Bentley's Medical Journey

Bentley's Medical Journey Bentley was born on May 7 2O11 weighing 3lbs 3oz. He had spent 6 weeks in the NICU at Dayton Children's Hospital. Since birth he has had problems with his breathing, leg pain and stiffness, eye muscle issues, and gaining weight.

As of today he sees Neurology, Neurosurgery, Orthopedics, Physical Medicine & Rehab, as well as an Eye Specialist. He has had 4 eye surgeries with an upcoming one this month, numerous blood draws, tests, and imaging done with a result of Strabismus (eye muscle problem), Spastic Diplegia Cerebral Palsy (unknown cause), as well as Chiari Malformation Type 1 with a syrinx.

Support Cerebral Palsy Awareness
04/08/2018

Support Cerebral Palsy Awareness

This little boy is my world - he is doing so well! We see the CP clinic team in a month ;; I’m getting nervous to see wh...
03/30/2018

This little boy is my world - he is doing so well! We see the CP clinic team in a month ;; I’m getting nervous to see what our plan for treatment will be but he’s doing so well so hopefully all good news!
Tomorrow is the last day of Cerebral Palsy Awareness Month *

03/30/2018
* Always will !
02/23/2018

* Always will !

Bentley's Medical Journey
02/23/2018

Bentley's Medical Journey

Bentley has Spastic Diplegia Cerebral Palsy .. being Spastic is the most common type ! His is believed to be caused from...
02/23/2018

Bentley has Spastic Diplegia Cerebral Palsy ..
being Spastic is the most common type ! His is believed to be caused from his prematurity!

Bentley has Spastic Diplegia CP * his type affects his leg muscles more than the rest of his body !
02/22/2018

Bentley has Spastic Diplegia CP * his type affects his leg muscles more than the rest of his body !

02/22/2018

Not a lot to update on - just waiting for April 27th to see the CP Clinic Team! As for now Bentley is back to wearing AFOs & PT 2x a week !

Not too thrilled about having his blood pressure taken ! Endocrinology went okay, he had to have an X-ray of his hand to...
02/01/2018

Not too thrilled about having his blood pressure taken ! Endocrinology went okay, he had to have an X-ray of his hand to check bone age to see if there is a delay we will know tomorrow. If there is no delay he will have to have labs done!

A lot to update on! * Bentley seen Dr Bloom yesterday he is happy with the way his eye looks from surgery however he did...
01/31/2018

A lot to update on! *
Bentley seen Dr Bloom yesterday he is happy with the way his eye looks from surgery however he didn’t seem too pleased with the way his vision itself was! Back in 3 months

Dr. Shank said his gait and range of motion has improved since his last visit his hamstrings are still tight - he got approved for the CP Clinic and will be seen in April !

&& he got his new set of AFOs today!!
Tomorrow we see endocrinology so pray it’s just genetics!

01/09/2018

Haven’t updated anything in a little while - not much has changed .. Bentley sees endocrinology on Monday to see why he is so small .. he had a bone age study a year ago and it showed his bones are of a 3 year old .. so we need to find out if there is a medical reason or just genetics ‘
Pray for good news!

It’s amazing the change in his eyes! First picture is him BEFORE* his first surgery in January of 2013 the second pictur...
01/02/2018

It’s amazing the change in his eyes! First picture is him BEFORE* his first surgery in January of 2013 the second picture is him AFTER* his most recent one in December of 2017!

01/01/2018

January is a busy month for Bentley! He starts outpatient physical therapy on the 4th, a follow up from surgery on the 8th, he gets casted for his new AFOs on the 10th, endocrinology on the 15th, and ortho follow up on the 29th! Starting January 4th he will have pt twice a week - once in school and one outpatient. Pray this year is a better year for him!

Bentley's Medical Journey
01/01/2018

Bentley's Medical Journey

Christmas Morning and his eye looks amazing!
01/01/2018

Christmas Morning and his eye looks amazing!

Happy New Year from Bentley .&&. I. I hope this year is better for him than past!
01/01/2018

Happy New Year from Bentley .&&. I. I hope this year is better for him than past!

* Bentley did really well today! He is home - he says his eye hurts (not sure if pain or just double vision which is com...
12/21/2017

* Bentley did really well today! He is home - he says his eye hurts (not sure if pain or just double vision which is common). Thanks for all the prayers.

Pre-Op Fun 12|21|17*
12/21/2017

Pre-Op Fun
12|21|17*

Bentley's Medical Journey's cover photo
12/21/2017

Bentley's Medical Journey's cover photo

Bentley's Medical Journey
12/21/2017

Bentley's Medical Journey

12/19/2017

Looks like we are bracing again - doing PT outside of school and a follow up in 3 months then if he is still toe walking and his range of motion is not better we will be going forward with the Botox injections.. if none of this works it’s a good possibility he may have to have surgery ! 😭

12/13/2017

Despite his medical set back he is allowed to wrestle - first year! 🙂 and he is doing amazing!!

12/12/2017

Spastic diplegia cerebral palsy is a form of cerebral palsy, a neurological condition that usually appears in infancy or early childhood, and permanently affects muscle control and coordination. Affected people have increased muscle tone which leads to spasticity (stiff or tight muscles and exaggerated reflexes) in the legs. The arm muscles are generally less affected or not affected at all. Usually have no known cause, be caused due to genetics or a birth injury.

*There is No Cure*

Chiari malformation (kee-AH-ree mal-for-MAY-shun) is a condition in which brain tissue extends into your spinal canal. It occurs when part of your skull is abnormally small or misshapen, pressing on your brain and forcing it downward. There are 4 main types with type 1 bring the most common.

*There is No Cure*

12/11/2017

On December 19, 2017 Bentley will have to see a physical medicine and rehab doctor to see if he will benefit from getting Botox shots to help loosen the muscles in his legs or if there is something else we could try that would be beneficial for him.

12/11/2017

On December 21 2017 Bentley will have his 5th eye surgery to help tighten the muscles in his left eye.

12/11/2017

* Bentley seen neurosurgery on November 29 2017 - everything checked out fine as far as his spinal MRI goes. He will have to have a repeat one this time next year to check the fluid around his spine.

Bentley's Medical Journey's cover photo
12/11/2017

Bentley's Medical Journey's cover photo

Bentley the day he was born
12/11/2017

Bentley the day he was born

Address

Stephenson St
Lakeview, OH
43331

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