Scleroderma Australia

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Scleroderma Australia Australia's national voice for scleroderma. We raise awareness, fund research, and walk alongside the people and families living with this condition.

You are not alone here.

22/10/2026

Supporting someone with scleroderma starts with understanding!

Living with scleroderma can bring challenges that aren’t always visible. Whether you’re a family member, friend, carer or colleague, learning more about the condition can help you provide meaningful support.

Our Supporting Someone with Scleroderma brochure offers helpful guidance and practical tips to help you better understand the condition and support someone living with it.

Download our free brochure to better understand scleroderma and learn how to provide meaningful support to someone living with the condition. Link in profile.

DID YOU KNOW that many people living with scleroderma experience an invisible disability?Scleroderma can affect the body...
22/10/2026

DID YOU KNOW that many people living with scleroderma experience an invisible disability?

Scleroderma can affect the body in many ways, from the skin and joints to internal organs. Yet, many of these challenges aren’t visible to others.

This Invisible Disabilities Week, let’s remember that not all disabilities can be seen. By showing empathy, understanding and compassion, we can help create a world where everyone feels heard, understood and supported.

Let’s stand together to raise awareness of invisible disabilities and support everyone living with scleroderma!

22/10/2026

🌻 What’s one self-care habit that helps you manage life with scleroderma?👇

Preventing and managing digital ulcers is an important part of scleroderma care. Small steps, from keeping warm and mois...
21/10/2026

Preventing and managing digital ulcers is an important part of scleroderma care. Small steps, from keeping warm and moisturising regularly to protecting your skin from injury, can help support your skin health.

In this carousel, we share practical tips on:
- Protecting your skin and preventing ulcers
- Managing Raynaud’s by keeping your whole body warm
- Understanding wound care and recognising warning signs
- Maintaining hand movement and function
- Working with your healthcare team to get the right support

Remember, seek medical advice if an ulcer becomes increasingly painful, red or swollen, or develops pus. Early assessment can help you get the appropriate care.

Swipe through to learn more, and save this post for future reference.

Curious about the latest developments in scleroderma research?Join SPIN and 14 scleroderma organisations from around the...
19/10/2026

Curious about the latest developments in scleroderma research?

Join SPIN and 14 scleroderma organisations from around the world for a FREE online event designed for people living with scleroderma, their families and carers!

Researchers and patient partners will share the latest findings in an accessible, practical way, helping our community better understand current research and what it could mean for the future of care.

🗓️ Sunday, 22 November 2026 (Australia) from 8:00-9:30 am AEDT

Connect with the global scleroderma community and hear directly from researchers and people with lived experience.

Save the date, register today and visit SPIN’s page for more details about the event and how to take part!

16/10/2026

Celebrating Ian: A story of love, strength, and resilience!

This National Carers Week (11-17 October), we’re recognising the incredible people who support loved ones living with scleroderma.

Meet Ian Craniaga from Botanic Ridge, who has been by his wife Barbara’s side for more than 16 years, caring for her through the challenges of scleroderma. He even stepped away from work to become her full-time carer!

Although this video was filmed a few years ago, Ian’s story remains a powerful reminder of the dedication, compassion and sacrifices that carers make for their loved ones every day.

Tag or name a carer you’d like to celebrate this National Carers Week. Let’s recognise the incredible people who make a difference in the lives of those living with scleroderma!

Our voices matter: Advocating for better access to specialist care!Scleroderma Australia has formally lodged its submiss...
15/10/2026

Our voices matter: Advocating for better access to specialist care!

Scleroderma Australia has formally lodged its submission to the House of Representatives Standing Committee on Health, Aged Care and Disability Inquiry into the Access to and Affordability of Medical Specialists.

The submission highlights the barriers people living with scleroderma face in accessing timely, affordable, and coordinated specialist care.

Thanks to our community, more than 100 people with scleroderma, family members and carers shared their experiences through our survey. Your contributions have helped shape our submission and ensure our community’s voices are heard!

Our recommendations call for:
- Addressing rheumatology workforce shortages
- Reducing out-of-pocket costs
- Improving referral pathways
- Supporting multidisciplinary models of care

Read our full submission on the Scleroderma Australia website under News & Events. You can also find the link in our profile.

Together, we can continue working towards better care for our community.

15/10/2026

💛Celebrating carers supporting people with scleroderma this National Carers Week! Tag or name a carer you’re grateful for!

Have you, a family member, or someone you care for accessed a medical specialist in Australia in the past five years?The...
14/10/2026

Have you, a family member, or someone you care for accessed a medical specialist in Australia in the past five years?

The House of Representatives Standing Committee on Health, Aged Care and Disability is seeking feedback on access to medical specialists in Australia, including affordability, waiting times and barriers to care.

Scleroderma Australia has submitted its response to the inquiry. Thank you to everyone who completed our survey and shared their experiences.

There’s still time to have your say!

Our targeted community survey remains open until 16 November 2026. We encourage our community to share their experiences to help inform our ongoing advocacy for better access to specialist care, particularly for people living with complex health conditions.

đź“ť Have your say! Complete the survey via the link in our profile.

Every voice matters. Thank you for helping us advocate for better care for our community.

What is Morphoea, and how is it different from Systemic Sclerosis?Morphoea, also known as localised scleroderma, is a co...
12/10/2026

What is Morphoea, and how is it different from Systemic Sclerosis?

Morphoea, also known as localised scleroderma, is a condition that causes inflammation and thickening of the skin. In some cases, it can also affect the tissues beneath the skin.

Although the names are similar, morphoea and systemic sclerosis are two distinct conditions.

Swipe through to learn about the different types of morphoea, possible symptoms and available treatment options.

Want to learn more? Visit the Resources section on the Scleroderma Australia website to find the Morphoea: Localised Scleroderma brochure and explore more helpful information.

Please share this post to help raise awareness and support people living with scleroderma.

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