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brainstrust is a UK national brain tumour support charity.

We provide personalised support and build communities so people are less alone, less afraid and more in control

20/10/2026

“If you’ve joined one of our online meetups, what did you get out of it?”

We asked our Facebook community this question, and their answers had a lot in common.

Feeling less alone. Meeting people who understand. Sharing experiences. Learning from others. Having a space where you don’t have to explain everything from the beginning.

Our online meetups are there to help people affected by a brain tumour connect with others who get it.

Swipe through to hear what members of our community had to say. ➡️

If you’d like to find an online meetup that feels right for you, follow the link in the comments below:

19/10/2026

What does the Government’s new brain cancer announcement actually mean for people affected by a brain tumour?

There’s a lot to welcome, but we know policy announcements can still leave you asking one simple question:

What does this actually mean for me?

We’ve broken down the key commitments, what could change, what won’t change overnight, and what happens next.

Swipe through to find out more. ➡️

If you’re affected by a brain tumour and need support:

📞 01983 292 405

✉️ [email protected]

16/10/2026

This Wear Grey month we're challenging everyone to raise £79 through an activity of their choice. Whether you're baking, cycling, or hosting a quiz, you'll be helping raise awareness, and supporting people affected by brain tumours. 🧠

Every day 79 people are diagnosed with a brain tumour*. We want to turn that statistic into action by bringing people together for a month of challenges, fundraising and community support.

You can learn more and get some ideas for your own challenge at the link in our Bio and our comment.

Thank you Rachel S for taking on this years Wear Grey challenge, we're glad and grateful to have you on board!

*79 brain tumours diagnosed every day accounts for both primary brain tumour diagnoses and brain metastases.

15/10/2026

Today belongs to Archie Goodburn. 🩶

This is a landmark moment for our community. Following Archie’s meeting with the Prime Minister and Health Secretary, the Government has announced a new package of commitments aimed at getting new brain cancer treatments from research to patients faster.

This includes an immediate expert review and national action plan, a dedicated national brain cancer clinical lead, action to speed up access to promising new treatments, and a new drive to help more people find and take part in clinical trials.

Since his diagnosis, Archie has spoken with extraordinary honesty about living with brain cancer. He has challenged why trials available elsewhere in the world are not always reaching patients in the UK, and called on the Government to act.

Today, that voice has been heard at the highest level.

Will Jones, Chief Executive of brainstrust, said:

“This is a landmark day for everyone affected by a brain tumour. Today’s steps show what happens when a community speaks with one voice and Government listens.”

We’re hugely grateful to Archie for the courage and determination he has shown, and to the patients, families, clinicians, researchers and charities whose work over many years has helped bring us to this point.

Today brings real hope. Hope of new treatments reaching people faster. Hope of more people being able to find and join clinical trials. And stronger national leadership to help turn progress in research into meaningful change for patients.

Archie’s story is also a powerful reminder that your voice matters.

Today’s announcement is an important beginning. Now the work is to make sure these commitments translate into change that people affected by a brain tumour can see and feel.

Read our full response via the link in the comments below.

14/10/2026

Chris Rigg is taking on the Wear Grey challenge, are you? 💪

This October, we're inviting EVERYONE to take on the £79 Wear Grey challenge.

Every day, around 79 people are diagnosed with a brain tumour*. We’re turning that statistic into action by bringing people together for a month of challenges, fundraising and community support.

Raise £79 in the way that works for you. However you do choose to take part, you’ll be helping raise awareness and support people affected by brain tumours.

You can learn more and get some ideas for your own challenge at the link in our Bio and our comment.

*79 brain tumours diagnosed every day accounts for both primary brain tumour diagnoses and brain metastases.

13/10/2026

Back in August, so many people were moved by Archie Goodburn’s honesty when he spoke publicly about the reality of living with brain cancer.

Soon, he’ll take that voice into a meeting with Prime Minister Andy Burnham.

For Archie, this is deeply personal. But the issues he has been speaking about, from better access to clinical trials to greater investment in brain tumour research, will feel familiar to many people across our community.

We know how much courage it takes to keep speaking up while living with the uncertainty of a brain tumour diagnosis.

So ahead of the meeting, we simply want to say:

We’re right behind you, Archie. 💙

Whatever comes from the conversation, thank you for continuing to use your voice for people affected by brain tumours.

12/10/2026

Feeling lucky? 💰️

Enter the brainstrust Lottery and you could win a big cash prize!

Every ticket helps fund vital support for those affected by brain tumours.

Follow the link in the comments below to get involved:

09/10/2026

🚴 They’re off! 🚴

This morning, Beth, along with her partner Lee and friend Carl, set off on an incredible 200-mile cycle from Coventry to the Isle of Wight, raising funds for brainstrust as part of our Wear Grey 2026 campaign.

Since being diagnosed with an acoustic neuroma, affectionately named “Pinky”, Beth has found comfort in the support brainstrust offers to patients, their families and friends. Now, she’s taking on this epic challenge to help make sure that support is there for others facing a brain tumour diagnosis too.

Beth, Lee and Carl are due to complete their challenge and reach the Isle of Wight on Monday afternoon, what an incredible few days they have ahead of them!

A huge thank you to all three of you for taking on this challenge and helping to raise vital funds and awareness for brainstrust. We’re incredibly grateful for your support.

From everyone at brainstrust, we’re wishing you safe travels, strong legs and lots of luck for the miles ahead!

We’ll be cheering you on every pedal of the way! 👏

If you'd like to donate to Beth's challenge, you can follow the link in the comments below.

08/10/2026

The public places for the 2027 Manchester Marathon sold out in 10 days. if you missed out, we could help. We have a limited number of charity places for the UK's second biggest marathon. So, if you'd like to run, what is allegedly Britain's friendliest marathon, and raise money for our cause, please click on first link in comments.

07/10/2026

The Barcelona Marathon (March 14th 2027) is one of most popular marathons in Europe. The course is fast, flat and passes such landmarks such as the Camp Nou and the Sagrada Familia. Places are at a premium, however we have a limited number of places at brainstrust. If you'd like to have an amazing experience whilst supporting our cause, please click on link in comments.

Address

4 Yvery Court, Castle Road
Cowes
PO317QG

Telephone

+441983292405

Website

http://www.brainstrust.org.uk/

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