ZebraPgh - Peer Support Community & Resources

09/03/2026

🚨 ATTENTION: We are merging this Facebook group with the Western Pennsylvania Ehlers Danlos Syndrome Support Group page! 🚨

What is changing?
*We will stop posting updates here.
*All of our usual content, resources and meeting announcements will move to the Western Pennsylvania Ehlers Danlos Syndrome Support Group page.

What is staying the same?
*Our monthly in-person meetings aren't going anywhere! We will continue to meet at the Carnegie Library of Pittsburgh – East Liberty.

‼️ What you need to do:
✅ Please join the Western Pennsylvania Ehlers Danlos Support Group if you haven't already.

Thank you all for being part of this community! We look forward to seeing you in the other group!

09/02/2026

We welcome those affected by EDS/HSD, including support people, at our next PGH EDS Group meeting!

We will discuss school and workplace accommodations. What modifications would improve your ability to attend school, volunteer or work? If you have left school and the workforce, what accommodations do you wish you had earlier in life? What are the benefits and challenges of studying, volunteering and working remotely rather than in person?

RSVP ⬇️ (no shows and last-minute cancellations are OK)
https://docs.google.com/forms/d/e/1FAIpQLSd2clU5CKJfS6wIUWgd6V5WFQW3ly0aQo7Yq4RiczqZG_v1tg/viewform?pli=1

(CLP is not the host or organizer of this event. CLP does not support, sponsor, or represent this group or event.)

08/31/2026

08/25/2026

Please join us!

[Please note: CLP is not the host or organizer of this event. CLP does not support, sponsor, or represent this group or event.]

08/20/2026

A volunteer is interested in expanding PGH EDS Group to Mars, Butler County. We would continue hosting monthly meetings, alternating between afternoons and evenings, at the Carnegie Library of Pittsburgh -- East Liberty.

Please complete this survey to share your thoughts about the potential Mars meetings ⬇️

Potentially considering a North Hills location for meetings

08/20/2026

Accessibility for all! ♿ ✊

"Maintaining sidewalks is part of the larger work of making Pittsburgh safer and more accessible for everyone,” according to a statement from the City of Pittsburgh's mayor's office.

Damitra Penny-Harris is regularly yelled at by drivers for taking her powered wheelchair on the road. Once, on a long hilly stretch of walkway, she nearly...

08/14/2026

FRIDAY FORUM: What's the most ridiculous, unhelpful piece of advice or treatment someone recommended for your EDS/HSD? 🤔