Cushings Help Organization, Inc

Cushings Help Organization, Inc Welcome to Cushings Help, Inc. This site provides information, support, RSS feeds, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is a hormonal disorder.
Welcome to Cushings Help, Inc. This site provides information, support, RSS feeds, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is a hormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. This website also deals with Thyroid Disorders, Addison's Disease, Adrenal Disorders, Cushing's Syndrome, Pituitary Disorders, Pituitary disease, Growth Hormone, Pheochromacytomas, Fibromyalgia, Chronic Fatigue Syndrome, Hormone and Gland Disorders, Conn's Disease, Hyperaldosteronism, High Blood Pressure, Hypertension, Diabetes, Sheehan's Syndrome, Men1, Acromegaly, Nelson's Syndrome, PCOS, Arthritis, Bipolar Disorder, Headaches, Autoimmune Diseases, PTU, Cortisol, ACTH, and Thyroid Antibodies
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Stefanie is from Michigan She was diagnosed in 2012 and had pituitary surgery in 2013. She is currently on medications.R...
01/12/2019
Stefanie, Pituitary Bio

Stefanie is from Michigan She was diagnosed in 2012 and had pituitary surgery in 2013. She is currently on medications.

Read more at https://goo.gl/nMxBUH

I was diagnosed 2012 and had pituitary surgery done 2013. I am currently on medications. I’m curious to talk with other Cushings patients. I don’t know anyone with the disease and have actually nev…

13th Annual Conference for Adults with Endocrine Disorders in Partnership with Barrow Neurological Institute Pituitary C...
01/12/2019
13th Annual Conference for Adults with Endocrine Disorder

13th Annual Conference for Adults with Endocrine Disorders in Partnership with Barrow Neurological Institute Pituitary Center February 28th, 2019 - March 3rd, 2019 in Phoenix, Arizona

More information at https://goo.gl/urjCtd

  13th Annual Conference for Adults with Endocrine Disorders in Partnership with Barrow Neurological Institute Pituitary Center February 28th, 2019 – March 3rd, 2019 Phoenix, Arizona Sch…

01/11/2019
Nicola C (Nikkikicks), Undiagnosed Bio

✍️ Nicola C (Nikkikicks), Undiagnosed Bio https://goo.gl/vwZYSE #cushingshelp #cushingshelpand support

  Hi my name is Nicola and I’ve been sick since October of 2017. I kept gaining weight around my face and lower belly despite not eating due to a horrible flu and sinus infection type s…

...I saw doctor Yuen at Swedish as well and many more doctors as well. I have never got my case or my symptoms solved. O...
01/10/2019
Nicole, Undiagnosed Bio

...I saw doctor Yuen at Swedish as well and many more doctors as well. I have never got my case or my symptoms solved. Over 4 years of doctors and testing. They found I had a pituitary tumor and mildly high cortisol in my 24 hour Urine test with... https://goo.gl/fihyyw

My name is Nicole, currently 19 years old. I’m a student at The Juilliard School in New York studying Dance. I don’t know why it’s taken me so long to reach out to this community,…

01/10/2019
Nicola C (Nikkikicks), Undiagnosed Bio

Nicola C (Nikkikicks), Undiagnosed Bio Nicola is from Denver, Colorado She was in a car accident in 7/17 and had prednisone. That is when her symptoms started.

Read more at https://goo.gl/vwZYSE

  Hi my name is Nicola and I’ve been sick since October of 2017. I kept gaining weight around my face and lower belly despite not eating due to a horrible flu and sinus infection type s…

Comment added to Brian R, MENS Bio. ..In February it will be 6 years since I’ve had my pituitary surgery. My health is...
01/09/2019

Comment added to Brian R, MENS Bio. ..In February it will be 6 years since I’ve had my pituitary surgery. My health is constantly up and down as well. I was just wondering if you’re treated for depression or anxiety at all? ..More at https://goo.gl/zNh3tU

01/07/2019
💉 Helpful Doctors: New Jersey

💉 New Helpful Doctor added to New Jersey https://goo.gl/hEty7E #cushingshelp #cushingshelpand support

James K. Liu, MD Professor of Neurosurgery Director of Skull Base and Pituitary Surgery Rutgers University, New Jersey Medical School RWJ Barnabas Health Dr. James K. Liu is the Director of Cerebro…

In Memory: Lori HoltDuring the first few days of September 2007, Lori had surgery to remove her adrenal gland.She experi...
01/06/2019
In Memory: Lori Holt

In Memory: Lori Holt

During the first few days of September 2007, Lori had surgery to remove her adrenal gland.
She experienced extreme difficulty post surgery and never recovered.

Read more at https://goo.gl/wUiBfC

  Sunday, January 6, 2008 Lori’s sister-in-law wrote: “I am Kimberly, sister-in-law to Lori from Monmouth IL. During the first few days of September 2007, Lori had surgery to remov…

In Memory: Jill's Father January 5, 2005Jill wrote: '...Day 2 following surgery the hospital neglected to give him his s...
01/06/2019
In Memory: Jill’s Father January 5, 2005

In Memory: Jill's Father January 5, 2005

Jill wrote: '...Day 2 following surgery the hospital neglected to give him his steriods for his Addison's for 22 hours, which they were completely aware that he had...'

Read more at https://goo.gl/K1rFAj

Jill’s Father January 5, 2005 Jill wrote: “In December 2004 my dad who had addison’s for over 30 years had a triple bypass surgery 6 days before Christmas. The surgery was an amaz…

In Memory January 5, 2005Jill wrote: 'Day 2 following surgery the hospital neglected to give him his steriods for his Ad...
01/05/2019
In Memory: Jill’s Father January 5, 2005

In Memory January 5, 2005

Jill wrote: 'Day 2 following surgery the hospital neglected to give him his steriods for his Addison's for 22 hours, which they were completely aware that he had...'

https://goo.gl/K1rFAjry

Jill’s Father January 5, 2005 Jill wrote: “In December 2004 my dad who had addison’s for over 30 years had a triple bypass surgery 6 days before Christmas. The surgery was an amaz…

A man with Cushing’s disease  (caused by an adrenocorticotrophic hormone (ACTH)-secreting pituitary adenoma) who later...
01/05/2019
Metastatic Pituitary Carcinoma Successfully Treated with Radiation, Chemo.

A man with Cushing’s disease (caused by an adrenocorticotrophic hormone (ACTH)-secreting pituitary adenoma) who later developed metastases in the central nervous system without Cushing’s recurrence, was successfully treated over eight years.. https://goo.gl/gmP8rS

A man with Cushing’s disease — caused by an adrenocorticotrophic hormone (ACTH)-secreting pituitary adenoma — who later developed metastases in the central nervous system without Cushing’s recurren…

Webinar on prolactinomas: Learning Objectives:To understand the medical therapies for prolactinomasTo understand the rol...
01/04/2019
📞 Webinar: Treatment Strategies for Prolactinomas

Webinar on prolactinomas: Learning Objectives:
To understand the medical therapies for prolactinomas
To understand the roles of surgery for prolactinomas
To understand the roles of radiation for prolactinomas
https://goo.gl/gGU8KC

Presented by: James K. Liu, MD Professor of Neurosurgery Director of Skull Base and Pituitary Surgery Rutgers University, New Jersey Medical School RWJ Barnabas Health After registering you will re…

✍️ Caryl, Undiagnosed Bio  https://goo.gl/pF5ZxH #cushings #cushingshelpand support
01/01/2019
Caryl, Undiagnosed Bio

✍️ Caryl, Undiagnosed Bio https://goo.gl/pF5ZxH #cushings #cushingshelpand support

Hello! I’m 24 years old and I think I’m starting to have the initial symptoms of Cushing’s, albeit not that florid. It starting last year in late 2017 when I am 100% certain that my face is getting…

Caryl, Undiagnosed BioCaryl is from Philippines.  She is not yet diagnosed with Cushing's but her OB-GYN told her she ha...
12/31/2018
Caryl, Undiagnosed Bio

Caryl, Undiagnosed Bio

Caryl is from Philippines. She is not yet diagnosed with Cushing's but her OB-GYN told her she has PCOS. She has several other Cushing's symptoms.

Read more at https://goo.gl/pF5ZxH

Hello! I’m 24 years old and I think I’m starting to have the initial symptoms of Cushing’s, albeit not that florid. It starting last year in late 2017 when I am 100% certain that my face is getting…

There are three main questions to answer to determine if a patient has Cushing's syndrome: https://goo.gl/zuqABT
12/30/2018

There are three main questions to answer to determine if a patient has Cushing's syndrome: https://goo.gl/zuqABT

12/30/2018
Angie (Angie), Pituitary Bio

Angie is from Alamo. Her Endo tested her and within 6 months they were positive for Cushing's. She had surgery on her pituitary gland April 11, 2017. The endo at the hospital said that the surgery was unsuccessful.

Read more at https://goo.gl/kcCGKb

My name is Angie. I went to the Dr. in about Sept. of 2014 and was diagnosed with diabetes. I hadn’t seen my primary care Dr. in awhile due to her being out on pregnancy leave. She was there …

Support Needs of Patients with Cushing’s Disease and Cushing’s Syndrome: Results of a Survey Conducted in Germany an...
12/30/2018
Support Needs of Patients with Cushing’s Disease and Cushing’s Syndrome: Results of a Survey Conducted in Germany and the USA

Support Needs of Patients with Cushing’s Disease and Cushing’s Syndrome: Results of a Survey Conducted in Germany and the USA https://goo.gl/qNnrpu

Background. Cushing’s disease (CD) and Cushing’s syndrome (CS) are chronic illnesses, characterized by symptoms of prolonged hypercortisolism, which often changes to hypocortisolism after successful treatment. In view of the high disease burden of CD/CS patients and long-term impaired quality of...

12/30/2018
Rachel, Undiagnosed Bio

Comment added to Rachel, Undiagnosed Bio. Hi Rachel, I’m 27 and share very similar symptoms with you. I luckily have a great primary care doc who I can talk to about this during my next appt. I’d love to compare notes! Read the bio at https://goo.gl/AZHfoA

  Hello, my name is Rachel, and I am 31, will be 32 in 2 weeks. I have been suffering from this medical condition, which I believe to be Cushing’s Syndrome, Adrenal Fatigue, or Pheochromocytom…

A 42-year-old woman who presented to hospital with acute vision loss in her right eye was diagnosed with a benign tumour...
12/29/2018
Vision Loss The First Sign Of Adrenal Tumour In 42-Year-Old Patient

A 42-year-old woman who presented to hospital with acute vision loss in her right eye was diagnosed with a benign tumour in her adrenal gland.

Read more at https://goo.gl/LvwnRF

A 42-year-old woman who presented to hospital with acute vision loss in her right eye was diagnosed with a benign tumour in her adrenal gland. Writing in BMJ Case Reports, clinicians described how …

Comment added to Diana M (dbear12003), Adrenal BioThis could be me! I need to talk to the person who wrote this. We have...
12/22/2018
Diana M (dbear12003), Adrenal Bio

Comment added to Diana M (dbear12003), Adrenal Bio

This could be me! I need to talk to the person who wrote this. We have so much in common! We need to chat,

Read the original bio at https://goo.gl/9bz7UR

  I’m so tired I think about giving up on finding out why I’m so sick. I’m just so tired. But I won’t give up I believe these symptoms are at their beginning stages of …

✍️  Comment added to Ashley D, Possible Familial Cushing's Bio  https://goo.gl/3TkeKu #cushingshelp #cushingshelpand...
12/16/2018
Ashley D, Possible Familial Cushing’s Bio

✍️ Comment added to Ashley D, Possible Familial Cushing's Bio https://goo.gl/3TkeKu #cushingshelp #cushingshelpand support

Hi all, I am Ashley. My mother has Cushing’s and I have just found out I have high cortisol levels. I am nervous about this but if my mother can make it through this so can I. I am 30 years o…

✍️ Brian R, MENS Bio  https://goo.gl/zNh3tU #cushingshelp #cushingshelpand support
12/16/2018
Brian R, MENS Bio

✍️ Brian R, MENS Bio https://goo.gl/zNh3tU #cushingshelp #cushingshelpand support

  I became sick July 2014, August my family physician sent me for blood tests etc. by September, I saw thyroid surgeon, had CT and MRI of head throat area. I went to local hospital for the tes…

Brian is from Pendleton, IN  He had thyroid surgery in October 2015 and a second in December 2015.  He also has had pitu...
12/15/2018
Brian R, MENS Bio

Brian is from Pendleton, IN He had thyroid surgery in October 2015 and a second in December 2015. He also has had pituitary surgery. In July 2018 blood tests confirmed his Cushing's is back.

Read his bio at https://goo.gl/zNh3tU

  I became sick July 2014, August my family physician sent me for blood tests etc. by September, I saw thyroid surgeon, had CT and MRI of head throat area. I went to local hospital for the tes…

Transsphenoidal surgery remains the mainstay therapy for CD in pediatric patients as well as adults. It is an effective ...
12/15/2018
Neurosurgical treatment of Cushing disease in pediatric patients: case series and review of literature

Transsphenoidal surgery remains the mainstay therapy for CD in pediatric patients as well as adults. It is an effective treatment option with low rate of complications.. https://goo.gl/jUkKA2

Childs Nerv Syst. 2018 Nov 28. doi: 10.1007/s00381-018-4013-5. [Epub ahead of print] Gazioglu N1, Canaz H2, Camlar M3, Tanrıöver N4, Kocer N5, Islak C5, Evliyaoglu O6, Ercan O6. Author information …

Neurosurgical treatment of Cushing disease in pediatric patients: case series and review of literature https://goo.gl/oG...
12/14/2018
Neurosurgical treatment of Cushing disease in pediatric patients: case series and review of literature

Neurosurgical treatment of Cushing disease in pediatric patients: case series and review of literature https://goo.gl/oGtU5t #cushings

Childs Nerv Syst. 2018 Nov 28. doi: 10.1007/s00381-018-4013-5. [Epub ahead of print] Gazioglu N1, Canaz H2, Camlar M3, Tanrıöver N4, Kocer N5, Islak C5, Evliyaoglu O6, Ercan O6. Author information Abstract AIM: Pituitary adenomas are rare in childhood in contrast with adults. Adrenocorticotropic ....

12/13/2018
Myth: It is MY fault that I got Cushing’s…

Myth: “It is MY fault that I got Cushing’s. I did something wrong that caused me to be sick! Fact: This is a very controversial topic because we don’t like to talk about it. However, many people struggle with this myth.

Read more at https://goo.gl/SPthiu

Myth: “It is MY fault that I got Cushing’s. I did something wrong that caused me to be sick! If I would have just done XYZ, this would not be happening to me!” Fact: This is a ver…

12/12/2018
💉 Helpful Doctors: Pennsylvania

New helpful endocrinologist specializing in Cushing's added to Pennsylvania.#cushings https://goo.gl/LMjdWw

  Dr. Julia Kharlip Hospital of University of Pennsylvania Spruce St Philadelphia, PA Endocrinologist specializing in Cushing’s   HOME | Sitemap | Abbreviations | Adrenal Crisis! | …

HSA warns people not to purchase three health products in Singapore including Pil Raja Urat Asli, XXS xtraxtrasmall and ...
12/01/2018
HSA warns people not to purchase three health products in Singapore

HSA warns people not to purchase three health products in Singapore including Pil Raja Urat Asli, XXS xtraxtrasmall and Best Nutrition Products Diabotica 500mg Capsules. An elderly male was hospitalised due to the development of Cushing’s syndrome.https://goo.gl/iUsySJ

Health Sciences Authority (HSA) of Singapore has alerted people about three health products in which potent undeclared ingredients were detected, one of which led to the hospitalisation of an elderly man.

Millie Niss died from complications from Swine Flu.  She was only 36. She developed  the H1N1 virus and spent 29 days in...
11/29/2018
In Memory: Millie Niss ~ 1973-2009

Millie Niss died from complications from Swine Flu. She was only 36. She developed the H1N1 virus and spent 29 days in the ICU before dying of complications of the flu, compounded by Behcet’s and Cushing's. https://goo.gl/VEsjdt

Millie is the first Cushing’s patient that I know of to have died from complications from Swine Flu. She was only 36 – how sad. Millie Niss (1973-2009) We were saddened this past week to learn of …

11/27/2018
Mak M, Pituitary Bio

Mak is from California She has been having a really rough couple years with a multitude of symptoms. A 6mm microadenoma was found on her pituitary gland.
Read her bio at https://goo.gl/s333XC

  My name is Makena, I’m a 20 year old in California recently diagnosed with Cushings. I have been having a really rough couple years with a multitude of symptoms. I have been suffering from s…

✍️ Louise, Adrenal Bio  https://goo.gl/2yq5zR #cushings #cushingshelpand support
11/25/2018
Louise, Adrenal Bio

✍️ Louise, Adrenal Bio https://goo.gl/2yq5zR #cushings #cushingshelpand support

  Newly diagnosed upon incidental finding on CT related to abd pain. Just want these adrenals out, but I fear the recovery. I don’t know which is worse…Cushings or Addison’s?? HOME | Sit…

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13222 Point Pleasant Dr
Fairfax, VA
22033

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