin (staticnrg) and Mary O’Connor (MaryO) Discussed Spreading the Word about Cushing’s | CushieBlogger https://cushieblogger.com/2019/04/30/archived-interview-robin-staticnrg-and-mary-oconnor-maryo-discussed-spreading-the-word-about-cushings/

  Part 1. Robin and MaryO discussed the role of blogs in helping to spread the word about Cushing’s. They also discussed popular doctor blogs and other topics of interest to Cushing̵…

🦓 For all of my early life, I was the good, compliant, patient.  I took whatever pills the doctor prescribed, did wha...
04/29/2019
🦓 Day 29: Cushing’s Awareness Challenge 2019

🦓 For all of my early life, I was the good, compliant, patient. I took whatever pills the doctor prescribed, did whatever tests h/she (most always a he) wrote for. Believed that whatever he said was the absolute truth. He had been to med school. https://cushieblogger.com/2019/04/29/day-29-cushings-awareness-challenge-2019/

On Becoming Empowered. Adapted from my blog post Participatory Medicine This is kind of a “cheat” post since it’s a compilation of other posts, web pages, message board posts and …

04/28/2019
🎬 VIDEO: ‘Subclinical’ Cushing’s syndrome needs new name

VIDEO. Maria Fleseriu, MD, FACE, professor of neurological surgery and professor of medicine discusses why mild Cushing’s syndrome matters. https://cushieblogger.com/2019/04/28/video-subclinical-cushings-syndrome-needs-new-name/

In this video exclusive, Endocrine Today Editorial Board Member Maria Fleseriu, MD, FACE, professor of neurological surgery and professor of medicine in the division of endocrinology, diabetes and …

A shorter duration of adrenal insufficiency — when the adrenal gland is not working properly — after surgical remova...
04/28/2019
Faster Adrenal Recovery May Predict Cushing’s Disease Recurrence

A shorter duration of adrenal insufficiency — when the adrenal gland is not working properly — after surgical removal of a pituitary tumor may predict recurrence in Cushing’s disease patients, a new study suggests.

Read more at https://cushieblog.com/2019/02/09/faster-adrenal-recovery-may-predict-cushings-disease-recurrence/

A shorter duration of adrenal insufficiency — when the adrenal gland is not working properly — after surgical removal of a pituitary tumor may predict recurrence in Cushing’s disease patients, a ne…

There were no significant changes... moon facies, facial plethora, striae, bruising, supraclavicular fat, irregular mens...
04/27/2019
Novel Therapy Eases Cushing’s Symptoms in Pivotal Trial

There were no significant changes... moon facies, facial plethora, striae, bruising, supraclavicular fat, irregular menstruation, and dysmenorrhea. However, significant improvements after 6 months of therapy were seen in patient-reported quality of life https://cushieblog.com/2019/04/27/novel-therapy-eases-cushings-symptoms-in-pivotal-trial/

by Kristen Monaco, Staff Writer, MedPage Today LOS ANGELES — An investigational therapy improved quality of life and reduced disease symptoms for patients with endogenous Cushing’s synd…

New discoveries offer possible Cushing’s disease cure.  Cushing’s disease is fatal without treatment; the median sur...
04/27/2019
New discoveries offer possible Cushing’s disease cure

New discoveries offer possible Cushing’s disease cure. Cushing’s disease is fatal without treatment; the median survival if uncontrolled is about 4.5 years, Melmed said. https://cushieblog.com/2019/04/27/new-discoveries-offer-possible-cushings-disease-cure/

LOS ANGELES — More than a century has passed since the neurosurgeon and pathologist Harvey Cushing first discovered the disease that would eventually bear his name, but only recently have several k…

Clinical Trial: Endogenous Cushing’s Syndrome Patients Sought for Phase 3 Trial Testing Relacorilant.  A potential tre...
04/26/2019
😷 Clinical Trial: Endogenous Cushing’s Syndrome Patients Sought for Phase 3 Trial Testing Relacorilant

Clinical Trial: Endogenous Cushing’s Syndrome Patients Sought for Phase 3 Trial Testing Relacorilant. A potential treatment for Cushing’s syndrome-related side effects such as high blood pressure and impaired glucose tolerance. https://cushieblogger.com/2019/04/26/clinical-trial-endogenous-cushings-syndrome-patients-sought-for-phase-3-trial-testing-relacorilant/

Corcept Therapeutics is recruiting participants for its Phase 3 clinical trial evaluating relacorilant as a potential treatment for Cushing’s syndrome-related side effects such as high blood pressu…

Can You Help?   I would like to know if anybody has tried CBD oils to lower their cortisol levels? If anybody has tried ...
04/26/2019
❓Can You Help? Newbie Question about CBD Oil

Can You Help? I would like to know if anybody has tried CBD oils to lower their cortisol levels? If anybody has tried them or has any information on there use in this field I would be interested in find...
https://cushieblogger.com/2019/04/26/can-you-help-newbie-question-about-cbd-oil/

This is on the message boards at If you can’t access it, respond here and I’ll share. I would like to know if anybody has tried CBD oils to lower their cortisol levels? I have asked my …

The use of an insulin pump to deliver continuous pulsatile cortisol may be a viable treatment option in patients with se...
04/26/2019
Cortisol Pumps May Be Viable Option to Reduce Adrenal Crisis in Severe Adrenal Insufficiency

The use of an insulin pump to deliver continuous pulsatile cortisol may be a viable treatment option in patients with severe adrenal insufficiency who are unresponsive to oral corticosteroids https://cushieblog.com/2019/04/26/cortisol-pumps-may-be-viable-option-to-reduce-adrenal-crisis-in-severe-adrenal-insufficiency/

The use of an insulin pump to deliver continuous pulsatile cortisol may be a viable treatment option in patients with severe adrenal insufficiency who are unresponsive to oral corticosteroids, acco…

The original image was one a couple males, a couple females and a dog walking/running. No folks in wheelchairs, no older...
04/26/2019
🦓 Day 25: Cushing’s Awareness Challenge 2019

The original image was one a couple males, a couple females and a dog walking/running. No folks in wheelchairs, no older folks and certainly no zebras. It would be nice to have everyone out there walking or running but that’s not real life... https://cushieblogger.com/2019/04/25/day-25-cushings-awareness-challenge-2019/

  I first saw a similar image to this one with the saying Life. Be in it at a recreation center when my son was little. At the time, it was “Duh, of course I’m in it”. The o…

04/22/2019
⁉️ Cushing’s Myths and Facts: “All Cushing’s patients have the exact same symptoms”

Fact: Everyone does NOT have the exact same symptoms. Not all Cushing’s patients are exactly the same. This is one mistake that non experts tend to make in terms of categorizing patients by whether they meet the exact same classic symptoms or not... https://cushieblogger.com/2019/04/20/cushings-myths-and-facts-all-cushings-patients-have-the-exact-same-symptoms/

Myth: “All Cushing’s patients have the exact same symptoms and the level of illness is the same for everyone. If you do not have ALL of the classic symptoms of Cushing’s, then you…

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