Fibromyalgia & Chronic Pain Support Page of the Lakes & Valleys

Fibromyalgia & Chronic Pain Support Page of the Lakes & Valleys All are welcome to the Fibromyalgia and Chronic Pain page. IF you would like to join our closed supp Feel Free to share, comment or post.
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The Lakes and Valleys Fibromyalgia & Chronic Pain Page is open to all those affected by Fibromyalgia as well as friends and family. Our goal is to be of support to those living with a chronic illness.

04/21/2023
12/05/2022

Yup. 😂😂

🌻

12/05/2022

11/26/2022

-MY NAME IS FIBROMYALGIA

Hi....My Name is Fibromyalgia, and I'm an Invisible Chronic Illness.
I am now velcroed to you for life.
Others around you can't see me or hear me,
but YOUR body feels me.
I can attack you anywhere and anyhow I please.
I can cause severe pain or, if I'm in a good mood, I can just cause you to
ache all over.
Remember when you and Energy ran around together and had fun?
I took Energy from you, and gave you Exhaustion.
Try to have fun now!
I also took Good Sleep from you and, in its place, gave you Brain Fog.
I can make you tremble internally or make you feel cold or hot when everyone else
feels normal.
Oh, yeah, I can make you feel anxious or depressed, too.
If you have something planned, or are looking forward to a great day, I can take
that away, too.
You didn't ask for me. I chose you for various reasons:
That virus you had that you never recovered from, or that car accident,
or maybe it was the years of abuse and trauma. Well, anyway, I'm here to stay!
I hear you're going to see a doctor who can get rid of me.
I'm rolling on the floor, laughing.
Just try.
You will have to go to many, many doctors
until you find one who can help you effectively.
You will be put on pain pills,
sleeping pills, energy pills, told you are suffering from anxiety or depression,
given a TENs unit, get massaged, told if you just sleep and exercise properly I
will go away, told to think positively, poked, prodded, and MOST OF ALL, not
taken as seriously as you feel when you cry to the doctor how debilitating life
is every day.
Your family, friends will all listen to you until they
just get tired of hearing about how I make you feel, and that I'm a debilitating
disease.
Some of them will say things like "Oh, you are just having a bad day" or
"Well, remember, you can't do the things you use to do 20 YEARS ago",
not hearing that you said 20 DAYS ago.
Some will just start talking behind your
back, while you slowly feel that you are losing your dignity trying to make them
understand, especially when you are in the middle of a conversation with a
"Normal" person, and can't remember what you were going to say next!

In closing, (I was hoping that I kept this part a secret), but I guess you already
found out...the ONLY place you will get any support and understanding in dealing
with me is with Other People With Fibromyalgia. ♥️

07/19/2022

Went to the dentist today and had two crowns put on. My body aches Ugg! Going to the dentist does this to me. Not sure if it was anxiety, stress or just the dental work. This too shall pass…

06/26/2022

06/12/2022

I am totally QUANKED! 😂

This is kind of a long article. Pretty accurate, however, they don't mention all symptoms to of FMS like brain fog.  Wha...
06/04/2022

This is kind of a long article. Pretty accurate, however, they don't mention all symptoms to of FMS like brain fog. What do you all think?

https://share.newsbreak.com/17yv7mzk

While an injury or illness causes pain by damaging something or causing inflammation, fibromyalgia is a disorder that affects the way you feel pain.

04/16/2022

I'll take whatever wins I get these days!

02/10/2022

How has your fibro been since you had Covid? I have been very fatigued and sensitive to touch, my clothes, blankets.

02/06/2022

RUN THE DISHWASHER TWICE by Kate Scott

When I was at one of my lowest (mental) points in life, I couldn’t get out of bed some days. I had no energy or motivation and was barely getting by.

I had therapy once per week, and on this particular week, I didn’t have much to ‘bring’ to the session. He asked how my week was and I really had nothing to say.

“What are you struggling with?” he asked.
I gestured around me and said “I dunno man. Life.”

Not satisfied with my answer, he said “No, what exactly are you worried about right now? What feels overwhelming? When you go home after this session, what issue will be staring at you?”

I knew the answer, but it was so ridiculous that I didn’t want to say it.I wanted to have something more substantial. Something more profound. But I didn’t.

So I told him, “Honestly? The dishes. It’s stupid, I know, but the more I look at them the more I CAN’T do them because I’ll have to scrub them before I put them in the dishwasher, because the dishwasher sucks, and I just can’t stand to scrub the dishes.”

I felt like an idiot even saying it. What kind of grown ass woman is undone by a stack of dishes? There are people out there with *actual* problems, and I’m whining to my therapist about dishes?

But my therapist nodded in understanding and then said: “RUN THE DISHWASHER TWICE.”

I began to tell him that you’re not supposed to, but he stopped me. “Why the hell aren’t you supposed to? If you don’t want to scrub the dishes and your dishwasher sucks, run it twice. Run it three times, who cares?! Rules do not exist, so stop giving yourself rules.”

It blew my mind in a way that I don’t think I can properly express.

That day, I went home and tossed my smelly dishes haphazardly into the dishwasher and ran it three times. I felt like I had conquered a dragon. The next day, I took a shower lying down. A few days later. I folded my laundry and put them wherever the f*** they fit. There were no longer arbitrary rules I had to follow, and it gave me the freedom to make accomplishments again.

Now that I’m in a healthier place, I rinse off my dishes and put them in the dishwasher properly. I shower standing up. I sort my laundry. But at a time when living was a struggle instead of a blessing, I learned an incredibly important lesson:
THERE ARE NO RULES.
RUN THE DISHWASHER TWICE!

Published on Quora by Kate Scott

06/08/2021

👍👍😱😱🙈🙈

05/23/2021

My legs feel like they are in cement today. Time for self care, doing things slowly and taking breaks. Have a blessed day fibro hugs (gentle hugs)

I have lived with fibromyalgia/chronic fatigue for 22 years. I remember the day I realized something was wrong. I could ...
05/13/2021

I have lived with fibromyalgia/chronic fatigue for 22 years. I remember the day I realized something was wrong. I could not get out of bed. I felt like someone had tied me to the bed. When I got up a dragged myself around.
This is not me! I am a go getter type "A" personality. I decided that if I felt this way the next day I was going to the doctor. Again I woke up feeling the same way. It was a Sunday, I went to ER got poked and prodded. I was diagnosed with chronic fatigue. I didn't understand what that was. I followed up with a primary and more test got a call from her telling me I had Fibromyalgia, to exercise I'd be fine. Really??? That made no sense. I kept dragging myself everywhere...work...home... sleeping didn't help me feel better. Sleeping wasn't that easy my whole body hurt!!! My family didn't know what to do with me. They were not used to seeing me like this. Doctors at that time were not overly helpful which was frustrating. I had severe brain fog. I could get lost in a store! I had to call my family on more than one occasion to tell me how to get home. I forgot the names of common things. I had muscle memory so I would make the motion for "toothbrush" or any other common item whose name I could not remember. The sounds were too loud. I cried and prayed. I was scared no one at the time could tell us what was happening.
I found a support group (which my daughter and I took over eventually). I researched, listen to speakers, and asked questions. I tried medications they didn't help much and they made some of my symptoms worse, especially brain fog. I changed my diet, did light exercise, and learned to limit my activities. I learned that I would have good days and days that were more trying. The more frustrated I became the worse my symptoms became. When I had a good day if I overdid it like going to a family function for the day or an outing. Sometimes going to the grocery store was exhausting.

I learned overdoing it caused an exacerbation that would have me in bed for a couple of days or more. I learned to make choices. I am a type "A" personality which means go, go, go or I used to... I had to learn to let go of my expectations of myself. The "shoulda", "woulda", "coulda".

"I am doing the best I can." You think people are judging you but you are you're own worst enemy. I have learned to value what is important in my life and just say "NO" when I can't whether anyone approves or not.

What people think of me is none of my business.

I have had bouts of remission they are wonderful! Unfortunately, I usually try to conquer the world and remember later oh yeah, I shouldn't have done that. Live and learn... I also learned that I had not had the flu in years it was fibro exacerbations I had this condition for years before I was diagnosed!

Now when the weather is changing I know before the weather person tells me! When my body aches I lay low and take it easy. When I have brain fog I am patient with myself instead of putting myself down. I enjoy my family and my friends. I go to church as often as I can. I attend functions for as long as my body allows. It's ok if I miss an event. If I can't volunteer or I can only volunteer for a short while. There is always next time. Our Fibromyalgia support group made way to Facebook support groups. All the physical FMS groups that we are aware of in our areas are no longer in existence. There is life with Fibro/chronic fatigue. A good life! Live your life to its fullest whatever that looks like in your life. Wishing you a blessed life full of peace and moments of joy.

12/24/2020

If you had or have Covid how similar were your symptoms to a fibro flare?

10/13/2020

Anyone having problems sleeping? I haven't slept well in 4 nights. What do you take for sleep?

07/26/2020

Morning how are you all doing today?
My fatigue has been off the charts for a couple of weeks now. Pain in my hands and feet goodness! I know this too shall pass. Just riding it out and trying to be kind to myself till it does. Have a blessed day.

07/22/2020

The last few days my fatigue and my daughters have been off the charts. How about you?

Now we know what the problem is!😂😂
07/18/2020

Now we know what the problem is!😂😂

Me too!
07/05/2020

Me too!

07/01/2020

I woke up this morning feeling rested for the first time in days because I slept. That lasted about 10 min. How was your morning?

Omg! This is soo me!🙄
06/28/2020

Omg! This is soo me!🙄

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