Scleroderma Canada

Scleroderma Canada Scleroderma Canada serves as an advocate nationally for those affected by the disease and works collaboratively with regional scleroderma organizations and the international scleroderma community to achieve common objectives.
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Operating as usual

Remembering Robin Williams who would have been 69 today. Robin was an incredibly kind performer, donating his talent and...
07/21/2020

Remembering Robin Williams who would have been 69 today. Robin was an incredibly kind performer, donating his talent and time in support of scleroderma with Scleroderma Research Foundation's Cool Comedy Hot Cuisine fundraiser.

Betsy Craig is an Award-Winning Leader, CEO, Speaker, Author and owner/operator of MenuTrinfo LLC, living with scleroder...
07/20/2020

Betsy Craig is an Award-Winning Leader, CEO, Speaker, Author and owner/operator of MenuTrinfo LLC, living with scleroderma. We're proud to have her close the Virtual 2020 National Conference with a humourous and inspiring Keynote that will fill you with courage.
Register at www.sclerodermaconference.ca

Earlier we noted that our Bi-Annual Scleroderma Conference (which was to take place in Niagara Falls) was on hold due to...
07/13/2020

Earlier we noted that our Bi-Annual Scleroderma Conference (which was to take place in Niagara Falls) was on hold due to Covid-19. We've since been working with our speakers on a solution and will have an update shortly on the new Virtual Conference taking place October 5-9.

07/08/2020
Saskatchewan Legislative Bldg Flag Raising

To raise awareness of scleroderma year-round, and especially during June, our members engage in a wide range of initiatives. Thank you to the Saskatchewan Legislative Building for flying the Scleroderma Association of Saskatchewan flag on #WorldSclerodermaDay.

07/06/2020
Canada Walks for Scleroderma

From coast to coast Canada's scleroderma community pulled together for a new challenge in 2020. Thank you to everyone who got involved in our Virtual Walks while staying safe. You have proven that we can raise awareness of this terrible disease from anywhere.

The Virtual Walk website will be open till July 31st. Visit https://bit.ly/2DgAjsr

07/05/2020
What is Interstitial Lung Disease?

Interstitial lung disease (ILD) occurs in approximately 75% of scleroderma patients. Watch our white board presentation on scleroderma interstitial lung disease and learn the symptoms, tests used for diagnosis, and more.

Congratulations to the #scwalks2020 winners, on your creative endeavours that inspired us.Coffee for a year - Marilyn Ma...
07/03/2020

Congratulations to the #scwalks2020 winners, on your creative endeavours that inspired us.

Coffee for a year - Marilyn Maude
Most Scenic - Submitted by Sanique Whyte
Most Creative - Submitted by Schafer Family
Best Attire - Submitted by Scott Duncan
Youth Participation - Submitted by Claudia Jaworski

07/01/2020
June Success - Thank You Canada!

We have a lot to celebrate on this beautiful Canada Day 🇨🇦
We are grateful for your support in raising OVER $183,000 during Scleroderma Awareness Month... and we're not done counting as the donations continue coming in! Thank you Canada! 🎉

06/30/2020

LIVE at the world's largest falls on World Scleroderma Day-- Niagara Falls is being illuminated in blue to honour this special day!

06/29/2020
Thank You For Raising Scleroderma Awareness!

Across Canada this year we had a new challenge - to raise awareness and research funds without our traditional Walks. Thank you all for finding the time to put on your shirts and walk, dance, jump and create. Join us tonight just before 10pm EST on Facebook Live as we light Niagara Falls blue.

Today is World Scleroderma Day – a day dedicated to getting loud, spreading the word and raising awareness. Speak up and...
06/29/2020

Today is World Scleroderma Day – a day dedicated to getting loud, spreading the word and raising awareness. Speak up and spread the word about the faces of scleroderma. https://bit.ly/3biNBQh

World Scleroderma Day is right around the corner and there's still time to help. Do a lap around your yard, hop on your ...
06/28/2020

World Scleroderma Day is right around the corner and there's still time to help. Do a lap around your yard, hop on your elliptical, or walk to the fridge and grab a snack. Help Saskatoon reach $5,000 for scleroderma awareness, education, and research. Sign up for #scwalks2020 at https://bit.ly/2AfcpMQ

It's easier than you think to raise awareness of scleroderma. Do a lap around your yard, hop on the treadmill, or walk t...
06/26/2020

It's easier than you think to raise awareness of scleroderma. Do a lap around your yard, hop on the treadmill, or walk to the fridge for a snack. Sign up for #scwalks2020 and help us raise funds for vital research. https://bit.ly/31hDEkG

“On the plus side, my face started to beat gravity. Friends started asking which facial moisturizer I used…and closer fr...
06/25/2020

“On the plus side, my face started to beat gravity. Friends started asking which facial moisturizer I used…and closer friends surreptitiously stared at my jawline, looking for telltale facelift scars.” Scleroderma can take its toll, but it can’t take Dinah’s sense of humor. 😂 https://bit.ly/2LspCUj

“On the plus side, my face started to beat gravity. Friends started asking which facial moisturizer I used…and closer friends surreptitiously stared at my jawline, looking for telltale facelift scars.” Scleroderma can take its toll, but it can’t take Dinah’s sense of humor. 😂 https://bit.ly/2LspCUj

Say "hi" to Katie Kinson, a scleroderma patient and a Say Yes to the Dress star. 👰 https://bit.ly/2LspCUj
06/24/2020

Say "hi" to Katie Kinson, a scleroderma patient and a Say Yes to the Dress star. 👰 https://bit.ly/2LspCUj

06/24/2020
June 29 is World Scleroderma Day

June is #SclerodermaAwarenessMonth and we're letting everyone know by illuminating landmarks blue across the country. On June 29th, with the help of the Niagara Falls Illumination Board, we'll be lighting Niagara Falls blue to inspire conversation and raise awareness of this terrible disease.

“I had to adjust to putting my needs first,” said Wendy on her scleroderma diagnosis. “That’s something I had never done...
06/23/2020

“I had to adjust to putting my needs first,” said Wendy on her scleroderma diagnosis. “That’s something I had never done before.” https://bit.ly/2LspCUj #SclerodermaAware

“I had to adjust to putting my needs first,” said Wendy on her scleroderma diagnosis. “That’s something I had never done before.” https://bit.ly/2LspCUj #SclerodermaAware

From coast to coast we're letting Canadians know June is Scleroderma Awareness Month by illuminating landmarks blue! On ...
06/22/2020

From coast to coast we're letting Canadians know June is Scleroderma Awareness Month by illuminating landmarks blue! On June 29th City Hall in Charlottetown, PEI will shine blue to raise awareness. Help us spread the word by sharing or by signing up for our Walks at www.sclerodermawalkrun.ca

Scleroderma Canada's cover photo
06/20/2020

Scleroderma Canada's cover photo

“Every month should be Racism Awareness Month,” remarks Kaila Lipford. “I say that because while I now have a scleroderm...
06/19/2020

“Every month should be Racism Awareness Month,” remarks Kaila Lipford. “I say that because while I now have a scleroderma battle to fight, I still also have a race battle to fight and it’s helpful to know that the scleroderma community stands with every Black person facing this disease.” Read Kaila's story at https://bit.ly/KailaLipford

“Every month should be Racism Awareness Month,” remarks Kaila Lipford. “I say that because while I now have a scleroderma battle to fight, I still also have a race battle to fight and it’s helpful to know that the scleroderma community stands with every Black person facing this disease.” Read Kaila's story at https://bit.ly/KailaLipford

#srfcure #sclerodermaresearch #ResearchistheKey #sclerodermaresearchfoundation #scleroderma

We're more than half-way through Scleroderma Awareness Month, but there's still time to help. Do a lap around your yard,...
06/19/2020

We're more than half-way through Scleroderma Awareness Month, but there's still time to help. Do a lap around your yard, hop on your elliptical, or walk to the fridge and grab a snack. Help Toronto reach $20,000 for scleroderma awareness, education, and research. Sign up for #scwalks2020 at https://bit.ly/2BmJx5v

Scleroderma Research Foundation
06/18/2020

Scleroderma Research Foundation

While scleroderma most commonly occurs between the ages of 30 and 50, it can affect anyone… even a 7-year-old child. https://bit.ly/2LspCUj

From coast to coast Canada is illuminating landmarks to honour those affected by scleroderma. On June 29, the City of Ed...
06/17/2020

From coast to coast Canada is illuminating landmarks to honour those affected by scleroderma. On June 29, the City of Edmonton will illuminate the High Level Bridge in blue, and the town of Sylvan Lake will light the Rotary Club Lighthouse blue. Get your 📷's ready Alberta!

“The things that were once considered ‘normal’ became extremely difficult. In some cases, impossible.” As an active coll...
06/16/2020

“The things that were once considered ‘normal’ became extremely difficult. In some cases, impossible.” As an active college athlete, Erion’s life changed drastically after his 2006 scleroderma diagnosis. https://bit.ly/2LspCUj

“The things that were once considered ‘normal’ became extremely difficult. In some cases, impossible.” As an active college athlete, Erion’s life changed drastically after his 2006 scleroderma diagnosis. https://bit.ly/2LspCUj

06/12/2020
Donate to Scleroderma Research

Cindy O'Connor Mills' son Daniel has watched her battle scleroderma for over 20 years. As fate would have it, Daniel would encounter scleroderma again through his band, as he learned his guitarist's wife also has this disease. With a desire to help raise awareness, they wrote the poignant song, Hard Skin. Scleroderma Awareness Month is the perfect time to share CHEAT NOTES song and help us raise awareness.

Walk or run for scleroderma - virtually! Sign up for #scwalks2020 and help the east coast reach $10,750 for scleroderma ...
06/11/2020

Walk or run for scleroderma - virtually! Sign up for #scwalks2020 and help the east coast reach $10,750 for scleroderma awareness, education, and research. Whether you're in Halifax, Cape Breton, Saint John or Moncton, you could win great prizes, like a Canadian Tire, Sobeys or Irving gas gift card for $50. Visit https://bit.ly/2BR9PwW

Join Scleroderma TriState this Friday, June 12 at 7pm EST as they host SYNC - Scleroderma Young adults Needing Connectio...
06/11/2020

Join Scleroderma TriState this Friday, June 12 at 7pm EST as they host SYNC - Scleroderma Young adults Needing Connection. The Zoom meeting will allow patients between the ages of 20-45 to connect and chat. See poster for details.

Scleroderma Foundation
06/10/2020

Scleroderma Foundation

“I spend my free time spreading awareness about Scleroderma and social injustice,” Kheesa shares. “Like Martin Luther King Jr. said: ‘Our lives begin to end the day we become silent about things that matter.’" https://bit.ly/2LspCUj

Walk or run for scleroderma - virtually! Sign up for #scwalks2020 and help Sylvan Lake reach $5,000 for scleroderma awar...
06/09/2020

Walk or run for scleroderma - virtually! Sign up for #scwalks2020 and help Sylvan Lake reach $5,000 for scleroderma awareness, education, and research. Win great prizes too, like free Tim Hortons coffee for a year. Visit https://bit.ly/2XBC0sc

Congratulations to last week's top fundraisers! Thank you for your incredible effort! We are making progress, and changi...
06/08/2020

Congratulations to last week's top fundraisers! Thank you for your incredible effort! We are making progress, and changing the future for patients.

1. Silvia P.
2. Beatrice K.
3. Joanne T.

Walks are now VIRTUAL. Run, dance, or hop around at home and share a pic to help us raise scleroderma awareness. Sign up! www.sclerodermawalkrun.ca

Address

41 King William Street, Suite 203
Hamilton, ON
L8R 1A2

Opening Hours

Monday 09:00 - 17:00
Tuesday 09:00 - 17:00
Wednesday 09:00 - 17:00
Thursday 09:00 - 17:00
Friday 09:00 - 17:00

Telephone

1-866-279-0632

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Comments

Hi everyone I was wondering if anyone in this group have had experience with “Coup de sabre”, Parry-Romberg syndrome? My mother has it in the chin and she heard about a specialist who is a reconstructive surgeon and he mentioned about using hyaluronic acid for fixing the part of the chin where the morphed localized.
I found this powerful sign at a greenhouse. June is #scleroderma awareness month. Join me in my fundraising challenge to battle scleroderma, a rare incurable autoimmune disease. Thanks for your support. #scwalks2020 https://sclerodermaontario.akaraisin.com/walk2020/c0ee30d6b77c4f70a6da467cada1e18d
Did you know that both my wife Beth and I have serious autoimmune diseases? She has lupus and I have recently been diagnosed with scleroderma. I'm guessing there are very few couples who both are autoimmune. Now that I've got your attention, join in my fundraising challenge to battle scleroderma, a rare incurable autoimmune disease. Thanks for your support. #scwalks2020
Hi, I recently proved positive for scleroderma. On Monday I meet with my rheumatologist for the 1st time since the lab tests came back. I appreciate any advise anybody could give me for the appointment, as I don't know what to expect. Are there any specific questions I should ask? I appreciate your kind support.
Rheumatologist confirmed I had scleroderma today. So what do I do? I gave myself a haircut, with mixed results. Lol https://m.facebook.com/story.php?story_fbid=10223989946003387&id=1440127465
Pray for Kayla McCurdy age 31. She is in hospital, very sick. Scleroderma sucks.
This is my friend Patty Dunn who has Systemic Scleroderma. She is very sick and needs expedited treatment before she gets sicker and dies from the disease. Please help her get the treatment she needs NOW!
I am writing to you because I have a life-long friend (She is 58. I am 63 and we've known each other since we were kids) who has just been diagnosed with Systemic Scleroderma this dreaded autoimmune disease. Although she has just recently been diagnosed, She thinks she's probably had it 9-10 years. She lives in Ontario, Canada and it has taken that long for her to be finally diagnosed! That is because of socialized medicine in Canada. There are so few doctors there who know about this disease. I am writing to you because she cannot get treatment in the United States because her insurance won't cover it. She still has to wait a month from now to see a specialist in Canada. She has lost 68 pounds! They are talking about a feeding tube. I am begging you to please help her get treatment immediately before she dies of this dreadful disease 😢 Her name is Patty Dunn. Her address is 58 Chestnut Street, St. Thomas, Ontario CANADA N5R2A7. Her phone number is 519-200-1528. My name is Kristine Litten and my phone #810-335-9041. Please help her NOW. I'm afraid she is going to die. I am sending you a picture of Patty. She is very thin and very sick.
Hi I just had a question .. I have very bad circulation and have been dx with edema and secondary reynauds ..also have another auto immune disease .psoriosis ..I was researching and found that this usually has an underlying cause one being scleroderma ..im waiting to see a specialist a rheumatologist ..just curious to know more about this Chat Conversation End Type a message...
Wondering if the Falls will be illuminated this year?
Please donate and help us find a cure to this painful disease !