Cushings Help Organization, Inc

Cushings Help Organization, Inc Welcome to Cushings Help, Inc. This site provides information, support, RSS feeds, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is a hormonal disorder.
Welcome to Cushings Help, Inc. This site provides information, support, RSS feeds, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is a hormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. This website also deals with Thyroid Disorders, Addison's Disease, Adrenal Disorders, Cushing's Syndrome, Pituitary Disorders, Pituitary disease, Growth Hormone, Pheochromacytomas, Fibromyalgia, Chronic Fatigue Syndrome, Hormone and Gland Disorders, Conn's Disease, Hyperaldosteronism, High Blood Pressure, Hypertension, Diabetes, Sheehan's Syndrome, Men1, Acromegaly, Nelson's Syndrome, PCOS, Arthritis, Bipolar Disorder, Headaches, Autoimmune Diseases, PTU, Cortisol, ACTH, and Thyroid Antibodies
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People with Cushing's disease saw lower lumbar spine bone mineral density, as well as lower trabecular bone scores, asso...
10/27/2019
Rapid-Acting Insulin OK'd for Pump Use; Success for New hGH Deficiency Tx

People with Cushing's disease saw lower lumbar spine bone mineral density, as well as lower trabecular bone scores, associated with insulin resistance and adipose tissue dysfunction. (PLOS One)https://www.medpagetoday.com/endocrinology/generalendocrinology/82940?xid=nl_mpt_AACE_Daily_Newsletter_2019-10-25&eun=g19848127d9r&utm_source=Sailthru&utm_medium=email&utm_campaign=AACEWeekly_102519&utm_term=NL_Partner_AACE_Weekly_Active

News and commentary from the endocrinology world

Guest Question: Legal Assistance for Cushing’s Patients | I certainly cannot afford to pay an attorney, since my income ...
10/26/2019
❓Guest Question: Legal Assistance for Cushing’s Patients

Guest Question: Legal Assistance for Cushing’s Patients | I certainly cannot afford to pay an attorney, since my income is SSD (Disability), which is low and fixed, which has been the case since Cushing’s reared it’s remorseless, destructive head in 2008. https://cushieblogger.com/2019/10/26/guest-question-legal-assistance-for-cushings-patients/

  If you can help, please respond here or on the Message Boards. Thanks! I believe I need legal assistance related to i humane treatment by city and/or county officials. I can explain further…

An investigational once-weekly treatment for growth hormone deficiency, somatrogon, was non-inferior in a phase III tria...
10/26/2019
Rapid-Acting Insulin OK'd for Pump Use; Success for New hGH Deficiency Tx

An investigational once-weekly treatment for growth hormone deficiency, somatrogon, was non-inferior in a phase III trial to daily somatotropin (Genotropin) in pre-pubertal children, said OPKO and Pfizer.y https://www.medpagetoday.com/endocrinology/generalendocrinology/82940?xid=nl_mpt_AACE_Daily_Newsletter_2019-10-25&eun=g19848127d9r&utm_source=Sailthru&utm_medium=email&utm_campaign=AACEWeekly_102519&utm_term=NL_Partner_AACE_Weekly_Active

News and commentary from the endocrinology world

Drat!  I've had 3 in my knee so far.  I've been worried about a Cushing's recurrence.  Maybe I should be worried about o...
10/17/2019
Cortisone injections for hip and knee pain are more dangerous than was thought

Drat! I've had 3 in my knee so far. I've been worried about a Cushing's recurrence. Maybe I should be worried about other issues, too. Cortisone injections for hip and knee pain are more dangerous than was thought https://news.yahoo.com/cortisone-injections-hip-knee-pain-140000134.html

Cortisone injections for hip and knee pain lead to more complications than previously thought, research has found. The anti-inflammatory jabs are used by athletes to mask pain, and to treat symptoms of osteoarthritis. But the study by Boston University School of Medicine found that the treatment cou...

Missing Cookie today and always.  She has left such a legacy that she will go on touching lives for many years to come. ...
10/11/2019
In Memory of Barbara “Cookie” Rothenberg, Oct 11, 2003

Missing Cookie today and always. She has left such a legacy that she will go on touching lives for many years to come. She loved people and wanted to make a difference in the lives of those who suffer from Cushing's. https://cushingsbios.com/2019/10/11/in-memory-of-barbara-cookie-rothenberg-oct-11-2003/

Saturday, Oct 11, 2003 The One and Only Cookie, photo taken by Erin Columbus CUSH meeting, Saturday, October 26, 2002 From the posts on the message boards: My heartfelt prayers and sympathy goes ou…

The Message Boards Turn 19 Today! | Today  is the birthday, or anniversary, of the boards starting September 30, 2000 (T...
09/30/2019
❣️The Message Boards Turn 19 Today! ❣️

The Message Boards Turn 19 Today! | Today is the birthday, or anniversary, of the boards starting September 30, 2000 (The rest of the site started earlier that year on July 21, 2000)https://cushieblogger.com/2019/09/30/the-message-boards-turn-19-today/

    Today is the birthday, or anniversary, of the boards starting September 30, 2000 (The rest of the site started earlier that year on July 21, 2000) As of today, we have 72,796 members…

Cortisol Levels Predict Remission in Cushing’s Patients Undergoing Transsphenoidal Surgery | CushieBlog https://cushiebl...
09/26/2019
Cortisol Levels Predict Remission in Cushing’s Patients Undergoing Transsphenoidal Surgery

Cortisol Levels Predict Remission in Cushing’s Patients Undergoing Transsphenoidal Surgery | CushieBlog https://cushieblog.com/2019/09/25/cortisol-levels-predict-remission-in-cushings-patients-undergoing-transsphenoidal-surgery/

In patients with Cushing’s disease, removing the pituitary tumor via an endoscopic transsphenoidal surgery (TSS) leads to better remission rates than microscopic TSS, according to new research. But…

Patients 60 and older living with Cushing’s disease have lower body mass index, a measure of body fat, and more muscle w...
09/23/2019
Age Makes Difference in Cushing's Disease Symptoms, Outcomes, Study Finds

Patients 60 and older living with Cushing’s disease have lower body mass index, a measure of body fat, and more muscle wasting than patients younger than 60, a study has found. However, the rates of remission following surgery are similar. https://cushingsdiseasenews.com/2018/07/06/age-makes-difference-cushings-disease-symptoms-outcomes-study/

Age matters: Older patients with Cushing’s disease have lower body mass index and more muscle wasting than younger patients, a recent study finds.

Measures of the degree of fat in bone marrow could be a reliable marker of bone health, helping doctors to predict the r...
09/21/2019
Fat in Bone Marrow Ably Marks Cushing's Patients at High Risk of Fractures, Study Says

Measures of the degree of fat in bone marrow could be a reliable marker of bone health, helping doctors to predict the risk of fractures in people with Cushing’s syndrome, https://cushingsdiseasenews.com/2019/08/27/bone-marrow-fat-ably-predicts-bone-fracture-risk-in-cushings-study-says/

A study of verterbral fractures in patients found bone marrow fat a better predictor of bone fragility caused by excess cortisol than bone density.

Ashleigh is from Australia.  She was originally diagnosed with PCOS.  Her main symptoms before pituitary surgery were we...
09/16/2019
Ashleigh, Pituitary Tumor Bio

Ashleigh is from Australia. She was originally diagnosed with PCOS. Her main symptoms before pituitary surgery were weight gain, bright red stretch marks, joint pains, muscle loss and fatigue. https://cushingsbios.com/2019/09/12/ashleigh-pituitary-tumor-bio/

  I’m 28 years old. I had a pituitary tumour removed at the start of this year. My main symptoms were weight gain, bright red stretch marks, joint pains, muscle loss and fatigue. I was o…

Pamela didn’t sign up though, for the rare condition, Cushing Disease, in 2016, which occurs when a noncancerous (benign...
09/12/2019
Cork woman: I overcame two serious illnesses - now I'm doing The Echo Women's Mini Marathon

Pamela didn’t sign up though, for the rare condition, Cushing Disease, in 2016, which occurs when a noncancerous (benign tumour), called an adenoma, forms in the pituitary gland. https://www.echolive.ie/wow/Cork-woman-I-overcame-two-serious-illnesses-now-Im-doing-The-Echo-Womens-Mini-Marathon-ba519178-d1b7-44f0-bf43-728c807b7ce3-ds

A 43-year-old Cork woman, who battled the rare condition Cushing Disease and was then diagnosed with breast cancer, is now back to full health and preparing to take part in The Echo Women’s Mini Marathon, writes CHRIS DUNNE

Patients with a form of Cushing’s syndrome caused by a tumor outside the pituitary gland that produces excess adrenocort...
09/12/2019
Ectopic Cushing's Syndrome Could Be Divided into 2 Groups, Study Says

Patients with a form of Cushing’s syndrome caused by a tumor outside the pituitary gland that produces excess adrenocorticotropic hormone (ACTH) could be classified into two subgroups https://cushingsdiseasenews.com/2018/06/26/ectopic-cushings-syndrome-divided-two-groups-study/

A form of Cushing's syndrome caused by a non-pituitary tumor producing excess ACTH could be classified into two different groups, researchers propose.

Located just beneath the brain, the pituitary gland is sometimes called “the master gland” because it regulates most of ...
09/05/2019
Masters of the Master Gland: Inside MSK’s Multidisciplinary Pituitary and Skull Base Tumor Center

Located just beneath the brain, the pituitary gland is sometimes called “the master gland” because it regulates most of the hormones in the body. Approximately 20% of people have some sort of abnormal growth in this gland... https://www.mskcc.org/blog/masters-master-gland-inside-msk-s-multidisciplinary-pituitary-and-skull-base-tumor

Learn what sets care for pituitary tumors apart from the rest at Memorial Sloan Kettering’s Multidisciplinary Pituitary and Skull Base Tumor Center.

Girl with rare disease says moving to Alabama saved her life. “Within a year from moving here, we have the answers, we h...
09/04/2019
EXCLUSIVE: Decatur girl with rare disease says moving to Alabama saved her life

Girl with rare disease says moving to Alabama saved her life. “Within a year from moving here, we have the answers, we have the treatment,” .. “It turns out she had a tumor in the pituitary gland, and they diagnosed it finally as Cushing’s disease,”. https://www.wsfa.com/2019/09/03/exclusive-decatur-girl-with-rare-disease-says-moving-alabama-saved-her-life/

She was an active athlete who loved playing soccer. For the past five years, she’s suffered from rapid weight gain and constant fatigue.

Cushing’s syndrome driver mutation disrupts protein kinase A allosteric network, altering both regulation and substrate ...
09/02/2019
Cushing’s syndrome driver mutation disrupts protein kinase A allosteric network, altering both regulation and substrate specificity

Cushing’s syndrome driver mutation disrupts protein kinase A allosteric network, altering both regulation and substrate specificity | CushieBlog https://cushieblog.com/2019/09/02/cushings-syndrome-driver-mutation-disrupts-protein-kinase-a-allosteric-network-altering-both-regulation-and-substrate-specificity/

Caitlin Walker1, Yingjie Wang1,2, Cristina Olivieri1, Adak Karamafrooz1, Jordan Casby1, Kerstin Bathon3, Davide Calebiro4,5, Jiali Gao2,6, David A. Bernlohr1, Susan S. Taylor7 and Gianluigi Veglia1…

In Memory: Dr. Edward Hudson Oldfield, September 1, 2017 | Dr. Oldfield was MaryO’s surgeon at the NIH November 3, 1987....
09/02/2019
In Memory: Dr. Edward Hudson Oldfield, September 1, 2017

In Memory: Dr. Edward Hudson Oldfield, September 1, 2017 | Dr. Oldfield was MaryO’s surgeon at the NIH November 3, 1987. This was back in the olden days of transsphenoidal surgery. I honestly expected to die but this man saved my life. https://cushingsbios.com/2019/09/01/in-memory-dr-edward-hudson-oldfield-september-1-2017-2/

Dr. Oldfield was MaryO’s surgeon at the NIH November 3, 1987. This was back in the olden days of transsphenoidal surgery. I honestly expected to die but this man saved my life. Dr. Edward H…

Jennifer P’s Daughter, Undiagnosed Bio | Jennifer is mom to a beautiful 13 year old girl who has struggled with her weig...
08/26/2019
Jennifer P’s Daughter, Undiagnosed Bio

Jennifer P’s Daughter, Undiagnosed Bio | Jennifer is mom to a beautiful 13 year old girl who has struggled with her weight for years. After slowed growth doctor diagnosed her as growth hormone deficient and she has done injections for almost a year. https://cushingsbios.com/2019/08/24/jennifer-ps-daughter-undiagnosed-bio/

  Mom to a beautiful 13 year old girl who has struggled with her weight for years. After slowed growth doctor diagnosed her as growth hormone deficient and she has done injections for almost a…

EvE7070 is from Tucson, Az.USA  She was finally diagnosed with Cushing's in 2015.  She had pituitary surgery and was in ...
08/24/2019
EvE7070, Pituitary Bio

EvE7070 is from Tucson, Az.USA She was finally diagnosed with Cushing's in 2015. She had pituitary surgery and was in remission. At the beginning of 2019 her endo said that Cushing's has returned. https://cushingsbios.com/2019/08/24/eve7070-pituitary-bio/

Hi and good evening new here So im EvE7070 and oh my were do i start. I was finally diagnosed with Cushing’s 2015 To wich i had no clue what it was and how horrible it would change my life. B…

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