Box Braids and GTubes

  • Home
  • Box Braids and GTubes

Box Braids and GTubes They're actually knotless braids and it's actually a Gastrojejunal tube but who asked? Our journey through life wih short bowel syndrome - SBS.

Unbothered.
08/08/2023

Unbothered.

After his doctor’s appointment, Aiden aka DJ Smiley was a co host of Disney Jeopardy at Children’s Hospital’s Seacrest S...
28/02/2023

After his doctor’s appointment, Aiden aka DJ Smiley was a co host of Disney Jeopardy at Children’s Hospital’s Seacrest Studios.

DJ Smiley’s favorite Disney movies are Encanto and Nemo, his favorite category was “characters” and he likes to howl like a wolf on the mic. 😂

He had so much fun. 🥰

Aiden is doing great! As usual the good outweighs the bad.He is still enjoying his tube feeding breaks but we are not go...
27/01/2023

Aiden is doing great! As usual the good outweighs the bad.

He is still enjoying his tube feeding breaks but we are not going out as much since it is cold/flu/C19/respiratory virus season.

Aiden brought in the new year with family, positive energy and optimism. 💪🏽 We look forward to going home but we will co...
02/01/2023

Aiden brought in the new year with family, positive energy and optimism. 💪🏽 We look forward to going home but we will continue to make the best of it until then.

Merry Christmas! 🎄We are sending love, hugs, patience and good food to the kiddies and families inpatient this holiday s...
26/12/2022

Merry Christmas! 🎄We are sending love, hugs, patience and good food to the kiddies and families inpatient this holiday season. 🤗 ❤️

November photo dump!Aiden is doing great, winding down the TPN and ramping up the tube feeds. Some days are better than ...
29/11/2022

November photo dump!

Aiden is doing great, winding down the TPN and ramping up the tube feeds. Some days are better than others but we keep him busy and entertained during breaks and most importantly he keeps a smile on his face.

🎃👻 TPN Breaks!
29/10/2022

🎃👻 TPN Breaks!

Happy Monday! Aiden is doing great. As usual we turn up on his breaks. 🥳He gets his new feeding tube this week, hopefull...
17/10/2022

Happy Monday! Aiden is doing great. As usual we turn up on his breaks. 🥳

He gets his new feeding tube this week, hopefully we can kiss this TPN goodbye before Christmas. 🙏🏽❤️

This is how we run out the door when appointments are over 😩😂Another appointment, another week NPO, steadily gaining his...
03/10/2022

This is how we run out the door when appointments are over 😩😂

Another appointment, another week NPO, steadily gaining his weight back and meeting his GI goals. 🥰


Happy Sunday!
11/09/2022

Happy Sunday!

🥰 doing good, feeling better!
07/09/2022

🥰 doing good, feeling better!

Looking back at this pic I laugh because he wouldn’t walk, talk or smile for a couple days...but he took these chips wit...
05/09/2022

Looking back at this pic I laugh because he wouldn’t walk, talk or smile for a couple days...but he took these chips with no intention of eating them..but wouldn’t share them. So I knew he was ok. Even when everything sucks he has a good sense of humor. He’s doing good now thankfully. And I’m just grateful that some people do still show up on this long, crazy ride.

“Hello Goat my name is Aiden what’s yours?”
19/08/2022

“Hello Goat my name is Aiden what’s yours?”

He said he saw stars, Earth and Mercury. Happy Thursday!
11/08/2022

He said he saw stars, Earth and Mercury. Happy Thursday!

Yes! You can swim with a gtube! 🥰 Happy Thursday!
04/08/2022

Yes! You can swim with a gtube! 🥰 Happy Thursday!

He loves to get cupcakes and carry them around and not let you have any! No he didn’t eat it but he licked it and didn’t...
21/07/2022

He loves to get cupcakes and carry them around and not let you have any! No he didn’t eat it but he licked it and didn’t gag. He’s great, thriving and enjoying the exploration. I’m excited for this next chapter.

So Far Summertime Photo Dump! 🥰Aiden is doing great, ripping, running and having a great time. Hydration is so important...
01/07/2022

So Far Summertime Photo Dump! 🥰

Aiden is doing great, ripping, running and having a great time. Hydration is so important to patients so we try to stay indoors or go out in the evening when the weather is cooler. He still does his feeds 17 hours a day and gives me a panic attack with every front roll and somersault. Feeding tubes stop nothing! 🥰

He picked out the cake,  asked for it every hour for three days before we picked it up and got the first slice. I wonder...
12/06/2022

He picked out the cake, asked for it every hour for three days before we picked it up and got the first slice. I wonder what he did with it...

Happy 4th Birthday to my baby boy! 🥰

11/06/2022

Happy 4th Birthday to our Little Boy!

My mood when I hear “try breastfeeding” “INFANT formula” “order it off of Amazon”...🤦🏾‍♀️The Friday leading into the lon...
14/05/2022

My mood when I hear “try breastfeeding” “INFANT formula” “order it off of Amazon”...🤦🏾‍♀️

The Friday leading into the long Presidents Day weekend at 4PM...we spent that last business hour confirming that all 75 cans of Aiden’s formula had been recalled. At least two children died and countless others were sick. 🙏🏽

Thankfully I found the only can of replacement formula in 50 miles at Walmart and my neighbor works at a doctors office and was able to give us samples to get through the weekend.

Since then, due to the shortage, Aiden has switched formula three times. Did I mention he has gastrointestinal issues?!? 😩I don’t doubt that we will need to switch again. Thankfully we are good for now, please pray for those who are not.

People love to speak first, loud and proud, agitate and get political while we’re just trying to feed our kids.

I don’t know the solution and I support those working on it but one can of formula on Amazon is $75...per day. 😩

Mother’s Day brunch. 🥰He did not eat but he did well sitting, socializing, identifying and using his inside voice when h...
10/05/2022

Mother’s Day brunch. 🥰He did not eat but he did well sitting, socializing, identifying and using his inside voice when he said ugh and yuck. 😩

Dentist appointment was a success! He cried...but he’s excited to brush twice a day...and buy toys from Walgreens. 😩    ...
04/05/2022

Dentist appointment was a success! He cried...but he’s excited to brush twice a day...and buy toys from Walgreens. 😩

When your mom says no ask your Grandmother.  😂
01/05/2022

When your mom says no ask your Grandmother. 😂

He has strength, resilience and ambition. I just carry the water. 😩🥰
23/04/2022

He has strength, resilience and ambition. I just carry the water. 😩🥰

17/04/2022

Happy Easter! 🥰

We are all learning and growing everyday! Nope he’s not eating but he’s starting to do all of the things us eaters take ...
05/04/2022

We are all learning and growing everyday! Nope he’s not eating but he’s starting to do all of the things us eaters take for granted like enjoying the smells and exploring the different textures.
I don’t know why he’s saying “ugh” and “ewww”but we’re working on that too,

18/03/2022

Happy Friday! 🥰

Happy Saturday! All is fine and well thankfully. We had a great visit this week, we’re so thankful for our GI doctor and...
12/03/2022

Happy Saturday! All is fine and well thankfully. We had a great visit this week, we’re so thankful for our GI doctor and team!

I’m taking notes while Aiden is enjoying life and making your party his party 😂.All is well, formula recalls, increased ...
01/03/2022

I’m taking notes while Aiden is enjoying life and making your party his party 😂.

All is well, formula recalls, increased medication costs, toddlers that scream 🗣NO extra loud while you’re in public minding your business won’t get us down, we are getting outside and taking advantage of the little peek a boo days of Spring!

A proper ending to  ...we had a quick overnighter at the hospital because the feeding tube popped out. It doesn’t typica...
15/02/2022

A proper ending to ...we had a quick overnighter at the hospital because the feeding tube popped out.

It doesn’t typically just pop out but when you’re a 3 year old who likes to bungee jump, UFC wrestle and run full force into any and everything, it’s bound to happen. 😩

It’s Feeding Tube Awareness Week! This is the  #2 thing that people say to us... #1 is “let me have him I’ll have him ea...
10/02/2022

It’s Feeding Tube Awareness Week!

This is the #2 thing that people say to us... #1 is “let me have him I’ll have him eating in no time”. It’s not that simple I wish it was. But we are grateful for the feeding tube, he is 3 1/2 feet and over 40 lbs and has never had your famous fried chicken. The feeding tube has saved his life and given him an excellent quality of life.

I have no idea what they were watching. I know we all aren’t cat people but it’s too cold to walk a dog! 😩 having a pet ...
08/02/2022

I have no idea what they were watching.

I know we all aren’t cat people but it’s too cold to walk a dog! 😩 having a pet is amazing either way,

We finally got to watch Sing 2! 😩 I don’t know what its called when he asks for something to eat and I buy it knowing he...
04/02/2022

We finally got to watch Sing 2! 😩

I don’t know what its called when he asks for something to eat and I buy it knowing he’s not gonna eat it 🤷🏽‍♀️ insanity?

Happy Saturday! Aiden is doing great, staying safe and warm and healthy, limiting activities outside our home and trying...
29/01/2022

Happy Saturday!

Aiden is doing great, staying safe and warm and healthy, limiting activities outside our home and trying to keep him occupied inside...trying to do this without too much technology is a challenge.
😩
We are working on feeding. It’s long and hard. 😕 but thankfully we have the support and resources that we need to turn this corner sooner than later 🙏🏽

Another edition of gifts Aunties give! Got him running around here like Bobby Brown! 😩😂
10/01/2022

Another edition of gifts Aunties give! Got him running around here like Bobby Brown! 😩😂

Mood! Happy Tuesday!
21/12/2021

Mood! Happy Tuesday!

Thankfully he’s doing well! This is the season where it’s easy to catch something and 10x harder to get rid of it.
15/12/2021

Thankfully he’s doing well! This is the season where it’s easy to catch something and 10x harder to get rid of it.

Happy Tuesday! The cat knows when he isn’t feeling well before I do! 😩
07/12/2021

Happy Tuesday! The cat knows when he isn’t feeling well before I do! 😩

I’d be crazy not to smile when that’s all he does! 🥰He is doing great, recovering from Sapovirus which is rare...and rel...
01/12/2021

I’d be crazy not to smile when that’s all he does! 🥰

He is doing great, recovering from Sapovirus which is rare...and related to the nasty Norovirus 🤮 😷 and is extremely harmful to our community who already have a very hard time staying hydrated and absorbing nutrients.

We are on day 8 and I don’t wanna see another peanut chew or vending machine salad...ever😩

Address


Alerts

Be the first to know and let us send you an email when Box Braids and GTubes posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Videos

Shortcuts

  • Address
  • Alerts
  • Videos
  • Claim ownership or report listing
  • Want your business to be the top-listed Health & Beauty Business?

Share