25/09/2026
Meet Jodie and Nicki, the mother-and-daughter team behind our Fundraising Ball
Jodie and her mum, Nicki, both live with APS and are generously volunteering their time to organise the Hughes APS Trust Fundraising Ball on the 14th November.
They are pictured here at a previous fundraising ball they organised in support of LUPUS UK. Following the success of that event, they are now bringing their experience, enthusiasm and hard work to create a very special evening for Hughes APS Trust.
When Jodie was just 17 and sitting her A-level exams, she became critically unwell. After six months of repeated hospital admissions involving multiple organs, an echocardiogram revealed a large mass filling the right atrium of her heart.
Jodie underwent life-saving open-heart surgery. The mass, initially believed to be a benign tumour, was later found to be a blood clot caused by APS.
Jodie now takes warfarin and has regular blood tests as part of managing the condition—an experience that will be familiar to many patients and caregivers in our community.
Continued research is essential to improve and expand the treatment options available to people living with APS.
Motivated by their experiences, Jodie and Nicki hope the ball will raise vital funds to support patients and families, improve awareness and understanding of APS, educate healthcare professionals and encourage research into better treatments.
Swipe through to see how you or someone you know could help, from donating a raffle or auction prize to sponsoring part of the evening.
We know not everyone will be in a position to contribute, but sharing this post with friends, family or local businesses would also make a real difference.
To help please email - [email protected]
Thank you, Jodie, for sharing your story—and thank you to both Jodie and Nicki for everything you are doing for our APS community.
hughesapstrust.org
