The Scleroderma Society of Ontario is committed to promoting increased public awareness, advancing patient wellness and supporting research in scleroderma.
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The Scleroderma Society of Ontario was founded in late 1985 with the help of The Arthritis Society and dedicated volunteers. With the first executive in place, the challenge began and an open information meeting was held on April 20, 1986 in Toronto. Now based out of Hamilton, Ontario the organization functions daily with a limited but dedicated number of staff and widespread group of volunteers.
Please join us for the 13th Annual Hamilton Scleroderma Charity Golf Tournament, August 28, 2021 at Flamborough Hills Golf & Country Club. Benefitting scleroderma research, education and support groups. Tee times begin 10 am.
Sign up as a single or register a foursome at [email protected]
2021 Virtual Walk Run for Scleroderma: You Did It, Thank You
Did you celebrate World Scleroderma Day? Last call to show us your Scleroderma Spirit! Post your pic in the comments or email to [email protected] for your chance to win a $50 Tim Hortons gift card. Brought to you by our friends Tim Hortons. Get your photos in by midnight on Sunday!
Did you celebrate World Scleroderma Day? Last call to show us your Scleroderma Spirit! Post your pic in the comments or email to [email protected] for your chance to win a $50 Tim Hortons gift card. Brought to you by our friends Tim Hortons. Get your photos in by midnight on Sunday!
Help End Scleroderma - World Scleroderma Day
Today we celebrate all of the courageous & strong scleroderma warriors across the globe. June 29th is a day to recognize and bring awareness to all of the brave individuals who live with this disease. Happy World Scleroderma Day 💙 To learn more visit: www.hardword.ca #hardwordharderdisease
Today we celebrate all of the courageous & strong scleroderma warriors across the globe. June 29th is a day to recognize and bring awareness to all of the brave individuals who live with this disease. Happy World Scleroderma Day 💙 To learn more visit: www.hardword.ca #hardwordharderdisease
Today is #WorldSclerodermaDay and we're letting everyone know by illuminating landmarks blue across the country. Tonight the CN Tower will be lit blue to inspire conversation and raise awareness of this terrible disease. Thank you for your support!
LAST CALL! Get your creative scleroderma sign photos in as soon as possible! Reply in the comments or email [email protected] your entry for your chance to win a $50 Tim Hortons gift card!
LAST CALL! Get your creative scleroderma sign photos in as soon as possible! Reply in the comments or email [email protected] your entry for your chance to win a $50 Tim Hortons gift card!
The 3 day countdown has begun! Only 3 days away until National Scleroderma Day and the end of our Virtual Walk Run or Ride for Scleroderma fundraiser. Get those donations in! www.hardword.ca
#walks2021 #makeamoveforscleroderma
The 3 day countdown has begun! Only 3 days away until National Scleroderma Day and the end of our Virtual Walk Run or Ride for Scleroderma fundraiser. Get those donations in! www.hardword.ca
#walks2021 #makeamoveforscleroderma
When you donate to Scleroderma, you donate to many patients, doctors and supporters who advocate for awareness and better healthcare for people living with scleroderma. Visit www.hardword.ca to learn more. #walks2021 #hardwordharderdisease
When you donate to Scleroderma, you donate to many patients, doctors and supporters who advocate for awareness and better healthcare for people living with scleroderma. Visit www.hardword.ca to learn more. #walks2021 #hardwordharderdisease
The crunch is on!!! 5 days left in our Virtual Walk, Run or Ride for Scleroderma and until National Scleroderma Day. Fundraise your hearts out- lets raise some much needed funds for Scleroderma! Visit www.hardword.ca to participate today.
The crunch is on!!! 5 days left in our Virtual Walk, Run or Ride for Scleroderma and until National Scleroderma Day. Fundraise your hearts out- lets raise some much needed funds for Scleroderma! Visit www.hardword.ca to participate today.
"Hi Everyone. My name is Jason Doucette and I am honored to be volunteering with Scleroderma Canada. My mother, Linda, was first diagnosed with Raynaud's many years ago and was further diagnosed with scleroderma a few years later. Following her passing in 2012, I became involved with the Scleroderma Society of Nova Scotia and helped coordinate their annual Run/Walk. I am proud of the work that we have done as an organization and the fact that now, as Scleroderma Atlantic, we are supporting those living with scleroderma across Atlantic Canada. I am also pleased to be involved with Scleroderma Canada. As a national organization, SC supports those living with scleroderma across the country, through various initiatives such as June Awareness, the annual Run/Walk campaign, advocacy, and supporting critical research projects. I look forward to the continued success of all of our scleroderma organizations!" -Jason Doucette on his involvement with Scleroderma Canada. Thank you Jason for your years of commitment to the scleroderma community.
Like Jason, you can get involved and support the change that Scleroderma Canada wants to promote for people living with the disease. Donate today to www.hardword.ca
"Hi Everyone. My name is Jason Doucette and I am honored to be volunteering with Scleroderma Canada. My mother, Linda, was first diagnosed with Raynaud's many years ago and was further diagnosed with scleroderma a few years later. Following her passing in 2012, I became involved with the Scleroderma Society of Nova Scotia and helped coordinate their annual Run/Walk. I am proud of the work that we have done as an organization and the fact that now, as Scleroderma Atlantic, we are supporting those living with scleroderma across Atlantic Canada. I am also pleased to be involved with Scleroderma Canada. As a national organization, SC supports those living with scleroderma across the country, through various initiatives such as June Awareness, the annual Run/Walk campaign, advocacy, and supporting critical research projects. I look forward to the continued success of all of our scleroderma organizations!" -Jason Doucette on his involvement with Scleroderma Canada. Thank you Jason for your years of commitment to the scleroderma community.
Like Jason, you can get involved and support the change that Scleroderma Canada wants to promote for people living with the disease. Donate today to www.hardword.ca
When you donate to scleroderma you help to fund support groups for patients and caregivers in your area. Donate today at www.hardword.ca
When you donate to scleroderma you help to fund support groups for patients and caregivers in your area. Donate today at www.hardword.ca
OFFICIALLY ONE WEEK AWAY until the end of our 2021 Virtual Walk, Run or Ride for Scleroderma! Planning on signing up or making a donation? Now is your chance! Register or donate at www.hardword.ca
OFFICIALLY ONE WEEK AWAY until the end of our 2021 Virtual Walk, Run or Ride for Scleroderma! Planning on signing up or making a donation? Now is your chance! Register or donate at www.hardword.ca
"Hi, my name is Elizabeth Volkmann, and I am the Director of the UCLA Scleroderma Program in Los, Angeles, California. I have been caring for patients with scleroderma for over 15 years, and I am wholeheartedly devoted to improving the lives of all patients with this condition through patient advocacy, education and research. Through collaborative research initiatives, I endeavor to advance our understanding of the causes of scleroderma and to discover new therapies." -Dr. Volkmann on patient research.
When you donate to scleroderma, you donate to funding vital research initiatives. Support people living with this disease. Register or donate at www.hardword.ca
"Hi, my name is Elizabeth Volkmann, and I am the Director of the UCLA Scleroderma Program in Los, Angeles, California. I have been caring for patients with scleroderma for over 15 years, and I am wholeheartedly devoted to improving the lives of all patients with this condition through patient advocacy, education and research. Through collaborative research initiatives, I endeavor to advance our understanding of the causes of scleroderma and to discover new therapies." -Dr. Volkmann on patient research.
When you donate to scleroderma, you donate to funding vital research initiatives. Support people living with this disease. Register or donate at www.hardword.ca
NEW CHALLENGE ALERT! Want to win a $50 Tim Hortons Gift Card? Post a photo of your "scleroderma sign" & Tag Scleroderma Canada and DM us or email [email protected] for your chance to win! Enter your sign by Midnight on Sunday. Spread the word and raise awareness!
NEW CHALLENGE ALERT! Want to win a $50 Tim Hortons Gift Card? Post a photo of your "scleroderma sign" & Tag Scleroderma Canada and DM us or email [email protected] for your chance to win! Enter your sign by Midnight on Sunday. Spread the word and raise awareness!
Timeline Photos
TEN DAYS AWAY until the end of our 2021 virtual walk, run or ride for scleroderma. Sign up or donate today to help us reach our goal of $225,000 for scleroderma!
TEN DAYS AWAY until the end of our 2021 virtual walk, run or ride for scleroderma. Sign up or donate today to help us reach our goal of $225,000 for scleroderma!
Mark you calendars! Fathers day is right around the corner. Still looking for a meaningful gift? Make a donation in honour of a dad in your life at: https://www.canadahelps.org/en/dn/43619!
Mark you calendars! Fathers day is right around the corner. Still looking for a meaningful gift? Make a donation in honour of a dad in your life at: https://www.canadahelps.org/en/dn/43619!
Brandon, a student living Guelph ON, buzzed his head in support of his friend Vanessa who is living with scleroderma.
You can donate to scleroderma in support of dedicated patients and advocates, just like Brandon at www.hardword.ca.
Help us in our journey to find a cure for Scleroderma. #walks2021
Brandon, a student living Guelph ON, buzzed his head in support of his friend Vanessa who is living with scleroderma.
You can donate to scleroderma in support of dedicated patients and advocates, just like Brandon at www.hardword.ca.
Help us in our journey to find a cure for Scleroderma. #walks2021
We are officially 2 WEEKS AWAY until the end of our Virtual Walk, Run or Ride for Scleroderma. THERE'S STILL TIME! Help us reach our goal by donating to www.hardword.ca today! #walks2021 #makeamoveforscleroderma
We are officially 2 WEEKS AWAY until the end of our Virtual Walk, Run or Ride for Scleroderma. THERE'S STILL TIME! Help us reach our goal by donating to www.hardword.ca today! #walks2021 #makeamoveforscleroderma
"Hi my name is Marty Hogan, and I have been working with patients living with Scleroderma since 2008. I am a dentist who works in a hospital and I am very fortunate to be able to help care for patients living with Scleroderma. It is an honour and a privilege to care for people, but especially to be able to care for patients with complex conditions such as Scleroderma. I do my best to stay educated myself, and educate others as best I can to help provide the best care possible for our patients. It is a team effort and it takes everyone rowing the boat in the same direction." -Dr. Hogan on Patient Support and Care. Thank you Dr. Hogan for providing your extensive knowledge and continuous support to the scleroderma community. #walks2021 #hardwordharderdisease
"Hi my name is Marty Hogan, and I have been working with patients living with Scleroderma since 2008. I am a dentist who works in a hospital and I am very fortunate to be able to help care for patients living with Scleroderma. It is an honour and a privilege to care for people, but especially to be able to care for patients with complex conditions such as Scleroderma. I do my best to stay educated myself, and educate others as best I can to help provide the best care possible for our patients. It is a team effort and it takes everyone rowing the boat in the same direction." -Dr. Hogan on Patient Support and Care. Thank you Dr. Hogan for providing your extensive knowledge and continuous support to the scleroderma community. #walks2021 #hardwordharderdisease
Timeline Photos
June is Scleroderma Awareness Month and we want to share some tools for you to make the most of it!
Please join us for this informational discussion, with special guests from The Generator, a leading social media company, as they share best practices to Amplify Scleroderma Awareness. A brief Q&A will follow.
Register and submit your questions in advance, to [email protected]. To get involved with Scleroderma Canada's Virtual Walk, Run or Ride, please visit: www.hardword.ca
June is Scleroderma Awareness Month and we want to share some tools for you to make the most of it!
Please join us for this informational discussion, with special guests from The Generator, a leading social media company, as they share best practices to Amplify Scleroderma Awareness. A brief Q&A will follow.
Register and submit your questions in advance, to [email protected]. To get involved with Scleroderma Canada's Virtual Walk, Run or Ride, please visit: www.hardword.ca
"Hello my name is Janet Pope and I have been working with and learning from people living with Scleroderma since 1993. I am a rheumatologist and professor of medicine at Western University, London, Ontario. My major research has been in studies of scleroderma including treatment trials, prevalence, outcome measurements and finding how to improve the quality of life for those who suffer from systemic sclerosis (scleroderma).
Several of my patients and I value the ability for patients to interact with other people living with this rare disease and learn from each other. I strongly endorse the scleroderma patient support group and recommend it for patients and /or family members who are living with scleroderma."
Thank you Dr. Pope for all that you do for the community. You are an inspiration & role model to many. Join Dr. Pope in supporting people living with scleroderma at www.hardword.ca
"Hello my name is Janet Pope and I have been working with and learning from people living with Scleroderma since 1993. I am a rheumatologist and professor of medicine at Western University, London, Ontario. My major research has been in studies of scleroderma including treatment trials, prevalence, outcome measurements and finding how to improve the quality of life for those who suffer from systemic sclerosis (scleroderma).
Several of my patients and I value the ability for patients to interact with other people living with this rare disease and learn from each other. I strongly endorse the scleroderma patient support group and recommend it for patients and /or family members who are living with scleroderma."
Thank you Dr. Pope for all that you do for the community. You are an inspiration & role model to many. Join Dr. Pope in supporting people living with scleroderma at www.hardword.ca
We want to see your Furry Friends in this week's Photo Challenge! Show us your best buds in blue and you could win a $50 Tim Horton's gift card - FUR REAL! Post your photo in the comments or email your entry to [email protected]. Don't forget to register at hardword.ca. Brought to you by Tim Hortons.
We want to see your Furry Friends in this week's Photo Challenge! Show us your best buds in blue and you could win a $50 Tim Horton's gift card - FUR REAL! Post your photo in the comments or email your entry to [email protected]. Don't forget to register at hardword.ca. Brought to you by Tim Hortons.
Want to show your support on social media? Add our Facebook Frame under "Scleroderma awareness hard word"! #walks2021 #makeamoveforscleroderma
Want to show your support on social media? Add our Facebook Frame under "Scleroderma awareness hard word"! #walks2021 #makeamoveforscleroderma
Timeline Photos
Fathers day is approaching soon! Consider giving the gift of a donation to Scleroderma to your dad this Father's Day. #walks2021 #hardwordharderdisease #makeamoveforscleroderma
Fathers day is approaching soon! Consider giving the gift of a donation to Scleroderma to your dad this Father's Day. #walks2021 #hardwordharderdisease #makeamoveforscleroderma
Looking for a gift this fathers day? Celebrate your dad by honouring him with the gift of donation this year: https://www.canadahelps.org/en/dn/43619 💙
This Father’s Day, give the gift of donation to your dad. Click https://www.canadahelps.org/en/dn/43619 to donate for Father’s Day! 💙
#hardwordharderdisease #philanthropy
DYK? Raynauds is often the first visible symptom of scleroderma. It can be triggered by wild swings in temperature, as well as stress. Help us raise funds for scleroderma research this June by signing up at www.hardword.ca
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The rain ended just as the 12th Annual Hamilton Scleroderma Charity Golf Tournament began, and it was a perfect day! Thanks to everyone who participated, to our amazing volunteers, and our sponsors - everyone made an impact on helping raise money for research, new treatments, and patient care.
Do you have questions about your scleroderma? Register for the National Scleroderma Conference and join in! 5 days of expert discussions followed by Q&A sessions. Early Bird pricing ends September 15th! www.sclerodermaconference.ca
Thank you Queen Latifah for sharing your story about your mom's scleroderma. We are looking for scleroderma patients who would be interested in sharing their story for our new website. Please email our office: [email protected]
Interstitial lung disease (ILD) occurs in about 75% of scleroderma patients. It can range from breathing difficulties to life-threatening complications. This white board presentation on SSc-ILD discusses symptoms, diagnosis, and more. Watch:
Today marks 80 years since Swiss-German artist Paul Klee passed away from complications of #scleroderma. The date - June 29 - is recognized as #WorldSclerodermaDay to honour Paul and the thousands of men, women and children living with this terrible disease.
While we've asked you to Walk Virtually all month, today is the official date of the Ottawa Virtual Walk! Register at www.sclerodermawalkrun.ca, then get out for a stroll around your block, or share your story to help raise awareness of #scleroderma. And to those who have done so already - Thank you!
We've been asking you to Walk Virtually all month, but today's the official date of the Toronto Virtual Walk! Get out for a walk around your block, or share your story to help raise awareness of scleroderma. www.sclerodermawalkrun.ca
John and Lacey from our office here at the Scleroderma Society of Ontario have an exciting message. Whether you're a patient, family member, caregiver or friend, you'll be overjoyed to hear how much you've helped us raise for scleroderma research. Help us keep the momentum going! There are only a few days left till World Scleroderma Day! Sign up: www.sclerodermawalkrun.ca
Scleroderma was the topic of conversation on KX947 when news broke that our Executive Director John completed his 1,000-mile walk for awareness. Have a listen 👂
While we've been encouraging you to Walk Virtually, today's the official date of the Hamilton and London Virtual Walks! Go for a walk around your block, to the park, or share your story. Help us raise awareness so we can improve quality of life for our scleroderma family.
Our Executive Director has just completed 1,000 miles for scleroderma! John's Walk may be done, but ours aren't. We still need your help to reach our goal this June. Sign up for #scwalks2020 to support scleroderma research. Let's find a cure. www.sclerodermawalkrun.ca
Today MPP Michael Parsa addressed the House to bring awareness to scleroderma with a reminder that we cannot hold our traditional fundraising Walks this year. We are relying on supporters both new and old to sign up and walk virtually at home by visiting www.sclerodermawalkrun.ca
"The word is hard to say, but it's even harder watching a loved one go through it." Phyllis is walking for scleroderma this June because we need a cure. Sign up for #scwalks2020 and help us raise awareness and funds for research, to improve quality of life and give hope to scleroderma patients. www.sclerodermawalkrun.ca
An exciting announcement from MPP Jeff Yurek on our new friendship support group, created for London/Elgin/Middlesex scleroderma patients and their families thanks to the generosity of the Ontario Trillium Foundation.
Watch MP David Sweet explain the reason he has been a strong supporter of our Walks, an advocate for research and a voice for scleroderma awareness. We'll miss him this year as we all stay safe and Walk or Run virtually, at home. www.sclerodermawalkrun.ca
Our Executive Director John has walked 500 miles (804 kms) for scleroderma and he's not done yet. Join him for the next 500 by participating virtually in #scwalks2020 and help us raise awareness and funds for critical scleroderma research. Register today: www.sclerodermawalkrun.ca
Here's your op-paw-tunity to show off your furry bestie and win a $25 Tim Hortons gift card! Sign up for #scwalks2020 to support scleroderma research and send us your best video walking your doggo! www.sclerodermawalkrun.ca Winner announced Monday, May 18.
Our friends at the Global Rheumatology Alliance invite patients with rheumatological diseases to complete a survey regarding their experiences with Covid-19. You do not need to have had Covid-19 to participate, but your answers will help the rheumatology community. http://rheum-covid.org/patient-survey
Silvia isn't skipping the scleroderma walks this year - our biggest fundraiser has gone virtual and we want to see your creativity! Sign up at www.sclerodermawalkrun.ca and send us photos or video of your walk.
Our 2020 Scleroderma walks have gone VIRTUAL and we need your help more than ever. Watch this message from our Executive Director, John Malcolmson, and sign up to walk at www.sclerodermawalkrun.ca
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