10/26/2026
Something about the first two Photos !!!!!!
What is going through their little minds during our daily dressing changes
& all the so many medications
We do in our regular routine everyday
And every night?
We try to make a little fun routine with it all though,
I sing to Toby
“ regular meds, nice & slow “
And me and baby Hunter give smiles,
But I so wonder what these two little sweethearts think of it all.
It truly amazes me how my 1 year old
Already tries so hard to help out
any way he can.
He will crawl right over to big brother s special padded pillow,
( for Toby’s bony Providence )
And start patting it all over, to help flatten it out,
It’s so cute how Baby Hunter does it,
Then Hunter will crawl back over to me
To see how else he can help.
Meanwhile Toby,
while all this is going on,
Watch’s & smiles
And truly is processing what’s going on.
It’s a lot of stress
But also so much joy, as we take on all this medical stuff, if that makes sense,
We’re definitely tired and wish we could just have a break from all this medical chaos ,
At times, it’s “ just “ impossible to do some of it all at the same time,
8:30 at night is one of those times,
Picture ;
Setting up both boys feeds,
While getting Toby’s medications all
Syringed up & giving the 1 st round of his meds to big brother Toby,
Sometimes while holding a fussy baby Hunter,
Oh and have both boys changed.
It gets busy,
It’s a lot & I do feel those very overwhelmed feelings at times,
“ just one night off “
But hey, at least we try to make it a little fun and smile together.
I originally wanted to come here & tell you all about our Sunday,
But “ well “ I captured this picture last night & had to share it with you all,
I don’t think I’ve ever really talked about our nightly routines anyways.
Our Sunday, I finally did a special little thing for baby Hunters 1 st. Birthday…..
As most of you know,
Baby Hunter spent his first birthday in the hospital back at the end of June,
Well, I originally wanted to take baby to Disneyland, Hunter just “ loves “
Mickey Mouse,
But after a lot of talks, we decided to save $ and wait till baby can walk,
So anyways……….
Can anyone guess what
Me and baby Hunter did?
We went to pantages theater
In Hollywood !!!!!!!
We saw, Bluey’s big play Live,
We saw where Bluey lives lol.
While big brother Toby & Warren hung out at home together.
It was so cute,
Baby Hunters eyes when seeing the live stage,
Seeing Bluey’s house,
There was some fun interactions
Too towards the end of the show,
They had a big, I mean big, but light & sticky bouncy balls bouncing all over people’s heads and outside the theater doors & bubbles of course
While “ Bluey’s “ dance mode
And theme music playing.
It was so very cute,
My hands were full,
Can you imagine,
Chasing after a very fast crawling,
Taking steps now little 1 year old all by myself 🤪
But it was so wonderful to see
Hunters sweet innocent little face
Light up.
After, as we walked back to the car,
we found a huge cool vintage store,
Which we found out later had two stories & a really nice lady Deb
From Australia worked there, lol
( That’s where Bluey’s from, )
And Was so kind to us , even hooked baby Hunter up with a cool hat he loves.
It brought a lot of emotions
Doing all this,
I found myself having tears at the beginning of the live production,
Not because of sadness
But just happiness I suppose from
being able to do this,
Maybe sadness a little because I haven’t been able to with Toby, 
I’m not sure why really,
But it was wonderful and
I hope baby Hunter loved it.
I hope everyone is doing well
And please know you really mean the world to us always,
Update more in a little bit,
It’s a busy Monday already,
I’m really trying to keep us updated though.
Off we go
We all “ got this “!
