Epilepsy Advocacy Network-Quad Cities

Epilepsy Advocacy Network-Quad Cities We provide support, education, seizure response training, and advocacy. We lead the fight to stop seizures, find a cure and overcome the challenges.
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Member of Epilepsy Alliance of America! https://www.epilepsyallianceamerica.org

Operating as usual

We are saddened to learn about the recent sudden death of champion bodybuilder Jenny Lynn-Powell following a #seizure in...
08/05/2021

We are saddened to learn about the recent sudden death of champion bodybuilder Jenny Lynn-Powell following a #seizure in her sleep. She was 49 years old.
She inspired many, and made an impact. Rest in peace. ❤
https://usdaynews.com/.../bodybuilder-jenny-lynn-obituary/
#SUDEP
#epilepsy
#epilepsyawareness

We are saddened to learn about the recent sudden death of champion bodybuilder Jenny Lynn-Powell following a #seizure in her sleep. She was 49 years old.

She inspired many, and made an impact. Rest in peace. ❤

https://usdaynews.com/celebrities/celebrity-death/bodybuilder-jenny-lynn-obituary/

#SUDEP
#epilepsy
#epilepsyawareness

Today marks the 31st Anniversary of the Americans with Disabilities Act becoming law.  The ADA is a civil rights law tha...
07/26/2021

Today marks the 31st Anniversary of the Americans with Disabilities Act becoming law. The ADA is a civil rights law that prohibits discrimination against individuals with disabilities in all areas of public life, including jobs, schools, transportation, and all public and private places that are open to the general public. The purpose of the law is to make sure that people with disabilities have the same rights and opportunities as everyone else.

Today marks the 31st Anniversary of the Americans with Disabilities Act becoming law. The ADA is a civil rights law that prohibits discrimination against individuals with disabilities in all areas of public life, including jobs, schools, transportation, and all public and private places that are open to the general public. The purpose of the law is to make sure that people with disabilities have the same rights and opportunities as everyone else.

As an affiliate of Epilepsy Alliance America we also proudly embrace SK Life Science, Inc., a subsidiary of SK Biopharma...
07/23/2021

As an affiliate of Epilepsy Alliance America we also proudly embrace SK Life Science, Inc., a subsidiary of SK Biopharmaceuticals, as our newest marquee sponsor. We appreciate their support as we aim to serve hundreds of thousands of people with #epilepsy and their families, caregivers and communities. https://www.epilepsyallianceamerica.org/

As an affiliate of Epilepsy Alliance America we also proudly embrace SK Life Science, Inc., a subsidiary of SK Biopharmaceuticals, as our newest marquee sponsor. We appreciate their support as we aim to serve hundreds of thousands of people with #epilepsy and their families, caregivers and communities. https://www.epilepsyallianceamerica.org/

Do you have a child with a Seizure Action Plan?  Join the SAP Coalition for this webinar!
07/21/2021

Do you have a child with a Seizure Action Plan? Join the SAP Coalition for this webinar!

Join the Seizure Action Plan Coalition for a free back to school webinar next week!

ABC to SAP: Why Your Child Needs a Seizure Action Plan

Wednesday, July 28
5 pm Pacific, 6 pm Mountain, 7 pm Central, 8 pm Eastern

Plan now to join us for this free back to school virtual town hall to learn about the importance of having a seizure action plan (SAP) in school settings. Following the presentations, you’ll be able to submit questions to our expert panelists.

Integrating Seizure Actions Plans with Individualized Education Programs
Shelly Meitzler
Epilepsy Mom and Community Programs Manager, East
TSC Alliance

Seizure Action Plans: The Patient’s Voice
Christie L. Van Cleave
Epilepsy Mom, Epilepsy Awareness Advocate, Business Executive

Seizure Action Plans from a Doctor’s Point of View
Elaine Wirrell, MD
Director of Pediatric Epilepsy and Professor of Neurology
Mayo Clinic

The Nursing Perspective on Seizure Action Plans
Kathy O'Hara, RN
Child Neurology
Virginia Commonwealth University

REGISTER TODAY: https://bit.ly/2VDoNAF

Epilepsy Alliance America, our national partner, proudly embraces SK Life Science, Inc., a subsidiary of SK Biopharmaceu...
07/20/2021
Epilepsy Alliance America, SK Life Science, Inc. Launch S.T.E.P.S. Initiative

Epilepsy Alliance America, our national partner, proudly embraces SK Life Science, Inc., a subsidiary of SK Biopharmaceuticals, as its marquee sponsor and supporter in our noble efforts to serve hundreds of thousands of people with epilepsy, and their families, caregivers, and communities.

https://www.youtube.com/watch?v=JYAs8lh-PB4

As a part of the mission to provide resources for those with epilepsy and their loved ones as they advocate for their treatment goals, Epilepsy Alliance Amer...

SEIZE HOPE 2021
07/20/2021
SEIZE HOPE 2021

SEIZE HOPE 2021

The SEIZE HOPE 2021 is on Saturday October 9, 2021.

💜🏌🏼‍♀️🏌🏼‍♂️Thanks to Megan Spahr and families successful golf outing we have decided we would like to add a few more to ...
07/19/2021

💜🏌🏼‍♀️🏌🏼‍♂️Thanks to Megan Spahr and families successful golf outing we have decided we would like to add a few more to our roster for 2022! Is there anyone who would like to chair this event for us???? Please reach out via PM or email [email protected] 🏌🏼‍♀️🏌🏼‍♂️💜

💜🏌🏼‍♀️🏌🏼‍♂️Thanks to Megan Spahr and families successful golf outing we have decided we would like to add a few more to our roster for 2022! Is there anyone who would like to chair this event for us???? Please reach out via PM or email [email protected] 🏌🏼‍♀️🏌🏼‍♂️💜

We cannot thank you enough for all you do to put on this event!  This fundraiser helps us provide a client coordinator f...
07/17/2021

We cannot thank you enough for all you do to put on this event! This fundraiser helps us provide a client coordinator for Rockford area and we could not do it without all of YOU!!!! Special thanks to the Spahr Family for all you do for this event and to promote Epilepsy awareness, we all say 💜💜💜THANK YOU💜💜💜!

Epilepsy Advocacy Network LaSalle County
Epilepsy Advocacy Network of Peoria Area
Epilepsy Advocacy Network-Dekalb
Epilepsy Advocacy Network - Rockford

Hanging out at Wolf Hollow Golf Course for the HOPE Golf Outing to benefit the Epilepsy Advocacy Network!
07/17/2021

Hanging out at Wolf Hollow Golf Course for the HOPE Golf Outing to benefit the Epilepsy Advocacy Network!

Please go vote for Mrs. Ashby!  She is one of the most giving and caring teachers there is!!!  Also fabulous mom to one ...
07/16/2021

Please go vote for Mrs. Ashby! She is one of the most giving and caring teachers there is!!! Also fabulous mom to one of our camp kiddos!

💜💜💜 NOW LOOKING for sponsorships and donations for our Glow Bingo & Boogie fundraiser for Epilepsy Awareness Month.  Sev...
07/15/2021

💜💜💜 NOW LOOKING for sponsorships and donations for our Glow Bingo & Boogie fundraiser for Epilepsy Awareness Month. Several events will be held and all funds stay local to provide local epilepsy services! Please contact us if you can assist with items or would like to join our planning committees!💜💜💜

💜💜💜 NOW LOOKING for sponsorships and donations for our Glow Bingo & Boogie fundraiser for Epilepsy Awareness Month. Several events will be held and all funds stay local to provide local epilepsy services! Please contact us if you can assist with items or would like to join our planning committees!💜💜💜

06/29/2021

A new resource called ShowerBelt is available for people with #epilepsy who seek added safety during a shower. ShowerBelt uses gravity and body weight to stop the flow of water in an emergency. Should the person using it fall, the system is meant to give time to recover safely, without the danger of water. The company that makes this product is based in Ontario, Canada. To learn more, visit their website: https://showerbelt.com.

#watersafety
#epilepsyawareness
#seizuresafe

Can Medical Ma*****na Control Seizures?
06/23/2021
Can Medical Ma*****na Control Seizures?

Can Medical Ma*****na Control Seizures?

Researchers are not clear how CBD works to treat seizures, but they have a few theories: It may slow the sending of messages to the brain, change calcium levels in the brain that affect signals between cells, or reduce inflammation in the brain.

🏕camPossible!🏕 has ended for this year!  We hope you all enjoyed the family game night theme!  Each camper got a BLANK g...
06/16/2021

🏕camPossible!🏕 has ended for this year! We hope you all enjoyed the family game night theme! Each camper got a BLANK game kit and this is one of the awesome creations that came in! Her game was based off the show Riverdale and looks awesome! Congrats on a great job Miley! You have a $100 visa gift card coming your way!

06/14/2021

Support Group meeting Via Zoom June 17 2021 6:30 p.m.
Guest Speaker
Special Guests
U’Rina Idohl
Greenwich Biosciences

Topic: Education on AED Cannabidiol (CBD)
prescription medicine that is used to treat seizures

See log in info on pinned post on our Facebook!

06/11/2021

🏕💜🏕If you were not able to join us tonight in the live ZOOM to show us your game please email pictures ASAP! Voting will start Monday 6/14 and go thru Friday 6/18. We will have winners announced LIVE in three age brackets - 8-12, 13-18, and 18 and over! This is your chance to win $100 gift card and lots of other cool prizes!!!!🏕💜🏕

💜!!!!VOLUNTEERS NEEDED!!!!💜July 17, 20218:00-5:00Wolf Hollow Golf CourseLena, ILPlease email EANIllinois@gmail.com if yo...
06/10/2021

💜!!!!VOLUNTEERS NEEDED!!!!💜
July 17, 2021
8:00-5:00
Wolf Hollow Golf Course
Lena, IL
Please email [email protected] if you can help!

💜!!!!VOLUNTEERS NEEDED!!!!💜
July 17, 2021
8:00-5:00
Wolf Hollow Golf Course
Lena, IL
Please email [email protected] if you can help!

06/09/2021
Join our Cloud HD Video Meeting

🏕camPossible! Campers!!!! Make sure you join us on ZOOM tonight at 6 for a very SPECIAL GUEST!!!🏕

Join Zoom Meeting
https://us02web.zoom.us/j/87340633611?pwd=K1ZTakZYWElNZ01OYjVnRzEvWHRvZz09

Meeting ID: 873 4063 3611
Passcode: EANIL

Zoom is the leader in modern enterprise video communications, with an easy, reliable cloud platform for video and audio conferencing, chat, and webinars across mobile, desktop, and room systems. Zoom Rooms is the original software-based conference room solution used around the world in board, confer...

Golf Outing Info!  If you can sponsor or want to bring a team please let us know!!!
06/08/2021

Golf Outing Info! If you can sponsor or want to bring a team please let us know!!!

Golf Outing Info! If you can sponsor or want to bring a team please let us know!!!

⛺️VIRTUAL camPossible! has started!!!  Don't forget to log in each night at 6 on ZOOM for our activities and games and y...
06/07/2021

⛺️VIRTUAL camPossible! has started!!! Don't forget to log in each night at 6 on ZOOM for our activities and games and your chance to win some awesome prizes!!!!⛺️

If you didn't get to join you need to start working on your OWN game board this week! GLOW BINGO is Tuesday so make sure you hop on Tuesday at 6!

Rules:
Must complete the entire game.

Can only use 3 additional items that were not included in your box (does not include markers, paint, pencils, or pens.)

Must be on LIVE ZOOM Friday to tell us about your game

⛺️Must take pic for posting on FB of you and your family playing the game Friday night. All pics will be posted and one with most votes on Friday 6/18 will win $100 visa gift card!⛺️

⛺️VIRTUAL camPossible! has started!!! Don't forget to log in each night at 6 on ZOOM for our activities and games and your chance to win some awesome prizes!!!!⛺️

If you didn't get to join you need to start working on your OWN game board this week! GLOW BINGO is Tuesday so make sure you hop on Tuesday at 6!

Rules:
Must complete the entire game.

Can only use 3 additional items that were not included in your box (does not include markers, paint, pencils, or pens.)

Must be on LIVE ZOOM Friday to tell us about your game

⛺️Must take pic for posting on FB of you and your family playing the game Friday night. All pics will be posted and one with most votes on Friday 6/18 will win $100 visa gift card!⛺️

💜Boxes are starting to arrive and we have some happy campers!💜🏕
06/04/2021

💜Boxes are starting to arrive and we have some happy campers!💜🏕

💜Boxes are starting to arrive and we have some happy campers!💜🏕

Remembering today all those who paid the ultimate sacrifices for our freedoms. 🇺🇸
05/31/2021

Remembering today all those who paid the ultimate sacrifices for our freedoms. 🇺🇸

Remembering today all those who paid the ultimate sacrifices for our freedoms. 🇺🇸

05/19/2021

❗️❗️❗️❗️REMINDER! Support Group Thursday 5/20 @6:30 on zoom. Guest will be Jessica Kreiser ED of Lighted Way, Children's Development Center & Veteran of Education
Topic: Navigating IEP Communications for Parents❗️❗️❗️❗️

“The art of mothering is to teach the art of living to children.” —Elaine Heffner💜Happy Mother’s Day to all the wonderfu...
05/09/2021

“The art of mothering is to teach the art of living to children.” —Elaine Heffner

💜Happy Mother’s Day to all the wonderful mamas out there. Enjoy your day!💜

“The art of mothering is to teach the art of living to children.” —Elaine Heffner

💜Happy Mother’s Day to all the wonderful mamas out there. Enjoy your day!💜

Donate today for EAN to receive matching funds!!!
05/06/2021

Donate today for EAN to receive matching funds!!!

Ready...Set...GIVE! #GiveDeKalbCounty 2021 is here! Visit www.GiveDeKalbCounty.org all day to donate!

It is no secret why someone with #epilepsy may be hesitant to make their journey widely known: the potential for ridicul...
04/27/2021
Rob Oller | Justin Fields can turn NFL gossip into good by educating public about epilepsy

It is no secret why someone with #epilepsy may be hesitant to make their journey widely known: the potential for ridicule, distance and mistruths. While it's true a public figure can do a lot of good to educate society, the best thing we can for THEM is to push back against the stigma and bad information that too often surrounds people who cope with #seizures.
https://www.buckeyextra.com/.../nfl-draft.../7348578002/

Now that Justin Fields' epilepsy has gone public, the two-year starter at quarterback for Ohio State can make a difference by breaking down stigmas.

camPossible! is going virtual again this year! Although we are very disappointed that we do not get to see you all in 20...
04/12/2021

camPossible! is going virtual again this year! Although we are very disappointed that we do not get to see you all in 2021 we WILL be back in 2022! Camp boxes for virtual camp are now available! You MUST FILL OUT THE FORM BELOW AND EMAIL IT TO: [email protected] so that we can keep everything organized! Boxes are FREE and available for youth and young adults 8-24 for virtual camp June 7-11. All forms due by 5/1/2021 and no late forms will be accepted. Looking forward to seeing you all in June virtually!

camPossible! is going virtual again this year! Although we are very disappointed that we do not get to see you all in 2021 we WILL be back in 2022! Camp boxes for virtual camp are now available! You MUST FILL OUT THE FORM BELOW AND EMAIL IT TO: [email protected] so that we can keep everything organized! Boxes are FREE and available for youth and young adults 8-24 for virtual camp June 7-11. All forms due by 5/1/2021 and no late forms will be accepted. Looking forward to seeing you all in June virtually!

💜💡💜DON’T FORGET to join us tonight on ZOOM at 6pm(CST) for our light it up purple presentation!#eanpurpledayJoin Zoom Me...
03/26/2021

💜💡💜DON’T FORGET to join us tonight on ZOOM at 6pm(CST) for our light it up purple presentation!
#eanpurpleday

Join Zoom Meeting
https://us02web.zoom.us/j/9254338618?pwd=aEc5dlY3cXI3c1BwK2tjbTdVLzltQT09

Meeting ID: 925 433 8618
Passcode: EANIL
Dial by your location
+1 312 626 6799 US (Chicago)
Meeting ID: 925 433 8618
Passcode: 843442

💜💡💜DON’T FORGET to join us tonight on ZOOM at 6pm(CST) for our light it up purple presentation!
#eanpurpleday

Join Zoom Meeting
https://us02web.zoom.us/j/9254338618?pwd=aEc5dlY3cXI3c1BwK2tjbTdVLzltQT09

Meeting ID: 925 433 8618
Passcode: EANIL
Dial by your location
+1 312 626 6799 US (Chicago)
Meeting ID: 925 433 8618
Passcode: 843442

IT’S TODAY!  Who are you wearing purple for and what can you do? So, if you know and love someone with epilepsy here are...
03/26/2021

IT’S TODAY! Who are you wearing purple for and what can you do?


So, if you know and love someone with epilepsy here are some things you can do to help...

1. Wear purple, take a picture and post it in the comments below with “I wear purple for (for who or why you’re wearing purple) #EANPurpleDay

2. If you want to get a little bit more involved, try the #1in26challenge! Why 26?
At some point 1 in 26 Americans develop epilepsy in their lifetime. Join us in by creating a fun video of ANYTHING 26!
26 jumping jacks, 26 slap shots, 26 high fives, a collage with 26 of your favorite things, etc.

Then, copy the following in your post and share!
I’m taking the Epilepsy Awareness Network QC #eanpurpleday
1. Share a video/picture with 26 ANYTHING and include
2. State your name and say "This is for the 1 in 26 living with epilepsy".
3. Tag us @Epilepsy Advocacy Network-Quad Cities #EANPurpleDay too!

Thank you in advance! We love you all and can’t wait to see what your creative minds come up with!

#EanPurpleDay

IT’S TODAY! Who are you wearing purple for and what can you do?


So, if you know and love someone with epilepsy here are some things you can do to help...

1. Wear purple, take a picture and post it in the comments below with “I wear purple for (for who or why you’re wearing purple) #EANPurpleDay

2. If you want to get a little bit more involved, try the #1in26challenge! Why 26?
At some point 1 in 26 Americans develop epilepsy in their lifetime. Join us in by creating a fun video of ANYTHING 26!
26 jumping jacks, 26 slap shots, 26 high fives, a collage with 26 of your favorite things, etc.

Then, copy the following in your post and share!
I’m taking the Epilepsy Awareness Network QC #eanpurpleday
1. Share a video/picture with 26 ANYTHING and include
2. State your name and say "This is for the 1 in 26 living with epilepsy".
3. Tag us @Epilepsy Advocacy Network-Quad Cities #EANPurpleDay too!

Thank you in advance! We love you all and can’t wait to see what your creative minds come up with!

#EanPurpleDay

03/26/2021

EAN is HIRING! Are you a self starter? Have a passion for helping people? We are looking to hire a part time client services coordinator in Peoria, Rockford, & DeKalb. If you are interested email [email protected] to get a full job description and application.

EPILEPSY ADVOCACY NETWORK OF ILLINOIS & EASTERN IOWA
Affiliate of Epilepsy Alliance of America

CLIENT SERVICES COORDINATOR

General Description: To organize, coordinate and provide direct services and epilepsy education to persons with epilepsy, members of their families and the community. To market such services and solicit referrals to our agency from other service providers. Also responsible to research grants and fundraising opportunities in your area. This person works in coordination with other agency personnel and reports directly to the Executive Director.

Address

616 35TH AVE, SUITE 3
Moline, IL
61265

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Comments

Lanterns and necklace by Kaya 💜
Kaya Ruby Grace
Kaya Ruby Grace
Kaya Ruby Grace 💜
For all those who knew Jeremy, here is information for his visitation and memorial:
Jeremy was a great volunteer for the Epilepsy Foundation starting in 2013 while he lived here in the QCs. For anyone who knew Jeremy, here is information about visitation:
Thank you for registering for our Make My Non-Profit Run Better contest! Please make sure to 'like' our page to stay up to date on all contest details. There are tons of resources your non-profit can use to market this contest to your supporters. Find them here: https://www.mmnprb.com/resources/ Good luck! Voting begins September 14!
I have a 6YO diagnosed with intractable epilepsy and also a doctoral candidate writing my dissertation on epilepsy in education (k-12). If you have 5-10 minutes to fill out the questionnaire below and/or forward to potential participants, it would be GREATLY appreciated!! Participants must be: ** K-12 teacher (general ed. or special ed.)** OR * *Parent of a school-aged child diagnosed with epilepsy** Questionnaire found at www.EpilepsyInEducation.org Thank you!!
Just in case anyone is thinking of going to see this.
CamPossible dance party!!!!
Will there be a 5K run/wall in the QC this year???