The Sickle Cell Association of New Jersey

05/06/2025

04/30/2025

🌟April Activities Photodump! 🌟

This month, we had an incredible time engaging with our community and raising awareness about sickle cell disease! From educational workshops to fun-filled events, our members and supporters came together to make a difference. Here are some highlights from our programs and outreach activities.

Thank you to everyone who participated and supported our mission! Together, we can continue to spread awareness, provide resources, and advocate for those affected by sickle cell disease.

Stay tuned for more exciting events in the upcoming months!

04/25/2025

Save the date: Shine the light on sickle cell at our Summer Sickletini Happy Hour! Join us on Thursday, June 19, at Collective Spaces in Baltimore for a joyful, in-person celebration of community, culture and collective action. Hosted in honor of World Sickle Cell Day, this gathering offers guests an evening of connection and impact — complete with light bites and entertainment. Enjoy Sickletinis and Mocktinis and celebrate and stand with us in support of sickle cell warriors everywhere. Register today: http://bit.ly/SickletiniJune2025

04/24/2025

✨ A Breakthrough Worth Celebrating: Safer Blood Transfusions on the Horizon ✨

We are thrilled to share incredible news that brings hope to families like ours and so many others impacted by sickle cell disease: Safi BioTherapeutics has been awarded an NIH STTR grant to develop antigen-null red blood cells as a diagnostic tool for improving blood transfusion safety for alloimmunized patients.

For those living with sickle cell disease, chronic transfusions are often a vital part of care — but for patients who have developed alloantibodies, finding compatible blood becomes dangerously difficult. That’s our reality too.

My daughter, Tully, is hard to transfuse due to alloimmunization. This condition has not only added complexity to her care, but it has also prevented her from accessing curative therapies that could change the trajectory of her life.

So when we heard about this grant — and the collaborative effort between Safi BioTherapeutics and Dr. Stella Chou at CHOP — we were overwhelmed with emotion. This is more than research. It is a lifeline for Tully and so many other warriors like her who deserve a future with fewer limitations and more healing.

We are proud to uplift this groundbreaking work and committed to supporting it however we can.

To our community: Hope is rising, and this is just the beginning. Let’s continue to advocate, share, and celebrate every step forward in the fight against sickle cell disease.

💥 Read more: https://www.einpresswire.com/article/805277886/safi-biotherapeutics-awarded-nih-sttr-grant-to-improve-blood-transfusion-safety

04/17/2025

🌟 Happening today at 7pm for males living with sickle cell - 16 and older! Join us for a FREE event where you can enjoy dinner, receive gift cards, and learn about health issues unique to Male SCD patients.

Don't miss out—come dine and learn! 🍽️🎁

04/11/2025

Join us for dinner and an informative discussion on health issues uniquely affecting SCD male warriors.

The Sickle Cell Association of New Jersey and SCD Red cordially invite males 16+ to participate in a powerful male Meetup focused on Saving the Male Trunk.

04/10/2025

What does unlocking better health outcomes and maintaining continuity of care for SCD warriors entail? It means ensuring young warriors truly understand their health journey and are fully prepared for the transition to adult care. Knowledge, support, and preparation are key to helping them thrive and unlock their full potential.

04/10/2025

Join Alpha Baptist Church for a day dedicated to health and wellness! Alpha Baptist's community health fair is designed to promote and encourage healthy lifestyles for the whole family.

What to Expect:

- Fun activities for all ages
- Free health screenings
- Informative health education resources

Check out the flyer for more details! Let's take a step towards a healthier you, together!

Hashtags:

04/10/2025

Join us June 19th as we partner with The Source of Knowledge Bookstore.

04/10/2025

We’re getting ready for STL 2025

04/10/2025

Join us!

Join us on April 16th at 3pm ET to find out how to Shine the Light on Sickle Cell in your area! You must RSVP to receive the meeting link. See details in flyer.