15/09/2026
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One of our core values as a charity is to represent the patient voice as strongly as we can. The consultation on the upcoming NICE Guidelines for PMOS was no exception.
There's power in numbers, so we asked you to complete a fairly detailed survey giving us your feedback on the draft guidelines — so we could feed that back alongside the charity's own views.
Here's just a few highlights of what you told us:
💜 78% say the draft guidelines improve on the care you get now
💜 94% don't believe they will actually be delivered
💜 97% say excess hair, hair loss and acne are medical — not cosmetic
💜 Of the 210 of you who wanted a GLP-1 medicine, 4 got one on the NHS
💜 91% of respondents from global majority backgrounds want BMI thresholds adjusted for ethnicity
💜 Only 7 of 315 had ever been asked whether your beliefs affect your treatment
💜 65% have paid privately for care the NHS wouldn't fund
What came out was evidence so strong we wanted to make sure it gets noticed. So we've poured it all into a full and detailed report, which we're now sharing with the APPG for PMOS and with the people who make policy, pathway and funding decisions.
You can read, download and share the full report here 👉 www.verity-pcos.org.uk/nice-consultation
The official NICE Guidelines for PMOS are expected in December. When they land, you can bet we'll be analysing them to see how the community's feedback was considered, and what they mean for PMOS care going forward.
Thank you to every one of you who took part.
The Verity team 💜
