Scleroderma Society of Ontario

Scleroderma Society of Ontario The Scleroderma Society of Ontario is committed to promoting increased public awareness, advancing patient wellness and supporting research in scleroderma.
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The Scleroderma Society of Ontario was founded in late 1985 with the help of The Arthritis Society and dedicated volunteers. With the first executive in place, the challenge began and an open information meeting was held on April 20, 1986 in Toronto. Now based out of Hamilton, Ontario the organization functions daily with a limited but dedicated number of staff and widespread group of volunteers.

07/27/2021

Please join us for the 13th Annual Hamilton Scleroderma Charity Golf Tournament, August 28, 2021 at Flamborough Hills Golf & Country Club. Benefitting scleroderma research, education and support groups. Tee times begin 10 am.

Sign up as a single or register a foursome at [email protected]

Did you celebrate World Scleroderma Day? Last call to show us your Scleroderma Spirit! Post your pic in the comments or ...
07/02/2021

Did you celebrate World Scleroderma Day? Last call to show us your Scleroderma Spirit! Post your pic in the comments or email to [email protected] for your chance to win a $50 Tim Hortons gift card. Brought to you by our friends Tim Hortons. Get your photos in by midnight on Sunday!

Did you celebrate World Scleroderma Day? Last call to show us your Scleroderma Spirit! Post your pic in the comments or email to [email protected] for your chance to win a $50 Tim Hortons gift card. Brought to you by our friends Tim Hortons. Get your photos in by midnight on Sunday!

Today we celebrate all of the courageous & strong scleroderma warriors across the globe. June 29th is a day to recognize...
06/29/2021

Today we celebrate all of the courageous & strong scleroderma warriors across the globe. June 29th is a day to recognize and bring awareness to all of the brave individuals who live with this disease. Happy World Scleroderma Day ๐Ÿ’™ To learn more visit: www.hardword.ca #hardwordharderdisease

Today we celebrate all of the courageous & strong scleroderma warriors across the globe. June 29th is a day to recognize and bring awareness to all of the brave individuals who live with this disease. Happy World Scleroderma Day ๐Ÿ’™ To learn more visit: www.hardword.ca #hardwordharderdisease

06/29/2021

Today is #WorldSclerodermaDay and we're letting everyone know by illuminating landmarks blue across the country. Tonight the CN Tower will be lit blue to inspire conversation and raise awareness of this terrible disease. Thank you for your support!

LAST CALL! Get your creative scleroderma sign photos in as soon as possible! Reply in the comments or email vanessa@scle...
06/27/2021

LAST CALL! Get your creative scleroderma sign photos in as soon as possible! Reply in the comments or email [email protected] your entry for your chance to win a $50 Tim Hortons gift card!

LAST CALL! Get your creative scleroderma sign photos in as soon as possible! Reply in the comments or email [email protected] your entry for your chance to win a $50 Tim Hortons gift card!

The 3 day countdown has begun! Only 3 days away until National Scleroderma Day and the end of our Virtual Walk Run or Ri...
06/27/2021

The 3 day countdown has begun! Only 3 days away until National Scleroderma Day and the end of our Virtual Walk Run or Ride for Scleroderma fundraiser. Get those donations in! www.hardword.ca
#walks2021 #makeamoveforscleroderma

The 3 day countdown has begun! Only 3 days away until National Scleroderma Day and the end of our Virtual Walk Run or Ride for Scleroderma fundraiser. Get those donations in! www.hardword.ca
#walks2021 #makeamoveforscleroderma

When you donate to Scleroderma, you donate to many patients, doctors and supporters who advocate for awareness and bette...
06/26/2021

When you donate to Scleroderma, you donate to many patients, doctors and supporters who advocate for awareness and better healthcare for people living with scleroderma. Visit www.hardword.ca to learn more. #walks2021 #hardwordharderdisease

When you donate to Scleroderma, you donate to many patients, doctors and supporters who advocate for awareness and better healthcare for people living with scleroderma. Visit www.hardword.ca to learn more. #walks2021 #hardwordharderdisease

The crunch is on!!! 5 days left in our Virtual Walk, Run or Ride for Scleroderma and until National Scleroderma Day. Fun...
06/25/2021

The crunch is on!!! 5 days left in our Virtual Walk, Run or Ride for Scleroderma and until National Scleroderma Day. Fundraise your hearts out- lets raise some much needed funds for Scleroderma! Visit www.hardword.ca to participate today.

The crunch is on!!! 5 days left in our Virtual Walk, Run or Ride for Scleroderma and until National Scleroderma Day. Fundraise your hearts out- lets raise some much needed funds for Scleroderma! Visit www.hardword.ca to participate today.

"Hi Everyone. My name is Jason Doucette and I am honored to be volunteering with Scleroderma Canada. My mother, Linda, w...
06/24/2021

"Hi Everyone. My name is Jason Doucette and I am honored to be volunteering with Scleroderma Canada. My mother, Linda, was first diagnosed with Raynaud's many years ago and was further diagnosed with scleroderma a few years later. Following her passing in 2012, I became involved with the Scleroderma Society of Nova Scotia and helped coordinate their annual Run/Walk. I am proud of the work that we have done as an organization and the fact that now, as Scleroderma Atlantic, we are supporting those living with scleroderma across Atlantic Canada. I am also pleased to be involved with Scleroderma Canada. As a national organization, SC supports those living with scleroderma across the country, through various initiatives such as June Awareness, the annual Run/Walk campaign, advocacy, and supporting critical research projects. I look forward to the continued success of all of our scleroderma organizations!" -Jason Doucette on his involvement with Scleroderma Canada. Thank you Jason for your years of commitment to the scleroderma community.

Like Jason, you can get involved and support the change that Scleroderma Canada wants to promote for people living with the disease. Donate today to www.hardword.ca

"Hi Everyone. My name is Jason Doucette and I am honored to be volunteering with Scleroderma Canada. My mother, Linda, was first diagnosed with Raynaud's many years ago and was further diagnosed with scleroderma a few years later. Following her passing in 2012, I became involved with the Scleroderma Society of Nova Scotia and helped coordinate their annual Run/Walk. I am proud of the work that we have done as an organization and the fact that now, as Scleroderma Atlantic, we are supporting those living with scleroderma across Atlantic Canada. I am also pleased to be involved with Scleroderma Canada. As a national organization, SC supports those living with scleroderma across the country, through various initiatives such as June Awareness, the annual Run/Walk campaign, advocacy, and supporting critical research projects. I look forward to the continued success of all of our scleroderma organizations!" -Jason Doucette on his involvement with Scleroderma Canada. Thank you Jason for your years of commitment to the scleroderma community.

Like Jason, you can get involved and support the change that Scleroderma Canada wants to promote for people living with the disease. Donate today to www.hardword.ca

When you donate to scleroderma you help to fund support groups for patients and caregivers in your area. Donate today at...
06/23/2021

When you donate to scleroderma you help to fund support groups for patients and caregivers in your area. Donate today at www.hardword.ca

When you donate to scleroderma you help to fund support groups for patients and caregivers in your area. Donate today at www.hardword.ca

OFFICIALLY ONE WEEK AWAY until the end of our 2021 Virtual Walk, Run or Ride for Scleroderma! Planning on signing up or ...
06/23/2021

OFFICIALLY ONE WEEK AWAY until the end of our 2021 Virtual Walk, Run or Ride for Scleroderma! Planning on signing up or making a donation? Now is your chance! Register or donate at www.hardword.ca

OFFICIALLY ONE WEEK AWAY until the end of our 2021 Virtual Walk, Run or Ride for Scleroderma! Planning on signing up or making a donation? Now is your chance! Register or donate at www.hardword.ca

"Hi, my name is Elizabeth Volkmann, and I am the Director of the UCLA Scleroderma Program in Los, Angeles, California. I...
06/22/2021

"Hi, my name is Elizabeth Volkmann, and I am the Director of the UCLA Scleroderma Program in Los, Angeles, California. I have been caring for patients with scleroderma for over 15 years, and I am wholeheartedly devoted to improving the lives of all patients with this condition through patient advocacy, education and research. Through collaborative research initiatives, I endeavor to advance our understanding of the causes of scleroderma and to discover new therapies." -Dr. Volkmann on patient research.

When you donate to scleroderma, you donate to funding vital research initiatives. Support people living with this disease. Register or donate at www.hardword.ca

"Hi, my name is Elizabeth Volkmann, and I am the Director of the UCLA Scleroderma Program in Los, Angeles, California. I have been caring for patients with scleroderma for over 15 years, and I am wholeheartedly devoted to improving the lives of all patients with this condition through patient advocacy, education and research. Through collaborative research initiatives, I endeavor to advance our understanding of the causes of scleroderma and to discover new therapies." -Dr. Volkmann on patient research.

When you donate to scleroderma, you donate to funding vital research initiatives. Support people living with this disease. Register or donate at www.hardword.ca

NEW CHALLENGE ALERT! Want to win a $50 Tim Hortons Gift Card? Post a photo of your "scleroderma sign" & Tag Scleroderma ...
06/22/2021

NEW CHALLENGE ALERT! Want to win a $50 Tim Hortons Gift Card? Post a photo of your "scleroderma sign" & Tag Scleroderma Canada and DM us or email [email protected] for your chance to win! Enter your sign by Midnight on Sunday. Spread the word and raise awareness!

NEW CHALLENGE ALERT! Want to win a $50 Tim Hortons Gift Card? Post a photo of your "scleroderma sign" & Tag Scleroderma Canada and DM us or email [email protected] for your chance to win! Enter your sign by Midnight on Sunday. Spread the word and raise awareness!

Timeline Photos
06/20/2021

Timeline Photos

TEN DAYS AWAY until the end of our 2021 virtual walk, run or ride for scleroderma. Sign up or donate today to help us re...
06/19/2021

TEN DAYS AWAY until the end of our 2021 virtual walk, run or ride for scleroderma. Sign up or donate today to help us reach our goal of $225,000 for scleroderma!

TEN DAYS AWAY until the end of our 2021 virtual walk, run or ride for scleroderma. Sign up or donate today to help us reach our goal of $225,000 for scleroderma!

Brandon, a student living Guelph ON, buzzed his head in support of his friend Vanessa who is living with scleroderma. Yo...
06/17/2021

Brandon, a student living Guelph ON, buzzed his head in support of his friend Vanessa who is living with scleroderma.

You can donate to scleroderma in support of dedicated patients and advocates, just like Brandon at www.hardword.ca.

Help us in our journey to find a cure for Scleroderma. #walks2021

Brandon, a student living Guelph ON, buzzed his head in support of his friend Vanessa who is living with scleroderma.

You can donate to scleroderma in support of dedicated patients and advocates, just like Brandon at www.hardword.ca.

Help us in our journey to find a cure for Scleroderma. #walks2021

We are officially 2 WEEKS AWAY until the end of our Virtual Walk, Run or Ride for Scleroderma. THERE'S STILL TIME! Help ...
06/17/2021

We are officially 2 WEEKS AWAY until the end of our Virtual Walk, Run or Ride for Scleroderma. THERE'S STILL TIME! Help us reach our goal by donating to www.hardword.ca today! #walks2021 #makeamoveforscleroderma

We are officially 2 WEEKS AWAY until the end of our Virtual Walk, Run or Ride for Scleroderma. THERE'S STILL TIME! Help us reach our goal by donating to www.hardword.ca today! #walks2021 #makeamoveforscleroderma

"Hi my name is Marty Hogan, and I have been working with patients living with Scleroderma since 2008.  I am a dentist wh...
06/17/2021

"Hi my name is Marty Hogan, and I have been working with patients living with Scleroderma since 2008. I am a dentist who works in a hospital and I am very fortunate to be able to help care for patients living with Scleroderma. It is an honour and a privilege to care for people, but especially to be able to care for patients with complex conditions such as Scleroderma. I do my best to stay educated myself, and educate others as best I can to help provide the best care possible for our patients. It is a team effort and it takes everyone rowing the boat in the same direction." -Dr. Hogan on Patient Support and Care. Thank you Dr. Hogan for providing your extensive knowledge and continuous support to the scleroderma community. #walks2021 #hardwordharderdisease

"Hi my name is Marty Hogan, and I have been working with patients living with Scleroderma since 2008. I am a dentist who works in a hospital and I am very fortunate to be able to help care for patients living with Scleroderma. It is an honour and a privilege to care for people, but especially to be able to care for patients with complex conditions such as Scleroderma. I do my best to stay educated myself, and educate others as best I can to help provide the best care possible for our patients. It is a team effort and it takes everyone rowing the boat in the same direction." -Dr. Hogan on Patient Support and Care. Thank you Dr. Hogan for providing your extensive knowledge and continuous support to the scleroderma community. #walks2021 #hardwordharderdisease

Timeline Photos
06/16/2021

Timeline Photos

June is Scleroderma Awareness Month and we want to share some tools for you to make the most of it! Please join us for t...
06/15/2021

June is Scleroderma Awareness Month and we want to share some tools for you to make the most of it!

Please join us for this informational discussion, with special guests from The Generator, a leading social media company, as they share best practices to Amplify Scleroderma Awareness. A brief Q&A will follow.

Register and submit your questions in advance, to [email protected]. To get involved with Scleroderma Canada's Virtual Walk, Run or Ride, please visit: www.hardword.ca

June is Scleroderma Awareness Month and we want to share some tools for you to make the most of it!

Please join us for this informational discussion, with special guests from The Generator, a leading social media company, as they share best practices to Amplify Scleroderma Awareness. A brief Q&A will follow.

Register and submit your questions in advance, to [email protected]. To get involved with Scleroderma Canada's Virtual Walk, Run or Ride, please visit: www.hardword.ca

"Hello my name is Janet Pope and I have been working with and learning from people living with Scleroderma since 1993. I...
06/15/2021

"Hello my name is Janet Pope and I have been working with and learning from people living with Scleroderma since 1993. I am a rheumatologist and professor of medicine at Western University, London, Ontario. My major research has been in studies of scleroderma including treatment trials, prevalence, outcome measurements and finding how to improve the quality of life for those who suffer from systemic sclerosis (scleroderma).

Several of my patients and I value the ability for patients to interact with other people living with this rare disease and learn from each other. I strongly endorse the scleroderma patient support group and recommend it for patients and /or family members who are living with scleroderma."

Thank you Dr. Pope for all that you do for the community. You are an inspiration & role model to many. Join Dr. Pope in supporting people living with scleroderma at www.hardword.ca

"Hello my name is Janet Pope and I have been working with and learning from people living with Scleroderma since 1993. I am a rheumatologist and professor of medicine at Western University, London, Ontario. My major research has been in studies of scleroderma including treatment trials, prevalence, outcome measurements and finding how to improve the quality of life for those who suffer from systemic sclerosis (scleroderma).

Several of my patients and I value the ability for patients to interact with other people living with this rare disease and learn from each other. I strongly endorse the scleroderma patient support group and recommend it for patients and /or family members who are living with scleroderma."

Thank you Dr. Pope for all that you do for the community. You are an inspiration & role model to many. Join Dr. Pope in supporting people living with scleroderma at www.hardword.ca

We want to see your Furry Friends in this week's Photo Challenge! Show us your best buds in blue and you could win a $50...
06/14/2021

We want to see your Furry Friends in this week's Photo Challenge! Show us your best buds in blue and you could win a $50 Tim Horton's gift card - FUR REAL! Post your photo in the comments or email your entry to [email protected]. Don't forget to register at hardword.ca. Brought to you by Tim Hortons.

We want to see your Furry Friends in this week's Photo Challenge! Show us your best buds in blue and you could win a $50 Tim Horton's gift card - FUR REAL! Post your photo in the comments or email your entry to [email protected]. Don't forget to register at hardword.ca. Brought to you by Tim Hortons.

Want to show your support on social media? Add our Facebook Frame under "Scleroderma awareness hard word"! #walks2021 #m...
06/14/2021

Want to show your support on social media? Add our Facebook Frame under "Scleroderma awareness hard word"! #walks2021 #makeamoveforscleroderma

Want to show your support on social media? Add our Facebook Frame under "Scleroderma awareness hard word"! #walks2021 #makeamoveforscleroderma

Timeline Photos
06/13/2021

Timeline Photos

Fathers day is approaching soon! Consider giving the gift of a donation to Scleroderma to your dad this Father's Day. #w...
06/12/2021

Fathers day is approaching soon! Consider giving the gift of a donation to Scleroderma to your dad this Father's Day. #walks2021 #hardwordharderdisease #makeamoveforscleroderma

Fathers day is approaching soon! Consider giving the gift of a donation to Scleroderma to your dad this Father's Day. #walks2021 #hardwordharderdisease #makeamoveforscleroderma

06/10/2021

DYK? Raynauds is often the first visible symptom of scleroderma. It can be triggered by wild swings in temperature, as well as stress. Help us raise funds for scleroderma research this June by signing up at www.hardword.ca

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41 King William Street, Suite 206
Hamilton, ON
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Comments

I have been diagnosed as having probable scleroderma so I have some questions... hope it is ok to ask. Does anyone have issues with their lips peeling off layers of hard skin? Does anyone have severe cramping in their feet that wake them up? Does anyone have spacial or balance issues?
Competed the 5km Virtual Toronto Scleroderma walk ( In Barrie , Ontario) ๐Ÿ˜๐Ÿ•โค!!!!Stay safe everyone and happy healthy walking/running!!๐Ÿ’™
We just completed the Toronto Scleroderma 5km virtual walk!! ( in Barrie) 50 minutes!! Stay safe everone!!
Hi everyone, I am Kathy Randolph of Yoga for Scleroderma. Do you know anyone in Hong Kong who has Scleroderma? I am teaching a Yoga for Scleroderma teacher training in Hong Kong November 5 - 7, and a key part of the training is working with volunteers who have scleroderma or arthritis. We are reaching out in Hong Kong, but don't have a volunteer with scleroderma yet. I would really appreciate it if you could pass this on to any groups you are in. Thank you!
I have Scleroderma and have written a Book Called THE GIFT WITHIN SOLD AT SMILE AMAZON Part PROCEEDS TO SCLERODERMA RESEARCH Thankyou and God BLESS http://www.margiekugler.com/
A few years ago my mom Celine Boisvert was diagnosed with scleroderma. With that she suffered from major fatigue, to the point where all she wanted to do was sleep. She had zero interest in anything anymore (house cleaning, gardening, events, you name it- she had no energy to do it!). Someone who wouldnโ€™t know the disease would think she was in a very deep depression. About 4 months ago I introduced her to Juice Plus. Within a few weeks she had noticed a few small changes. Less bloating, little more energy. Then about 3 months in she started feeling amazing! Her energy level had changed dramatically! It was literally a night and day difference! She says feel like about ten years younger!! Celine has since been able to quit 2 of her medications for this auto immune disease, working on a 3rd AND she has been sleeping like a baby!!! If you feel you are ready and willing to take your health back, letโ€™s talk! Contsct either myself or Celine. She would love to chat about her changes and i would love to share anout getting my mother back! โค Why waste any time in life feeling anything less than your best!? What have you got to lose!?
In Loving Memory of Irene Goodale Let's help make our Event a successful one if anyone is interested in purchasing tickets to this Event please contact me. Shannon Goodale