cleftAdvocate

12/20/2019

I haven't known for the longest time just how to share this news. We are shocked and saddened as a family, and as an organization, and as a community. But we are also in awe of a life well lived, and we give thanks knowing this beautiful young lady and sweetest friend and her loving, precious family are part of our lives. We love you all...

Celebrating, “The Princess” Chardonnay A. Adams-Ambre
April 29,1995 - October 22, 2019

Chardonnay loved being with her family, volunteering for Give Me a Break, Inc., AmeriFace and Lutheran Social Services. Participating in the C.A.S.T. for Kids, fishing events, attending Camp Malibu with the City of Las Vegas Adaptive Recreation, during Spring Break. Cheering on the University of Alabama Crimson Tide, the Denver Broncos, Vegas Golden Knights and the men and women of the UFC (Ultimate Fighting Champions), going to movies, socializing and event planning. She was very passionate about wanting to provide a forever home for special needs children in foster care.

Her warm smile and contagious sense of doing what is right will be missed. Chardonnay is survived by her parents, Scherrie Adams-Ambre and Glenn Allen, Sr. Siblings; Brian, Tiffany, Vencient-Michael, Christopher, Glenn Jr., Anthony and Courtenay. Her paternal grandmother, as well as her aunts, uncles and cousins.

A Memorial Service will be held Saturday, December 21, 2019 at 11:00 a.m., The Church of Jesus Christ of Latter-Day-Saints, 4040 East Wyoming Avenue, Las Vegas, Nevada 89104

Please feel free to share a memory you have with Chardonnay, in the comments below.

Thank you all for your support and love during her transitioning.

12/14/2019

Thank you to our friends at the Vanderbilt Music Cognition Lab for making us aware of this research opportunity! This survey study is supported by Vanderbilt University Medical Center and the National Endowment for the Arts Research Lab program. Please participate!

Music in Children and Families Online Survey Study
The Music in Children and Families study is recruiting parents of young children (6 months to 5 years old) with or without developmental, medical, or other health impairments to take part in an online questionnaire study on musical experiences and social and emotional well-being in young children, parents, and families. Participation will take approximately 30 minutes, and participants receive a children's music CD download and can enter to win a $25 gift card.

Access the survey at https://is.gd/MusicChildrenFamilies

10/20/2017

AmeriFace nonprofit in Las Vegas, NV | Volunteer, Read Reviews, Donate | GreatNonprofits

Share your story! https://greatnonprofits.org/org/ameriface

Volunteer, donate, read reviews for AmeriFace in Las Vegas, NV plus similar nonprofits and charities related to Birth Defects & Genetic Diseases, Centers to Support the Independence of Specific Populations, Health, Health Support, Human Services

10/18/2017

Write a Review for AmeriFace (Las Vegas, NV)

Friends, if you have just a minute, please let folks know about your experience with our 501(c)(3) non-profit organization. Click over to https://greatnonprofits.org/reviews/write/ameriface and you can even upload a picture! Whether you've just joined us or have been with us for decades, please help spread the word! Did you know? AmeriFace and its family of programs, including cleftAdvocate and the Pathfinder Outreach Network, is a 100% volunteer organization...no paid employees, including myself and our leadership team! Thanks for what you do for each other - Making a World of Difference in a World of Facial Differences!®

Submit your rating and write a review for AmeriFace. Share your experience and help others learn about this Las Vegas nonprofit organization!

03/25/2017

Hello, AmeriFace/cleftAdvocate Families!

As the largest, most active support organization for the cleft/craniofacial community, many of our families will remember participating in the very first phase of this study. And now it's time to rally the troops again! If you have a child age 3 or younger, born with a cleft lip with or without cleft palate, this is your opportunity to shape the future of care for your child for years to come! Click now!

https://surveys.seattlechildrens.org/datstat/collector/Survey.ashx?Name=ICOO_parent_prioritization_survey

Below is the survey introduction from the researchers - my friends and colleagues who take the care of your children very seriously, who have worked tirelessly for decades to improve on treatment and outcomes. Your input is desperately needed. Should you have any questions, feel free to contact me or the researchers at your convenience. [email protected]

ICOO Introduction:

Researchers in Seattle and Chicago are inviting parents of young children with a diagnosis of a cleft lip with or without palate to join this research study. The goal of our study is to create a questionnaire that will help researchers better understand aspects of health that are unique to infants with clefts. In a previous part of this study, we asked caregivers to share about their child’s cleft, cleft treatment, and observations of their child’s health and well-being.

In this next part of our study, we need parents and caregivers who have a child who is three years old or younger, and has a diagnosis of a cleft lip with or without cleft palate, to help us! We are asking parents to take the observations we’ve received from previous parent interviews and prioritize them, so we’ll know the most important items to include in our questionnaire.

To learn more about the study or take part in the survey, please go to:

https://surveys.seattlechildrens.org/datstat/collector/Survey.ashx?Name=ICOO_parent_prioritization_survey

08/03/2016

Our AmeriFace/cleftAdvocate partners at Seattle Children’s Hospital and the University of Washington are inviting parents of young children (under three years of age) with a diagnosis of a cleft lip with or without palate (not cleft palate only) to join this new research study! The goal is to create a questionnaire that will help researchers better understand aspects of health that are unique to infants with clefts. The questionnaire will be called the Infant Cleft Observer-Reported Outcomes Instrument, or “ICOO.” I've attached a flyer with full information, including a link to the start page (see the QR code). Spread the word! With your help, we are making a world of difference in a world of facial differences! https://redcap.iths.org/surveys/index.php?s=N8XWT7X98D

07/23/2016

Very proud to publish photos of these significant recognition certificates! The first is from the United States Senate, and the other is our State of Nevada Governor's Proclamation, both in honor of our 25th Anniversary of Service to you and your families, and our crown jewel, National Cleft and Craniofacial Awareness and Prevention Month (NCCAPM)!

07/21/2016

UNJADED

Here's a picture of our Founder/CEO with the President & Executive director of AmeriFace! Today was a heart wrenching, educational, inspiring & beautiful convention! So honored to meet all of the unbelievably strong & brave individuals. Debbie Oliver AmeriFace

07/21/2016

Write a Review for AmeriFace (Las Vegas, NV)

Help us celebrate National Cleft & Craniofacial Awareness & Prevention Month (NCCAPM) by telling us about your interaction with our organization! From all entries in July, we will randomly select a winner for a $50 Visa gift card! http://greatnonprofits.org/reviews/write/ameriface

Submit your rating and write a review for AmeriFace. Share your experience and help others learn about this Las Vegas nonprofit organization!

07/01/2016

Write a Review for AmeriFace (Las Vegas, NV)

Help us celebrate National Cleft & Craniofacial Awareness & Prevention Month (NCCAPM) by telling us about your interaction with our organization! From all entries in July, we will randomly select a winner for a $50 Visa gift card! http://greatnonprofits.org/reviews/write/ameriface

Submit your rating and write a review for AmeriFace. Share your experience and help others learn about this Las Vegas nonprofit organization!

07/01/2016

National Cleft & Craniofacial Awareness & Prevention Month (NCCAPM)

One of the most important accomplishments of our organization in these past 25 years, and of my own non-profit career personally, is the establishment of THE official cleft/craniofacial awareness month - if it's July, then it's National Cleft & Craniofacial Awareness & Prevention (NCCAPM)! The only cleft/craniofacial awareness month recognized by the CDC, the US Department of Health and Human Services, and by cleft/craniofacial clinics around the country and the world, we celebrate with all of you and recognize YOU - our volunteers - in all the fabulous work you do. AmeriFace, including the cleftAdvocate program, is the ONLY national/international cleft/craniofacial support and outreach organization that is 100% volunteer in nature, including myself and the entire staff. Our work in the field, on state and federal legislation to force insurance companies to honor their contracts for cleft/cranio care, and our award winning outreach program, the Pathfinder Outreach Network, are unsurpassed! So here's to another 25 years (at least) and to spreading the word during July - join us in Making a World of Difference in a World of Facial Differences!® http://www.nccapm.org

July is National Cleft & Craniofacial Awareness & Prevention Month (NCCCAPM). Organizations across the country unite to raise awareness and assist patients and families.

06/28/2016

AmeriFace - 2016 North American Craniofacial Family Conference (NACFC)

Making a world of difference in a world of facial differences!® Folks, don't miss our 25th Anniversary Conference and Celebration...it's right around the corner! Las Vegas area locals, be sure to get there! Incredible room rate extended for a few more days and some registration fee scholarships still available. E-mail me directly at [email protected] or call toll-free (888) 486-1209 for additional information or to request a registration scholarship. See you there! http://www.ameriface.org/2016nacfc_registration.html

Are you caring for a child with cleft lip and/or palate or other craniofacial condition? Welcome to AmeriFace, the premier support organization for the cleft/craniofacial community!

06/15/2016

We're pleased to announce that a generous donor has made it possible for us to comp some families into the event! If you can get to our family-friendly hotel at the discounted rate of $69/night (large rooms!), we have some comps available for the conference registration fees! Contact me directly at [email protected] for details. Hurry! This is a limited offer, so make your travel plans now...and how perfect is this for those of you who are within driving distance (NV, AZ, UT, CA - this means you!) http://www.ameriface.org/2016nacfc_registration.html

04/26/2016

Americleft Study Survey

We need your feedback! In conjunction with the Americleft Psychosocial Outcomes Committee, we are asking parents to tell us how important various quality of life and adjustment outcomes are to them and their children. The link below will take families to a very short survey. We will be proposing parent/child interviews in addition to object data as part of the outcomes research.

The only requirement for participation in this phase is that the parent has a child with a cleft lip and/or palate of any age.

Please SHARE throughout the cleft lip/palate community, and feel free to contact me with any questions you may have by e-mailing me at [email protected]. Thank you!

https://www.surveymonkey.com/r/2RPJRLV

Web survey powered by SurveyMonkey.com. Create your own online survey now with SurveyMonkey's expert certified FREE templates.

04/13/2016

Join us in Las Vegas for our 25th Anniversary Celebration! We know you've been waiting for the details, so here they are! The North American Craniofacial Family Conference is slated for July 17-19, 2016 in conjunction with National Cleft & Craniofacial Awareness & Prevention Month (NCCAPM)! All are welcome - spread the word! Special hotel rate of just $69/night (see details on the website) - so REGISTER NOW and BOOK YOUR HOTEL ROOM TODAY!! http://www.ameriface.org/2016nacfc_registration.html

04/05/2016

Tomorrow I'll fly out to Atlanta, GA for the 73rd Annual Meeting of the American Cleft Palate-Craniofacial Association (ACPA)! A week's worth of meetings, exhibits, panels, and discussions - so proud to be a member of this extraordinary organization! Best of all, I'll get to meet and brainstorm with members of your cleft/craniofacial teams from around the country and around the world! I am always overwhelmed by the response to and praise for our core programs (cleftAdvocate, Pathfinders) and our education and support resources. I'll also be kicking off promotion of the 2016 NACFC & AmeriFace 25th Anniversary Celebration slated for Las Vegas, July 17-19, 2016. Hope you can join us - on-line registration coming soon!

03/10/2016

Mark your calendars for this AmeriFace event! Celebrate our 25th Anniversary with us in Las Vegas ~ July 17 - 19, 2016. Hotel block - 650 sq. ft. suites just $69/night (plus taxes) Sunday through Thursday; $139/night (plus taxes) Friday and Saturday. More program details to come! Complete an interest form NOW! http://www.ameriface.org/2016nacfc.html

03/04/2016

AmeriFace - 2016 North American Craniofacial Family Conference (NACFC)

Question: How many of our members would be interested in joining us in Las Vegas, NV for our 25th Anniversary Celebration in July? Help us celebrate National Cleft & Craniofacial Awareness & Prevention Month (NCCAPM), as well as 25 years of leadership in the cleft/craniofacial community! If you're interested in getting the details as soon as they are announced, complete the NACFC form here: http://www.ameriface.org/2016nacfc.html. AmeriFace - Making a World of Difference in a World of Facial Differences!

Are you caring for a child with cleft lip and/or palate or other craniofacial condition? Welcome to AmeriFace, the premier support organization for the cleft/craniofacial community!

12/01/2015

AmeriFace - Donate Now!

#GivingTuesday - Make it an office party! In support of AmeriFace and the cleftAdvocate program, please consider giving a tax-deductible donation (and asking co-workers to do the same) to support patients and families right here in the USA! Text "AMERIFACE" to 77977 or click over to http://www.ameriface.org/donate.html to give - THANK YOU!

07/18/2015

Announcement: National Cleft and Craniofacial Awareness and Prevention Month — July 2015

An announcement in the July 3rd issue of the Morbidity and Mortality Weekly Report (MMWR) - a publication of our partners at the Centers for Disease Control (CDC) - shines light on National Cleft & Craniofacial Awareness & Prevention Month (NCCAPM)! http://www.cdc.gov/mmwr/preview/mmwrhtml/mm6425a5.htm

July is National Cleft and Craniofacial Awareness and Prevention Month, a time to raise awareness and improve understanding of orofacial clefts (clefts of the lip and palate) and other conditions of the head and face. Each year in the United States, approximately 2,600 babies are born with a cleft p…

07/18/2015

Announcement: National Cleft and Craniofacial Awareness and Prevention Month — July 2015

An announcement in the July 3rd issue of the Morbidity and Mortality Weekly Report (MMWR) - a publication of our partners at the Centers for Disease Control (CDC) - shines light on National Cleft & Craniofacial Awareness & Prevention Month (NCCAPM)! http://www.cdc.gov/mmwr/preview/mmwrhtml/mm6425a5.htm

July is National Cleft and Craniofacial Awareness and Prevention Month, a time to raise awareness and improve understanding of orofacial clefts (clefts of the lip and palate) and other conditions of the head and face. Each year in the United States, approximately 2,600 babies are born with a cleft p…

07/06/2015

GreatNonprofits

A Call to Action for our national awareness month, NCCAPM! AmeriFace, including the cleftAdvocate program, is a nationally-recognized top-rated non-profit organization! Post a review of our outreach programs and/or services at the link below and you will be entered into our drawing to receive a copy of "Facing Cleft - Encouraging Healthy Development" FREE! We will award a copy EVERY DAY this week from all NEW reviews! Enter the drawing NOW! http://greatnonprofits.org/reviews/write/ameriface

Find and review charities, nonprofits and volunteering and donation opportunities. Want to donate or volunteer? Find the best local non-profit or charity.

05/05/2015

DynaCleft® & Nasal Elevator Lip Approximation | Southmedic

Here is the DynaCleft information many have waited for! Remember, Canica was sold to Southmedic (also in Canada), finalized just a couple of weeks ago, and their representatives were at the American Cleft Palate-Craniofacial Association (ACPA) conference in Palm Springs last month. There I met Alex Hume, Research and Business Development Associate, who has provided the following information - Unilateral DynaCleft is $27 and Bilateral DynaCleft is $35 (both quantity 7/box). The Nasal Elevator is $48 for a box of 7 and $192 for a box of 28. Nasal Elevator is only sold with equal parts purchase of DynaCleft. Order directly from Southmedic corporate office by calling toll-free (800) 463-7146. http://southmedic.com/pr…/dynacleft-cleft-lip-approximation/

DynaCleft® & Nasal Elevator Developed in collaboration with cleft palate teams, DynaCleft® tapes bridge the cleft segments, gently guiding soft tissue