Scleroderma Canada

Scleroderma Canada Scleroderma Canada serves as an advocate nationally for those affected by the disease and works collaboratively with regional scleroderma organizations and the international scleroderma community to achieve common objectives.

Operating as usual

Last call! Have you submitted a scenic photo yet? Today is a great day to sign up for #SclerodermaWalks and snap that ph...
05/30/2021

Last call! Have you submitted a scenic photo yet? Today is a great day to sign up for #SclerodermaWalks and snap that photo. Reply below with your photo or email us at [email protected] for your chance to win a $50 Tim Hortons card! www.hardword.ca

Last call! Have you submitted a scenic photo yet? Today is a great day to sign up for #SclerodermaWalks and snap that photo. Reply below with your photo or email us at [email protected] for your chance to win a $50 Tim Hortons card! www.hardword.ca

05/28/2021

Is your family looking for fun ways to participate in this year's Scleroderma Walks? Springtime is yard maintenance time! Offer to mow your neighbours lawn or tend their gardens in exchange for a donation to support Scleroderma. #MakeAMoveForScleroderma and sign up at www.hardword.ca

"Hi my name is Tracey Magee and I was diagnosed with Diffuse Systemic Scleroderma in June of 2015. After hearing the wor...
05/27/2021

"Hi my name is Tracey Magee and I was diagnosed with Diffuse Systemic Scleroderma in June of 2015. After hearing the word Scleroderma at diagnosis, I remember thinking I had no idea what this was, what it meant for me, and how did one diagnosis apply to all the health issues I was experiencing. Of course I had so many questions for my doctor. Unfortunately there weren’t any answers. There wasn’t a scleroderma specific treatment and there was no cure. Even worse; there was no reliable information on a prognosis. Why? Because it is a rare and not a well known or studied disease.
Very soon after I became involved with our provincial support group where I met some kind and supportive patients who had been living with scleroderma for many years. While the disease progression and effects were different in each of them, one similarity stood out, all of them had to educate those around them, even their healthcare providers, on scleroderma. Their tireless and patient determination to advocate for themselves was inspiring. I am now the President of the Scleroderma Association of Saskatchewan as well as the support group leader. I also serve on the board of Scleroderma Canada. For me advocacy means being determined and patient in bringing awareness to scleroderma. I am committed to support others living with scleroderma and being a voice for them. I ask you to join in the support, find an organization near you and get involved in whatever way you are able. Let’s get some answers for the next person who receives this life threatening diagnosis."

"Hi my name is Tracey Magee and I was diagnosed with Diffuse Systemic Scleroderma in June of 2015. After hearing the word Scleroderma at diagnosis, I remember thinking I had no idea what this was, what it meant for me, and how did one diagnosis apply to all the health issues I was experiencing. Of course I had so many questions for my doctor. Unfortunately there weren’t any answers. There wasn’t a scleroderma specific treatment and there was no cure. Even worse; there was no reliable information on a prognosis. Why? Because it is a rare and not a well known or studied disease.
Very soon after I became involved with our provincial support group where I met some kind and supportive patients who had been living with scleroderma for many years. While the disease progression and effects were different in each of them, one similarity stood out, all of them had to educate those around them, even their healthcare providers, on scleroderma. Their tireless and patient determination to advocate for themselves was inspiring. I am now the President of the Scleroderma Association of Saskatchewan as well as the support group leader. I also serve on the board of Scleroderma Canada. For me advocacy means being determined and patient in bringing awareness to scleroderma. I am committed to support others living with scleroderma and being a voice for them. I ask you to join in the support, find an organization near you and get involved in whatever way you are able. Let’s get some answers for the next person who receives this life threatening diagnosis."

DID YOU KNOW: Scleroderma Advocates meet with Government Leaders every year to educate them on scleroderma. Last year's ...
05/26/2021

DID YOU KNOW: Scleroderma Advocates meet with Government Leaders every year to educate them on scleroderma. Last year's discussions included the impact of COVID-19 on our community.

You can support important scleroderma research by signing up for #SclerodermaWalks 2021: http://hardword.ca

DID YOU KNOW: Scleroderma Advocates meet with Government Leaders every year to educate them on scleroderma. Last year's discussions included the impact of COVID-19 on our community.

You can support important scleroderma research by signing up for #SclerodermaWalks 2021: http://hardword.ca

"Hi my name is Ryan Massi, and I was diagnosed with scleroderma in October 2019. I am in my late 30s, and I have a caree...
05/25/2021

"Hi my name is Ryan Massi, and I was diagnosed with scleroderma in October 2019. I am in my late 30s, and I have a career in utilities. To me, advocacy means not being passive in regards to your battle with scleroderma. By taking an active role, you are speaking up for yourself and communicating with those who can help you through treatment, education and support. It helps determine what is working for you and what does not. When we all advocate, our voices come together to better understand this disease."

"Hi my name is Ryan Massi, and I was diagnosed with scleroderma in October 2019. I am in my late 30s, and I have a career in utilities. To me, advocacy means not being passive in regards to your battle with scleroderma. By taking an active role, you are speaking up for yourself and communicating with those who can help you through treatment, education and support. It helps determine what is working for you and what does not. When we all advocate, our voices come together to better understand this disease."

Show us the scenic sights on your #SclerodermaWalks! A serene lake? Lush forest? Epic mountaintop view? (Or maybe just p...
05/24/2021

Show us the scenic sights on your #SclerodermaWalks! A serene lake? Lush forest? Epic mountaintop view? (Or maybe just park bench with a view?) Show us!

Reply with a photo in the comments or email [email protected] for a chance to win a $50 Tim Hortons giftcard! You must be Registered to win: www.hardword.ca

Show us the scenic sights on your #SclerodermaWalks! A serene lake? Lush forest? Epic mountaintop view? (Or maybe just park bench with a view?) Show us!

Reply with a photo in the comments or email [email protected] for a chance to win a $50 Tim Hortons giftcard! You must be Registered to win: www.hardword.ca

Have you taken your sclero support photo yet? Last call to tag or email us at vanessa@scleroderma.ca for your chance to ...
05/23/2021

Have you taken your sclero support photo yet? Last call to tag or email us at [email protected] for your chance to win a $50 Tim Hortons card!

Have you taken your sclero support photo yet? Last call to tag or email us at [email protected] for your chance to win a $50 Tim Hortons card!

Are you ready for our Photo Challenges? We want to see how YOU show your support for Scleroderma!Do you have a photo of ...
05/21/2021

Are you ready for our Photo Challenges? We want to see how YOU show your support for Scleroderma!

Do you have a photo of you at one of our past events, or standing alongside the person you are participating in honour of? Show us!

Reply in the comments and tag Scleroderma Canada or email us your photo at [email protected] for a chance to win a $50 Tim Hortons giftcard!

Are you ready for our Photo Challenges? We want to see how YOU show your support for Scleroderma!

Do you have a photo of you at one of our past events, or standing alongside the person you are participating in honour of? Show us!

Reply in the comments and tag Scleroderma Canada or email us your photo at [email protected] for a chance to win a $50 Tim Hortons giftcard!

"Hello my name is Silvia. I was diagnosed with Scleroderma 13 years ago. It's been a battle to say the least. However, I...
05/20/2021

"Hello my name is Silvia. I was diagnosed with Scleroderma 13 years ago. It's been a battle to say the least. However, I've learned to change my narrative about this disease. I've learned to live beyond my diagnosis and help others with Scleroderma do the same through my advocacy and passion to spread awareness, fight for myself and my fellow warriors. Over the years, I've met some amazing Scleroderma warriors and although we have this life altering disease, we all face our own unique challenges that go far beyond the Google definition of Scleroderma. I ask that you please take the time to learn about Scleroderma. Help show your support in any way you can. This may be a rare disease, but we, Scleroderma Warriors are far beyond rare or basic."

"Hello my name is Silvia. I was diagnosed with Scleroderma 13 years ago. It's been a battle to say the least. However, I've learned to change my narrative about this disease. I've learned to live beyond my diagnosis and help others with Scleroderma do the same through my advocacy and passion to spread awareness, fight for myself and my fellow warriors. Over the years, I've met some amazing Scleroderma warriors and although we have this life altering disease, we all face our own unique challenges that go far beyond the Google definition of Scleroderma. I ask that you please take the time to learn about Scleroderma. Help show your support in any way you can. This may be a rare disease, but we, Scleroderma Warriors are far beyond rare or basic."

05/19/2021
Sign Up Now For Scleroderma Walks 2021!

Registration is now OPEN for the 2021 Virtual Scleroderma Walks! There are so many fun ways to get involved this year, like the Balloon Challenge, so take that important first step and sign up at www.hardword.ca
#MakeAMoveForScleroderma

"Hi, my name is Alessia, and I was diagnosed with linear scleroderma in October 2019. I am currently getting my Bachelor...
05/18/2021

"Hi, my name is Alessia, and I was diagnosed with linear scleroderma in October 2019. I am currently getting my Bachelor of Medical Sciences at the University of Western Ontario. Despite being involved in the sciences, I was completely unaware of what scleroderma was prior to being diagnosed. This diagnosis process took over a year as this already rare disease is even less common in individuals my age. I believe that the length of this process was a result of the lack of knowledge about the disease, in general. I am an advocate for scleroderma because I want its name to be known, so suffering individuals have access to timely diagnoses and the proper medical care to result in the best possible prognosis."

"Hi, my name is Alessia, and I was diagnosed with linear scleroderma in October 2019. I am currently getting my Bachelor of Medical Sciences at the University of Western Ontario. Despite being involved in the sciences, I was completely unaware of what scleroderma was prior to being diagnosed. This diagnosis process took over a year as this already rare disease is even less common in individuals my age. I believe that the length of this process was a result of the lack of knowledge about the disease, in general. I am an advocate for scleroderma because I want its name to be known, so suffering individuals have access to timely diagnoses and the proper medical care to result in the best possible prognosis."

05/17/2021
Join Us For Scleroderma Walks 2021

The 2021 Scleroderma Walks are officially here! Scleroderma Canada is honoured to have Jason Alexander of Seinfeld fame help us launch this year's Walks. We hope his words inspire you to join us in raising awareness and research funds. Sign up at www.hardword.ca 👟👟👟

Get ready Canada! One day left until we kick off this year's Virtual Scleroderma Walks! Whether you live in Calgary, AB,...
05/16/2021

Get ready Canada! One day left until we kick off this year's Virtual Scleroderma Walks! Whether you live in Calgary, AB, Bobcaygeon, ON, or Charlottetown, P.E.I., you can sign up at www.hardword.ca

Get ready Canada! One day left until we kick off this year's Virtual Scleroderma Walks! Whether you live in Calgary, AB, Bobcaygeon, ON, or Charlottetown, P.E.I., you can sign up at www.hardword.ca

Only 2 days until we launch🚀 2021's Virtual Scleroderma Walks. Sign up at www.hardword.ca
05/15/2021

Only 2 days until we launch🚀 2021's Virtual Scleroderma Walks. Sign up at www.hardword.ca

Only 2 days until we launch🚀 2021's Virtual Scleroderma Walks. Sign up at www.hardword.ca

We're only 3 days away from the kickoff to this year's #SclerodermaWalks! Are you ready?
05/14/2021

We're only 3 days away from the kickoff to this year's #SclerodermaWalks! Are you ready?

We're only 3 days away from the kickoff to this year's #SclerodermaWalks! Are you ready?

We're kicking off this year's Virtual Scleroderma Walks with an exciting surprise! Are you ready? May 17th!
05/13/2021

We're kicking off this year's Virtual Scleroderma Walks with an exciting surprise! Are you ready? May 17th!

We're kicking off this year's Virtual Scleroderma Walks with an exciting surprise! Are you ready? May 17th!

Thank you to the devoted and hardworking nurses for your dedication and passion, for keeping our scleroderma community a...
05/12/2021

Thank you to the devoted and hardworking nurses for your dedication and passion, for keeping our scleroderma community and our families safe.
#NationalNursingWeek

Thank you to the devoted and hardworking nurses for your dedication and passion, for keeping our scleroderma community and our families safe.
#NationalNursingWeek

Today is #WorldLupusDay. Did you know? Lupus and scleroderma are overlapping autoimmune diseases. Approximately 20% of s...
05/10/2021

Today is #WorldLupusDay. Did you know? Lupus and scleroderma are overlapping autoimmune diseases. Approximately 20% of scleroderma patients also have Lupus.

Today is #WorldLupusDay. Did you know? Lupus and scleroderma are overlapping autoimmune diseases. Approximately 20% of scleroderma patients also have Lupus.

Moms are special. Happy Mothers Day to every incredible mom affected by scleroderma!
05/09/2021

Moms are special. Happy Mothers Day to every incredible mom affected by scleroderma!

Moms are special. Happy Mothers Day to every incredible mom affected by scleroderma!

🚨🚨🚨 We're kicking off this year's Virtual Scleroderma Walks with an exciting surprise! Are you ready? May 17th!
05/08/2021

🚨🚨🚨 We're kicking off this year's Virtual Scleroderma Walks with an exciting surprise! Are you ready? May 17th!

🚨🚨🚨 We're kicking off this year's Virtual Scleroderma Walks with an exciting surprise! Are you ready? May 17th!

May 17th... get ready!
05/06/2021

May 17th... get ready!

May 17th... get ready!

Rheumatology specialist Dr. May Kazem supports Scleroderma Canada's vaccine message.Scleroderma Canada wants to see all ...
04/29/2021

Rheumatology specialist Dr. May Kazem supports Scleroderma Canada's vaccine message.

Scleroderma Canada wants to see all eligible Canadians vaccinated. Let's do all we can to end the pandemic.
#scleroderma #StickItToCovid

Rheumatology specialist Dr. May Kazem supports Scleroderma Canada's vaccine message.

Scleroderma Canada wants to see all eligible Canadians vaccinated. Let's do all we can to end the pandemic.
#scleroderma #StickItToCovid

One week! To acknowledge #WorldPHDay2021 on May 5th, Pulmonary Hypertension Association of Canada has organized illumina...
04/28/2021

One week! To acknowledge #WorldPHDay2021 on May 5th, Pulmonary Hypertension Association of Canada has organized illuminations of landmarks across Canada - from the World's Largest Hockey Stick & Puck in Duncan, BC to the CN Tower, to Halifax City Hall in Nova Scotia. Learn more about efforts to raise awareness of pulmonary hypertension at https://phacanada.ca/Get-Involved/Awareness/World-PH-Day

One week! To acknowledge #WorldPHDay2021 on May 5th, Pulmonary Hypertension Association of Canada has organized illuminations of landmarks across Canada - from the World's Largest Hockey Stick & Puck in Duncan, BC to the CN Tower, to Halifax City Hall in Nova Scotia. Learn more about efforts to raise awareness of pulmonary hypertension at https://phacanada.ca/Get-Involved/Awareness/World-PH-Day

Scleroderma expert Dr. Janet Pope endorses Scleroderma Canada's vaccine message."Scleroderma Canada wants to see all eli...
04/26/2021

Scleroderma expert Dr. Janet Pope endorses Scleroderma Canada's vaccine message.

"Scleroderma Canada wants to see all eligible Canadians vaccinated. Let's do all we can to end the pandemic."

#scleroderma #StickItToCovid

Scleroderma expert Dr. Janet Pope endorses Scleroderma Canada's vaccine message.

"Scleroderma Canada wants to see all eligible Canadians vaccinated. Let's do all we can to end the pandemic."

#scleroderma #StickItToCovid

Canada! 🇨🇦 The Covid-19 Global Rheumatology Alliance is looking for more Canadians to answer the GRA Covid-19 vaccine su...
04/25/2021

Canada! 🇨🇦 The Covid-19 Global Rheumatology Alliance is looking for more Canadians to answer the GRA Covid-19 vaccine survey. Do you have scleroderma? Lupus? Sjögrens? Or another rheumatic disease? 18 years old+? Take the survey! https://rheum-covid.org/vaccine-survey/

Canada! 🇨🇦 The Covid-19 Global Rheumatology Alliance is looking for more Canadians to answer the GRA Covid-19 vaccine survey. Do you have scleroderma? Lupus? Sjögrens? Or another rheumatic disease? 18 years old+? Take the survey! https://rheum-covid.org/vaccine-survey/

Scleroderma Canada wants to see all eligible Canadians vaccinated. Let's do all we can to end the pandemic.#scleroderma ...
04/23/2021

Scleroderma Canada wants to see all eligible Canadians vaccinated. Let's do all we can to end the pandemic.
#scleroderma #StickItToCovid

Scleroderma Canada wants to see all eligible Canadians vaccinated. Let's do all we can to end the pandemic.
#scleroderma #StickItToCovid

Scleroderma Canada wants to see all eligible Canadians vaccinated. Let's do all we can to end the pandemic.#scleroderma ...
04/22/2021

Scleroderma Canada wants to see all eligible Canadians vaccinated. Let's do all we can to end the pandemic.
#scleroderma #StickItToCovid

Scleroderma Canada wants to see all eligible Canadians vaccinated. Let's do all we can to end the pandemic.
#scleroderma #StickItToCovid

Scleroderma Canada wants to see all eligible Canadians vaccinated. Let's do all we can to end the pandemic.#scleroderma ...
04/21/2021

Scleroderma Canada wants to see all eligible Canadians vaccinated. Let's do all we can to end the pandemic.

#scleroderma #StickItToCovid

Scleroderma Canada wants to see all eligible Canadians vaccinated. Let's do all we can to end the pandemic.

#scleroderma #StickItToCovid

Scleroderma Canada, in collaboration with author Danielle Rice, has published 'Supporting a Loved One with Scleroderma,'...
04/19/2021

Scleroderma Canada, in collaboration with author Danielle Rice, has published 'Supporting a Loved One with Scleroderma,' a caregivers handbook. If you are a caregiver to someone living with scleroderma, find guidance, advice and wisdom in these pages. https://www.hardword.ca/product-page/supporting-a-loved-one-with-scleroderma-a-handbook

Scleroderma Canada, in collaboration with author Danielle Rice, has published 'Supporting a Loved One with Scleroderma,' a caregivers handbook. If you are a caregiver to someone living with scleroderma, find guidance, advice and wisdom in these pages. https://www.hardword.ca/product-page/supporting-a-loved-one-with-scleroderma-a-handbook

Address

41 King William Street, Suite 203
Hamilton, ON
L8R 1A2

Opening Hours

Monday 09:00 - 17:00
Tuesday 09:00 - 17:00
Wednesday 09:00 - 17:00
Thursday 09:00 - 17:00
Friday 09:00 - 17:00

Telephone

1-866-279-0632

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Comments

My garden has done really well this year, so I've been able to pot up some perennial plants plants to sell to raise money for the scleroderma fundraiser.
This is me getting ready for the 2021 fundraiser. I have decided to garden instead of walking or running. My bleeding heart, cowslips etc. are up already :)
Our group is formed and we've started collecting pledges :) . My plan is to do a "gardening" fundraiser, ad it's already off to a great start.
Is anyone here living in Montreal?
Hi everyone I was wondering if anyone in this group have had experience with “Coup de sabre”, Parry-Romberg syndrome? My mother has it in the chin and she heard about a specialist who is a reconstructive surgeon and he mentioned about using hyaluronic acid for fixing the part of the chin where the morphed localized.
I found this powerful sign at a greenhouse. June is #scleroderma awareness month. Join me in my fundraising challenge to battle scleroderma, a rare incurable autoimmune disease. Thanks for your support. #scwalks2020 https://sclerodermaontario.akaraisin.com/walk2020/c0ee30d6b77c4f70a6da467cada1e18d
Did you know that both my wife Beth and I have serious autoimmune diseases? She has lupus and I have recently been diagnosed with scleroderma. I'm guessing there are very few couples who both are autoimmune. Now that I've got your attention, join in my fundraising challenge to battle scleroderma, a rare incurable autoimmune disease. Thanks for your support. #scwalks2020
Hi, I recently proved positive for scleroderma. On Monday I meet with my rheumatologist for the 1st time since the lab tests came back. I appreciate any advise anybody could give me for the appointment, as I don't know what to expect. Are there any specific questions I should ask? I appreciate your kind support.
Rheumatologist confirmed I had scleroderma today. So what do I do? I gave myself a haircut, with mixed results. Lol https://m.facebook.com/story.php?story_fbid=10223989946003387&id=1440127465
Pray for Kayla McCurdy age 31. She is in hospital, very sick. Scleroderma sucks.
This is my friend Patty Dunn who has Systemic Scleroderma. She is very sick and needs expedited treatment before she gets sicker and dies from the disease. Please help her get the treatment she needs NOW!