PSC Partners Seeking a Cure Canada

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PSC Partners Seeking a Cure Canada

Toward a world with no PSC. Providing support & education to PSC patients & families. Raising funds for research. Patient registry. Grant program.

Support and community is available to those affected by PSC at the PSC Partners Open and Closed Groups. Find out more at: bit.ly/OpenSupportGroup and bit.ly/ClosedSupportGroup.

10/28/2026

The power of community: no one should face PSC alone.
Hear from Sarah from PSC Partners Seeking a Cure Canada, who highlights the importance of finding connection, understanding and support within the PSC community — especially for younger patients navigating life with a rare chronic disease.

💬 Her message reminds us that connecting with others who share similar experiences can make a real difference. A strong community provides not only information and support, but also a sense of belonging, encouragement and hope for the future.

🌍 Different countries, shared experiences, one global voice for PSC awareness.
European Liver Patients' Association

10/28/2026

Living with PSC is about more than a diagnosis — it's about being seen, heard and understood as a whole person.

Hear from Mark from PSC Support , who highlights the importance of recognising the symptom burden of PSC and understanding how the disease affects each individual's daily life, wellbeing and quality of life.

💬 His message reminds us that patient-centred care means looking beyond clinical results, listening to lived experiences and recognising the full impact of the disease on the person behind the diagnosis.

🌍 Different countries, shared experiences, one global voice for PSC awareness.

European Liver Patients' Association

10/27/2026

When transplantation is not an option, every conversation and every choice matters.

Hear from Tess from , who raises important questions about access to clinical trials, the need for effective medical treatments, and the importance of honest, transparent conversations about all aspects of care, including palliative care.

💬 Her message reminds us that patients deserve to be informed, heard and actively involved in decisions about their health and future — even when the conversations are difficult.

🌍 Different countries, shared experiences, one global voice for PSC awareness.

10/27/2026

Living with PSC means finding balance between managing a chronic illness and embracing everyday family life.

🇺🇸 Hear from Devin from in the USA, who shares his experience of living with PSC while raising three children and navigating the responsibilities and joys of family life.

💬 His story reminds us of the importance of compassion, patience and giving ourselves and those around us grace when facing the challenges of chronic illness.

🌍 Different countries, shared experiences, one global voice for PSC awareness.

European Liver Patients' Association

10/26/2026

A liver transplant can change lives, but the journey with PSC doesn't end there.

Hear from Morten from in Denmark, who shares how living with both Primary Sclerosing Cholangitis (PSC) and ulcerative colitis can continue to affect everyday life, even after transplantation.

💬 His experience reminds us that life after transplantation may bring new challenges, and that ongoing care, understanding and support remain essential.

🌍 Different countries, shared experiences, one global voice for PSC awareness.

10/25/2026

Living with PSC as a young person comes with challenges that are not always visible.

Hear from Chayenne, a young patient advocate from , who shares the challenges of living with a chronic illness at a young age — when feeling well can make it difficult to accept the diagnosis or understand the importance of continuing treatment.

💬 Feeling healthy doesn't always mean the disease is inactive. Her message reminds us how important understanding, support and open conversations are in helping young people navigate life with PSC.

🌍 Different countries, shared experiences, one global voice for PSC awareness.

10/25/2026

Life before and after transplantation: a journey of challenges, resilience and hope.

From Italy, Francesca from Italy joins the global voices of , sharing her experience as a parent accompanying her son through not one, but two transplant journeys — from preparation to life after transplantation, with a perspective shaped by love, care and unwavering support.

Her story reminds us that transplantation touches not only patients but also the families who stand beside them every step of the way.

🌍 Different countries, shared experiences, one global voice for PSC awareness.

10/24/2026

Different countries. Different journeys. One global voice for PSC.🌍

What does it really mean to live with Primary Sclerosing Cholangitis (PSC)?

Behind every diagnosis is a person navigating uncertainty, making difficult decisions, adapting to everyday challenges and hoping for a better future.

🌍 This , we are putting patients and their lived experiences at the heart of the conversation.

🎥 Over the coming days, hear directly from patients, families and caregivers around the world as they share their personal journeys — from diagnosis and daily life to transplantation, emotional wellbeing, treatment challenges and hopes for the future.

💬 Because patients are more than their diagnosis. Their experiences matter, their needs deserve to be understood, and their voices must be heard.

Join us as we bring these voices together, raise awareness and remind the world that no one should face PSC alone.

09/24/2026

Make your voice heard: regulatory decision-makers are listening to people living with PSC and their caregivers.

A new, confidential survey developed by PSC Support, in partnership with PSC Partners, PSC Partners Seeking a Cure Canada , and PSC Support Australia captures how PSC impacts you and how new treatments could make a difference. The results will be presented to regulatory agencies to help inform decision making when reviewing new potential treatments for PSC.

➡️ See link in bio to take the survey

Respond by October 5 to ensure your voice is included.

PSC Support PSC Partners Seeking a Cure PSC Support Australia

09/24/2026

Make your voice heard: regulatory decision-makers are listening to people living with PSC and their caregivers.

A new, confidential survey developed by PSC Support, in partnership with PSC Partners Seeking a Cure, PSC Partners Seeking a Cure Canada , and PSC Support Australia captures how PSC impacts you and how new treatments could make a difference. The results will be presented to regulatory agencies to help inform decision making when reviewing new potential treatments for PSC.

➡️Take the survey here: bit.ly/2026-PSCsurvey

Respond by October 5 to ensure your voice is included.

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192 Spadina Avenue
Toronto, ON
M5T2C2

Website

http://www.pscpartners.ca/

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