Cushings Help Organization, Inc

Cushings Help Organization, Inc Welcome to Cushings Help, Inc. This site provides information, support, RSS feeds, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is a hormonal disorder.
Welcome to Cushings Help, Inc. This site provides information, support, RSS feeds, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is a hormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. This website also deals with Thyroid Disorders, Addison's Disease, Adrenal Disorders, Cushing's Syndrome, Pituitary Disorders, Pituitary disease, Growth Hormone, Pheochromacytomas, Fibromyalgia, Chronic Fatigue Syndrome, Hormone and Gland Disorders, Conn's Disease, Hyperaldosteronism, High Blood Pressure, Hypertension, Diabetes, Sheehan's Syndrome, Men1, Acromegaly, Nelson's Syndrome, PCOS, Arthritis, Bipolar Disorder, Headaches, Autoimmune Diseases, PTU, Cortisol, ACTH, and Thyroid Antibodies
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Comment added to Jessica (JessicaAnn), Undiagnosed Bio | oh my god, I am the exact same way. They are just testing me no...
05/31/2020
Jessica (JessicaAnn), Undiagnosed Bio

Comment added to Jessica (JessicaAnn), Undiagnosed Bio | oh my god, I am the exact same way. They are just testing me now with cushings and while the first test did come back negative after I took the dextromorphisone pill... https://cushingsbios.com/2013/05/04/jessica-jessicaann-undiagnosed-bio/

I’ve been struggling with a lot of health issues for a really long time now, and so far I have been diagnosed with multiple different things only to have the next doctor say the previous one …

🖥 SherryC Cushing’s Slideshow | Cushing’s Help message board member sherryc presented this PowerPoint at Pioneer Pacific...
05/31/2020
🖥 SherryC Cushing’s Slideshow

🖥 SherryC Cushing’s Slideshow | Cushing’s Help message board member sherryc presented this PowerPoint at Pioneer Pacific College in 2017. I am resharing since Sherry recently died. https://cushieblogger.com/2020/05/31/sherryc-cushings-slideshow/

Cushing’s Help message board member sherryc presented this PowerPoint at Pioneer Pacific College in 2017. I am resharing since Sherry recently died. It took a lot of work with her failing me…

In Memory of Sherry Carlson ~ May 30, 2020 | Sherry passed away naturally and peacefully in her sleep. She loved her com...
05/31/2020
In Memory of Sherry Carlson ~ May 30, 2020

In Memory of Sherry Carlson ~ May 30, 2020 | Sherry passed away naturally and peacefully in her sleep. She loved her community and we know how grateful she was to every one of her friends on here for the genuine love and support she’s received.... https://cushingsbios.com/2020/05/31/in-memory-of-sherry-carlson-may-30-2020/

  Sherry passed away this afternoon, naturally and peacefully in her sleep. She loved her community and we know how grateful she was to every one of her friends on here for the genuine love an…

Recordati Rare Diseases, Inc. announced the availability of Isturisa® (osilodrostat) tablets for the treatment of adults...
05/30/2020
Isturisa Now Available for Treatment of Patients With Cushing Disease

Recordati Rare Diseases, Inc. announced the availability of Isturisa® (osilodrostat) tablets for the treatment of adults with Cushing disease for whom pituitary surgery is not an option or has not been curative. https://www.empr.com/home/news/cushing-disease-pituitary-surgery-not-an-option-recordati/

Recordati Rare Diseases, Inc. announced the availability of Isturisa® (osilodrostat) tablets for the treatment of adults with Cushing disease for whom pituitary surgery is not an option or has not been curative.

Clergy Coaching Network
05/20/2020

Clergy Coaching Network

Clergy Coaching Network
05/18/2020

Clergy Coaching Network

❓Can You Help? Looking for Naturopath | A guest on the Cushing’s Help message boards asked:Hi, anyone here able to recom...
05/06/2020
❓Can You Help? Looking for Naturopath

❓Can You Help? Looking for Naturopath | A guest on the Cushing’s Help message boards asked:

Hi, anyone here able to recommend a naturopath who has been successful in getting Cushings under control? https://cushieblogger.com/2020/05/06/can-you-help-looking-for-naturopath/

A guest on the Cushing’s Help message boards asked: Hi, anyone here able to recommend a naturopath who has been successful in getting Cushings under control? Thanks! Please comment here and I…

🦓 This is a tough one.  Sometimes I’m in “why me” mode.  Why Cushing’s?  Why cancer?  Unfortunately, there’s not a thing...
04/26/2020
🦓 Day 22, Cushing’s Awareness Challenge 2020

🦓 This is a tough one. Sometimes I’m in “why me” mode. Why Cushing’s? Why cancer? Unfortunately, there’s not a thing I can do about either. Cushing’s, who knows the risk factors? https://cushieblogger.com/2020/04/22/day-22-cushings-awareness-challenge-2020/

    This is a tough one. Sometimes I’m in “why me” mode. Why Cushing’s? Why cancer? Unfortunately, there’s not a thing I can do about either. Cushing…

🦓 And today, we talk about pink jeeps and ziplines…How in the world did we get here in a Cushing’s Challenge?  I’m slidi...
04/26/2020
🦓 Day 20, Cushing’s Awareness Challenge 2020

🦓 And today, we talk about pink jeeps and ziplines…How in the world did we get here in a Cushing’s Challenge? I’m sliding these in because earlier I linked (possibly!) my growth hormone use as a cause of my cancer – and I took the GH due to Cushing’s. https://cushieblogger.com/2020/04/20/day-20-cushings-awareness-challenge-2020/

And today, we talk about pink jeeps and ziplines… How in the world did we get here in a Cushing’s Challenge? I’m sliding these in because earlier I linked (possibly!) my growth h…

SCAM ALERT: Police are warning cell phone users of a new text message scam during the coronavirus pandemic, saying it co...
04/16/2020
'DO NOT click the link'; Police warn of scam COVID-19 text messages

SCAM ALERT: Police are warning cell phone users of a new text message scam during the coronavirus pandemic, saying it could be a phishing scam to get your personal information.

THOMASTON, Me. (WSET) -- Police are warning cell phone users of a new text message scam during the coronavirus pandemic. The Thomaston Police Department in Maine posted on Facebook a photo of the alert being sent to people in a text message. The message was sent to someone in Maine from an Indiana a...

🌝Day 7, Cushing’s Awareness Challenge 2020 | On Becoming Empowered. Adapted from my blog post Participatory Medicine. Th...
04/12/2020

🌝Day 7, Cushing’s Awareness Challenge 2020 | On Becoming Empowered. Adapted from my blog post Participatory Medicine. This is kind of a “cheat” post since it’s a compilation of other posts, web pages, message board posts and some original thoughts. I wrote it to submit to Robin’s Grand Rounds, hosted on her blog. https://cushieblogger.com/2020/04/07/day-7-cushings-awareness-challenge-2020/

🌝Day 5, Cushing’s Awareness Challenge 2020 | In Day 9 on April 9, 2015, I wrote about how we got the Cushing’s colors of...
04/10/2020
🌝Day 5, Cushing’s Awareness Challenge 2020

🌝Day 5, Cushing’s Awareness Challenge 2020 | In Day 9 on April 9, 2015, I wrote about how we got the Cushing’s colors of blue and yellow. This post is going to be about the first Cushing’s ribbons. https://cushieblogger.com/2020/04/05/day-5-cushings-awareness-challenge-2020/

In Day 9 on April 9, 2015, I wrote about how we got the Cushing’s colors of blue and yellow. This post is going to be about the first Cushing’s ribbons. I was on vacation in September…

🌝Day 4, Cushing’s Awareness Challenge 2020 | “Give yourself, your condition, or your health focus a mascot. Is it a real...
04/09/2020
🌝Day 4, Cushing’s Awareness Challenge 2020

🌝Day 4, Cushing’s Awareness Challenge 2020 | “Give yourself, your condition, or your health focus a mascot. Is it a real person? Fictional? Mythical being? Describe them. Bonus points if you provide a visual!”

Our “Official mascot” is the zebra. https://cushieblogger.com/2020/04/04/day-4-cushings-awareness-challenge-2020/

This is one of the suggestions from the Cushing’s Awareness Challenge post: “Give yourself, your condition, or your health focus a mascot. Is it a real person? Fictional? Mythical being…

🌝Day 3: Cushing’s Awareness Challenge 2020 | Sleep.  Naps.  Fatigue, Exhaustion.  I still have them all.  I wrote on my ...
04/09/2020
🌝Day 3: Cushing’s Awareness Challenge 2020

🌝Day 3: Cushing’s Awareness Challenge 2020 | Sleep. Naps. Fatigue, Exhaustion. I still have them all. I wrote on my bio in 1987 after my pituitary surgery “I am still and always tired and need a nap most days. I do not, however,...” https://cushieblogger.com/2020/04/03/day-3-cushings-awareness-challenge-2020/

  Sleep. Naps. Fatigue, Exhaustion. I still have them all. I wrote on my bio in 1987 after my pituitary surgery “I am still and always tired and need a nap most days. I do not, however, st…

Patients With Cushing Have New Nonsurgical Treatment Option | Osilodrostat (Isturisa) is the first FDA approved drug who...
04/08/2020
Patients With Cushing Have New Nonsurgical Treatment Option

Patients With Cushing Have New Nonsurgical Treatment Option | Osilodrostat (Isturisa) is the first FDA approved drug who either can’t undergo pituitary gland surgery or have undergone the surgery but still have the disease. https://cushieblog.com/2020/04/08/patients-with-cushing-have-new-nonsurgical-treatment-option/

Cushing syndrome, a rare endocrine disorder caused by abnormally excessive amounts of the hormone cortisol, has a new pharmaceutical treatment to treat cortisol overproduction. Osilodrostat (Isturi…

🦓From a Past Blogging Challenge ~ Sleep, the Goldilocks and the Three bears of Cushing’s Disease | CushieBlogger https:/...
04/08/2020
🦓From a Past Blogging Challenge ~ Sleep, the Goldilocks and the Three bears of Cushing’s Disease

🦓From a Past Blogging Challenge ~ Sleep, the Goldilocks and the Three bears of Cushing’s Disease | CushieBlogger https://cushieblogger.com/2020/04/03/from-a-past-blogging-challenge-sleep-the-goldilocks-and-the-three-bears-of-cushings-disease-3/

  Read the whole article at Insomnia was one of the first things that troubled me enough to try to get help for with Cushing’s Disease. By my last year in music school, I had flipped my sche…

🎤 Archived Cushing’s Awareness Day Archived Voice Chat! | Listen as Jayne and staticnrg hosted a Cushing’s Awareness Day...
04/08/2020
🎤 Archived Cushing’s Awareness Day Archived Voice Chat!

🎤 Archived Cushing’s Awareness Day Archived Voice Chat! | Listen as Jayne and staticnrg hosted a Cushing’s Awareness Day Special Chat a few years ago. This chat had callers and some testimonials for the website https://cushieblogger.com/2020/04/08/archived-cushings-awareness-day-archived-voice-chat/

Listen as Jayne Kerns and Robin Smith (staticnrg) hosted a Cushing’s Awareness Day Special Chat a few years ago. This chat had callers and some testimonials for the website and Mary O’C…

🌝 Day 8, Cushing’s Awareness Challenge 2020 | Today  is Cushing’s Awareness Day. Wear your Cushing’s ribbons, t-shirts, ...
04/08/2020
🌝 Day 8, Cushing’s Awareness Challenge 2020

🌝 Day 8, Cushing’s Awareness Challenge 2020 | Today is Cushing’s Awareness Day. Wear your Cushing’s ribbons, t-shirts, awareness bracelets or Cushing’s colors (blue and yellow). Any day is a good day to raise awareness. https://cushieblogger.com/2020/04/08/day-8-cushings-awareness-challenge-2020/

It’s Here! Dr. Cushing was born in Cleveland Ohio. The fourth generation in his family to become a physician, he showed great promise at Harvard Medical School and in his residency at Johns H…

🌝 Day 2, Cushing’s Awareness Challenge 2020 | So, these are only seven of the many, many symptoms of Cushing’s.  I had t...
04/07/2020
🌝 Day 2, Cushing’s Awareness Challenge 2020

🌝 Day 2, Cushing’s Awareness Challenge 2020 | So, these are only seven of the many, many symptoms of Cushing’s. I had those above – and I often felt like I looked like one of those little bearded dwarves. https://cushieblogger.com/2020/04/02/day-2-cushings-awareness-challenge-2020/

So, these are only seven of the many, many symptoms of Cushing’s. I had those above – and I often felt like I looked like one of those little bearded dwarves. Cushing’s affects e…

🌝 Day 1: Cushing’s Awareness Challenge 2020 | How fitting that this challenge should begin on April Fool’s Day.  So much...
04/07/2020
🌝 Day 1: Cushing’s Awareness Challenge 2020

🌝 Day 1: Cushing’s Awareness Challenge 2020 | How fitting that this challenge should begin on April Fool’s Day. So much of Cushing’s Syndrome/Disease makes us Cushies seem like we’re the April Fool... https://cushieblogger.com/2020/04/01/day-1-cushings-awareness-challenge-2020/

April is always Cushing’s Awareness Challenge month because Dr. Harvey Cushing was born on April 8th, 1869. Thanks to Robin for this wonderful past logo! I’ve participated in these 30 …

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Comments

Please can anyone help me I have been trying to book an appt with Dr Friedman tele conference everything goes fine until the payment I see credit card I tried that then I tried paypal I am desperate and that date is so special to me and its a sign that I would be so sad if I lose it I called on the phone emailed. Asked my husband and son to help Can anyone rescue me on here? Thanks Hey guys emergency over here 911 I cannot lose this appt in CA with him I just can't🙏🦓😢😲 HELP ME! HELP ME! SOS! SOS! Come on my people I need you now I am having a panic attack and freaking out if I lose this one appt
Hi All: I have a video about Cushing's on YouTube titled: Is it obesity or Cushing's? I target people who may have Cushing's but have never heard of it. The not knowing is the hardest. You feel so alone. I need your help to share this video with your family and friends and ask them to share it with their family and friends. WE can make a difference. Let's turn this Zebra into a horse. On YouTube in the search bar type in: Is it obesity or Cushing's?
I posted a video about Cushing's on YouTube titled: Is it obesity or Cushing's? I'm targeting people who are sick with Cushing's but don't know what it is. That for me was the worst. I felt so alone, doubting myself with no support. Doctors are taught if they hear hoofbeats think horse not Zebra. But Cushing's is rare so it gets overlooked. Let's share my video to turn this Zebra into a Horse. WE can do it.
Does anyone ever get their cortisol saliva test results? I don't understand why every time I do the saliva tests the doctor gets the results but they never show up on my portal Confused?
Manage Posts List ViewGrid View Lori Sonek H is feeling stressed. 9 mins · I feel like a complete fool right now I did my 3T MRI of pituitary tumor with & without contrast however they don't do the pituitary protocol there. I should have trusted my intuition & cancelled the appt. I went to the same place in 2015 for an MRI in a 1.5T machine with & without contrast & it came back completely normal. However I have 33 yrs worth of MRI's that state otherwise. I was so hoping that by taking a chance & showing them my prior CD's showing the tumor in the past they would be able to find something but I don't think this place could find a tumor if it was the size of a watermelon. I just want to cry now I feel so defeated & deflated since I should have followed my gut instincts & cancelled the MRI. Today I am doing my 24 hour urine cortisol test & I don't think I will find my way out of the forest. There is not one endocrinologist that knows anything about pituitary tumors & Cushings disease I am trying so hard but dealing with doctor's that are so uninformed just makes my stress level go through the roof. God help me figure this all out & give me strength. Just another let down once again & I don't know how much more of this I can deal with.
Hi all! I am a cushing’s survivor!!! More like warrior... it is definitely a battle! I had my adrenal tumor removed (left adrenalectomy)dec 12, 2018... I am finally (already) going to have an ACTH stimulation test done 5/21... I am currently on 2.5 mg hydrocortisone in the am and 2.5 pm... I am nervous to switch over to dexamethasone for the test. Has anyone experienced any withdrawl symptoms when switching over? How many days prior to the test did you switch medications? I sent an email to my doctor, still waiting to hear back. Thanks!
So I'm being tested for Cushing's starting tomorrow....24 hour pee test....So if I test positive what's next?
You are not alone.
Dr. Friedman patients in Houston, which lab do you use, please?
Hello.... would a neuroendocrinologist be needed or just a standard endocrinologist to work with me in getting a diagnosis? I've been with 3 different endos in the past year and no one can diagnose me. I do have a 9x6mm pituitary adenoma, which is quite large from what I am reading... but my endos keep thinking it is simply psuedo-cushings from stress. I am diagnosed with a severe anxiety disorder from my psychiatrist, but I am highly functioning, but I do take on a lot of stress and it eats at me. I am so lost at this point. I have the moon-face, buffalo hump, striae, aches and pains, occasional severe stomach issues - but they tell me that could be from cortisol, but NOT from the pituitary tumor, but from psychological problems. My cortisol levels mostly come back normal with the exception of a few, and all my other tests such as ACTH, prolactin, growth hormone, etc.... they all come back fine, so I am very confused as to what to think anymore. Should I see a neuroendocrinologist? Thank You, Adam
Hello everyone, I was wondering if there are any local chapters or groups for endogenous cushing's patients here in the South Florida area? Primarily Fort Lauderdale/Miami but anything locally is okay too.
Me @ 2001. I call this picture "Buffalo Woman." Please keep the faith. Merry Christmas! Melinda from Atlanta.