24/09/2026
Some diseases are rare, but every story behind them matters. On aHUS awareness day, AstraZeneca Egypt is shining a light on the
efforts made to bring care to those impacted, and their inspiring journey of resilience and hope, because no patient is too rare to be
seen. With every new diagnosis, a story of uncertainty begins, but by raising awareness, AstraZeneca hopes to make aHUS patients
seen and understood, while advocating for a future where rare diseases are no longer navigated in the dark.
Watch Sedra’s story and find out more through ﺣﻛﺎﯾﺎت ﻧﺎدرة campaign
(aHUS)ﻓﻲ اﻟﯾوم اﻟﻌﺎﻟﻣﻲ ﻟﻠﺗوﻋﯾﺔ ﺑﻣرض ﻣﺗﻼزﻣﺔ اﻧﺣﻼل اﻟدم اﻟﯾورﯾﻣﯾﺔ اﻟﻼﻧﻣطﯾﺔ ﺗﺳﻠ ّط أﺳﺗرازﯾﻧﯾﻛﺎ ﻣﺻر اﻟﺿوء ﻋﻠﻰ اﻟﺟﮭود اﻟﻣﺑذوﻟﺔ ﻟﺗوﻓﯾر اﻟرﻋﺎﯾﺔ ﻟﻠﻣﺻﺎﺑﯾن ﺑﮭذا اﻟﻣرض، وﻋﻠﻰ رﺣﻠﺗﮭم اﻟﻣﻠﮭﻣﺔ اﻟﺗﻲ ﺗﻌﻛس اﻟﺻﻣود واﻷﻣل، ﻷن ﻧدرة اﻟﻣرض ﻻ ﺗﻌﻧﻲ أﺑدًا أن
،.اﻟﻣرﯾض ﻻ ﯾﺳﺗﺣﻖ أن ﯾُرى وﯾُﺳﻣ
ﻊ
aHUS ﻣﻊ ﻛل ﺗﺷﺧﯾص ﺟدﯾد، ﺗﺑدأ رﺣﻠﺔ ﻣﻠﯾﺋﺔ ﺑﺎﻟﺗﺳﺎؤﻻت وﻋدم اﻟﯾﻘﯾن. وﻣن ﺧﻼل رﻓﻊ اﻟوﻋﻲ، ﺗﺄﻣل أﺳﺗرازﯾﻧﯾﻛﺎ ﻓﻲ أن ﯾﺻﺑﺢ ﻣرﺿﻰ .أﻛﺛر وﺿوﺣًﺎ وﻓﮭﻣً ﺎ ﻟدى اﻟﻣﺟﺗﻣﻊ، ﻣﻊ اﻟﻌﻣل ﻣن أﺟل ﻣﺳﺗﻘﺑل ﻻ ﺗﺿطر ﻓﯾﮫ اﻷﻣراض اﻟﻧﺎدرة إﻟﻰ أن ﺗُواﺟﮫ ﻓﻲ اﻟظﻼم
»ﺷﺎھدوا ﻗﺻﺔ ﺳدرة وﺗﻌرّ ﻓوا ﻋﻠﻰ اﻟﻣزﯾد ﻣن ﺧﻼل ﺣﻣﻠﺔ