Walk For Ferrial Foundation

Walk For Ferrial Foundation The Walk For Ferrial is a non-profit organization to raise awareness for Turner Syndrome. To learn more about Turner Syndrome go to www.walkforferrial.org

The intent of the walk is to create awareness for Turner Syndrome....Please go to www.walkforferrial.com or www.tssus.org to educate yourself on Turner Syndrome

The intent of the walk is to create awareness for Turner Syndrome....Please go to www.walkforferrial.com or www.tssus.org to educate yourself on Turner Syndrome

Operating as usual

02/04/2021
TS is a non-inherited genetic condition that effects each person differently however there are a few typical characteris...
02/01/2021

TS is a non-inherited genetic condition that effects each person differently however there are a few typical characteristics that can help with early detection, which is critical.....

TS is a non-inherited genetic condition that effects each person differently however there are a few typical characteristics that can help with early detection, which is critical.....

Here is a good opportunity to kick off Awareness month....
02/01/2021

Here is a good opportunity to kick off Awareness month....

The Awareness Committee is a group of volunteers passionate about making a difference for Turner Syndrome. They'll be going live, right here on Facebook, every week in February! They have fun activities planned and there will be plenty of conversation, plus you can ask questions to learn more about Turner Syndrome. Save the dates to see what they have in store! The first live event will take place on February 2nd at 8pm EST.

We have a new batch of bracelets in. Who is ready to help us with our #WUW (wrists up Wednesday) awareness campaign for ...
03/08/2020

We have a new batch of bracelets in. Who is ready to help us with our #WUW (wrists up Wednesday) awareness campaign for 2020??

The Turner Syndrome Global Alliance is a great resource for information on TS Awareness......
02/13/2020

The Turner Syndrome Global Alliance is a great resource for information on TS Awareness......

According to the TS Clinical Care Guidelines, the findings of academic achievement include 50–75% of girls and women with TS have dyscalculia (mathematics learning disorder) and numerical processing deficit. Some have inconsistent phonological processing and word-reading, but most often a strength with some hyperlexia (accelerated reading) and inconsistent reading comprehension. This usually results in poor performance in math and might be less efficient in reading. For those with poor performances in math, you may consider an evaluation for dyscalculia.

Recommended interventions include:
- Establishing academic accommodations that enable developmentally appropriate mastery of concepts when there is evidence of learning difficulties, including tutoring and empirically supported interventions, extensions of time demands, and capitalization on verbal strengths.
- Referral to occupational or physical therapy for perceptual-motor and visuospatial issues in academic and daily function.
- Target core deficits known to underlie mathematics disorders such as numerical magnitude representation (see below) and linking exact numerosities with number symbols using neuroscience research-supported methods (e.g., The Number Race or Graphogame respectively)

You can learn more information about neurocognition and behavior in Turner syndrome, in the TS Care Guidelines, section 7, at https://eje.bioscientifica.com/view/journals/eje/177/3/EJE-17-0430.xml

(Numerical magnitude development involves gaining increasingly precise knowledge of increasing ranges and types of numbers: from nonsymbolic to small symbolic numbers, from smaller to larger whole numbers, and from whole to rational numbers. One reason why this development is important is that precision of numerical magnitude knowledge is correlated with, predictive of, and causally related to both whole and rational number arithmetic.)

Please help us wish our founder and Ferrial's amazing dad, a happy birthday!
08/28/2019

Please help us wish our founder and Ferrial's amazing dad, a happy birthday!

Hey guys...hey guys....guess what day it is?  Nope not hump day....it's Wrist Up Wednesday!  Here's a throw back to get ...
07/24/2019

Hey guys...hey guys....guess what day it is? Nope not hump day....it's Wrist Up Wednesday! Here's a throw back to get you in the mood! Let's get those wrists up to help raise awareness for Turner Syndrome and Fragile X! No special equipment required....snap a pic with your wrist up in support and post to our page or tag anyone from this post? #wff #tsawareness #lifewithf #tswalk #fragilex #tsprincess #walkforferrial #wuw #wristupwednesday #guntersidobbq

#Repost @nfxfoundation・・・Today is National Fragile X Awareness Day in the U.S. and many other countries. Why do we raise...
07/22/2019

#Repost @nfxfoundation
・・・
Today is National Fragile X Awareness Day in the U.S. and many other countries. Why do we raise awareness of Fragile X each year? We raise it for the 100,000 Americans who have Fragile X syndrome. That is a lot of people, but it isn't just them. It is their 400,000 parents, 800,000 grandparents, siblings, stepparents, aunts, uncles, teachers, doctors, clinicians, caregivers, loved ones - pretty quickly the number of those impacted each and every day by Fragile X syndrome balloons into the millions. And then there are the 1.5 million premutation carriers in the U.S., most of whom are not aware they are carriers and the impact on their health and future generations. And then those living with Fragile X around the world! This is who we work for every day! #ThisIsFragileX

We are pleased to announce that we have been chosen to be the Organization that Kirk Buchholz - State Farm Agent and his...
06/01/2019
State Farm Fundraiser

We are pleased to announce that we have been chosen to be the Organization that Kirk Buchholz - State Farm Agent and his team wants to support and help raise awareness. If you are in the state of Georgia you can participate in this event.....To learn more click below:
http://www.walkforferrial.org/state-farm-fundraiser.html

We are excited to be sponsored by our local State Farm ® agent as this month's Quotes for Good orginazation. This month, for every household we send their way and who completes an auto or fire...

05/30/2019

We are pleased to announce a local State Farm Agency is stepping up in a big way to support us. We will be sharing the details very soon....Big things are coming y’all.....

05/23/2019

We are pleased to announce an upcoming bowling event being planned by the team at BNI All About Towne in honor of all of us and will give us the opportunity to spread some awareness about TS and meet leaders in our community.....
Please look for the event to be posted and consider joining us and show how we represent for TS Awareness.....

Today we celebrate the 11th birthday of our miraculous Ferrial!  Where has the time gone?  Thank you all for sharing in ...
04/23/2019

Today we celebrate the 11th birthday of our miraculous Ferrial! Where has the time gone? Thank you all for sharing in our journey so far and wishing our Princess a happy birthday! #lilF #wff #birthdayprincess #tsawareness #sweetandsourallinone #tswalk

It's our favorite time of year....North Metro Miracle League starts this morning at 9:45 am.  NMML is an adaptive baseba...
03/23/2019

It's our favorite time of year....North Metro Miracle League starts this morning at 9:45 am. NMML is an adaptive baseball program for those with differing abilities from 4 yrs through adults, we play 3 games for different age/abilities.
Here's a pic of Ferrial and her BFF Kenny having a blast last Fall! Join us this morning to cheer on the athletes or to be a buddy! #wff #tsawareness #fragilex #lifewithf #beabuddy #everyoneplays

Melissa Joan Hart showing Turner Syndrome Awareness some love during TA Awareness Month....
02/11/2019

Melissa Joan Hart showing Turner Syndrome Awareness some love during TA Awareness Month....

#TurnerSyndromeAwareness
Please consider supporting organizations that help with neonatal testing and research for #turnersyndrome. The surviving babies are called Butterflies and you can find various sources online and social media (or visit www.turnersyndrome.org). Turner Syndrome is underfunded and underesearched. If your baby has been diagnosed, or if you’re looking for emotional support, there are wonderful groups on Facebook and online forums where other parents and butterflies can discuss their journeys together. 🦋

The Turner Syndrome Society of Canada shared this in a post and we felt it important to share here and spread awareness....
02/08/2019

The Turner Syndrome Society of Canada shared this in a post and we felt it important to share here and spread awareness.
#tswalk #tsawareness #turnersyndrome #turnersyndromeawareness #awareness #educate #empower #teach

February is Turner Syndrome Awareness month!  Help us drop some education on some folks by liking, sharing anf commentin...
02/01/2019

February is Turner Syndrome Awareness month! Help us drop some education on some folks by liking, sharing anf commenting on this post! Id you haven't like the Walk got Walk For Ferrial Foundation page yet hope on over and give us a like! We have 2,909 page likes, let's make it 3,000 before the end of this month! #ferrial #wff #tsawareness #fragilex #tswalk #tsmonth

01/16/2019

The Walk For Ferrial Foundation team has been talking with Audrey Marie Jones at Emory University about a project that she has gotten approval to do that will increase awareness for Turner Syndrome and showcase those living with Turner Syndrome in their everyday lives.
Please reach out to Audrey Marie Jones Mark Phillippe, Mechele Dalton Phillippe or Michelle Moraniec Gunter if you have Turner Syndrome, are over the age of 11 and have interest in the project.

Walk For Ferrial Foundation's cover photo
01/16/2019

Walk For Ferrial Foundation's cover photo

Walk For Ferrial Foundation
01/16/2019

Walk For Ferrial Foundation

We Wish Everyone a Very Merry Christmas from all of at the WalkForFerrial
12/25/2018

We Wish Everyone a Very Merry Christmas from all of at the WalkForFerrial

Happy Happy Birthday to our favorite North Metro Miracle League Cherokee volunteer (F's personal volunteer), head counse...
12/19/2018

Happy Happy Birthday to our favorite North Metro Miracle League Cherokee volunteer (F's personal volunteer), head counselor at Camp Mary and all around sweetheart, Ms. Mary! Please help her celebrate! #wff #tswalk #tsawareness #fragilex #ferrial #anythingforfreechicken

The TS community is saddened by the loss of our own Amy Vaughn. She was an inspiration to the Turner Syndrome community....
12/17/2018

The TS community is saddened by the loss of our own Amy Vaughn. She was an inspiration to the Turner Syndrome community. I will most remember how she encouraged us not to live by any arbitrary limits the world set for us. RIP sweet friend ♥️

I implore my TS "sisters" to stay on top of all cardiac care. I love you all.

As we visit with the big man please ask him for those in need......Merry Christmas 🎄🎁
12/14/2018

As we visit with the big man please ask him for those in need......
Merry Christmas 🎄🎁

Time for a bit of Christmas fun!  Remember to keep it G rated! #wff  #tswalk #ferrial #tsawareness #fragilex #welovechri...
12/09/2018

Time for a bit of Christmas fun! Remember to keep it G rated! #wff #tswalk #ferrial #tsawareness #fragilex #welovechristmas

Walk For Ferrial Foundation
12/09/2018

Walk For Ferrial Foundation

Please help us celebrate the birthday of Ferrial's mom, Mechele Dalton Phillippe.  She loves F unconditionally and toler...
12/04/2018

Please help us celebrate the birthday of Ferrial's mom, Mechele Dalton Phillippe. She loves F unconditionally and tolerates our shenanigans! We love you! #wff #tsawareness #lifewithlilf #tswalk #fragilex

11/27/2018

Please keep your eyes open and alert someone if you see this young man

11/26/2018

When filling out your Christmas cards this year, take one card and send it to this address: A Recovering American Soldier, c/o Walter Reed Army Medical Center, 8901 Wisconsin ave, BETHESDA, MD. 20889 If we pass this on and everyone sends one card, think of how many cards these wonderful, special people, who have sacrificed so much would get. Please copy and post on your wall. 🇺🇸

We would like to give a special thanks to everyone who supports us and believes in the importance of what we do. We hope...
11/22/2018

We would like to give a special thanks to everyone who supports us and believes in the importance of what we do. We hope you are able to be with your loved ones in body, mind or spirit on this special day....

Happy Thanksgiving Eve!  Who has started decorating for Christmas?  Who thinks those of us who already are decorating ar...
11/22/2018

Happy Thanksgiving Eve! Who has started decorating for Christmas? Who thinks those of us who already are decorating are crazy? Use the like button options below to vote! #wff #tsawareness #tswalk #ferrial #fragilex #Thanksgiving

Let's have a little fun on this very rainy Monday!  Where are you at in your Christmas shopping? Use the "like"buttons t...
11/12/2018

Let's have a little fun on this very rainy Monday! Where are you at in your Christmas shopping?
Use the "like"buttons to respond!
#wff #christmasisalmosthere #tswalk #tsawareness #ferrial #fragilex #dontbeagrinch

Looks like the Walk For Ferrial Foundation team is checking out the new Grinch movie!  We even had Ferrial's best buddie...
11/11/2018

Looks like the Walk For Ferrial Foundation team is checking out the new Grinch movie! We even had Ferrial's best buddies Kenny and Lucas join us!

It's so easy in our busy lives to forget to stop and be thankful for the many blessings in our lives.  Let's take a mome...
11/03/2018

It's so easy in our busy lives to forget to stop and be thankful for the many blessings in our lives. Let's take a moment to be thankful.....what are you thankful for today? #wff #tswalk #tsawareness #ferrial #blessed #fragilex #framily #lovemytribe

Address

225 Parkway 575
Woodstock, GA
30188

General information

We are all about raising awareness for Turner Syndrome through various ways. We can be followed on Instagram and twitter at the pages below: http://instagram.com/walkforferrial http://instagram.com/walkforferrial

Telephone

(877) 906-7465

Website

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Comments

it is Feet up Friday or #FUF as we know it.....where are your pics?? This is the MP's with their #FUF pics.... #tswalk #tsawareness #fuf #awareness #fxs #fxawareness #fragilex #getemup #pics #friday #itsallfun
Learn & Educate It’s never too early It’s never too late 👍Wrist up and support Walk for Ferrial butterfly 🦋
#WristUpWednesday #WFF #TSAwareness #WalkForFerrial
I got my fancy Walk for Ferrial toes up....how about you? Get em Up! #wff #fuf #swalk #tsawareness
Jerome the Gnome and I think that Spring is in the air and that makes us want to bring back Feet Up Fridays! So get those freshly pedicured feet up and post a pic here on our page! #wff #fuf #walkforferrial #tsawareness #wff2018 #tswalk
Sign-up today at http://tinyurl.com/jgss9r8 #TSSUS #TSRegistry
Are you having problems filling out the Turner Syndrome Research Registry? Click on this link for a Step by Step Guide to help make signing up easier. http://tinyurl.com/zuehca2- Then, fill out the TSRR here. http://tinyurl.com/jgss9r8. #TSRegistry #TSSUS.
Join the Turner Syndrome Research Registry TODAY! http://tinyurl.com/jgss9r8 . If you need help finishing, please email [email protected]. #TSRegistry #TSSUS.
You don’t have to leave home to join the Turner Syndrome Research Registry! Don’t forget you can’t sign-up on your phone or tablet. http://tinyurl.com/jgss9r8 #TSSUS #TSRegistry
Please sign up today for the Turner Syndrome Research Registry at http://tinyurl.com/jgss9r8 #TSSUS #TSRegistry
There have been many research studies over the years. Make sure YOU have signed up for the Turner Syndrome Research Registry…send an email to [email protected] to find out. http://tinyurl.com/jgss9r8 #TSSUS #TSRegistry
What do YOU want to know about Turner syndrome? You can help find answers by joining the registry today. http://tinyurl.com/jgss9r8 #TSSUS #TSRegistry