Consumer and Community Involvement Program

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Consumer and Community Involvement Program Consumers, community members and researchers working together in partnership to make decisions about research priorities, policies and practice

The Consumer and Community Involvement Program brings together and supports consumers, community members and researchers to work together in partnership to make decisions about research priorities, policies and practice. Our vision is for consumer and community involvement to become standard practice in research activities. We are committed to embedding the community voice into health and medical research through our services, resources, events and training programs. The CCIProgram welcomes you to our online community. We encourage you to contribute to our page and be considerate and respectful when posting or commenting. Any posts deemed to be offensive will be removed. This page is managed between the hours of Monday – Friday, 9:00am – 3:00pm WST.

Have you received care from a pharmacist that made you feel listened to, understood and supported in managing your healt...
19/10/2026

Have you received care from a pharmacist that made you feel listened to, understood and supported in managing your health? If so, we invite you to consider becoming a Research Buddy.

Researchers at the University of Western Australia are seeking research buddies with lived experience of receiving care from a pharmacist to help shape research exploring how pharmacists can better understand people’s needs and preferences, and involve them, and their carers where appropriate, in decisions about their health and care.

Researchers want to:

➡ Explore how pharmacists currently understand and deliver person-centred care
➡ Understand how individuals experience person-centred care when interacting with their pharmacist
➡ Develop recommendations for how person-centred care can be better integrated into future pharmacy practice

A $50 per hour honorarium is offered. Find out more & submit an application 🔗 https://bit.ly/4hKFY9y

Lower limb amputations can adversely affect quality of life. We are using advanced scanning techniques to characterise a...
16/10/2026

Lower limb amputations can adversely affect quality of life. We are using advanced scanning techniques to characterise and identify the type of calcium build up in the arteries in the legs, in an effort to predict who may go on to have a lower limb amputation due to poor blood supply or other reasons. Join a Consumer Advisory group and work with the research team to co-design the project, so that we focus on the priorities that matter most to people who have this lived experience.

We are looking to engage with people with lived experience of:
➡️ Peripheral arterial disease of the lower limbs, or with people who have recurrent infections or poor blood supply to their legs
➡️ Lived experience with a lower limb amputation
➡️ Carers of people with this lived experience

A $50 per hour honorarium is offered.
Find out more & apply 🔗 https://bit.ly/46NJriH

We're excited to launch our 2025–2026 CCIProgram Annual Report, showcasing the incredible contributions of consumers, ca...
09/10/2026

We're excited to launch our 2025–2026 CCIProgram Annual Report, showcasing the incredible contributions of consumers, carers, community members, researchers and partner organisations who have helped shape health and medical research.

You can read about research projects and activities featured in our impact case studies, a new addition to this year's Annual Report, together with an overview of our tailored support, events, and capacity-building initiatives delivered during the past year.

Read the report here 🔗 https://bit.ly/4i3KwcM

We are seeking parents or primary carers with lived experience of a child being hospitalised or requiring acute medical ...
07/10/2026

We are seeking parents or primary carers with lived experience of a child being hospitalised or requiring acute medical care to act as Research Buddies. You will work directly alongside our lead researcher to guide the development of the CONCERNED tool, a practical clinical guide designed to help doctors and nurses recognise early warning signs of child deterioration sooner.

An honorarium of $37.50 per hour is available for consumer involvement activities. Find out more & apply 🔗 https://bit.ly/4AaPR9b

We are looking for women with lived experience of the postpartum period to join the Steering Committee for 'Stepping Bac...
29/09/2026

We are looking for women with lived experience of the postpartum period to join the Steering Committee for 'Stepping Back In' - a new research project at The University of Western Australia. The project aims to co-design and evaluate a walking sport program to help women return to physical activity, connect with others, and support their mental health and wellbeing after having a baby.

We are interested in hearing your perspective as someone with lived experience of the postpartum period. You may be asked to provide feedback on areas such as how we recruit women to the research, the accessibility and acceptability of the program, study materials and communication, and how the findings are shared with women and the wider community.

We are looking for women who:
👉 have lived experience of the postpartum period;
👉 feel comfortable sharing their perspectives and ideas in a supportive group setting;
👉 are interested in improving opportunities for women to be physically active and socially connected after having a baby;
👉 One of these positions is specifically for an Aboriginal or Torres Strait Islander mother.

A $50 per hour honorarium is offered to successful applicants. Find out more and apply 🔗 https://bit.ly/4rmZhtT

Harry Perkins Institute of Medical Research are looking for women with lived experience of cardiovascular disease to joi...
16/09/2026

Harry Perkins Institute of Medical Research are looking for women with lived experience of cardiovascular disease to join our research team as Research Buddies. In this role, you will partner with researchers and share your experiences, perspectives, and feedback throughout the project. You will be asked to review documents (e.g., grant applications, consent forms, surveys) and share your lived experience and insights.

Your input will help ensure the research stays focused on the needs, priorities, and experiences of women living with heart disease, ultimately helping us improve how heart disease is diagnosed and treated in women.

Find out more & submit your application 👉 https://bit.ly/4wrJACM

Have you had early screening for Cancer (bowel, breast, lung cancer etc.)? Would you prefer to have this screening done ...
07/09/2026

Have you had early screening for Cancer (bowel, breast, lung cancer etc.)? Would you prefer to have this screening done once rather than multiple different cancer screening tests?

This research represents a first step in developing a non-invasive cancer screening test that can detect multiple different subtypes at once. The current cancer screening landscape is organ-specific, meaning individuals often need to undergo multiple different cancer screening tests in order to complete a comprehensive screen.

Consumers will be required to attend regular quarterly meetings with the research team to integrate their lived experiences in all phases of research planning, recruitment, and implementation. Consumers who are interested may also be asked to be involved in the research itself, which would involve a one-hour appointment at the Lions Eye Institute Nedlands.

A $50 per hour honorarium is offered. Find out more & apply 👉 https://bit.ly/4qCoBfh

A big thank you to our guest speakers at today’s CCIProgram Communicating in Plain Language Masterclass – Philippa from ...
03/09/2026

A big thank you to our guest speakers at today’s CCIProgram Communicating in Plain Language Masterclass – Philippa from Miracle Babies Foundation and Dr Dani Barrington from the University of Western Australia ( ).

Philippa shared the consumer perspective, while Dani brought the researcher perspective, highlighting why clear, accessible language matters and what good communication looks like in practice.

Thank you both for sharing your experiences and insights with our researchers!

Researchers from Harry Perkins Institute of Medical Research are seeking individuals with lived experience of ovarian ca...
03/09/2026

Researchers from Harry Perkins Institute of Medical Research are seeking individuals with lived experience of ovarian cancer to partner with their systems cancer biology research team. You will help review and guide the development of a powerful new software tool designed to uncover key elements that drive the development and recurrence of ovarian cancer, ensuring their research stays focused on real community impacts.

Consumers will have opportunities to share their experiences, comment on research priorities and findings, and help researchers communicate their discoveries in ways that are meaningful and accessible to the ovarian cancer community. Your perspective will help keep this research focused on what matters most to people living with ovarian cancer.

A $50 per hour honorarium is offered. Find out more & submit your application 👉 https://bit.ly/4xdG9AW

Can a specialised PET camera detect Infection and inflammation?Researchers are developing a specialised PET scan that ma...
31/08/2026

Can a specialised PET camera detect Infection and inflammation?

Researchers are developing a specialised PET scan that may detect infections and inflammation anywhere in the body, including cases that cannot be identified through standard imaging or blood tests.

The project aims to improve earlier diagnosis, treatment decisions, and antibiotic use. Consumers will work alongside the research team to provide lived experience insights, help guide study design, review materials, and support the translation of this promising technology into healthcare practice.

If you are a person, or a carer of a person, who has lived experience with moderate or severe infection, including a history of infection that has been difficult to diagnose, we encourage you to apply 👉 https://bit.ly/4cdcmjt

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