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GFCNI Connecting the world for newborn health! We represent the patient and parent voice in the global arena, transcending country borders and continents.

Connecting the world for newborn health, we at the Global Foundation for the Care of Newborn Infants (GFCNI) envision a future where every baby born receives the right care, at the right time, in the right place! The Global Foundation for the Care of Newborn Infants (GFCNI) works to improve newborn health by advocating for high-quality, accessible, and equitable care, long-term follow-up, and continuing care for both mother and infant in each region of the world. Our particular focus is on infants born too soon, too small, or too sick – those who need special medical care and hospitalization after birth. GFCNI is the first global organization and network to unite patients, families, healthcare professionals, medical staff, and scientists from different disciplines, fields, and countries – all with the joint goal of advancing the health and quality of care for newborns and their families across the globe. We envision a future where every baby born receives the right care, at the right time, in the right place!

💜 Parents should not have to manage complex follow-up care alone.After leaving the NICU, families may suddenly find them...
22/10/2026

💜 Parents should not have to manage complex follow-up care alone.

After leaving the NICU, families may suddenly find themselves keeping track of appointments, specialists, referrals, feeding, growth, medications, and so many new questions - all while adjusting to life at home with their baby. 🏠

For our latest – Beyond the NICU story, we spoke with Corina Croitoru from Asociatia ARNIS in Romania about why families need a clear, connected support system after discharge.

Follow-up care can help families find their way through different services and make sure babies receive the right support at the right time.

But there is another important part of the journey too: connection. 💕 Holding your baby close, practicing skin-to-skin care, responding to their cues, and simply spending time together can help families rebuild confidence and closeness after the NICU.

✨ The World Prematurity Day 2026 slogan, “Small babies, big potential. Invest in follow-up care to protect their future!” is a call to strengthen systems that support both babies and families beyond discharge.

🔗 Read the full article on our website to learn more: https://www.gfcni.org/campaigns/world-prematurity-day-stories

📣 And join this year’s World Prematurity Day campaign by sharing the message and helping us raise awareness for better follow-up care beyond the NICU.

20/10/2026

💜 𝐒𝐨𝐦𝐞𝐭𝐢𝐦𝐞𝐬, 𝐜𝐡𝐚𝐧𝐠𝐢𝐧𝐠 𝐨𝐧𝐞 𝐥𝐢𝐟𝐞 𝐢𝐬 𝐞𝐧𝐨𝐮𝐠𝐡 𝐭𝐨 𝐜𝐡𝐚𝐧𝐠𝐞 𝐭𝐡𝐞 𝐟𝐮𝐭𝐮𝐫𝐞.

At 𝐏𝐫𝐞𝐞𝐦𝐢𝐞 𝐂𝐨𝐧𝐧𝐞𝐜𝐭 𝐒𝐨𝐮𝐭𝐡 𝐀𝐟𝐫𝐢𝐜𝐚, success isn’t measured by the size of a budget or the number of people reached. In this video, 𝐓𝐚𝐬𝐦𝐢𝐧 𝐁𝐨𝐭𝐚 discusses why every family that receives emotional support, trusted information, and compassionate guidance is a success worth celebrating.

When parents feel informed and supported, they are better equipped to make the decisions that are right for their family – giving their babies the best possible chance to thrive.

🎥 This video is part of 𝐅𝐚𝐜𝐞𝐬 𝐨𝐟 𝐆𝐅𝐂𝐍𝐈, celebrating the people and organizations making a difference for preterm and sick newborns around the world.

Thank you, Preemie Connect, for reminding us that every family matters. 💜

💬 𝐖𝐨𝐫𝐝 𝐨𝐟 𝐭𝐡𝐞 𝐖𝐞𝐞𝐤: 𝐏𝐞𝐫𝐢𝐧𝐚𝐭𝐚𝐥 𝐏𝐚𝐥𝐥𝐢𝐚𝐭𝐢𝐯𝐞 𝐂𝐚𝐫𝐞Sometimes, during pregnancy or after birth, families receive the difficult ...
19/10/2026

💬 𝐖𝐨𝐫𝐝 𝐨𝐟 𝐭𝐡𝐞 𝐖𝐞𝐞𝐤: 𝐏𝐞𝐫𝐢𝐧𝐚𝐭𝐚𝐥 𝐏𝐚𝐥𝐥𝐢𝐚𝐭𝐢𝐯𝐞 𝐂𝐚𝐫𝐞

Sometimes, during pregnancy or after birth, families receive the difficult news that their baby has a serious condition that may limit their life. Perinatal palliative care can provide comfort, support, and guidance for babies and their families. 🤍

💡 Good to know:
Perinatal palliative care can begin during pregnancy and continue through birth and the newborn period. It focuses on quality of life, keeping the baby comfortable, relieving suffering, and supporting families in making decisions that reflect their wishes and values.

Receiving palliative care does not necessarily mean that your baby is dying or that life-prolonging treatment will stop. Depending on your baby’s condition and your goals, palliative care can be provided alongside treatments intended to prolong life.

🤲 What can palliative care include?
Care is tailored to each baby and family. It may include prenatal consultations, birth and newborn care planning, and pain and symptom management.

After birth, you may receive support in holding or feeding your baby and in taking part in their care whenever possible. If you wish, creating memories can also be meaningful. For example, you can take photos, make handprints or footprints, dress your baby in the clothes you’ve chosen, or keep their ultrasound images.

🤍 What support is available?
Palliative care teams can offer emotional, spiritual, and practical support before, during, and after birth. Support can also continue after the loss of a baby and include bereavement support for you and your family.

Depending on where you live, local services or children’s hospices may offer additional support. Your healthcare team can tell you which options are available.

At the heart of perinatal palliative care is compassionate, individualized care for each baby and family. ✨

Learn more on Neopedia, our global information platform for families of babies born preterm or sick: https://www.neopedia.org/nicu-experience/loss-bereavement/palliative-care

Only one month to go until World Prematurity Day 2026! What are your plans in honor of this special day? Tell us in the ...
15/10/2026

Only one month to go until World Prematurity Day 2026! What are your plans in honor of this special day? Tell us in the comments and inspire others! 🫶✨ And if you’re still looking for inspiration, take a look at what others are planning. 🤗

Over the years, we’ve seen so many inspiring WPD activities around the world, big and small. It’s been wonderful to see this day grow into a globally recognized movement!

From purple cupcakes and sock lines to webinars, personal stories, community events, and landmarks lit up in purple, there are countless ways to raise awareness and show support. 💜

This year, we’re especially excited to see how our theme, “Small babies, big potential. Invest in follow-up care to protect their future!”, will come to life around the world.

💬 How will you celebrate World Prematurity Day? Share your plans and ideas in the comments. Whether big or small, every contribution matters! 🤗

📅 November 15 – 1 month to go!
💜 Mark the new date and join us again this year!

13/10/2026

The countdown to the Turkish Neopedia platform is now on!

We are delighted to announce that in two weeks we will be launching the platform together with Premature Bebek, providing Turkish-speaking families with access to essential information on everything from high-risk pregnancies and NICU stays to taking your baby home and follow-up care.

One of Neopedia’s special features is the parent-to-parent advice. It adds warmth and a personal touch to the factual explanations, and we hope that it will let families know that they are not alone. Preterm birth affects families everywhere in the world, and there is a global community of parents and preemies who all share this experience in one way or another.

Thank you İlknur Okay, president of the Turkish organization El Bebek Gül Bebek, for your kind advice on how to be there for your baby in the NICU, and for the amazing collaboration on Turkish Neopedia.

📅 Launch date: October 27, 2026
✍️ Sign up now to be notified: www.neopedia.org/tr

❓ 𝐂𝐚𝐧 𝐍𝐈𝐂𝐔 𝐩𝐚𝐫𝐞𝐧𝐭𝐬 𝐞𝐱𝐩𝐞𝐫𝐢𝐞𝐧𝐜𝐞 𝐏𝐓𝐒𝐃?Having a baby in the NICU can be overwhelming. An unexpected or difficult birth, fear...
12/10/2026

❓ 𝐂𝐚𝐧 𝐍𝐈𝐂𝐔 𝐩𝐚𝐫𝐞𝐧𝐭𝐬 𝐞𝐱𝐩𝐞𝐫𝐢𝐞𝐧𝐜𝐞 𝐏𝐓𝐒𝐃?

Having a baby in the NICU can be overwhelming. An unexpected or difficult birth, fear for your baby’s health, separation, medical procedures, alarms, and uncertainty can all leave a lasting emotional impact. 💜

For some parents, these experiences may be followed by post-traumatic stress disorder (PTSD). Research suggests that approximately 1 in 4 NICU parents experience symptoms of post-traumatic stress in the months following their baby’s birth.

Both mothers and fathers can be affected.

🧠 What can PTSD look like?
Symptoms can vary from person to person, but may include:
• Unwanted or distressing memories of the birth or NICU stay
• Nightmares or feeling as if you are reliving parts of the experience
• Avoiding places, conversations, or reminders connected to the NICU
• Feeling constantly on alert or easily startled
• Difficulty sleeping or concentrating
• Feelings of fear, guilt, numbness, or disconnection

💡 Good to know:
Having some of these reactions after a stressful event does not necessarily mean that you have PTSD. A diagnosis depends on the type, duration, and impact of symptoms, and should only be made by a qualified healthcare or mental health professional.

🤝 Support can help.
If memories or feelings related to your baby’s NICU stay are intense, persistent, or interfere with everyday life, consider talking to a healthcare or mental health professional. Counseling, trauma-informed care, peer support, and support from family and friends can all be valuable resources.

✨ World Mental Health Day reminds us that NICU parents’ mental health matters, too. Caring for parents is an important part of caring for babies. 💗

💜 You are heard. Your experiences matter.For parents who have or had a baby in the NICU, this experience can bring many ...
10/10/2026

💜 You are heard. Your experiences matter.

For parents who have or had a baby in the NICU, this experience can bring many emotional challenges, from fear and uncertainty to stress and anxiety. These feelings don't always end when families leave the hospital.

On , under this year's theme “Lived Experiences Heard: Real Voices, Real Change,” we want to remind all parents that their feelings are valid, their voices matter, and they deserve all the support they need.

Families can find real stories from other parents, reliable information about mental health challenges, and guidance on where and how to seek support on Neopedia (in various languages): https://www.neopedia.org/parent-support

09/10/2026

💜 𝐄𝐯𝐞𝐫𝐲 𝐟𝐚𝐦𝐢𝐥𝐲 𝐝𝐞𝐬𝐞𝐫𝐯𝐞𝐬 𝐚𝐜𝐜𝐞𝐬𝐬 𝐭𝐨 𝐪𝐮𝐚𝐥𝐢𝐭𝐲 𝐧𝐞𝐰𝐛𝐨𝐫𝐧 𝐜𝐚𝐫𝐞. South Africa has made important advances in maternal and newborn health. Yet for many families, where they live can still determine the care they receive.

In this video, 𝐓𝐚𝐬𝐦𝐢𝐧 𝐁𝐨𝐭𝐚 from Preemie Connect shares why equal access to high-quality care and emotional support for parents are still some of the biggest challenges facing families today.
When parents receive the information, resources, and support they need, babies don’t just survive – they have the opportunity to thrive.

🎥 This video is part of 𝐅𝐚𝐜𝐞𝐬 𝐨𝐟 𝐆𝐅𝐂𝐍𝐈, highlighting voices from our global network working to improve outcomes for preterm and sick newborns everywhere.

Thank you, 𝐏𝐫𝐞𝐞𝐦𝐢𝐞 𝐂𝐨𝐧𝐧𝐞𝐜𝐭, for advocating for babies and families across South Africa. 💜

📣 New on Neopedia!Today is - a day to raise awareness about protecting vision and eye health. To mark this important d...
08/10/2026

📣 New on Neopedia!
Today is - a day to raise awareness about protecting vision and eye health. To mark this important day, we are excited to share new content about Retinopathy of Prematurity (ROP) and ROP prevention on our global information platform .

ROP is an eye condition that can affect babies born too early. Regular eye checks, early detection, and timely care can make an important difference in protecting a baby’s vision.

The new Neopedia page explains ROP in clear, parent-friendly language and offers helpful information for families of preterm or sick babies, as well as healthcare professionals supporting them.

🔗 Read the new page and help us raise awareness for healthy vision from the very beginning: www.neopedia.org/pregnancy-birth/complications/eye

🌍️ Available in English, French, German, Italian, Spanish, and Portuguese, with more languages to come: Turkish in 2026 and Greek in 2027!

Created with parent organization and reviewed by experts worldwide, Neopedia is bridging the information gap on neonatal care and prematurity.

The Neopedia platform is unconditionally supported by Chiesi. The ROP prevention content was developed with support from Neobiomics.

💜 Going home from the is often filled with hope and relief, but it can also bring a whole new set of worries.After day...
07/10/2026

💜 Going home from the is often filled with hope and relief, but it can also bring a whole new set of worries.

After days, weeks, or even months surrounded by healthcare professionals, many parents suddenly find themselves at home asking:
Is my baby feeding enough?
Is their breathing normal?
Is their growth on track?
When should I ask for help?

For our latest – Beyond the NICU story, we spoke with Désirée Kost from Frühchen Schweiz about why follow-up care is about so much more than medical checkups. 🏠

It is also about reassurance, practical guidance, knowing who to call, and helping families feel supported as they find their new rhythm at home.
Désirée’s message to parents is simple: Every family’s journey after the NICU is different, but no parent should have to face it alone. 💜

✨ Small babies have big potential and meaningful follow-up care can help protect their future.

🔗 Read the full story on our website: https://www.gfcni.org/campaigns/world-prematurity-day-stories

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