Scleroderma Society of Ontario

Scleroderma Society of Ontario The Scleroderma Society of Ontario is committed to promoting increased public awareness, advancing patient wellness and supporting research in scleroderma.
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The Scleroderma Society of Ontario was founded in late 1985 with the help of The Arthritis Society and dedicated volunteers. With the first executive in place, the challenge began and an open information meeting was held on April 20, 1986 in Toronto. Now based out of Hamilton, Ontario the organization functions daily with a limited but dedicated number of staff and widespread group of volunteers.

Mission: The Scleroderma Society of Ontario is committed to promoting increased public awareness, advancing patient wellness and supporting research in scleroderma.

New scleroderma merch available on our website! Have it delivered right to your door. Click the SHOP tab to see current ...
09/18/2020

New scleroderma merch available on our website! Have it delivered right to your door. Click the SHOP tab to see current items and check back in the future to see new items as we add them. www.sclerodermaontario.ca/shop

Congratulations to all our registration winners! Thank you for signing up for the 2020 National Scleroderma Conference.M...
09/17/2020

Congratulations to all our registration winners! Thank you for signing up for the 2020 National Scleroderma Conference.

MASK Winners:
Louise G., Saskatchewan
Jeannie T., Ontario
Evelyn C., Alberta
Kelly D., Ontario

BLANKET winners:
Anita W., Ontario
Carolyn N., Alberta
Jillian T., Newfoundland and Labrador
Lisa N., Ontario

09/14/2020
Help us find a cure for Scleroderma

The rain ended just as the 12th Annual Hamilton Scleroderma Charity Golf Tournament began, and it was a perfect day! Thanks to everyone who participated, to our amazing volunteers, and our sponsors - everyone made an impact on helping raise money for research, new treatments, and patient care.

Scleroderma Warrior Betsy Craig, the Award-Winning Leader, CEO, and owner/operator of MenuTrinfo LLC will fill you with ...
09/08/2020

Scleroderma Warrior Betsy Craig, the Award-Winning Leader, CEO, and owner/operator of MenuTrinfo LLC will fill you with courage in her keynote speech. Don't miss out on her honest and inspiring stories at the 2020 National Scleroderma Conference. Reserve your spot and join in from the comfort of your home. www.sclerodermaconference.ca

Learn about interstitial lung disease in Dr. Shapera's session at the National Scleroderma Conference. Dr. Shapera, Univ...
09/07/2020

Learn about interstitial lung disease in Dr. Shapera's session at the National Scleroderma Conference. Dr. Shapera, University of Toronto alum and Director of the Interstitial Lung Diseases Program at the Toronto General Hospital, has received numerous teaching awards and the Dr. Cameron C. Gray Award. He provides pre-lung transplant assessments for patients with ILDs. Don't miss this 5-day Virtual event. Register at www.sclerodermaconference.ca

As Founder & Director of SPIN - The Scleroderma Patient-centered Intervention Network, McGill University Professor Dr. T...
09/04/2020

As Founder & Director of SPIN - The Scleroderma Patient-centered Intervention Network, McGill University Professor Dr. Thombs and his team have developed online programs to improve quality of life for people with scleroderma. We're excited to have Dr. Thombs deliver a Keynote speech at the 2020 National Scleroderma Conference. Don't miss this 5-day Virtual event. Register at www.sclerodermaconference.ca

If you’re a person with scleroderma and you experience related GI symptoms such as bloating, cramping, nausea, vomiting,...
09/02/2020

If you’re a person with scleroderma and you experience related GI symptoms such as bloating, cramping, nausea, vomiting, regurgitation, diarrhea, constipation etc., you may be interested in participating in this research study conducted by The New Orleans Scleroderma Patient Care and Research Center.

Please email your name and phone number to [email protected] to be contacted.

One of the complications of scleroderma is Pulmonary Fibrosis, or scraring of the lungs. See how the Canadian Pulmonary ...
09/01/2020
Home - Hope Breathes Here - Canadian Pulmonary Fibrosis Foundation

One of the complications of scleroderma is Pulmonary Fibrosis, or scraring of the lungs. See how the Canadian Pulmonary Fibrosis Foundation is raising awareness during September - Pulmonary Fibrosis Awareness Month. Visit www.hopebreatheshere.com

Hope Breathes Here events will raise awareness, hope and funds for pulmonary fibrosis through Canada-wide virtual events that are fun and safe.

The 2020 Virtual National Scleroderma Conference will feature guest speaker Dr. Hambly, Clinical Lead of the Firestone I...
08/26/2020

The 2020 Virtual National Scleroderma Conference will feature guest speaker Dr. Hambly, Clinical Lead of the Firestone Institute Pulmonary Hypertension Program at St. Joseph's Healthcare and Foundation and McMaster University, discussing Pulmonary Arterial Hypertension.
Register today to participate from anywhere in the world: www.sclerodermaconference.ca

👉 Giveaway! 👈 Register for the National Scleroderma Conference before September 15 (the Early Bird deadline) and you'll ...
08/23/2020

👉 Giveaway! 👈 Register for the National Scleroderma Conference before September 15 (the Early Bird deadline) and you'll be automatically entered to WIN one of 3 cozy Kate Spade blankets! www.sclerodermaconference.ca

Sign up your foursome for the 12th Annual Hamilton Scleroderma Charity Golf Tournament, a day of golf and raising funds ...
08/20/2020

Sign up your foursome for the 12th Annual Hamilton Scleroderma Charity Golf Tournament, a day of golf and raising funds for scleroderma. 10am Sunday, September 13, Flamborough Hills Golf & Country Club. Golf carts and lunch available. Sponsorship opportunities. For more details please email [email protected]

In 2016, the International Foundation for Gastrointestinal Disorders marked August as Gastroparesis Awareness Month. Sym...
08/10/2020
What is Gastroparesis? FAQ Answered for Gastroparesis Awareness Month 2020

In 2016, the International Foundation for Gastrointestinal Disorders marked August as Gastroparesis Awareness Month. Symptoms include severe nausea, vomiting and cramps. In some cases it can lead to malnutrition.

Read more about this painful complication of scleroderma here.

August is marked as Gastroparesis Awareness Month established by IFFGD in 2016. Throughout August, the International Foundation for Gastrointestinal Disorde

08/06/2020

The numbers are in! See how much you helped us raise during this summer's socially responsible Virtual Scleroderma Walks ⤵️

We love that Queen Latifah has joined the fight against scleroderma, but sad for the reason why.
08/05/2020

We love that Queen Latifah has joined the fight against scleroderma, but sad for the reason why.

"Not a day goes by when I don't think about my mom. I watched her struggle with scleroderma and want to share my story..." In 2018 Queen Latifah's mother passed from SSc-ILD. We're excited she has joined the fight and is using her platform to bring awareness to this little-known disease.

The 2020 National Scleroderma Conference has gone from IRL to URL. Limited spots available to experience the conference ...
08/02/2020

The 2020 National Scleroderma Conference has gone from IRL to URL. Limited spots available to experience the conference and its speakers - live. Secure your spot by registering today. www.sclerodermaconference.ca

Gastroparesis is a painful complication of scleroderma, where the stomach's contents empty too slowly leading to nausea,...
08/01/2020

Gastroparesis is a painful complication of scleroderma, where the stomach's contents empty too slowly leading to nausea, cramps, vomiting and malnutrition. Eating small, frequent meals helps. August is #GastroparesisAwarenessMonth

Don't miss Dr. Marie Hudson's keynote address at the 2020 National Scleroderma Conference. Dr. Hudson is a rheumatologis...
07/27/2020

Don't miss Dr. Marie Hudson's keynote address at the 2020 National Scleroderma Conference. Dr. Hudson is a rheumatologist, epidemiologist, Associate Professor and Member of the Division of Experimental Medicine in the Department of Medicine at McGill University. As a founding member of the Canadian Scleroderma Research Group she has established international collaborations with leading scleroderma experts worldwide. Register now at Early Bird pricing, www.sclerodermaconference.ca

Dr. Maggie Larché is a rheumatologist, faculty of McMaster University and Chair of the Hamilton Scleroderma Group. She w...
07/23/2020

Dr. Maggie Larché is a rheumatologist, faculty of McMaster University and Chair of the Hamilton Scleroderma Group. She will share the latest treatment news at the 2020 National Scleroderma Conference.
Register at http://sclerodermaconference.ca

We are excited to have London, Ontario's Dr. Janet Pope discuss G.I. involvement in scleroderma at the Virtual 2020 Conf...
07/20/2020

We are excited to have London, Ontario's Dr. Janet Pope discuss G.I. involvement in scleroderma at the Virtual 2020 Conference. Dr. Pope's research includes scleroderma, SLE and RA, outcome measurements, clinical trials, and disease manifestations. She has received the Distinguished Investigator Award from the Canadian Rheumatology Association, Rheumatologist of the Year from the Ontario Rheumatology Association, Department of Medicine Research Achievement Award, and the Dean’s Award of Excellence in Research. Register today at www.sclerodermaconference.ca

07/17/2020
Scleroderma Canada

The 2020 Scleroderma Conference is moving ahead with new dates, and a new format. Registration is open now!

Registration is now OPEN for the Virtual 2020 National Scleroderma Conference. Gain insight from researchers, physicians and professional caregivers in 15 sessions, including 3 keynote speakers over 5 days. October 5-9, 2020. www.sclerodermaconference.ca

07/15/2020
Interstitial Lung Disease

Interstitial lung disease (ILD) occurs in about 75% of scleroderma patients. It can range from breathing difficulties to life-threatening complications. This white board presentation on SSc-ILD discusses symptoms, diagnosis, and more. Watch:

Interested in becoming a patient advocate? The SSO has a few spots available in our virtual advocacy training session wh...
07/10/2020

Interested in becoming a patient advocate? The SSO has a few spots available in our virtual advocacy training session where you can learn to advocate effectively to your local government. Please contact John Malcolmson at [email protected] to register.

Our friend Georgie in the U.K. has written a new blog answering FAQs about her scleroderma. Scleroderma is different for...
07/08/2020
Answering your FAQs about Scleroderma: Everything you wanted to know about my life living with Scleroderma

Our friend Georgie in the U.K. has written a new blog answering FAQs about her scleroderma. Scleroderma is different for everyone so our hope is that you'll find her answers comforting or informative. https://www.georgiexoxo.com/2020/06/answering-your-faqs-about-scleroderma-everything-you-wanted-to-know-about-my-life-living-with-scleroderma/

Today I'm answering your FAQs about Scleroderma that some of you have sent me via Twitter and Instagram. Hopefully, this post will give you everything you want

Thank you so much to our generous supporters this past June.  #SclerodermaAwarenessMonth may have ended but our fight ha...
07/05/2020

Thank you so much to our generous supporters this past June. #SclerodermaAwarenessMonth may have ended but our fight hasn't. We're keeping the momentum going as we continue to raise scleroderma awareness. We hope you will too.

Across the country Scleroderma Canada illuminated structures and landmarks blue on #WorldSclerodermaDay to honour those ...
07/02/2020

Across the country Scleroderma Canada illuminated structures and landmarks blue on #WorldSclerodermaDay to honour those affected by this disease. We hope this sparked conversation and helped bring to light a terrible disease that needs a greater amount of attention.
www.hardskin.ca

We would like to thank Hamilton Community Foundation for their generous support of $25,000. Funds received will make a v...
07/01/2020

We would like to thank Hamilton Community Foundation for their generous support of $25,000. Funds received will make a valuable impact toward virtually improving the lives of those living with scleroderma in the Hamilton community.

Our friend (and one of the good guys!) Andrew Di Rosa has created an exciting movie colouring book with 50% of the proce...
06/30/2020

Our friend (and one of the good guys!) Andrew Di Rosa has created an exciting movie colouring book with 50% of the proceeds going to Scleroderma Society of Ontario! Those interested can message Andrew on Instagram: @di_rosa or Facebook https://facebook.com/andrew.d.rosa.9

06/29/2020

Today marks 80 years since Swiss-German artist Paul Klee passed away from complications of #scleroderma. The date - June 29 - is recognized as #WorldSclerodermaDay to honour Paul and the thousands of men, women and children living with this terrible disease.

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41 King William Street, Suite 206
Hamilton, ON
L8R 1A2

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Competed the 5km Virtual Toronto Scleroderma walk ( In Barrie , Ontario) 😁🐕❤!!!!Stay safe everyone and happy healthy walking/running!!💙
We just completed the Toronto Scleroderma 5km virtual walk!! ( in Barrie) 50 minutes!! Stay safe everone!!
Hi everyone, I am Kathy Randolph of Yoga for Scleroderma. Do you know anyone in Hong Kong who has Scleroderma? I am teaching a Yoga for Scleroderma teacher training in Hong Kong November 5 - 7, and a key part of the training is working with volunteers who have scleroderma or arthritis. We are reaching out in Hong Kong, but don't have a volunteer with scleroderma yet. I would really appreciate it if you could pass this on to any groups you are in. Thank you!
I have Scleroderma and have written a Book Called THE GIFT WITHIN SOLD AT SMILE AMAZON Part PROCEEDS TO SCLERODERMA RESEARCH Thankyou and God BLESS http://www.margiekugler.com/
A few years ago my mom Celine Boisvert was diagnosed with scleroderma. With that she suffered from major fatigue, to the point where all she wanted to do was sleep. She had zero interest in anything anymore (house cleaning, gardening, events, you name it- she had no energy to do it!). Someone who wouldn’t know the disease would think she was in a very deep depression. About 4 months ago I introduced her to Juice Plus. Within a few weeks she had noticed a few small changes. Less bloating, little more energy. Then about 3 months in she started feeling amazing! Her energy level had changed dramatically! It was literally a night and day difference! She says feel like about ten years younger!! Celine has since been able to quit 2 of her medications for this auto immune disease, working on a 3rd AND she has been sleeping like a baby!!! If you feel you are ready and willing to take your health back, let’s talk! Contsct either myself or Celine. She would love to chat about her changes and i would love to share anout getting my mother back! ❤ Why waste any time in life feeling anything less than your best!? What have you got to lose!?
In Loving Memory of Irene Goodale Let's help make our Event a successful one if anyone is interested in purchasing tickets to this Event please contact me. Shannon Goodale