List of conditions :-
https://chronicpainindia.com/2018/03/26/list-of-conditions/
(9)
A registered Charitable Trust to raise awareness in India about various chronic pain conditions and chronic illness which are usually invisible through naked eyes.
It was an honour to be on the panel at the Film Festival organised by the Embassy of Spain and the Embassy of Finland.
It was an enriching experience and I had the opportunity to be on the panel with such amazing people.
My special thanks to ETI services for believing in Chronic Pain India’s work and giving us the opportunity.
After working relentlessly for more than 5 years, we are elated to share that we have been able to bring about a major policy change in the Rights of Persons with Disabilities Act of 2016.
This is reflected in the recent assessment guidelines published by the Department of Empowerment of Persons with Disabilities, which include the Pain Disability Scale to assess people with chronic pain and chronic neurological conditions.
We are extremely grateful to all government officials who believed in our work and supported us - Guru Pawaskar Sir () and Taha Sir () for giving us the opportunity to hold the first-ever national conference on invisible disabilities in India at the International Purple Fest Goa 2024, Praveen sir for encouraging us to share a draft for the revised guidelines for chronic neurological conditions and Rajiv Sharma Sir, Rajesh Aggarwal Sir and the Department of Empowerment of Persons with Disabilities, Ministry of Social Justice and Empowerment, Government of India for releasing the new guidelines and taking all our points into consideration.
It is a new dawn for people with invisible disabilities as our disabilities are no longer invisible! We will soon be sharing a comparative analysis of the previous and current assessment guidelines. Please watch this space.
Image descriptions in the pinned comment.
July 23 is World Sjögren’s Day, dedicated to raising awareness about this often-overlooked autoimmune disease. Sjogren’s is a chronic condition that affects the moisture-producing glands, primarily those in the eyes and mouth. This can lead to dry eyes, dry mouth, and a host of other uncomfortable and weakening symptoms.
While these might seem like minor inconveniences, for those living with Sjögren’s, they can significantly impact the quality of life. Fatigue, joint pain, and even organ involvement are common challenges faced by patients. It’s essential to understand that Sjogren’s is more than just dry eyes and mouth; it’s a systemic condition that can affect multiple parts of the body.
Sjogren’s syndrome is managed with various treatments, including artificial tears, saliva substitutes, humidifiers, dental care, and medications for dryness. Pain, fatigue, and skin issues are addressed separately. Immunosuppressants may be used in severe cases. Regular check-ups are crucial.
Let’s use this day to break the silence surrounding Sjogren’s. support research, and advocate for better understanding and treatment options. Together, we can make a difference in the lives of millions affected by this invisible illness.
July 13 is Gastrointestinal Stromal Tumor (GIST) Awareness Day!
Gastrointestinal stromal tumor (GIST) is a rare cancer. Approximately 18%–25% of patients in India have been diagnosed with GIST based on imaging or while being investigated for other illnesses.
Because it’s uncommon, people might not know about it or the signs to watch for. Like with other cancers, catching GIST early means better treatment options and a higher chance of recovery.
If more people are aware, it can lead to a quicker diagnosis. More awareness means more research. If everyone knew about GIST, there might be more money to study it. This could lead to better ways to find, treat, and eventually understand it completely.
Support for patients and caregivers, By spreading the word, patients and caregivers can find each other and helpful resources. This can make them feel less alone and give them the information they need to make care decisions.
For better care of everyone, we know about GIST, so they can speak up for better treatment options and specialist care for patients.
Today is Heterochromia Awareness Day!
Heterochromia is a condition that causes people to have different colored eyes. it doesn’t affect your vision at all. There are three main types of heterochromia:
- Complete heterochromia: This is when one iris is a completely different color than the other. you have one blue eye and one brown eye.
* Central heterochromia: This is when the outer ring of your iris is a different color from the rest. The center of your iris is usually around your pupil, and the outer ring is the colored part. So, with central heterochromia, you have a brown center ring and a green outer ring in one eye.
* Sectoral heterochromia: This is when a section of one iris is a different color than the rest of that iris. So, you might have one blue eye with a brown triangle-shaped section in it.
July is Disability Pride Month - a time to recognize the strength and resilience of individuals with disabilities. 🌟
Disability Pride Month is celebrated every July to mark the anniversary of the passage of the Americans with Disabilities Act (ADA) and to recognize the achievements, experiences and struggles of the disability community.
People raise awareness of the barriers disabled people face in society and help to push forward the conversations on disability.
Celebrate this month by...
- Embracing self-expression
- Wearing unique clothing, hairstyles, or makeup that reflect your personality.
- Reading or watching media with characters who challenge stereotypes
- Supporting artists and creators who push boundaries.
- Challenging assumptions people make about you
- Donating to or volunteering with organizations that celebrate diversity
Let this month be the starting point to focus on action as disability is everyone’s responsibility.
Happy Doctor’s Day 2024! Celebrating the resilience and dedication of all the doctor warriors out there. Let’s honor those who tirelessly work to alleviate chronic pain and bring healing to so many. 🩺👩⚕️
Image description:
Skin color background. At the top left corner, we have text in purple, “Dear doctors,
Your dedication, compassion and tireless efforts have provided us not just medical care, but also hope and strength to face each new day.
“Thank you for being the light at the end of the dark tunnel and helping us find answers to questions, some of which were unheard of, even for you.
“With gratitude and respect,
Chronic Pain Warriors.”
At the bottom of the page, we have in bold purple text, Happy Doctor’s Day”. At the right side of the image, we can see a transparent sticker that shows a white coat and stethoscope with a heart on it. At the bottom left corner of the image, we can see the logo of Chronic Pain India.
Remembering Helen Keller, a true symbol of strength and perseverance. Her journey teaches us the power of resolution and the importance of embracing life’s challenges. 🌸
Today, on World Vitiligo Day, we unite to support those living with vitiligo and advocate for equality. Let’s educate ourselves, challenge stereotypes, and promote a society that embraces differences. Together, we can make a difference! 🤝💜
Sickle Cell Day is celebrated every year on June 19th to raise awareness about sickle cell disease and the challenges patients and their families face. This year’s theme, “Hope Through Progress: Advancing Care Globally,” aims for a future where sickle cell disease is no longer a burden.
Sickle cell disease (SCD) is a genetic blood disorder that affects hemoglobin, the protein that carries oxygen in the body. Normally, red blood cells are round and flexible, but in SCD, they become stiff and crescent-shaped, blocking blood flow. Blocked blood flow can cause serious issues like strokes, eye problems, infections, and painful episodes.
Sickle cell disease is lifelong. The only cure is a bone marrow transplant which is very costly. Treatments like blood transfusions and medicines can help manage symptoms. They can treat themselves by drinking plenty of water, avoid extreme temperatures, eat a heart-healthy diet, and get regular vaccines.
Let’s raise our voices, share knowledge, and support the warriors battling sickle cell every day. Together, we can make a difference.
Every year, June 18 is acknowledged as Autistic Pride Day, a day about celebrating autistic people and their unique strengths and feeling proud about who they are. It is denoted by the rainbow infinity symbol and was first celebrated in 2005 by an organisation named Aspies For Freedom (AFF).
Autism Spectrum Disorder (ASD) is a neurological and developmental condition. It is called developmental because its symptoms generally appear in the first two years of life. However, many autistic individuals go on to get a diagnosis later in their lives. ASD is more prevalent in males than females, especially in individuals with higher IQs (Werling and Geschwind 2013).
Did you know? Autism is a spectrum, meaning it affects each person differently.
Autistic people may face a variety of challenges including social anxiety, difficulty in communication, repetitive behaviour, depression, difficulty in controlling emotions, social relations, maintaining relationships, sleep problems and challenges maintaining eye contact. These comprise only the tip of the iceberg; autism manifests differently in every individual.
People of all genders, races, ethnicities and economic backgrounds can be diagnosed with ASD.
Let’s come together to spread awareness and acceptance about autism today and every day.
Eid is the time of unity and togetherness. Chronic Pain India wishes you a blessed Eid filled with joy and happiness. Eid Mubarak!
Image description:
Dark blue background with lanterns and stars hanging on the top. At the bottom left we can see the logo of Chronic Pain India. At the bottom right, there is picture of a masjid. The title reads: “Eid Mubarak” in bold golden letters. Below the title, the text reads: “May Eid al-Fitr bring abundant joy and happiness in your life.”
June 13 is International Albinism Awareness Day.
Albinism is a genetic condition that affects melanin production, which produces hair, eye, and skin pigmentation. The more melanin your body produces, the darker your eyes, hair, and skin will be.
People with Albinism have little or no pigmentation in the skin, hair, and eyes. Their pale skin often makes them more likely to get sunburned. They also have an increased risk of skin cancer. Over time, people with albinism might lose vision as well.
Albinism affects people irrespective of their race and ethnicity and is often associated with discrimination, social stigma, and violence.
People with Albinism often face discrimination as they have a different skin colour. It is believed that albinism is contagious or that people who have it are devilish.
Albinism has no cure but it can be treated by eye care, wearing glasses, skin care, and medication.
According to the Rights of Persons with Disabilities Act (2016), Albinism is not considered a disability.
Albinism is not a flaw; it is a part of human diversity. Let us consider this a sign to be kinder and more empathetic to everyone around us.
Chronic Pain India grieves the loss of Bhargavi Davar, a tireless advocate whose work profoundly impacted the lives of countless individuals with psychosocial disabilities. Founder and Managing Trustee of Bapu Trust for Research on Mind & Discourse and a woman with a psychosocial disability herself, Bhargavi’s dedication shaped the landscape of mental health and disability rights in India, and her unwavering voice championed a life of dignity for those living with these conditions. Her absence leaves a void, but her legacy of advocacy and activism will continue to inspire future generations.
Let’s take a moment to congratulate the ‘Rare Star’ at THE RARE STAR AWARDS ⭐️✨
We thank .in for organising such event full of inclusivity. 💜
Today’s World Parkinson Day- 11 April
Parkinson’s may throw tremors their way, but it doesn’t define those who live with it. Today, and every day, they fight back! Together, we can raise a fist (or a trembling hand) for hope and a future free of Parkinson’s.
Today is World Parkinson’s Day.
If we put our minds to it we can accomplish anything when we are on the same side. Let’s lose any stigma, find a cure and never lose hope. 💜
Health is a basic human right, regardless of background. Let’s empower one another to prioritize well-being for all. On this World Health Day, let’s pledge to build inclusive systems ensuring everyone thrives in good health.
Caption:
With the compassionate support of the well-wishers and donors like yourself, Chronic Pain India has been empowering people with chronic illnesses, rare diseases and invisible disabilities to manage their pain effectively and influencing high-level policy changes.
Your help and donation will enable us to make a difference in the lives of countless people battling with these issues.
With your support, we can make a substantial difference together.
For Direct Donation,
Bank Account Details
Account Name – Chronic Pain India
Account Number – 008305012813
IFSC – ICIC0000083
Branch – Sector 16, Faridabad
Email us the transaction receipt at [email protected] so that we can share the donation receipt with you.
We are grateful for your unwavering commitment to support the cause of invisible disabilities, chronic illnesses and rare diseases.
Chronic Pain India organised the first-ever national conference on invisible disabilities at the International Purple Fest Goa 2024 on 09th and 10th January, 2024. Titled ‘From Invisible to Visible,’ the conference brought together 19 panelists who shared their insights and learnings of living with invisible disabilities across 6 panels covering themes ranging from diagnosis, certification and treatment of invisible disabilities to gender, mental health, education, livelihood, climate change and caregiving.
We are grateful to International Purple Fest Goa, Guruprasad Pawaskar Sir, State Commissioner for Persons with Disabilities Goa, and Taha Haaziq Sir, Secretary, Office of Persons with Disabilities, Goa for believing in our work and giving us a platform to make the invisible visible!
Want to know more about the conference? Keep watching this space!
[ ]
At the Purple Fest Delhi, team Chronic Pain India was delighted to be visited by Mr Taha Haaziq, Secretary, Office of the Commissioner for Persons with Disabilities, Goa.
Taha Sir has been a wonderful supporter since the beginning when the National Conference on Invisible Disabilities was just an idea.
Thank you sir, for believing in us and helping us bring our vision of a national conference on invisible disabilities into fruition.
Mr Rajesh Aggarwal, Secretary, Department of Empowerment of Persons with Disabilities, Ministry of Social Justice and Empowerment, Government of India, visited our stall at Purple Fest Delhi 2024.
We are grateful to sir for understanding and appreciating our work for invisible disabilities.
Sir, your support motivates us to continue serving the community.
At the Purple Fest Delhi, we had the chance to meet Gurupawaskar Sir, State Commisioner for Persons with Disabilities, Goverment of Goa.
During our encounter, we shared with him our ongoing initiative and work on the topic of invisible disabilities.
We also presented the Compendium of the Invisible Disability Conference to him, which happened at the International Purple Fest, Goa, and discussed our upcoming plan of action.
It was an incredibly empowering experience to engage with someone who is so supportive and understanding about our cause.
We are grateful for Sir’s time and attention, and we look forward to continuing our work together.
[ ]
Here’s to women who live with the invisible. You are seen, heard and acknowledged!
Happy International Women’s Day!
ImageDescriptions: All images are square with the top half of the image in light baby pink and bottom half in white. In the middle are illustrations of six women. Chronic Pain India’s logo at the left bottom corner. The text in the slides are as follows:
1. We’re Women with Invisible Disabilities... Of course, we live in pain 24x7.
2. We’re Women with Invisible Disabilities... Of course, we have been told that we’re faking it.
3. We’re Women with Invisible Disabilities... Of course, we have to fight for our rights.
4. We’re Women with Invisible Disabilities... Of course, we have a tough time explaining our disabilities.
5. We’re Women with Invisible Disabilities... Of course, we are done with ableism, misogyny, and patriarchy.
6. This International Women’s Day, let us acknowledge the women who are fighting an invisible battle everyday!
7. Happy International Women’s Day!
[ ]
Freedom! Mobility! Independence! ♿️
Today is International Wheelchair day,
Happy International wheel chair day to all
Braveheart wheelchair from Chronic Pain India! 💜
[ ]
⬇️⬇️⬇️⬇️Attention please!! ⬇️⬇️⬇️⬇️
Hello!
I am Takreem Malick, a final-year student pursuing a Master's degree in Clinical Psychology from Maniben Nanavati Women's College, affiliated with S.N.D.T. Mumbai.
As part of my dissertation project, I am conducting research to understand behavioural and emotional responses in chronic pain. This research is being carried out under the guidance of Dr. Anuja Deshpande, Coordinator of Clinical Psychology at MNWC, and has received ethical approval for data collection. I am collaborating with Chronic Pain India to reach out to individuals suffering from chronic pain and illnesses.
Below is a link to my survey. If you are someone who has been experiencing chronic pain and is above 18 years of age, I kindly request you to complete it. It should not take more than 15 minutes of your time.
https://forms.gle/Enmo6nd6MfWG3KfE7
Note: Deadline for data collection is 10th Feb 2024.
Rest assured, your responses will remain confidential, and no personal details will be collected. Your insights are crucial to the success of my research, and I genuinely appreciate your consideration.
Thank you! 💜
Consent Form This research is being conducted as part of a dissertation research, undertaken by Ms.Takreem Malick, a student of M.A. (Clinical Psychology) under the guidance of Dr. Anuja Deshpande at Maniben Nanavati Women’s College (affiliated to S.N.D.T. University). The aim of this research is ...
Chronic Pain India wishes you 75th Republic Day 🇮🇳
The Tricolour flies high as India celebrates 75 years of independence.
The guiding ethos in our constitution are the integral part of this glorious legacy 💜
Watch us here! ⬇️⬇️
:
| Monday | 12:00 - 21:00 |
| Tuesday | 12:00 - 21:00 |
| Wednesday | 12:00 - 21:00 |
| Thursday | 12:00 - 21:00 |
| Friday | 12:00 - 21:00 |
| Saturday | 12:00 - 21:00 |
Be the first to know and let us send you an email when Chronic Pain India posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.
Send a message to Chronic Pain India:
“Kehte hain agar kisi cheez ko dil se chaho toh puri kainaat usse tumse milane ki koshish mein lag jaati hai,” said Shah Rukh Khan in Om Shanti Om. This dialogue here sums up the cocktail of things the team Chronic Pain India navigated in order to put up the stall at Purple Fest Delhi 2024 successfully. With merely 36 hours (or even lesser) in hand and no rest, we were driven towards getting things printed, organized, and ready. A last-minute setup like this, we weren’t sure of the response. But we were taken by surprise by the love our work received! People wanted to know about chronic pain, invisible disabilities, and rare diseases! Our sunflower lanyard - the first designed in India - was the star. People with hidden disabilities wanted it. It was the first time that a person with a disability felt proud to self-identify as a disabled person. It was a joy to see people coming together in solidarity and support of invisible disabilities. To make the Invisible Visible! We are grateful to the Ministry of Social Justice and Empowerment for giving us an opportunity to advocate for invisible disabilities. All of this could not have been possible without the support of the incredible team at Chronic Pain India and our friends, family, and well-wishers who made it all worth it!
Join Chronic Pain India at #PurpleFestDelhi at Rashtrapati Bhavan, Delhi on February 26, 2024 from 10 am to 5:30 pm and shower your support to make the Invisible Visible! Register here: https://visit.rashtrapatibhavan.gov.in/amrit-udyan/differently-abled-persons Please note: Entry is free for all. Hence, do not miss out this important opportunity to learn about invisible disabilities! #ChronicPain #InvisibleDisabilities #PurpleFestDelhi #PurpleFest #RareConditions #RareDiseases #Disability #Disabilities #PainAwareness #MedicalInclusion #HealthConditions #Inclusion
Here's wishing one of the most fun directors of the Indian film industry, @vikrampbhatt Sir, a very happy birthday from all of us. We admire you, Sir, for your authenticity and the representation, love, and support you give to the community. Thank you for being you. In video: Behind the scenes from 'From Invisible to Visible: National Conference on Invisible Disabilities' at the international Purple Fest Goa 2024! Video description: A screengrab of the Zoom chat with Mr Vikram Bhatt during the National Conference on Invisible Disabilities at the International Purple Fest Goa 2024. . . . #HappyBirthday #Celebrations #Birthday #VikramBhatt #ChronicPain #InvisibleDisabilities #Disability #InvisibleDisability #ChronicIllness #Polymyositis #Fibromyalgia
#chronicselflove #2024 #newyear #chronicpainwarrior #chronicselflove #chronicpainawareness
Note by the Founder : I remember when I was in two minds to form the organisation. A few people who we had supported through the community we had built asked me a question that I still remember vividly. The question was- "You are starting in and you say you want to work for us but for how long? That question made me wonder how will things work out. But today, after 6 years, here we are- making an impact and being awarded as NGO of the Year for Empowering Healthcare. I stand proudly today and tell everyone who questioned us and our intent that we are here to stay. We are not going anywhere. Our vision was to bring a change and we are still at it. And, we won't stop until we see it happening in front of us. We got the award on March 18, 2023, and be truthful, even though my dad and I knew we were going to get the award, we were still living with those jitters. We were in disbelief because it felt surreal until they announced our name. It’s ta ken me many moons to just process the feeling that yes, this award is an accomplishment of all our hassles, our hustle, and struggling days! Days when we were perplexed about how to financially support a person during COVID, as we were going low on funds. Days when we kept on calling people and requested them to donate so that we could support people during that hard time when I didn’t have money to pay my employees. Days when we all contributed because Chronic Pain India Pain India Pain India might have been started by me but it’s a whole team. It’s all the people behind the scene who understand our cause and are willing to work even if they’re not getting paid because of low funds. I want to change this. But today, I’m glad that even with so many ups and downs, NGOStory recognised the work that we are doing and gave us this platform. My heartiest gratitude to NGO Story and loud cheer for Team CPI!!! We did it. - Dr Anubha Mahajan Video Description: The video b
It’s okay if all you did this year was to survive! . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . #Reminder #itsokaytonotbeokay #newyear #survivor #warrior #PositiveVibes #chronicillness #spoonie #chroniclife #spoonieproblems #migraine #invisibleillness #Invisibledisability #chronicillnessawareness #disabilityawareness #invisibleillnessawareness #raiseawareness #sicklife #autoimmune #chronicfatigue #spoonielife #anxiety #autoimmunedisease #mentalhealth #health #stopchasingpain #depression #butyoudontlooksick #disability #pain
Happiest 3rd, Chronic Pain India! 🥳🎉❤️ As our baby turns 3, here's a sneak peek into the year gone by. Entering into the next year, we only hope that we're able to impact when more number of lives than we did last year, continue raising awareness about invisible illnesses and chronic pain and try to make this world a better place! 🌸 Video credits: Kavya Mukhija #ChronicPainIndia #CPIshares #CPIturnsthree #ChronicPain #ChronicIllness #PainWarriors #PainManagement #PainMatters #PainWarriors #TogetherStronger Video description: The video starts with a pink and white screen with a CPI logo and the graphic image of a cake beneath it with quotes that read 'May your year be filled with great joy!' and 'all your ambitions come true.'
Here's what Michael Hawker, the brain behind the Oska-90 device, has to say about his creation. To know more, email us at [email protected] or drop a message on our WhatsApp helpline number +918287026805. #OskaPulse #OskaIndia #Oska90 #ChronicPain #ChronicPainWarrior #Pain #InvisibleIllness #ChronicIllness #ChronicLife #ChronicFatigue #Chronic #Spoonie #SpoonieLife #SpoonieStrong #Fatigue #Fibromyalgia #CRPS #AutoImmuneDisease #Wellness #HealthFirst #SmileThroughThePain #Disability #Wheelchair #WheelchairLife #MentalHealth #MentalIllness #Support #ChronicPainIndia #India Oska Pulse in India Anubha Mahajan Image Description: A video of Michael Hawker the brain behind the Oska 90 device talking about it.
As a part of our campaign #MyDisabilityMyPride, this Disability Pride Month we reached out to the disabled community to know what made them feel proud about their disabilities. Here is what Namrata had to say. Poster designed by: Kavya Wish to share what makes you beam with pride about your disability? We can't wait to hear what you have to tell. Email or DM us right away! #DisabilityPrideMonth #DisabilityTwitter #DisabilityPride #ChronicPainIndia #ChronicIllness #ChronicPain #CPIshares #MyDisabilityMyPride Image Description: A graphic design of heart becoming whole again in the left corner with text that reads: My disability is the secret language in which my body speaks to me. It is a sign for me to pause, listen and understand. I respect my disability and make sure everyone around me does so. This is the first step towards a gratifying life-long relationship. #MyDisabilityMyPride
Join us for an #InstagramLive session with Kavya Mukhija (Kavya Mukhija) on 30th June at 7 pm. Kavya is a writer, poet, disability rights advocate, and calligraphy artist. She lives with Arthrogryposis Multiplex Congenita and has represented India at various international conferences on disability, accessibility, and inclusion and had the honour to be the youngest and only Indian delegate at the Conference of State Parties at the United Nations in 2015. In order to impart disability awareness, she makes memes and considers them to be a very powerful and relatable medium. Currently, she is pursuing her master's in Applied Psychology from the University of Delhi and is the head of the Disability Wing at the Society for Psychology and Allied Sectors, University of Delhi, South Campus. Image Description: A pink poster with CPI logo in left corner and a dialogue box in blue in right corner. It reads: Join us for an Instagram live session (with an Instagram logo) and a photograph of Kavya Mukhija in left with her name below it. And text that states: Topic: Living with AMC (Arthrogryposis Multiplex Congenita) When: 30th June, 2021 Time: 7 pm (IST) Where: Instagram (@chronicpainindia) #ChronicPain #ChronicIllness #CPIshares #LetsTalk #ChronicPainIndia #TogetherStronger #PainWarrior #AMC #ArthrogryposisMultiplexCongenita
Don't forget! Stay safe. #IndiafightsCorona
Don't forget - Wear a mask. Wash your hands. Maintain social distancing. #MaskUpIndia #StaySafe #indiaagainstcorona
Today on The World Sleep Day we have with us Arouba Pathan Kabir, Mental health Counsellor to talk to us about Importance of sleep
#KnowYourVaccine NITI Aayog PMO India Anubha Mahajan Ministry of Health and Family Welfare, Government of India
Donate to us before March 31st, 2021 to be eligible for exemption under Sec 80 G. Write to us at [email protected] for more details.
Join us tomorrow in #Racefor7, a virtual event hosted by ORDI. DM us to know more.
Sharing glimpses on our workshops and meet-ups to highlight the milestones on our journey till now. - Team CPI
Want your business to be the top-listed Health & Beauty Business?
According to National Institute of Health (NIH), Chronic pain is often defined as any pain lasting more than 12 weeks. Whereas acute pain is a normal sensation that alerts us to possible injury, chronic pain is very different. Chronic pain persists—often for months or even longer.
Chronic pain may arise from an initial injury, such as a back sprain, or there may be an ongoing cause, such as illness. However, there may also be no clear cause. Other health problems, such as fatigue, sleep disturbance, decreased appetite, and mood changes, often accompany chronic pain. Chronic pain may limit a person’s movements, which can reduce flexibility, strength, and stamina. This difficulty in carrying out important and enjoyable activities can lead to disability and despair.
India is a country with a population of 1.3 billion (approx). A survey conducted by the World Health Organization (WHO) in 15 centers across Asia, Africa, Europe, and United States of America demonstrated the prevalence of chronic pain in 5 % to 33% of the population.
Just wonder, How many Indians must be suffering by chronic pain?
As said by Damayanti Datta, in India Today in 2015, “India is a nation in pain”.[1] Chronic pain is of concern to health professionals, patients, society, and negatively impacts the quality of life. According to a point prevalence study done by Dr. G.P. Dureja et al. published in Pain Practice journal in 2014, “There is no published literature available on prevalence of chronic pain in India. There study was the first pain prevalence study that included a total of 5,004 respondents across eight different cities in India.” They came to a conclusion that, “A significant population of India suffers from chronic pain, and their quality of life is affected leading to disability.”[2]
This is the golden age of Internet, where every second person has a phone in their hand with internet plan on it. Using the Internet, anybody can search the signs and symptoms of any ailment, but that doesn’t provide them the understanding of what the person in pain goes through on a daily basis. People suffering from such ailments are mocked, misunderstood, ignored and left alone by the others in India. The main reason behind it is the lack of knowledge and lack of awareness of the general population in terms of the impact on the health of the chronic pain and chronic illness sufferers leading to an impact on the personal and professional life.
There are various articles online to prove this sad scenario in India.
At Chronic Pain India, We plan to build a strong community for every chronic pain sufferer in India, suffering from any illness. We tend to unite every chronic pain sufferer as one and plan to make their voices be heard through the medium of writing. It will be used as a mean to raise awareness about various chronic pain conditions and chronic illness which are usually invisible through naked eyes. We plan to share the pain experiences of sufferers so that the general population can have an insight to it and they could have a better understanding. This will be like a safe house for every chronic pain sufferer in India to shed down their problems and we will slowly try to work on them & try to bring a change. It can also be used by medical practitioners to understand the perspective of the pain sufferer and they can have a better understanding of the pain patients and can provide them with a holistic approach towards their treatment.
This cause has been misunderstood and misguided for decades, leaving the sufferers in physical & mental trauma. We tend to be the voice to this cause in India and will keep on focusing on bringing a change through raising awareness about.
For more information about us you can contact us.
If any Indian wants to share their story with us, they can write to us at [email protected]
