24/10/2026
“But you look fine.” If you live with hEDS or HSD, you’ve heard it. Probably this week.
Hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum disorder (HSD) can be invisible disabilities. Unstable joints, chronic pain, fatigue, brain fog. Many people also live with POTS or MCAS. Very little of it shows.
Most people who say “you look fine” mean well. It still stings when the people closest to you can’t see what you’re dealing with.
For Invisible Disabilities Week, swipe through to see what might be going on behind the moments people notice.
Save it for the next time you’re asked to explain, or send it to someone who wants to get it.
What’s one thing people don’t see about your day? Tell us in the comments.
The Zebra Club brings together movement, expert support and people who understand hEDS and HSD. Link in bio.