Balance Therapy

03/10/2026

Looking forward to supporting the summit again this year. Always a privilege 🥰 and an honour to be asked ✨️.

"It's just the best place for meeting new families and sharing experiences. Everyone there just gets it – it’s a space where you don’t have to explain everything and that shared understanding is incredibly powerful – you will laugh, cry and learn together."
Previous Conference Attendees

The Action Duchenne Community Summit 2026 is much more than a programmes of talks.

Throughout the weekend attendees you'll also have access to:

- One to one information and support sessions with experts and professionals (booking details still to come)
- Dedicated interactive activities and spaces for children and young people
- Parent, grandparent and peer-support opportunities
- Exhibitor showcase
- A Wellbeing space designed for parents and carers
- A special celebration of Action Duchenne's 25- year journey alongside the community
- An opportunity to share experiences and build connections

Everything you need. Everyone who understands. All in one place.

Registration CLOSES on FRIDAY 23rd October.
✅ Family tickets are FREE
✅ No family will pay more than £350 for a two-night stay at Burleigh Court (FIND OUT MORE ABOUT OUR ACCOMMODATION PRICE CAP ON OUR WEBSITE)
REGISTER: https://www.actionduchenne.org/action-duchenne-community-summit-2026-previously-international-conference/

We extend our sincere thanks to our Diamond Sponsors, Santhera, ITF Pharma UK, Entrada Therapeutics and Platinum Sponsor, Sarepta Therapeutics for their generous support, which contributes significantly to the delivery of this event.
Please note: The Action Duchenne Community Summit 2026 has received financial support from our sponsors. Sponsors have no involvement or influence in the design, content, speaker selection or delivery of the programme.

06/07/2026

Registration is now open 🫶

18/04/2026

What do you do when the children begin to be more independent?

What do you do with your time?

Recently I've been trying to think of activities that I'd like to try, especially when I have free time.

It's actually harder than you think!

But, the universe heard my thoughts and I saw my friends post about " bring a friend week" to crossfit. After lots of umming and arring, I decided to give it a whirl.

Aching 🙌
Enjoyed it 🙌
Proud 🙌
Going again ? 🙌

Do it ! What have you to lose?

Jodi Simmerson

30/03/2026

Boy balance had the perfect treatment with this beautiful person Ebb & Flow Intuitive Healing . Aromaflexology and reiki. Allowing his busy brain to switch off. I love this treatment for him, as it really does reset him and rebalance's him.

16/02/2026

Its been a while - Mr Boots is waiting for the nicer weather. Today he came out to enjoy pizza and a movie with the boys 🐰🍕

13/02/2026

After today's weather , who is looking forward to this 👇? 🙌 me !!

For those who have been struggling with the darker evenings, remember that lighter days are coming.

Everybody is different, but spring and summer can be a welcome sight for lots of people.

cruse.org.uk

10/02/2026

Over the past 6 months I have been learning my role as an Occupational Therapist within a SEMH school. Trying to understand sensory differences and how best to support the child to access school and lessons. Today, I had a break through. Working with a child who doesn’t understand what their body feels. But they know their head is busy all of the time, they are hypervigilant and cannot sit.

Over a few weeks, we've done sensory circuits, lots of movement, deep pressure. Today we used this 👇, put a peanut ball and small yoga ball in and they rested on a bean bag. Asked for the light to be turned off, mood light turned on and 5 minutes later they were fast asleep.
Safety, containment and deep pressure! Game changer for this dude 🙌.

06/02/2026

Great training day at the cotswolds academy. Best thing about a course, is being a client and having the treatment done to yourself 🙌. Very excited to bring this treatment to Balance Therapy 😀

03/02/2026

✨️New treatment coming to the therapy room ✨️
Having just experienced this treatment myself, I can say, I'm really looking forward to using this in treatments for others.
As usual my mother will be the guinea pig 🤣! Barbara Hackett

31/12/2025

Happy New Year from the balance family!

I wish you all a healthy 2026. Thank you for your support throughout 2025.

This year has been about finding balance. Trying to do what makes me happy. I have taken opportunities that have scared me, and I have been trying to say "no" when something hasn't felt right ( working on this one 😅) . In 2026, I continue to run balance therapy but at a reduced capacity 😊.

Follow your dreams.
Remember you have options.
You only die once ... so live life.
Learn to say no and make time for yourself.

Much love ❤️