CalCoalition for Pans/Pandas Advocacy

10/25/2026

💚✨ MOMS, THIS ONE IS FOR US! ✨💚

Every mom caring for a child with PANS/PANDAS, Lyme, autism, or other complex health challenges deserves connection, understanding, and support. Imagine spending a weekend with moms who truly get it, where you can recharge, share experiences, laugh, and feel less alone. 💚

A heartfelt THANK YOU to Amy Joy Smith for organizing the 2027 PANS/PANDAS Moms’ Sacred Healing Retreat and creating this special opportunity for our community!

📍 San Diego, California 📅 February 5–7, 2027

🌿 The retreat is already half full! Scholarships are available, and sponsors are needed to help make this experience accessible to more moms.

Please share with a mom who could use this connection. 💚

Come as you are. You belong here.

🔗 Learn more, register, or explore scholarships: https://www.amyjoysmithnp.com/retreat2027

10/20/2026

Caregivers need support, too. ❤️ Thank you for creating a compassionate space where PANDAS families can feel heard, understood, and less alone. Such an important resource for our community!

Mental Health Support for Caregivers
Navigating PANDAS can be overwhelming and isolating. Mental health professional Sara Wener will join our monthly support groups to offer caregivers a trauma-informed space for connection, validation, and practical tools to navigate stress, uncertainty, and caregiver exhaustion.

As a parent who has personally navigated PANDAS, Sara understands the emotional toll of this journey firsthand. Her experience as a PANDAS parent has directly shaped her professional path and commitment to supporting caregivers in this community.

This is a supportive, psychoeducational, community-based offering and is not psychotherapy or clinical treatment.

Sara Wener is a Registered Associate Marriage and Family Therapist (AMFT #156614) and Registered Associate Professional Clinical Counselor (APCC #20124), practicing under supervision at One Life Counseling Center.

Email [email protected] for the ZOOM link.

10/20/2026

💚 The world is raising awareness. Now it is time to raise the standard of care.

October has brought meaningful progress for the global PANS/PANDAS community. From families sharing their stories and landmarks lighting up green around the world to emerging scientific research and growing recognition within academic medicine, important conversations are moving forward.

But awareness is only the beginning.

The real measure of progress is not how many people hear about PANS/PANDAS. It is how many children benefit from what we learn.

Around the world, we need continued research, stronger physician education, greater understanding of these conditions, and better pathways to timely, informed medical care.

And here in California, we have an opportunity to help shape what comes next.

Through the California Coalition for PANS/PANDAS Advocacy, our vision is to bring researchers, healthcare professionals, educators, policymakers, and families together to advance understanding and create meaningful change.

We want a future where medical professionals recognize the signs, schools understand how these conditions affect children, research helps guide better care, and families feel heard and supported.

Every child deserves the opportunity to be understood, supported, and given the best possible chance to thrive.

Awareness has opened the door. Now we must turn that awareness into research, education, collaboration, and action.

The global movement is growing, and California has an opportunity to help lead the next chapter.

💚 Because the true measure of progress is not awareness alone. It is the difference we make in children's lives.

California Coalition for PANS/PANDAS Advocacy

calcoalition.com

10/10/2026

As Long Beach residents, we are heartbroken watching our neighbors suffer through devastating flooding and damage to their homes.

And good luck getting meaningful help from Senator Lena A. Gonzalez. Apparently, a phone number, a form, and a list of links are what pass for leadership these days.

Families are dealing with real devastation. They need action, not political self-promotion disguised as public service. Posting a pretty graphic is easy. Showing up, taking responsibility, and actually helping people is another story.

Our neighbors deserve far better than empty gestures and bureaucratic runarounds.

Stay safe, Long Beach. 💚

피해

Long Beach is experiencing significant coastal impacts from Tropical Storm Rachel, with powerful waves and high tides damaging homes, the boardwalk and coastal infrastructure along the Peninsula. Floodwater has reached nearby streets, and city inspectors have deemed several structures unsafe to enter. Vehicle access near 62nd Place has also been closed.

City crews are working to reinforce vulnerable sections of the Peninsula’s bulkhead and protect residents, but additional coastal flooding and damage will remain through the weekend and into early next week.

Here’s how you can stay safe:

• Stay away from the shoreline, boardwalk and damaged coastal areas. Large waves can be unpredictable and dangerous, even from shore.

• Avoid flooded streets and follow all road closures and evacuation or building-safety instructions. Never drive through floodwater.

• Prepare for additional rain and flooding. Secure outdoor items, protect important documents and keep emergency supplies accessible.

• Get sandbags if you live in a flood-prone area. Check City of Long Beach current distribution locations and availability: longbeach.gov/pages/city-news/storm/

• Stay informed. Monitor official City of Long Beach updates and National Weather Service alerts for changing conditions, road closures and safety instructions. Sign up for Alert Long Beach to receive emergency notifications and important information from the City: www.longbeach.gov/disasterpreparedness/alert-long-beach/

We will continue to share important updates and resources as they become available.

10/10/2026

❤️

09/29/2026

🦸 You can join the Hope & Heroes Run from anywhere! 💚
On October 11, join the 5K, 10K, or Kids Dash virtually from California or anywhere in the country and help raise awareness for PANS/PANDAS.
🏃 Run from wherever you are
🦸 Bring your superhero spirit
💚 Support an important cause
Join us and spread the word! 🌎
https://runsignup.com/Race/WA/Redmond/HopeandHeroesrun

🦸 HOPE & HEROES RUN | OCTOBER 11

In recognition of PANS/PANDAS Awareness Day on October 9, we are excited to share the Hope & Heroes Run, happening October 11 at Marymoor Park in Redmond, WA!

Join us for a 5K, 10K or Kids Dash and help us bring more awareness to PANS/PANDAS while supporting the Northwest PANDAS/PANS Network. 💚

Not in Washington? You can join us virtually from anywhere!

🏃 5K + 10K + Kids Dash
👕 Race T-shirt
🏅 Finisher medals
👥 Create or join a team
🎭 Superhero costumes encouraged
🦸 All ages and paces welcome

The race is open to everyone, so invite your friends, family and supporters to join us — in person or virtually. The more people we bring together, the more awareness we can create!

Register + details:
https://runsignup.com/Race/WA/Redmond/HopeandHeroesrun

Eastside Runners Snohomish Running Company Lynnwood Run Club Seattle Running Club 🌊 Girls on the Run Snohomish County Cascade Run Club Rain City Runners Run Club Seattle Frontrunners West Seattle Runner Westies Run Club Lake Sammamish Run Club Tacoma Runners TCRC

09/29/2026

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💚 Houston City Hall is LIGHTING UP GREEN!! 💚

💚 Houston City Hall is LIGHTING UP GREEN!! 💚

For the first time, Houston City Hall will on October 9, 2026 in recognition of World PANS/PANDAS Awareness Day.

📸 Houston friends — can you help us capture it?

If you’ll be near City Hall that evening and can take photos, please comment below or send us a message.

We’d love to share this special first-year moment with our community! 💚

Thank you, Houston, for standing with PANS/PANDAS families in Texas, across the country, and around the world! 💚

09/29/2026

❤️ Happy World Heart Day! ❤️
Today is a little reminder to care for our hearts, spread kindness, and keep raising awareness for our PANS/PANDAS families. 🫶
Here’s to healthy hearts, hopeful days, and brighter tomorrows for all of our kids. ❤️✨

❤️ World Heart Day | September 29, 2026 ❤️

Don’t Miss a Beat.

Today is World Heart Day, a global day dedicated to raising awareness about cardiovascular disease (CVD) and the importance of protecting our heart health. Heart disease remains the world’s leading cause of death, accounting for approximately 1 in 3 deaths worldwide.

This year’s message reminds us that heart disease can affect anyone — regardless of age, fitness, or lifestyle — and that recognizing the signs and taking preventative action can save lives.

Small, consistent choices can make a BIG difference. Take a walk, choose the stairs, step away from your desk for a movement break, learn the warning signs, and make your heart health a priority.

This World Heart Day, remember:

❤️ See the signs.
❤️ Protect your heart.
❤️ Keep moving.
❤️ Don’t miss a beat.

Together, we can help make every heartbeat count.

09/18/2026

Gavin Newsom Sign
Governor Gavin Newsom

children deserve childhoods. no loopholes. no negotiations. no excuses.

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