Canadian Pulmonary Fibrosis Foundation

Canadian Pulmonary Fibrosis Foundation CPFF is a registered charity (850554858 RR0001) that offers hope and support to those affected by PF.
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We are pleased to report that a follow-up Independent Exercise Assessment (IEA) for oxygen is no longer required after n...
05/21/2024

We are pleased to report that a follow-up Independent Exercise Assessment (IEA) for oxygen is no longer required after nine months in Ontario. In addition, the IEA is now based on time and not distance, (unlike the six-minute walk test).

This should enable more patients to qualify for exertional oxygen therapy, improving each patient’s ability to participate in daily activities for longer periods of time. The change was made to the Policy and Administration Manual of the Assistive Devices Program and came into effect on April 1, 2024. Read more about the IEA guidelines.

https://ow.ly/BfxH50RPPG0

05/19/2024

Try the yourself to see how eye-opening it is. Let's unite like Montréal, Québec to support people living with !
https://ow.ly/tjtG50RC33j

Mark your calendar! It won’t be long before your summer calendar starts to fill up with family events and community acti...
05/17/2024

Mark your calendar! It won’t be long before your summer calendar starts to fill up with family events and community activities.

Save the date for one of the CPFF’s community walks in support of Pulmonary Fibrosis Awareness Campaign in August & September.
· August 17, Avonmore Berry Farm – Run the Farm for PF, Avonmore, ON
· August 24, Winnipeg, MB - *New this year!
· September 14, Clarke Walk for PF, Calgary, AB
· September 14, Saskatoon, SK – *New this year
· September 21, Robert Davidson Walk for PF, Markham, ON
· September 28, Khan Family Walk for PF, Montreal, QC

David Langlais, professeur agrégé à l’Université McGill, fournit un aperçu de ses recherches sur les causes sous-jacente...
05/16/2024

David Langlais, professeur agrégé à l’Université McGill, fournit un aperçu de ses recherches sur les causes sous-jacentes de la fibrose pulmonaire. https://ow.ly/GIVN50RJ1e8

05/16/2024

Thank you to Calgary, Alberta for taking the for ! Pucker up in your community to help spread awareness about pulmonary fibrosis.
https://ow.ly/TxpT50RC4Uy

Dear Caregivers! CPFF is committed to supporting you as a caregiver and shining the spotlight on your needs and the need...
05/14/2024

Dear Caregivers! CPFF is committed to supporting you as a caregiver and shining the spotlight on your needs and the needs of PF patients. Your experience supporting someone with pulmonary fibrosis is important to us.

Please fill out our survey to to help us make a difference for those affected by PF: https://ow.ly/q74Q50RvKOk

Do you have pulmonary fibrosis and scleroderma? We want to know how it impacts your daily life. Share your experiences w...
05/14/2024

Do you have pulmonary fibrosis and scleroderma? We want to know how it impacts your daily life. Share your experiences with diagnosis, treatments, and support so we can help you get the care you need.

Please take the survey and help us make a difference: https://ow.ly/q74Q50RvKOk



cc: Scleroderma Canada Scleroderma Atlantic Scleroderma Association of B.C.

Do you have pulmonary fibrosis and rheumatoid arthritis? We want to know how it impacts your daily life. Share your expe...
05/14/2024

Do you have pulmonary fibrosis and rheumatoid arthritis? We want to know how it impacts your daily life. Share your experiences with diagnosis, treatments, and support so we can help you get the care you need.

Please take the survey and help us make a difference: https://ow.ly/q74Q50RvKOk



cc: Arthritis Society Canada Arthritis Research Canada

05/14/2024

Let's champion easier access to oxygen!

05/10/2024

Boehringer Ingelheim Global puckered up for ! Take the and help spread awareness:
1. Grab a drinking straw
2. Pucker up
3. Breathe

Challenge a friend, tag CPFF and share on social media with hashtags and
Learn more about the CPFF Pucker Up Challenge: https://ow.ly/sf1Q50R68Ar

Thank you to our Executive Director Sharon Lee and Ontario MPP Logan Kanpathy, along with other MPPs and their staff, fo...
05/09/2024

Thank you to our Executive Director Sharon Lee and Ontario MPP Logan Kanpathy, along with other MPPs and their staff, for gathering at Queen’s Park last month to advocate for better oxygen therapy access.

Read more here: https://ow.ly/3JQe50RAZqu

In 2020, many patients contacted the Canadian Pulmonary Fibrosis Foundation seeking guidance on how to maintain their pu...
05/06/2024

In 2020, many patients contacted the Canadian Pulmonary Fibrosis Foundation seeking guidance on how to maintain their pulmonary rehabilitation routines during the COVID lockdown. Through various connections, CPFF Executive Director Sharon Lee had the serendipitous opportunity to meet Jenna Jangalee and Tina Hsu from Poplar Pulmonary Wellness virtually to discuss their plan to host virtual pulmonary rehab sessions to support patients in preserving their physical health. It was an unexpected delight when, by pure coincidence, finally meeting Jenna and Tina in person at the 2024 CSRT - Canadian Society of Respiratory Therapists conference (left to right: Jenna, Sharon & Tina). Witnessing them present on the effectiveness of virtual pulmonary rehab compared to in-person sessions was truly inspiring. They emphasized the advantages, such as saving on travel time, reducing environmental impact, and consistently nurturing one's health.

05/06/2024

Tune in as CPFF Support Group Facilitator John Chan shares what happens during patient and caregiver support groups and how you can benefit from connecting with others who are also on a journey.

Join us at our next CPFF Support Group https://ow.ly/t7fI50R68l2

Dear Caregivers! CPFF is committed to supporting you as a caregiver and shining the spotlight on your needs and the need...
05/03/2024

Dear Caregivers! CPFF is committed to supporting you as a caregiver and shining the spotlight on your needs and the needs of PF patients. Your experience supporting someone with pulmonary fibrosis is important to us.

Please fill out our survey to to help us make a difference for those affected by PF: https://ow.ly/q74Q50RvKOk

How does pulmonary fibroris impact your daily life? We want to know about your experiences with diagnosis, treatments, a...
05/03/2024

How does pulmonary fibroris impact your daily life? We want to know about your experiences with diagnosis, treatments, and support so we can help you get the care you need.

Please take the survey and help us make a difference: https://ow.ly/WAN550RvKnm

05/02/2024

Thank you Boehringer Ingelheim Canada for puckering up for ! Take the and see what it feels like to work hard for each breath:
1. Grab a drinking straw
2. Pucker up
3. Breathe

Challenge a friend, tag CPFF and share on social media with hashtags and
Learn more about the CPFF Pucker Up Challenge: https://cpff.ca/get-involved/events/pucker-up-challenge/

CPFF’s May newsletter issue is live! Spring into fresh insights from PF healthcare pros, and get new videos, GR updates,...
05/01/2024

CPFF’s May newsletter issue is live! Spring into fresh insights from PF healthcare pros, and get new videos, GR updates, and French resources.
May 2024 Newsletter - https://mailchi.mp/cpff/newsletter-may-2024

Each province and territory have different funding programs for home oxygen therapy and unless you live in Ontario, home...
04/29/2024

Each province and territory have different funding programs for home oxygen therapy and unless you live in Ontario, home delivery of liquid oxygen is likely not covered by your provincial health plan. In some places like Atlantic Canada, it is not available for home delivery at all, even if you pay for it yourself.

Read about liquid oxygen benefits, access challenges, and patient experiences: https://ow.ly/Lvj750RqYSK

Tell us about how PF impacts your daily life, your experience with oxygen access, medication and support. Your shared ex...
04/26/2024

Tell us about how PF impacts your daily life, your experience with oxygen access, medication and support. Your shared experience makes a world of difference.

Take the survey here: https://ow.ly/rfIH50Rp5e1

Dear Valued Supporter, your voice matters! In each of our 2020 and 2022 surveys, we heard from more than 640 Canadians living with pulmonary fibrosis (PF) and their caregivers and it made a world of difference. The experiences shared shaped our support, advocacy, education, and fundraising over th...

Caregivers, your input makes a difference! Please fill out our survey to share your experience as a PF caregiver. https:...
04/26/2024

Caregivers, your input makes a difference! Please fill out our survey to share your experience as a PF caregiver. https://ow.ly/HqT450Rp4MY

Dear Valued Supporter, your voice matters! In each of our 2020 and 2022 surveys, we heard from more than 640 Canadians living with pulmonary fibrosis (PF) and their caregivers and it made a world of difference. The experiences shared shaped our support, advocacy, education, and fundraising over th...

04/24/2024

APIFIA Brazil took the CPFF .

Can you imagine struggling to breathe? For those living with , this is their everyday reality. Take the to see for yourself. It only takes a few minutes!

Grab a drinking straw, block your nose and breathe slowly through the straw. Share videos and photos of you doing the challenge, use the hashtag and nominate someone to give it a try.

Thank you to Sandi for sharing her pulmonary fibrosis (PF) caregiver story. Listen as she tells her heartfelt story of f...
04/20/2024

Thank you to Sandi for sharing her pulmonary fibrosis (PF) caregiver story. Listen as she tells her heartfelt story of fear, courage, acceptance, and hope as she supports her dad in his new normal. https://bit.ly/sandi-bjorgum

04/20/2024

Markham Ontario Councillor Amanda Yeung Collucci showed her support for Ontarians living with pulmonary fibrosis (PF) by joining the Robert Davidson Walk for PF and taking the CPFF .

"This is what it feels like when you can't get enough oxygen."

Pucker Up for PF. Take of video of you breathing through a drinking straw while holding you nose. Spread the word and nominate a friend to take the challenge too.

Votre opinion compte! Nous vous invitons à partager vos expériences uniques pour nous aider à continuer à défendre le dr...
04/19/2024

Votre opinion compte! Nous vous invitons à partager vos expériences uniques pour nous aider à continuer à défendre le droit à un meilleur soutien, à de meilleurs traitements et à un meilleur accès aux soins. RÉPONDRE AU SONDAGE https://ow.ly/m8Oi50Rkguy

Your voice matters! Take the 2024 PF survey and help us champion better pulmonary fibrosis care with your input. -
04/19/2024

Your voice matters! Take the 2024 PF survey and help us champion better pulmonary fibrosis care with your input. -

Dear Valued Supporter, your voice matters! In each of our 2020 and 2022 surveys, we heard from more than 640 Canadians living with pulmonary fibrosis (PF) and their caregivers and it made a world of difference. The experiences shared shaped our support, advocacy, education, and fundraising over th...

Help us spread the word about pulmonary fibrosis with your healthcare providers.  Share the new CPFF Pulmonary Fibrosis ...
04/19/2024

Help us spread the word about pulmonary fibrosis with your healthcare providers. Share the new CPFF Pulmonary Fibrosis Resource Library for Healthcare Professionals.
This library supports healthcare professionals in understanding interstitial lung disease, causes, treatments, patient experiences, fellowship and grant opportunities, and more

https://ow.ly/h5EU50RjO19

04/16/2024

Jamp Pharma took the CPFF to experience what it's like to have chronic shortness of breath.

For people with a lung disease like pulmonary fibrosis (PF), breathing is HARD WORK.

Show support for people living with PF by gathering your colleagues, friends, or family and taking the .

Grab a drinking straw, block your nose with one hand, then breathe slowly and deeply though the straw. Don't forget to share photos and videos on social media!

Address

3250 Bloor Street West, East Tower, Suite 600
Toronto, ON
M8X2X9

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+19052947645

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Would you consider becoming a CPFF monthly donor for $35?


  • 4 monthly donors at $35 per month will support a patient/care giver support for a year (room rental, coffee/tea, and CPFF patient guides).

  • 50 monthly donors at $35 per month will support advocacy, to push for earlier diagnoses in order to receive treatment to slow down the progression of Pulmonary Fibrosis.

  • 214 monthly donors at $35 per month will support the training an Interstitial Lung Disease (ILD) Respirologist Fellow for a year.

  • https://cpff.ca/donations/cpff-donation-form/