03/23/2024
Tuesday, March 19, 2024 was a dream come true for a girl who grew up in constant pain and was told by a Dr. that she’d never amount to anything more than a housewife due to her condition.
Tuesday was the 17th annual Headache on the Hill, a day I never thought possible. I advocated along with 275 patients, caregivers, providers and researchers representing all 50 states.
The largest and most diverse Headache on the Hill yet.
We spoke with our Congressional offices to share our personal experiences living with headache and migraine disease, highlighting their significant impact on our daily lives and to advocate for legislative support on the following asks:
1. The Safe Step Act
2. NIH Clinical Trial Diversity Act
3. Increased funding for the VA Headache Disorders Centers of Excellence
Wondering how you can help make an impact in just a few minutes?
Click the link below to send a pre-drafted message to your representatives:
https://secure.everyaction.com/vM031iL9DkW64SpZlHmfLA2?contactdata=zdnsX+rdaZhYw9Fa7EeBlF7QrtgBa3kjje0fLL5wu480s7dg9XMDtSUqD5G4ygkVqNicnBwdAvKCll6D0PUAIuWmMLdP6oc3jZVD4LQIJ7naNDGPbJxrN7v609QztZ+AtgG8gN0f7MDQioCRyd3syh4bR1HOI3Y9GPnGYZCivfJCWttMvUukeQVUFEbxNOQ5mGPfc1keqygV2spPhdgPjHhJ5VgGnK3TEBd5wPaB70kHmTOSeMSMr%2fwZTSVmdGIO&emci=883681d3-efe2-ee11-aaf0-002248223794&emdi=a446084d-f1e5-ee11-aaf0-002248223794&ceid=5114606
Any bit helps, and no it’s not just a headache and yes you can dream big no matter your condition or where you’re at.
💜💜💜💜
Alliance for Headache Disorders Advocacy Julienne Verdi Migraine Writer Ana Wright Vias
