Stand With Lilah

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Stand With Lilah šŠššš­šžš„š²š§š§ (Lilahā€™s Mom)
šŸŽ— Childhood Cancer Advocate
šŸ’› Founder of Forever Us Foundation
šŸ“ø Owner of Graceful Moments Photography LLC

šŸ’› This baby is the best sleeper šŸ’›To be fair all our kids have been ā€œeasyā€ everyone always says the next one will give us...
10/24/2026

šŸ’› This baby is the best sleeper šŸ’›

To be fair all our kids have been ā€œeasyā€ everyone always says the next one will give us trouble but then they donā€™t. All our babies are ā€œtrickā€ babies.

However, I donā€™t think I ever slept this good with the other two. Look at this babyā€™s sleep pattern. He sleeps so well. Thank goodness too because we have two other toddlers to take care of. God knows I need to be well rested.

But also Tyler does handle the toddlers in the middle of the night as well as let me sleep in every morning with the baby.

Iā€™m just so grateful to be getting sleep! Iā€™ll take it while I can get it because I know all too well how this first year goes.

Snuggling and watching Halloween movies šŸŽƒWilliam is having a movie day with me. His doctors appointment went well this m...
10/23/2026

Snuggling and watching Halloween movies šŸŽƒ

William is having a movie day with me. His doctors appointment went well this morning. I feel reassured that his low oxygen yesterday was caused by his seizure and not by his lungs. His color looks much better today and heā€™s been eating more. He hasnā€™t had a fever. Hopefully his gets over this quickly and no more fevers break out.

Also hoping Lilah and Elliott donā€™t catch it.

The scariest thing is seeing your child have a medical emergency..Today our ā€œcancerā€ kid wasnā€™t the one having medical i...
10/22/2026

The scariest thing is seeing your child have a medical emergency..

Today our ā€œcancerā€ kid wasnā€™t the one having medical issues. Our ā€œhealthyā€ child decided to scare us.

It was 3:30am and something told me to check Williams baby monitor. Tyler was sleeping in there with him since he had been sick the past couple nights. Well I looked on the baby monitor to see Tyler trying to get William to respond. I ran into the room.

ā€œI think he just had a seizure.ā€

I turned on the light to see William laying there. Lips blue, skin discolored, shaking uncontrollably.

The same age Lilah was when she had her seizure. The seizure that led to a brain cancer diagnosis.

We called 911 and by time the paramedics arrived William had slightly regain his color back. They checked his vitals. 105.6 fever. 206 resting heart rate. I watched his O2 very very slowly climb from 88 to 93. But it stopped there.

William was brought into the ER. They finally were able to break his fever. Once the fever stopped, his heart rate dropped, his O2 went up and he was sent home. He has a follow up appointment with his pediatrician tomorrow.

Iā€™m 18 days postpartum. And my ā€œhealthyā€ kid had a medical emergency at the same age that my ā€œcancerā€ kid was when we found her cancer. Iā€™m just so grateful I wasnā€™t in labor this time. Iā€™m so happy William is okay. Iā€™m so relieved heā€™s okay. Iā€™m so grateful it wasnā€™t anything more serious.

Tell me youā€™re uneducated without telling me..A few things: šŸŽ—ļø Stage 4 does NOT equal terminal. My daughter is not termi...
10/21/2026

Tell me youā€™re uneducated without telling me..

A few things:

šŸŽ—ļø Stage 4 does NOT equal terminal. My daughter is not terminal. She has completed treatment that we hope has ā€œcuredā€ her. SHE IS NOT SICK. She is 10 MONTHS OF NO EVIDENCE OF DISEASE. Also not that it matters but we didnā€™t get pregnant with our third until TREATMENT WAS OVER! My

šŸ’› I cannot control WHEN my daughter got diagnosed with cancer. Yes she got diagnosed the day our second was born. Completely out of my control. When we got pregnant with our second, our life was NORMAL.

šŸ’› having a newborn and a toddler with cancer didnā€™t take away from either kid. My husband and I both stopped working. One kid always had one of us. We had LOTS of family support. Between my husband, myself and both of our moms, our kids were well taken care of. There were also times we all would be together as a family whether it was in the hospital or in our temporary housing. A lot of cancer treatment is just sitting around. And believe it or not, I have two hands and can hold both of my children at the same time.

šŸ’› Yes cancer does happen and we were sensible. We made lots of sacrifices for our family to ensure our daughter received the best treatment. We were with her every day keeping her spirits high. We did everything we could for her.

šŸ’› cancer does not dictate your life. Time doesnā€™t stop just because your child gets sick. The days keep coming and you learn how to adapt. If we just stopped living the day she got diagnosed, we would all be depressed. And being depressed doesnā€™t cure cancer.

šŸ’› Having kids isnā€™t selfish, itā€™s one of the most selfless things you can do. You do anything for your kids. Itā€™s not about you anymore. I donā€™t have kids to ā€œbenefitā€ me. I have more kids because I love seeing that sibling bond. I love that my children will have more family. I love growing our family and the love we have. Having more kids doesnā€™t take away from one child. Thatā€™s absurd. Youā€™re basically saying anyone that has more than one child is selfish. I donā€™t know about you but I LOVE my siblings more than anything. I love that I have these people who I share a special bond with that will always be here for me and Iā€™ll always be there for them. I love that when my parents are gone, Iā€™ll still have them. When you have more than one kid your heart just grows. You have more love than you knew was possible. Seeing them grow up together and seeing the bond they build is powerful.

10/20/2026

You canā€™t let fear run your life. A cancer diagnosis doesnā€™t mean you stop living.

What an unmedicated labor looks like I couldnā€™t have done with without my husband. He supported me so much through the 1...
10/19/2026

What an unmedicated labor looks like

I couldnā€™t have done with without my husband. He supported me so much through the 17 hours of labor. The counter pressure, the hand squeezes, the words of encouragement and everything in between. He took care of me so much during the most painful process of my life. Remember that when you choose the person youā€™re going to marry. This is the person who is going to be by your side during your most vulnerable. There was a point in labor I couldnā€™t wipe myself after going to the bathroom, you know who did it for me? All without hesitation. He changed my diapers, he held my hand, he encouraged me when all I wanted to do was give up.

17 hours of labor. 10 hours of active labor. 3 hours of transition. 5 mins of pushing. And finally baby Elliott was born. All without an epidural.

I canā€™t believe I did it. I wonā€™t be doing it unmedicated again. But Iā€™m glad I did it. Iā€™m glad heā€™s here and there were no complications.

Thank you to Sweet P Photography By Payton Hall for capturing such an intimate experience.

10/19/2026

Last year Taylor Swift and the swifties changed our lives. We couldnā€™t be more grateful.

This next year we hope to really work towards making our nonprofit, Forever Us Foundation , successful. We love giving back to the pediatric cancer families. We know how important it is to capture all these moments now.

Thank you for supporting our family and continuing to watch us build our legacy.

10/18/2026

You can tell she has a lot more energy now.

One year ago Lilah claimed Taylor Swift as her friend. This year Lilah is still singing along to Taylor Swift but no longer as a cancer patient.

Lilah has completed all her treatment and her last scan in September showed no evidence of disease! Lilahā€™s next scan is in December. She will continue to get scanned every 3 months. ATRT has a very high relapse rate especially for the first two years. Every day we have with Lilah is a blessing. She is out here THRIVING despite all she has been through.

10/17/2026

One year ago our lives changed. Taylor Swift donated $100k to our beautiful Lilah. One year ago we didnā€™t know how long Lilah was going to be here with us. We were in treatment and praying that it would work. Today Lilah is celebrating 10 months cancer free! Our beautiful miracle. We are forever thankful for Taylor Swiftā€™s generosity. And for all the swifties who donated.

Since her donation, Lilah has completed treatment. She went on her makeawish trip to Disney. We also took her to see the beach for the first time. We have also started our nonprofit, Forever Us Foundation, where we provide free photography services to families facing pediatric cancer. And we have welcomed the newest addition to our family, baby Elliott.

This past year God has been good to us. We continue to pray for Lilah to stay cancer free. Her cancer, ATRT, has a very high relapse rate. Lilah has about a 50-70% chance of relapse. But sheā€™s still out here defying the odds everyday. We are so incredibly grateful for every single day we have with Lilah.

10/14/2026

Looking back at when Lilah was growing in my belly. I canā€™t believe this was 3 years ago. My belly was so small compared to this last pregnancy!

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3334 West Friendly Avenue Suite 103
Greensboro, NC
27410

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