Give Holly Hope

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Give Holly Hope Holly's Neuroblastoma Journey
Raising funds to enable any future treatments not available on the NHS
Parent managed account. Only account

10/10/2026

πŸ’› **A PokΓ©mon kind of day!** ⚑️

Today has been a family pyjama day at home, keeping cosy and staying out of the rain. πŸ‘πŸŒ§οΈπŸ’›

So, naturally, it turned into a full-on **PokΓ©mon day!** πŸ˜‚βš‘οΈ

We've been watching PokΓ©mon and having a good sort through Holly's ever-growing card collection. But Holly had a new idea... she wanted to start her very own **PokΓ©dex-style binder!** πŸ“šβœ¨

The plan? To collect and organise the cards by generation, just like a real PokΓ©dex, so she can see which PokΓ©mon she already has and which ones she's still hoping to find. πŸ₯ΉπŸ’›

**Generation 1 is sorted!** βœ…βš‘οΈ

Now Holly has a list of all the cards she's missing and a new PokΓ©mon mission to work towards! πŸ˜‚πŸƒ

And, of course, we had to finish with her favourite card of all... **MEW!** πŸ’—βœ¨

It's lovely seeing her get excited about something she loves, making plans and having those simple, cosy family days at home. πŸ’›

Right, who's got any tips for completing a PokΓ©mon PokΓ©dex binder? Holly might have a few cards to hunt down! πŸ‘€πŸ˜‚

πŸ’› **Help us keep every possible option open for Holly:**
https://www.justgiving.com/campaign/hollyscampaign

πŸ’› **A little Holly update** πŸ’›This morning we had the community nurses visit to check Holly's bloods, followed by a littl...
09/10/2026

πŸ’› **A little Holly update** πŸ’›

This morning we had the community nurses visit to check Holly's bloods, followed by a little colouring-in session. 🎨πŸ₯°

She's still feeling nauseous, but the BIG news is that **she hasn't vomited for the last two days!** πŸ™ŒπŸ’› After the last few days, we'll definitely take that as a win!

She does have a rather annoying, tickly cough at the moment, but otherwise she's been feeling well enough that this afternoon she decided she wanted to go into school for a couple of hours to see all her friends and teachers. πŸ«πŸ’›

She also got to say thank you in person for the lovely card her classmates made for her. And of course, Holly being Holly, she couldn't just say thank you... she had to make something for them in return! πŸ₯ΉπŸ’Œ

Then came the big family discussion of the day...

**Everton FC is up for sale, and Holly has decided Daddy should buy them!** πŸ˜‚πŸ’™

When we asked about using some of her money, she was having absolutely none of it!

Her response? **β€œMy money is just for toys!”** πŸ˜‚πŸ§Έ

Well, that's that settled then! Looks like Daddy will have to find the money elsewhere! πŸ’™πŸ˜‚

On a more serious note, it really does remind us why we're fundraising so hard for Holly. We want to give her access to other potential treatments and clinical trials, some of which can cost hundreds of thousands of pounds.

We don't know what options we'll need in the future, but we want to make sure we can explore every possibility available to her. πŸ’›

For now, we're celebrating no vomiting, a couple of hours at school and a little glimpse of our happy, cheeky girl.

And Daddy buying Everton? We'll leave that one for another day! πŸ˜‚πŸ’™

πŸ’› **Help us keep every possible option open for Holly:**
https://www.justgiving.com/campaign/hollyscampaign

πŸ’› A day at home recuperating πŸ’›Today has been another quiet day at home for Holly as she continues to recover from her fi...
08/10/2026

πŸ’› A day at home recuperating πŸ’›

Today has been another quiet day at home for Holly as she continues to recover from her first cycle of BIT therapy. πŸ’›

She wasn't quite up to logging onto school through her AV1 robot today, so we've kept things very chilled and let her little body rest. πŸ₯°

The good news is... food is starting to become a little more interesting again! πŸ™ŒπŸ’›

Last night, Grandma made a big pot of scouse, so Holly and Mummy headed straight over for a bowl. πŸ₯”πŸ₯•πŸ₯©πŸ˜‚

And today we went for another proper British classic...

🍳🍟 Egg and chips! πŸ˜‚πŸ’›

Nothing fancy, but after days of barely wanting anything, seeing Holly show an interest in food feels like a little victory.

And the biggest win of all...

No vomiting so far today! πŸ™ŒπŸ₯ΉπŸ’›

We're definitely not taking that for granted!

Tomorrow morning the community nurses are coming to check Holly's bloods, so we'll see how her counts are looking after the first cycle.

For now, we're enjoying a quiet evening at home, keeping the snacks coming and hoping this little appetite continues to return. πŸ’›

One day at a time. πŸ₯ΉπŸ’›

πŸ’› Help us keep every possible option open for Holly:
https://www.justgiving.com/campaign/hollyscampaign

γ‚šviralγ‚·

07/10/2026

πŸ’› A little Holly update πŸ’›

This morning we were back on the day ward for Holly's weekly dressing change - and, of course, she absolutely smashed it again! πŸ’ͺπŸ’›

Because she's been struggling over the last few days with vomiting, very little appetite and her energy being so up and down, the team also checked her bloods.

They wanted to make sure Holly wasn't becoming dehydrated and to check whether she needed any blood or platelet transfusions after such a tough few days.

Thankfully, we got some really reassuring news. πŸ₯°

Her bloods are all looking good and she's well hydrated, so at the moment everything she's experiencing appears to be down to the side effects of her chemotherapy.

It's always a relief to get that reassurance. πŸ’›

And after a pretty rough few days, Holly brightened up this afternoon...

Because apparently the perfect medicine is a dance with a dancing llama! πŸ˜‚πŸ¦™πŸ’ƒ

And yes... Holly absolutely had to join in! πŸ₯ΉπŸ’›

It's lovely to see those little flashes of her usual cheeky, happy self coming through.

One day at a time. πŸ’›

πŸ’› Help us keep every possible option open for Holly:
https://www.justgiving.com/campaign/hollyscampaign

❀️❀️

πŸ’› A day at home πŸ’›Today has been a quiet one at home, with Holly feeling really tired and still dealing with the side eff...
06/10/2026

πŸ’› A day at home πŸ’›

Today has been a quiet one at home, with Holly feeling really tired and still dealing with the side effects from chemotherapy. πŸ’›

Her appetite has almost completely disappeared, so we're managing her NG feeds alongside all her medications and anti-sickness medicines, trying to keep everything going while her tummy isn't cooperating.

Days like today can be some of the hardest as a parent.

It's the constant clock-watching - keeping track of medication times, working out when to give feeds, changing the feeding plan if Holly is sick, making sure she's getting enough fluids and nutrition, and keeping a close eye on her temperature in case an infection starts. πŸŒ‘οΈπŸ’›

There's always that little voice in the back of your mind wondering, β€œIs this just the treatment, or is something else starting?”

So today has been about keeping Holly comfortable, watching her closely and doing everything we can to manage her symptoms safely at home. If she's feeling okay, we rest. If she's sick, we adjust the plan. And if anything worries us, we know we need to get her checked.

But amongst all the medication schedules, feeds and worry, Holly had a lovely little boost today. πŸ₯ΉπŸ’›

Her school friends had put together the most beautiful card and presents for her, with a special message from each of her classmates on every page. πŸ“šπŸ’ŒπŸŽ

It was so lovely seeing Holly read all their messages and knowing how much her friends are thinking about her while she's at home recovering. πŸ’›

Tomorrow we're back to Alder Hey for her dressing change and a review, so we'll see how she's doing and take it from there.

For tonight, it's pyjamas, cuddles, rest and taking things one hour at a time. πŸ₯ΉπŸ’›

Sometimes getting through a day at home is an achievement in itself.

πŸ’› Help us keep every possible option open for Holly, please keep sharing:
https://www.justgiving.com/campaign/hollyscampaign

πŸ’› Home from hospital πŸ’›After being in hospital since this morning, we're finally home. πŸ‘πŸ’›Holly is still feeling quite sic...
05/10/2026

πŸ’› Home from hospital πŸ’›

After being in hospital since this morning, we're finally home. πŸ‘πŸ’›

Holly is still feeling quite sickly today and definitely feeling the effects of her treatment, but thankfully her blood counts are doing well, which is really positive news. πŸ₯°

She also had her NG tube replaced today. With her appetite still being really poor and her tummy not tolerating food very well, the NG tube is important for helping us give her the nutrition, fluids and medicines she needs while she's struggling to eat and drink enough herself. πŸ’›

Tonight is all about rest, cuddles and hopefully getting her feeling a little more like herself.

Tomorrow we'll see how she wakes up and how she's feeling. She might catch up with her school class through her AV1 robot πŸ€–πŸ“š, or if she's feeling up to it, perhaps pop into school for a little while.

As always, we'll be guided by Holly. πŸ’›

If she's tired, she rests. If she's feeling good, we'll make the most of it.

One day at a time. πŸ₯ΉπŸ’›

πŸ’› Help us keep every possible option open for Holly:
https://www.justgiving.com/campaign/hollyscampaign

❀️❀️

04/10/2026

πŸ’› A little update from yesterday... πŸ’›

After a difficult end to Cycle 1, some IV anti-sickness medication and fluids through Holly's central line finally got the vomiting under control. πŸ™πŸ’›

She also tolerated an NG feed, so we were able to bring our little Elsa home - although it was a very late one! πŸ₯ΉπŸ‘

Her appetite even picked up enough for some plain pasta before bed, and this morning she woke up hungry and enjoyed some buttery toast. πŸ₯°πŸž

Today she's definitely feeling the effects of treatment and is completely wiped out, so it's pyjamas, sofa, rest and lots of cuddles with Mummy and Daddy. πŸ’›

Cycle 1 is done. Now we rest and recover. πŸ’ͺπŸ’›

And while Holly gets through treatment, we're continuing to fundraise because we want to make sure that if there is a treatment or clinical trial that could help our girl, money never becomes the reason we can't explore it.

Holly is worth every possible chance. πŸ’›

If you can donate or share her story, we'd be so grateful.

πŸ’› https://www.justgiving.com/campaign/hollyscampaign

πŸ’™πŸ’› GOOD LUCK, TONY! πŸ’›πŸ’™Today, Tony is taking part in the Everton 10K to raise money for Holly! πŸƒβ€β™‚οΈπŸ’™Tony, we've never eve...
04/10/2026

πŸ’™πŸ’› GOOD LUCK, TONY! πŸ’›πŸ’™

Today, Tony is taking part in the Everton 10K to raise money for Holly! πŸƒβ€β™‚οΈπŸ’™

Tony, we've never even met, yet you've chosen to lace up your trainers, take on this challenge and raise money for our little girl. πŸ₯ΉπŸ’›

We honestly can't thank you enough.

It's people like you - people who hear Holly's story and decide they want to help - who remind us just how amazing people can be. πŸ’›

We hope you have an amazing run today, Tony! Give it everything you've got and know that every step is helping Give Holly Hope. πŸ’ͺπŸƒβ€β™‚οΈ

GOOD LUCK! πŸ€πŸ’›

Want to support Tony and Holly? You can donate here:

https://www.justgiving.com/page/lisa-lowe-3

Every donation, no matter how big or small, makes a difference. πŸ’›

Help Lisa Lowe raise money to support Solving Kids’ Cancer UK

03/10/2026

πŸ’› BIT Cycle 1 - Day 5 of 5 πŸ’›

Holly - or should I say Elsa today! β„οΈπŸ‘‘ - started the day really bright and full of energy. πŸ’›

Her appetite has really disappeared with the treatment side effects, so we topped her up with some nutrition through her NG tube before heading into hospital.

As it's the weekend, the day ward is closed, so we came onto the main ward for Day 5 - the final day of Cycle 1! πŸŽ‰πŸ’›

Unfortunately, since having her treatment, Holly has become very unwell with persistent vomiting. She hasn't been able to keep anything down, even when there is nothing left in her stomach and she's just bringing up bile. πŸ˜”

Because she's losing fluids through the vomiting and isn't able to drink or have anything through her NG tube, the doctors have started her on IV fluids through her central line. These will help replace the fluids she's losing and keep her hydrated while we're trying to get the vomiting under control.

Holly normally has anti-sickness medication, but she can't have another dose until 6pm.

At 6pm, the team are going to give her anti-sickness medication directly through her IV instead of through her NG tube. This is important because, with Holly being sick so frequently, we can't be confident that medicine given through her stomach would stay down long enough to be absorbed properly.

Giving it through her IV means the medicine goes straight into her bloodstream, so we know she's getting the full dose and we're hoping it will work more effectively. πŸ’›

Once she's had the IV anti-sickness medication, we'll give it some time to work and see whether the vomiting settles.

If it does, we'll then carefully try some nutrition/medication through her NG tube and see if she can keep it down.

🀞 If all goes well, we'll hopefully be able to get Holly home later tonight.

If she's still vomiting and can't keep anything down, she'll need to stay in hospital overnight for continued IV fluids and monitoring, with the doctors reviewing her again in the morning.

It's certainly not the end to Cycle 1 we were hoping for, but Day 5 of 5 is nearly done - and Holly has absolutely smashed her way through this first cycle. πŸ’ͺπŸ’›

Now we just need to get our girl feeling better.

Come on, Elsa... let's get those anti-sickness superpowers working! β„οΈπŸ˜‚πŸ’›

πŸ’› Help us keep every possible option open for Holly:
https://www.justgiving.com/campaign/hollyscampaign



Solving Kids' Cancer
Disney
Frozen

πŸ’› BIT Cycle 1 β€” Day 4 of 5 πŸ’›The chemotherapy side effects are still taking their toll on Holly today. πŸ’›She's been very u...
02/10/2026

πŸ’› BIT Cycle 1 β€” Day 4 of 5 πŸ’›

The chemotherapy side effects are still taking their toll on Holly today. πŸ’›

She's been very up and down throughout the day, with fatigue and feeling unwell, and unfortunately has been sick again today. πŸ˜”

But despite all that, Holly still manages to give us a thumbs up and say, β€œI'm fine.” πŸ₯ΉπŸ‘πŸ’›

This morning she wasn't quite feeling up to joining her school classes through the robot, so before heading to hospital we popped into school to swap her reading books. πŸ“š

Holly then decided she couldn't possibly leave without popping into her classroom to say hello to her friends...

And, well... that quickly turned into an unplanned little half hour at school! πŸ˜‚πŸ’›

She sat at the table, chatted away with her friends and, of course, couldn't resist getting involved with what everyone else was doing.

It was so lovely to see her face light up β€” and judging by the smiles in the classroom, it brightened their day too. πŸ₯ΉπŸ’›

Sometimes the smallest, unplanned moments mean the absolute most.

Day 4 nearly completed, followed by plenty of rest and cuddles when we get home. πŸ‘πŸ’›

Just one more day of Cycle 1 to go, Holly. πŸ’ͺπŸ’›

πŸ’› Help us keep every possible option open for Holly:
https://www.justgiving.com/campaign/hollyscampaign

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