National Cleft & Craniofacial Awareness & Prevention Month (NCCAPM)

National Cleft & Craniofacial Awareness & Prevention Month (NCCAPM) National Cleft & Craniofacial Awareness & Prevention Month (NCCAPM) serves to advance the mission and ideals of the combined cleft/craniofacial community.
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The alliance of organizations recognizing and observing National Cleft & Craniofacial Awareness & Prevention Month (NCCAPM) is comprised of like-minded entities dedicated to the treatment, support and education of individuals with congenital and acquired facial differences, their families and the general public.

The alliance of organizations recognizing and observing National Cleft & Craniofacial Awareness & Prevention Month (NCCAPM) is comprised of like-minded entities dedicated to the treatment, support and education of individuals with congenital and acquired facial differences, their families and the general public.

Operating as usual

10/18/2017
Write a Review for AmeriFace (Las Vegas, NV)

Friends, if you have just a minute, please let folks know about your experience with our 501(c)(3) non-profit organization. Click over to https://greatnonprofits.org/reviews/write/ameriface and you can even upload a picture! Whether you've just joined us or have been with us for decades, please help spread the word! Did you know? AmeriFace and its family of programs, including cleftAdvocate and the Pathfinder Outreach Network, is a 100% volunteer organization...no paid employees, including myself and our leadership team! Thanks for what you do for each other - Making a World of Difference in a World of Facial Differences!®

Submit your rating and write a review for AmeriFace. Share your experience and help others learn about this Las Vegas nonprofit organization!

03/25/2017

Hello, AmeriFace/cleftAdvocate Families!

As the largest, most active support organization for the cleft/craniofacial community, many of our families will remember participating in the very first phase of this study. And now it's time to rally the troops again! If you have a child age 3 or younger, born with a cleft lip with or without cleft palate, this is your opportunity to shape the future of care for your child for years to come! Click now!

https://surveys.seattlechildrens.org/datstat/collector/Survey.ashx?Name=ICOO_parent_prioritization_survey

Below is the survey introduction from the researchers - my friends and colleagues who take the care of your children very seriously, who have worked tirelessly for decades to improve on treatment and outcomes. Your input is desperately needed. Should you have any questions, feel free to contact me or the researchers at your convenience. [email protected]

ICOO Introduction:

Researchers in Seattle and Chicago are inviting parents of young children with a diagnosis of a cleft lip with or without palate to join this research study. The goal of our study is to create a questionnaire that will help researchers better understand aspects of health that are unique to infants with clefts. In a previous part of this study, we asked caregivers to share about their child’s cleft, cleft treatment, and observations of their child’s health and well-being.

In this next part of our study, we need parents and caregivers who have a child who is three years old or younger, and has a diagnosis of a cleft lip with or without cleft palate, to help us! We are asking parents to take the observations we’ve received from previous parent interviews and prioritize them, so we’ll know the most important items to include in our questionnaire.

To learn more about the study or take part in the survey, please go to:

https://surveys.seattlechildrens.org/datstat/collector/Survey.ashx?Name=ICOO_parent_prioritization_survey

Our AmeriFace/cleftAdvocate partners at Seattle Children’s Hospital and the University of Washington are inviting parent...
08/03/2016

Our AmeriFace/cleftAdvocate partners at Seattle Children’s Hospital and the University of Washington are inviting parents of young children (under three years of age) with a diagnosis of a cleft lip with or without palate (not cleft palate only) to join this new research study! The goal is to create a questionnaire that will help researchers better understand aspects of health that are unique to infants with clefts. The questionnaire will be called the Infant Cleft Observer-Reported Outcomes Instrument, or “ICOO.” I've attached a flyer with full information, including a link to the start page (see the QR code). Spread the word! With your help, we are making a world of difference in a world of facial differences! https://redcap.iths.org/surveys/index.php?s=N8XWT7X98D

UNJADED
07/21/2016

UNJADED

Here's a picture of our Founder/CEO with the President & Executive director of AmeriFace! Today was a heart wrenching, educational, inspiring & beautiful convention! So honored to meet all of the unbelievably strong & brave individuals. Debbie Oliver AmeriFace

07/21/2016
Write a Review for AmeriFace (Las Vegas, NV)

Help us celebrate National Cleft & Craniofacial Awareness & Prevention Month (NCCAPM) by telling us about your interaction with our organization! From all entries in July, we will randomly select a winner for a $50 Visa gift card! http://greatnonprofits.org/reviews/write/ameriface

Submit your rating and write a review for AmeriFace. Share your experience and help others learn about this Las Vegas nonprofit organization!

07/01/2016
Write a Review for AmeriFace (Las Vegas, NV)

Help us celebrate National Cleft & Craniofacial Awareness & Prevention Month (NCCAPM) by telling us about your interaction with our organization! From all entries in July, we will randomly select a winner for a $50 Visa gift card! http://greatnonprofits.org/reviews/write/ameriface

Submit your rating and write a review for AmeriFace. Share your experience and help others learn about this Las Vegas nonprofit organization!

One of the most important accomplishments of our organization in these past 25 years, and of my own non-profit career pe...
07/01/2016
National Cleft & Craniofacial Awareness & Prevention Month (NCCAPM)

One of the most important accomplishments of our organization in these past 25 years, and of my own non-profit career personally, is the establishment of THE official cleft/craniofacial awareness month - if it's July, then it's National Cleft & Craniofacial Awareness & Prevention (NCCAPM)! The only cleft/craniofacial awareness month recognized by the CDC, the US Department of Health and Human Services, and by cleft/craniofacial clinics around the country and the world, we celebrate with all of you and recognize YOU - our volunteers - in all the fabulous work you do. AmeriFace, including the cleftAdvocate program, is the ONLY national/international cleft/craniofacial support and outreach organization that is 100% volunteer in nature, including myself and the entire staff. Our work in the field, on state and federal legislation to force insurance companies to honor their contracts for cleft/cranio care, and our award winning outreach program, the Pathfinder Outreach Network, are unsurpassed! So here's to another 25 years (at least) and to spreading the word during July - join us in Making a World of Difference in a World of Facial Differences!® http://www.nccapm.org

July is National Cleft & Craniofacial Awareness & Prevention Month (NCCCAPM). Organizations across the country unite to raise awareness and assist patients and families.

Making a world of difference in a world of facial differences!® Folks, don't miss our 25th Anniversary Conference and Ce...
06/28/2016
AmeriFace - 2016 North American Craniofacial Family Conference (NACFC)

Making a world of difference in a world of facial differences!® Folks, don't miss our 25th Anniversary Conference and Celebration...it's right around the corner! Las Vegas area locals, be sure to get there! Incredible room rate extended for a few more days and some registration fee scholarships still available. E-mail me directly at [email protected] or call toll-free (888) 486-1209 for additional information or to request a registration scholarship. See you there! http://www.ameriface.org/2016nacfc_registration.html

Are you caring for a child with cleft lip and/or palate or other craniofacial condition? Welcome to AmeriFace, the premier support organization for the cleft/craniofacial community!

06/15/2016

We're pleased to announce that a generous donor has made it possible for us to comp some families into the event! If you can get to our family-friendly hotel at the discounted rate of $69/night (large rooms!), we have some comps available for the conference registration fees! Contact me directly at [email protected] for details. Hurry! This is a limited offer, so make your travel plans now...and how perfect is this for those of you who are within driving distance (NV, AZ, UT, CA - this means you!) http://www.ameriface.org/2016nacfc_registration.html

04/26/2016
Americleft Study Survey

We need your feedback! In conjunction with the Americleft Psychosocial Outcomes Committee, we are asking parents to tell us how important various quality of life and adjustment outcomes are to them and their children. The link below will take families to a very short survey. We will be proposing parent/child interviews in addition to object data as part of the outcomes research.

The only requirement for participation in this phase is that the parent has a child with a cleft lip and/or palate of any age.

Please SHARE throughout the cleft lip/palate community, and feel free to contact me with any questions you may have by e-mailing me at [email protected]. Thank you!

https://www.surveymonkey.com/r/2RPJRLV

Web survey powered by SurveyMonkey.com. Create your own online survey now with SurveyMonkey's expert certified FREE templates.

04/13/2016

Join us in Las Vegas for our 25th Anniversary Celebration! We know you've been waiting for the details, so here they are! The North American Craniofacial Family Conference is slated for July 17-19, 2016 in conjunction with National Cleft & Craniofacial Awareness & Prevention Month (NCCAPM)! All are welcome - spread the word! Special hotel rate of just $69/night (see details on the website) - so REGISTER NOW and BOOK YOUR HOTEL ROOM TODAY!! http://www.ameriface.org/2016nacfc_registration.html

04/05/2016

Tomorrow I'll fly out to Atlanta, GA for the 73rd Annual Meeting of the American Cleft Palate-Craniofacial Association (ACPA)! A week's worth of meetings, exhibits, panels, and discussions - so proud to be a member of this extraordinary organization! Best of all, I'll get to meet and brainstorm with members of your cleft/craniofacial teams from around the country and around the world! I am always overwhelmed by the response to and praise for our core programs (cleftAdvocate, Pathfinders) and our education and support resources. I'll also be kicking off promotion of the 2016 NACFC & AmeriFace 25th Anniversary Celebration slated for Las Vegas, July 17-19, 2016. Hope you can join us - on-line registration coming soon!

03/10/2016

Mark your calendars for this AmeriFace event! Celebrate our 25th Anniversary with us in Las Vegas ~ July 17 - 19, 2016. Hotel block - 650 sq. ft. suites just $69/night (plus taxes) Sunday through Thursday; $139/night (plus taxes) Friday and Saturday. More program details to come! Complete an interest form NOW! http://www.ameriface.org/2016nacfc.html

Question:  How many of our members would be interested in joining us in Las Vegas, NV for our 25th Anniversary Celebrati...
03/04/2016
AmeriFace - 2015 North American Craniofacial Family Conference (NACFC)

Question: How many of our members would be interested in joining us in Las Vegas, NV for our 25th Anniversary Celebration in July? Help us celebrate National Cleft & Craniofacial Awareness & Prevention Month (NCCAPM), as well as 25 years of leadership in the cleft/craniofacial community! If you're interested in getting the details as soon as they are announced, complete the NACFC form here: http://www.ameriface.org/2016nacfc.html. AmeriFace - Making a World of Difference in a World of Facial Differences!

Are you caring for a child with cleft lip and/or palate or other craniofacial condition? Welcome to AmeriFace, the premier support organization for the cleft/craniofacial community!

#GivingTuesday - Make it an office party! In support of AmeriFace and the cleftAdvocate program, please consider giving ...
12/01/2015
AmeriFace - Donate Now!

#GivingTuesday - Make it an office party! In support of AmeriFace and the cleftAdvocate program, please consider giving a tax-deductible donation (and asking co-workers to do the same) to support patients and families right here in the USA! Text "AMERIFACE" to 77977 or click over to http://www.ameriface.org/donate.html to give - THANK YOU!

An announcement in the July 3rd issue of the Morbidity and Mortality Weekly Report (MMWR) - a publication of our partner...
07/18/2015
Announcement: National Cleft and Craniofacial Awareness and Prevention Month — July 2015

An announcement in the July 3rd issue of the Morbidity and Mortality Weekly Report (MMWR) - a publication of our partners at the Centers for Disease Control (CDC) - shines light on National Cleft & Craniofacial Awareness & Prevention Month (NCCAPM)! http://www.cdc.gov/mmwr/preview/mmwrhtml/mm6425a5.htm

July is National Cleft and Craniofacial Awareness and Prevention Month, a time to raise awareness and improve understanding of orofacial clefts (clefts of the lip and palate) and other conditions of the head and face. Each year in the United States, approximately 2,600 babies are born with a cleft p…

07/06/2015
GreatNonprofits

A Call to Action for our national awareness month, NCCAPM! AmeriFace, including the cleftAdvocate program, is a nationally-recognized top-rated non-profit organization! Post a review of our outreach programs and/or services at the link below and you will be entered into our drawing to receive a copy of "Facing Cleft - Encouraging Healthy Development" FREE! We will award a copy EVERY DAY this week from all NEW reviews! Enter the drawing NOW! http://greatnonprofits.org/reviews/write/ameriface

Find and review charities, nonprofits and volunteering and donation opportunities. Want to donate or volunteer? Find the best local non-profit or charity.

Here is the DynaCleft information many have waited for! Remember, Canica was sold to Southmedic (also in Canada), finali...
05/05/2015
DynaCleft® & Nasal Elevator Lip Approximation | Southmedic

Here is the DynaCleft information many have waited for! Remember, Canica was sold to Southmedic (also in Canada), finalized just a couple of weeks ago, and their representatives were at the American Cleft Palate-Craniofacial Association (ACPA) conference in Palm Springs last month. There I met Alex Hume, Research and Business Development Associate, who has provided the following information - Unilateral DynaCleft is $27 and Bilateral DynaCleft is $35 (both quantity 7/box). The Nasal Elevator is $48 for a box of 7 and $192 for a box of 28. Nasal Elevator is only sold with equal parts purchase of DynaCleft. Order directly from Southmedic corporate office by calling toll-free (800) 463-7146. http://southmedic.com/pr…/dynacleft-cleft-lip-approximation/

DynaCleft® & Nasal Elevator Developed in collaboration with cleft palate teams, DynaCleft® tapes bridge the cleft segments, gently guiding soft tissue

Support for this little guy and his parents will be key.  Arhinia is an extremely rare condition, but we do have members...
04/02/2015
Born without a nose: Baby Eli is 'perfect as is,' his parents say

Support for this little guy and his parents will be key. Arhinia is an extremely rare condition, but we do have members of AmeriFace/cleftAdvocate with experience and lots of love to give! It always amazes me that, as rare as a condition can be, our organization seems to involved around every turn. Hoping we can do the same for these folks moving forward! http://www.today.com/health/born-without-nose-baby-eli-perfect-his-parents-say-2D80582500

The moment that the doctor placed her newborn son, Eli, on her chest, Brandi McGlathery looked at him and knew something was wrong. At...

How can you help patients and families in your own neck of the woods? Outreach is the key! Whether you want to distribut...
03/17/2015
The Pathfinder Outreach Network - Cleft, Craniofacial Support for Families!

How can you help patients and families in your own neck of the woods? Outreach is the key! Whether you want to distribute education/outreach/feeding materials to your team, birthing hospitals, etc., or simply network with families in your area, let us know! Go to http://www.pathfinders.ameriface.org/agreement.html and complete the Pathfinder information page, then sign up for FREE webinar training at http://www.pathfinders.ameriface.org/training.html!

The Pathfinder Outreach Network - The Nationally-Recognized Leader in Cleft/Craniofacial Support for Families! Local/Regional Support, Materials, Training and More!

Join us at our private support page here on Facebook (https://www.facebook.com/groups/cleftadvocate/)!  The FIRST FIVE N...
03/11/2015

Join us at our private support page here on Facebook (https://www.facebook.com/groups/cleftadvocate/)! The FIRST FIVE NEW MEMBERS who post an introduction today will receive a FREE copy of our one-of-a-kind resource, "Facing Cleft - Encouraging Healthy Development," a tremendous professional 170-page Guide and DVD supporting your child's journey from birth to young adulthood - feeding, surgery, speech, school and more! See you there!

01/24/2015

If you are interested in participating in the following study, please contact me directly at [email protected] for additional information.

"The Experience of Parents and Adolescents with the Medical Care for the Condition of Cleft-lip and Palate. A Phenomenological Study" - IRB Approved 12/19/2014, University of Northern Colorado, Doctoral Candidate Sarah Breseke, MA LPC.

If you are:

1) an adolescent (12-19) who has the condition of cleft lip/palate, and has completed at least the initial surgical repairs for this condition, or

2) a parent of an adolescent with cleft lip and palate, I would appreciate your help with this study!

The researcher is interested in speaking with adolescents and at least one parent about their emotional response to the medical treatment process, and how they coped both individually and as a family.

Address

Las Vegas, NV
89130

General information

Add your organization! http://www.nccapm.org/addorg.html Give NCCAPM website visitors the opportunity to contact your organization directly for information, support, networking and fundraising activities. Submit this form to include your organization's link at launch. All parties supporting the ideals of NCCAPM may apply. Entries for tax-exempt entities will include a link to Guidestar.org.

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm
Saturday 9am - 5pm
Sunday 9am - 5pm

Telephone

(888) 486-1209

Website

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Hello all. Trying to find any help on proper filing protocol for braces. Our orthodontist is amazing and want to file the insurance with the proper codes. Our son was born with a bilateral clcp. We have BCBS of NC. Any help would be appreciated.
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"No matter how you are born or how you are brought into this world, you are beautiful no matter what." In honor of National Cleft and Craniofacial Awareness and Prevention Month, we are excited to share "Beyond the Face: A Tribute to Craniofacial Team Patients at Connecticut Children's." This moving documentary takes you behind-the scenes of the Beyond the Face photo project, made possible by the Craniofacial Team at Connecticut Children's and the generosity of numerous volunteers, to help promote awareness and equality for our patients living with facial