18/01/2024
It has been 168 days since the heart transplant. 5 months and 15 days.❤️❤️
Our last few heart biopsies have shown very mild rejection. Nothing to be too concerned about, heart functions for a transplant are good.
Had a bit of adjustment of anti rejection medication, and unfortunately some side effects that are not so fun, but nothing can be done about them. Pretty bad shaking all over and nausea.
He completed his cardiac rehab PT. This helped him quite a bit. He can now walk a lot more, no more need for a wheelchair or walker when we go to doctor appointments. He has a bit more stamina which is fantastic! We are both happy no more drive 3x a week to Sugarhouse for this. Fantastic people and facility, but we are glad that part is done.
It takes about a year to really see all the benefits of the transplant. It’s a long road to recovery.
Update on Amber. Her heart function has improved a bit due to medication that is known to help with some people (Drew’s body did not tolerate it). Hopeful this will stall out the need for transplant for a long time!! She has been able to do a bit more again. Hopefully this continues for her and everyone can see her at the art shows with me again. ❤️
Update on Hailey. Her 4th hip surgery failed. She will be have her 5th surgery, a hip replacement April 4th. She has been referred to a specialist in her type of hip issues. They decided to do a more aggressive approach since everything keeps failing and her lack of mobility in her leg. Fingers crossed this gives her back some mobility without so much pain. She will have a bit of a journey before she is too side.
