Chronic Illness: Why We Don't Talk About It and What Needs to Change
When you think about it, we talk about everything else. We talk about our families, our jobs, our vacations. But when it comes to chronic illness, we clam up. Why is that? Over 157 million people in the US have 1 or more chronic illnesses and yet we don't talk about them. Maybe it's because we are afraid of being judged? Maybe we think people won't want to be around us if they know we have a chronic illness? Whatever the reason, this needs to change. We need to be able to talk freely and safely about our chronic illness journey.
We all know someone who has a chronic illness, whether it's a family member, friend, or co-worker. But even though it's so common, we don't talk about it. Why is that? Maybe it's because we think people with chronic illnesses are somehow different from us and that they must be treated differently. Or maybe we're just afraid of saying the wrong thing and making them feel uncomfortable.
If we can talk about our chronic illnesses, then we can start to break down the barriers that keep us from living our best lives. We deserve to live life to the fullest! And we are here to support you on your journey. So come talk to us, we're listening!
Communication about chronic illness is the key. We need to talk about it so that we can understand it better. And by talking about it, we can help break the stigma that surrounds chronic illness. So let's start the conversation today. At Situation Positive, we are changing the conversation about chronic illness. We have created an inclusive community to share chronic illness stories. We believe that by sharing our stories, we can help others feel less alone on their chronic illness journey. Join us today and be a part of the change!
At Situation Positive, we are changing the conversation about chronic illness. We have created an inclusive community to share chronic illness stories. So come on over and join the conversation! Let's talk about chronic illness!
-The Situation Positive Team-
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Dennis Hurley: Actor, Advocate, and Albino - His life with albinism and info about the upcoming N.O.A.H. conference
Dennis Hurley was born with albinism, a genetic disorder that affects pigment production in the skin, hair, and eyes. Growing up, Dennis experienced a lot of discrimination and bullying because of his condition. But he never let it stop him from achieving his dreams.
In this video, Dennis shares his powerful story of overcoming adversity and living life to the fullest. He also offers advice to others who are struggling with albinism or any other type of disability. He also discusses the upcoming the National Organization of Albinism & Hypopigmentation (N.O.A.H.) conference. So be sure to watch it!
When is It Time to See the Doctor?
When Is It Time to See the Doctor? Putting off going to the doctor can lead to bigger problems. This video explains when is the right time to see the doctor. It also explores communicating with your physician's office as a way to help manage chronic illness.
About Us:
Situation Positive is a nonprofit community dedicated to helping people living with chronic illness. Learn more about Situation Positive at https://situationpositive.org/
You Miss 100% of the Shots You Don't Take
This video explains how Matt Cavallo of Situation Positive presented a keynote speech and Oprah Winfrey was staying at the same hotel. Matt used to watch the interviews on the Oprah Winfrey show when he was diagnosed with MS and recovering from multiple sclerosis relapses. Matt wrote a memoir on multiple sclerosis called The Dog Story to help others living with a chronic illness. Matt Cavallo tells his dog story to audiences all over the globe to motivate, inspire, and give hope to people living with chronic illnesses or medical professionals who want to learn more about the patient experience. Matt had always dreamed of being in Oprah Winfrey's book club and he had a shot to get a book to her. Wayne Gretzky said, you miss 100% of the shots you don't take, so Matt signed a heartfelt letter to Oprah in the book and the event coordinator was able to get the book to Oprah's handler. Matt may never know if Oprah liked his book, but he overcame his fear and took his shot.
Is there anything stopping you from taking your shot? Let us know what you think in the comments below.
About Us:
Situation Positive is a nonprofit community dedicated to helping people living with chronic illness. Learn more about Situation Positive at https://situationpositive.org/.
Why Your Man Spends So Much Time In The Bathroom and What You Can Do About It
Matt gets real about men and peeing problems. He discusses benign prostatic hyperplasia (BPH) and some actions you can take to find relief.
Read the full interview on our blog: https://situationpositive.org/2022/03/18/why-your-man-spends-so-much-time-in-the-bathroom/
Please subscribe to our channel and follow us on social media. We thank you for your support!
Situation Positive is a nonprofit community dedicated to providing support and education to those affected by chronic illnesses. To learn more please visit us at: https://situationpositive.org/
Why Me? How Did I End Up Diagnosed with a Chronic Illness?
Matt Cavallo talks about factors that lead to being diagnosed with a chronic illness, including how the Epstein-Barr virus (mono) factors in.
Read the full interview on our blog: https://situationpositive.org/2022/03/15/diagnosed-with-chronic-illness/
Please subscribe to our channel and follow us on social media. We thank you for your support!
Situation Positive is a nonprofit community dedicated to providing support and education to those affected by chronic illnesses. To learn more please visit us at: https://situationpositive.org/
How to Minimize Your Out-of-Pocket Medical Expenses with a Chronic Illness
Matt Cavallo shares with you a secret that the pharmaceutical companies don't want you to know about copay assistance programs.
For the full text, please visit: https://situationpositive.org/2022/03/15/what-drug-companies-dont-want-you-to-know/
Please subscribe to our channel and follow us on social media. We thank you for your support!
Situation Positive is a nonprofit community dedicated to providing support and education to those affected by chronic illnesses. To learn more please visit us at: https://situationpositive.org/
Situation Positive provides non-medical advice, knowledge, and education for members. Situation Positive also provides a place to belong, where you can connect with others, and can find your voice. Situation Positive is a licensed non-profit that is free for people living with a chronic illness to join, participate and utilize the resources.
How parenting is like the poem footprints in the sand.
Positivity Project! We want You! Share Your Story on Our Positivity Podcast!
Do you have a story to share? We want to hear from you! Click on this link for more details: https://situationpositive.org/positivity-project/
Please subscribe to our channel and follow us on social media. We thank you for your support!
Situation Positive is a nonprofit community dedicated to providing support and education to those affected by chronic illnesses. To learn more please visit us at: https://situationpositive.org/
I am not a Model
Matt Cavallo is not a model, but people have been asking him where to get Situation Positive t-shirts. You can find them here: https://merch.undergroundshirts.com/collections/situation-positive
Please subscribe to our channel and follow us on social media. We thank you for your support!
Situation Positive is a nonprofit community dedicated to providing support and education to those affected by chronic illnesses. To learn more please visit us at: https://situationpositive.org/
Belly Fat and Chronic Illness Week 5
Matt gets real about his struggles with weight gain, his diet failures, the impact on his health, and steps on the scale to show his progress.
For the full text, please visit: https://situationpositive.org/2022/03/02/belly-fat-and-chronic-illness-week-5/
Please subscribe to our channel and follow us on social media. We thank you for your support!
Situation Positive is a nonprofit community dedicated to providing support and education to those affected by chronic illnesses. To learn more please visit us at: https://situationpositive.org/
What It's Like to be Diagnosed with MS #MSAwarenessMonth
For #msawarenessmonth, Matt Cavallo shares what it is like to be diagnosed with #multiplesclerosis from his own personal patient experience.
Read the full interview on our blog: https://situationpositive.org/2022/03/02/what-its-like-to-be-diagnosed-with-ms/
Please subscribe to our channel and follow us on social media. We thank you for your support!
Situation Positive is a nonprofit community dedicated to providing support and education to those affected by chronic illnesses. To learn more please visit us at: https://situationpositive.org/
Happy Rare Diseases Day!!!
Happy Rare Disease Day!!! If you are one of the 300 million-plus living with a rare disease, you are welcome in the Situation Positive community. Here you are not rare, you are included. #rarediseaseday
Read the full story on our blog: https://situationpositive.org/2022/02/28/happy-rare-disease-day/
Please subscribe to our channel and follow us on social media. We thank you for your support!
Situation Positive is a nonprofit community dedicated to providing support and education to those affected by chronic illnesses. To learn more please visit us at: https://situationpositive.org/
Situation Positive provides non-medical advice, knowledge, and education for members. Situation Positive also provides a place to belong, where you can connect with others, and can find your voice. Situation Positive is a licensed non-profit that is free for people living with a chronic illness to join, participate and utilize the resources.
How to anticipate stressful events
If you have a chronic illness, stress is the enemy. Learn how to minimize stress for anticipated events using the techniques discussed here.
For the full text, please visit: https://situationpositive.org/2022/02/27/how-to-anticipate-stressful-events/
Please subscribe to our channel and follow us on social media. We thank you for your support!
Situation Positive is a nonprofit community dedicated to providing support and education to those affected by chronic illnesses. To learn more please visit us at: https://situationpositive.org/
Walking Stairs with a chronic illness. And what to do if you slip!
Walking Stairs with a chronic illness is tough. Here we provide some tips, including what to do if you slip.
For the full text, please visit: https://situationpositive.org/2022/02/26/walking-stairs-with-a-chronic-illness/
Please subscribe to our channel and follow us on social media. We thank you for your support!
Situation Positive is a nonprofit community dedicated to providing support and education to those affected by chronic illnesses. To learn more please visit us at: https://situationpositive.org/
How to turn weakness into strength
David Lyons teaches techniques on how to overcome weakness on one side due to complications from chronic illness. This was especially important to Matt Cavallo, who has deficits on his right side due to an MS relapse.
or the full text, please visit: https://situationpositive.org/2022/02/25/how-to-turn-weakness-into-strength/
Please subscribe to our channel and follow us on social media. We thank you for your support!
Situation Positive is a nonprofit community dedicated to providing support and education to those affected by chronic illnesses. To learn more please visit us at: https://situationpositive.org/
Finding a rare disease specialist when all else has failed. A mother's heartwarming story of hope.
A mother lost hope of finding a specialist for her daughter's rare disease. Learn how a chance encounter at a salon, inspired hope.
Read the full interview on our blog: https://situationpositive.org/2022/02...
Please subscribe to our channel and follow us on social media. We thank you for your support!
Situation Positive is a nonprofit community dedicated to providing support and education to those affected by chronic illnesses. To learn more please visit us at: https://situationpositive.org/
Situation Positive provides non-medical advice, knowledge, and education for members. Situation Positive also provides a place to belong, where you can connect with others, and can find your voice. Situation Positive is a licensed non-profit that is free for people living with a chronic illness to join, participate and utilize the resources.
Belly Fat and Chronic Illness Week 4
Matt gets real about his struggles with weight gain, his diet failures, the impact on his health, and steps on the scale to show his progress.
For the full text, please visit: https://situationpositive.org/2022/02/23/belly-fat-and-chronic-illness-week-4/
Please subscribe to our channel and follow us on social media. We thank you for your support!
Situation Positive is a nonprofit community dedicated to providing support and education to those affected by chronic illnesses. To learn more please visit us at: https://situationpositive.org/
Learn about the No Surprises Act and what we did to get out paying a $6000 medical bill at Situation Positive #chronicillness #patientexperience #medicalbills #medicaldebt #positivemindset
